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H1N1 Swine Flu - A Personal Account of Symptoms & Recovery Time

Updated on October 24, 2014

H1N1 Swine Flu Symptoms - A Personal Viewpoint

Last year talk about the H1N1 Swine Flu pandemic was everywhere, then it all died down and it seemed that this Flu Virus had fallen off the radar. Unfortunately, it seems that H1N1 is back and possibly stronger than in previous years. We've all seen a list of possible symptoms of the H1N1 virus, but what is it actually like to have swine flu, what is the incubation period, how long does it take to recover and what is the H1N1 symptom progression? I'm sharing mine and my families' experience of swine flu symptoms and recovery to try to answer these questions for you.

I've been updating this article from the first day I came down with swine flu to try and impart a more personalised view of the experience. (You'll find the updates at the bottom of the article.)The media has provided the hard facts but seems to have ignored the human side of the pandemic, so my aim is to address this imbalance and to give you, the reader, another perspective.

H1N1 Swine Flu - Symptoms Day 1

I'm sitting here with my limbs aching, a very sore throat, a swollen epiglottis, a temperature of 102, chills, extreme sweating, head ache, snotty nose and pain in my joints. I'm feeling weak, drowsy and tired and it hurts to move. I'm not sure I agree with the media's and governments description of this virus as a mild illness with mild symptoms - I haven't felt this ill since the last time I had flu in 1995.

I've been asleep on and off all day. Some other symptoms I've noticed are frequent urination (God, it's hard to get up them stairs!), numbness in my fingertips, an inability to lay still, waking frequently in the night and pain in my sinuses.

To be honest it's hard to concentrate and I doubt this piece of writing will be my finest work, but I wanted to share with others what it's actually like to have swine flu and how to diagnose yourself or your children.

Swine Flu Incubation Period

It's kind of a weird virus. My youngest daughter has had it first and I've been home from work this week looking after her. About 6 days before she got the virus proper she had a slight temperature for a couple of days.

Looking back I had the same symptom around 6/7 days ago. This must be the actual start of it and it takes that long to get really into your system. Or in other words the incubation period of the virus. No wonder it's spreading so quickly - for the first week you don't even know you've got it.

Once the H1N1 virus has incubated for it's 6 or 7 days it comes on suddenly. I went to bed last night with a slightly sore throat. I woke in the night with all the symptoms I described above. Thank God my husband is off work for two days to look after our little one! Hooray for train strikes!

Update: My husband came down with it 10 days after I did.

Anti Virals - Tamilflu and Relenza

To take them or not to take them - that is the question on my mind right now. For my little one I chose not to get them even though I did the NHS online questionnaire and got a code number to pick up some Tamilflu for her. After reading about the potential side effects of vomiting and diarrhea I decided she just wasn't ill enough to warrant that risk. I think it was the right decision. She's on day 7 now since the worst of the symptoms came on and she's pretty much better.

But for me, I'm still not sure what to do. I know I'm not as healthy as my four year old and I have a tendency to get chest infections after a cold or flu virus. I've heard that's when it can get dangerous - when it gets into your lungs. The problem is there really isn't anyone to talk to about it (as of August 2009). The advice is not to go to your GP. NHS direct just send you through to the Swine Flu Pandemic Hotline and they're taught (as far as I know) to just hand out Tamiflu. They aren't trained medical people - it's just a call centre.

So it still leaves me with a decision I haven't got the energy to make!

Reported Symptoms of H1N1

  • High Temperature
  • Chills
  • Exhaustion
  • Lethargy
  • Aching Muscles & Joints
  • Sweating
  • Sore Throat
  • Vomiting & Diarrhea
  • Runny Nose & Catarrh
  • Cough
  • Headache
  • Lack of Appetite

 

Updates on H1N1 Symptom Progression and Recovery

Before I go lay down and watch rubbish on the TV remember this is only day one for me. I'll come back and update you with any further symptoms I discover and what I decided to do about the anti virals.

Flu Symptoms Day 1 - 31/7/09

I did decide to take anti virals. My husband dutifully called the national pandemic flu number and then arranged to get them form a local hospital. He is known as my "Flu Friend," a term made up by the British government to stop flu infected people going out. So far I haven't felt sick or had any other side effects - hooray!

This is very, very hard to write. Right now, I am sweating profusely and experiencing what I think is the worst symptom of this Flu - continually aching muscles and joints. My hip joints have been constantly aching for hours and it's so hard to get comfy. The paracetamol barely touches it.

Flu Symptoms Day 2 - 1/8/09 a.m.

I'm surprised to say that I think the Tamiflu is definitely helping. I haven't felt quite as bad today - no chills and far less aching, though it's certainly not over yet. I've been in bed all day, so still not able to be up and about doing things. The swollen throat is still there big time even through the painkillers I can still feel it.

Woke up this morning after only 3 hours sleep finding it a bit of a struggle to breathe through my massively swollen throat - a bit scary!

1/8/09 p.m.

It's late evening and while my throat is still pretty swollen and sore it's nowhere near as bad as this morning. Most of the symptoms have died down - looks like I've had the worst of it :) Fingers crossed that there won't be any secondary infection!

Flu Symptoms Days 3,4 & 5

The main symptom over the last few days has been an excrutiatingly painful sore throat. It feels like I have big lumps of glass in my throat and it hurts to swallow anything. It seemed to get better for a little while and then it came back with a vengeance! It hurt so much that I admit to having a little cry and feeling very sorry for myself!

I have been getting 2 or 3 hours sleep at a time, so my routine is all over the place. I'm up at silly times in the night and sleeping at odd hours of the day. The reason for this is that I'm waking up from the pain in my throat and it's impossible to get back to sleep - I need hot drinks! This is a bit manky but I'm waking up with green/yellow snot encrusted all over my tonsils, tongue and epiglotis (the dangly bit at the back) - it's nasty!

The aches and chills have gone. Still snotty and headachey.

My little one went back to nursery on Tuesday (my day 5, her day 11). She has a peak in temperature on day 9/10 and took her to the doctors but they said that was quite normal as your body fights the last of the virus. She's still got a bit of a runny nose, but all the main symptoms have subsided.

Flu Symptoms Days 6 & 7

Had my first good nights sleep last night in a week - hooray! My throat is still sore but no where near as bad as it was. All the snot seems to be coming out now, so I'm blowing my nose a lot. I'm going to stay off work the rest of this week and hopefully by Monday I'll be fighting fit and ready to go back. At the moment there's no sign of a secondary infection which I am very happy about - normally with flu or a bad cold I get a chest infection afterwards but my chest feels clear. I wonder if that's down to the Tamiflu? That's one of the things they say about it, is that it reduces your chances of getting a secondary infection.

Flu Symptoms Days 8,9 & 10

Still not feeling brilliant, but I have slightly more energy that I have had. Still snotty - which is bright yellow, mmmmm nice lol :) Still have a bit of sore throat and I'm getting a bit of a chesty cough now. Not sure if I'm going to be up to a full days work on Monday - I may need a few more days to recover. My little one is still very snotty as well and still not quite her normal self.

Husband has come down with Swine Flu

After having swine flu in the house for over 2 weeks we thought my husband had escaped it somehow. Unfortunately he's not that lucky. He was not feeling well yesterday evening and today he's woken up with all the classic symptoms - sweating profusely, aching joints and muscles, sore throat, frequent urination, aching teeth & ears, temperature.

I've just completed the swine flu questionnaire and been given a number so I can collect Tamiflu for him. Only problem is the collection point is 10 miles away and I don't drive!

Update

My husband started taking the tamiflu straight away and he recovered a lot more rapidly than either myself or our daughter. He was off work for a week, though was feeling markedly better by day 4/5. It just shows you how each person's experience of H1N1 swine flu will be slightly different, as will their symptoms and recovery time.

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    • ncuxapa_ profile image

      ncuxapa_ 6 years ago

      Swine flu is like the ordinary virus, isn't it?

    • Susana S profile image
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      Susana S 7 years ago

      I think you're the moron Beavis - when this was written there was no Swine Flu vaccine!

    • profile image

      Beavis 7 years ago

      You guys are all morons. If you had bothered to get the vaccine, you wouldn't have had any problems..... like me!

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      pksmdrag 7 years ago

      Hi Diana - sorry it has taken me so long to get back on here. Would you be interested in doing regular e-mail?

      Kim

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      Diana 7 years ago

      Hi Kim, I'm so glad to hear your daughter is now riding her bike that's some progress.When I stand up my blood pressure goes up but when you have adrenal fatique when you stand up your blood pressure usually goes down weird! I'm back on 20mg of a steroid called cortef it's not as strong as prednisone I told them I didn't want prednisone again. They say that this medication works really well for adrenal fatique so I hope it's comes back to normal soon!!! I can't believe you are still on prednisone for 2-1/2 yrs. You must be used to it now though eh? I can see why your daughter is tired as well cause didn't you say her iron level is low as well. That's another thing that has been going up & down on me as well. Man I wish the government would read these hubs and study the after effects of H1N1 maybe they could come up with something better for your body to fight it off. If your daughter gets extremely tired and then wired and can't sleep regular hours. Get her cortisol levels checked cause with this you get tired about 9 o'clock but then your body fights it and then you can't sleep till about 1 or 2 am. You never feel like you get a full nights rest you wake up tired and want to go back to bed again. If she gets like this get her cortisol and acth levels checked she may be going through adrenal fatique from being sick so long. The doctors told me this isn't a normal blood test that they would usually test for unless someone asks out of the blue. I was just lucky that my pharmacist told me to get it done Thank god!!!! It only a simple blood test why not get her checked just in case. It may be shocking if she does have it and here she could have had the medication months ago for it. If she does the medication will give her more energy over time. Kim I would consider asking your doctor to test her for it. It happens to people that have been under a great deal of stress for a long period of time due to illness or people who have been on steroids for a long time and come off too fast. Keep in touch and let me know if you get her tested it would be interesting to know. Have a great summer and keep in touch!!! Always Diana

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      pksmdrag 7 years ago

      Hi Diana - good to see you again. It sounds like you are all dealing with some of the same stuff. I would agree that the hormones are messed up in my daughter too. We haven't tested for any of that yet. So, are you back on prednisone again or some form of that? How much are you taking? I have been weaning off of prednisone for 2.5 years now. I started off at 20 mg per day and am down to 2.5 mg. I take it because of my rheumatoid arthritis. I still hope to get off of it someday, but can live this way if I can't. My daughter has found that she can do some bike riding and is very happy about that. Her legs don't discolor then. She still finds it much more difficult to stand or walk. Still tires easily but is doing better. So, we are still working at her recovery!! She fell asleep on the couch the other day she was so tired! Does your heart rate go up when you stand or just changes in your blood pressure? Gotta run. Have a fun summer day.

      Kim

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      Diana 7 years ago

      Hi Kim, Sorry it took me so long to get back on here but I was going through a series of tests. I seen you and Kc talking about how out of energy your kids are and about table tests which I have never heard of. But are the kids getting dizzyness? Cause I just went and got my cortisol levels checked because of all the steroids I was on and all the medications I was on during the H1N1 and my adrenal glands were almost completely shut down and thats why I have been going through such fatique and then little spurts of energy but I was getting really dizzy in the head and my blood pressure would rise during those times but mostly my blood pressure kept dropping very very low. Most people are supposed to be between 85-650 and mine read 11. So my adrenal glands had almost shut down and this is something doctors don't usually test for. But my pharmacist said I should go to a endocrinoligist and get tested so I went to my doctor right away he tested me and I had to go to the hospital in Edmonton for more testing. Funny and kinda weird is that they put you on steroids to fix this problem that the steroids caused in the first place. But also long term stress is a big factor they said and when you're sick for so long you of course get stressed and this wears down the pituitary gland and the adrenal gland cause they function together. So now I'm back on steroids again and as it improves they will wean me off slowly so hopefully this doesn't ever come back. But they see this more often with people with asthma because of the inhaled steroids and the oral steroids that we have to take. So after all of that yes I still am very fatiqued at times and have now changed my diet to lots of fruits and vegetables and lots of protein and vitamin C that seems to curve and salt and sugar cravings. That's another thing with this you crave salts or sugars. And you have to try and eat 3 full meals a day and 3 nutrious snacks. A lot of food! No stimulants!! coffee is out of the picture for awhile! Dam!!! Thay also gave me rescue needles just in case I get sick at home I can inject myself and get to a hospital if extreme stress happens. Like you break a leg or do something really stupid to yourself knock on wood that will never happen!!! So that's it in a nutshell I guess it's called Addison's disease or Adrenal insuffiency. I can't believe we are still going through this in June almost July it has too go away soon!!!! I will keep all of you in my prayers . Take care and keep in touch! Always Diana

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      pksmdrag 7 years ago

      Hi KC and Diana - Hope this finds everyone doing better with their or their son's health issues. We did the tilt table test on Friday and it was positive. So my daughter has Postural Orthostatic Tachycardia Syndrome. Obviously we don't want that but if you know you are sick its nice to have a name to it. Don't know yet how we will try to treat that. She still has to have a sleep study done, but that isn't scheduled yet. Tomorrow is my son's last day of school for the summer. He's happy. I told him he could come home ans spend my birthday with me - he laughed!!! Well friends, write when you can. KC, I e-mailed you but not sure if you got that on Friday. Hope everyone is enjoying some nice summer weather.

      Kim

    • profile image

      KC 7 years ago

      Hi Kim - We start school in early Aug. It will be here before we know it and hopefully my son is ready. He had a tilt table test about a month a half ago to check his blood pressure for the dizziness. It all came back normal. I am glad your daughter feels better than she has. It is still frustrating though when they are not 100% and you keep spending time and money on doctors. Have a good one!

      KC

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      pksmdrag 7 years ago

      Good morning KC - It sure would be nice if your son feels back to normal when school starts in the fall. At least he would get off on the right foot! We start back to school on Aug. 25th. When do you guys start back to school? We aren't even out of school yet. School gets out here on the 21st. On one hand I hope the Tilt Table Test tells us something, but on the other hand, I hope she is fine!!! I really don't want her on any more medicines. The only thing she takes now is Lyrica for the fibromyalgia. It helps a lot. She still has pain, but its manageable. A sleep study should be scheduled today for sometime in the near future. I don't know if it will say anything other than she can't get to sleep!!! ITs so hard to figure out what is normal teenage sleep issues and what is related to the fibro and CFS, etc. I don't t hink my daughter is as bad as she was, but she still doesn't have a life. Her t.t.t. is on Friday, so I will let you know how that goes. Glad you got to the nice Florida beaches before the oil hit! What a mess! Have a great day.

      Kim

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      KC 7 years ago

      Hi Kim - We went to Destin in the panhandle. It was extremely hot and humid - more than any other time I have been to FL. It was just so nice and relaxing and very laid back. My son has started his online math course and is doing ok. He said the concentration issue is still there a little bit, but it's a whole lot better than it has been. It would be nice if he is back to 100% by the time school starts - that's my prayer. When does school start for your daughter? I know all about the stresses of dealing with the school, so hopefully it will go well and they will continue to work you. Let me know how the POTS testing comes out. Is your daughter on any medications for the CFS and fibromyalgia?

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      pksmdrag 7 years ago

      Hi KC - we just got back from another school meeting. It went fine today. She just finished up on her English. She will continue to work on geometry over the summer and will start physical education and health. Health is online and she will do the gym on her own. I don't think they want to pay for a tutor for that. We will meet again the day before school starts - so that will be a problem. Nothing will be in place for her to start when school starts, so....stress for mom!!! Well, I hope the exercise halps your son. Whereabouts in Florida did you guys go? One of my brothers and his wife lives in Tampa. We are trying to figure out if we can get down there to see them. Have to see how this summer tutoring plays out. No, I am not big on being in Florida in the summer!!! Well, keep me posted on your son's progress. I wish him well.

      Kim

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      KC 7 years ago

      Hi Kim - We have not tested for CFS. He recovers pretty quickly from activity - within that day which makes me think that CFS is not it. The ID doc says it's just going to take time from the mycoplasma infection. He will shoot some basketballs in the driveway and is supposed to start walking, riding a bike, etc for about 15 min. and see if that doesn't help his energy levels some more. We went to Florida a couple of weeks ago for a very laid back beach vacation (we needed a break) and he would go to the beach or pool a couple of hours and then watch TV or play a game until dinner. He was then fine to go out to eat and then a walk on the beach. He wants to be a mechanical engineer with hopes of going to Purdue. My brother happens to be one.

      KC

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      pksmdrag 7 years ago

      Hi KC - thanks for clarifying your son's grade for me. My husband is an engineer and my father (he's deceased) was an engineer. Stephen, my son who will be a senior in the fall, was going to be an engineer but had decided to go with his first love which is weather. At this point he would like to go to the University of Oklahoma or Texas A&M. I don't know what my daughter would have pursued except that I would have told you that she could have done anything. Now this illness has derailed everything. I know she can do something with her life, just not sure yet. We are still very optimistic for the best outcome possible. She still has her dreams which is good. Hey, I can't remember for sure but I thought you might have mentioned Chronic Fatigue Immune Dysfunction Syndrome. Have you had your son evaluated for that? It sure sounds like he could have that. Megan has CFIDS and fibro. She will be tested at the end of next week for POTS. And we are doing a sleep study on her (not scheduled yet) to see if there is anything we can do about her sleep. She appears to sleep ok once she gets to sleep. Just she comes to life in the evenings. What is your son's activity level now? Megan is still mostly housebound. She walks around inside ok. But if she does an activity outside like go shopping in the mall or bowling she pays a price. The three hours of shopping knocked her out for a week. So, we seem to have a long way to go. What type of engineering does your son want to go into? Is there anyone else in your family that does engineering for work? Good luck. Its another cloudy day in Connecticut and cool. Not our typical June. Have a great day.

      Kim

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      KC 7 years ago

      Hi Kim - My son was a sophomore this past year. The classes are full year courses, but you get one credit for each semester completed. He hopes to go to college for engineering. What about your daughter? If my son could just get past how tired he gets after some activity that would be great. He has got to be ready for school in Aug.

      KC

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      pksmdrag 7 years ago

      Hey Diana - hope you got some relief from the chiropractor! Are you exhausted at all or is your energy level ok? Do you sleep ok? How nice to have a beautiful lake within a few minutes of where you live!!! Its cool and rainy here today (and tomorrow). But that's ok, it will be very hot again real soon!

      Kim

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      Diana 7 years ago

      Hi Kim, It hasn't been as hot here yet this week but last week was beautiful and people keep asking me if I went somewhere for my tan. No just here in our small town of Bonnyville. I just wish it would get hot soon again I love the sun. Cross my fingers for the weekend weather to be nice. I'm glad Megan isn't in as much pain anymore next I hope she gets her energy back so she can be a kid again. Summerlin gets out of school on June 28th but for the next couple of weeks they are just doing all field trips and outdoor activities. School fun for the kids!! It will be nice when me & her get to spent a lot of time together hopefully we can do some visiting and going to the lake this year. We live 5 minutes from the lake so it's great. The doctors are sending me for a colonoscopy and a gastrophyscope. So hopefully after all these tests are done they can fix whatever needed fixing. And then I can get on with my life!!!! Crossing my fingers!!! Talk to ya soon off to the chiropractor. Always Diana

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      pksmdrag 7 years ago

      KC - I guess your son must have been a junior this year. I just realized he was taking the same classes as my son who was a junior this year! What does your son plan to pursue after high school?

      Kim

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      pksmdrag 7 years ago

      Diana, I'm back! Its good that you are going to have your heart checked out. My sister-in-law's brother got sick years ago (He's in his early 50's) and then they figured out later that the virus had damaged his heart. He has been on coumadin (blood thinner) for a number of years now. I am so happy that your daughter is doing well. The bright side of not having a job now is that you can spend some more time with her. Medical science has come a very long way and for all that they know I am so grateful. However, they still don't know a lot. There is so much to be learned about viruses and what they can do to all the different bodily systems. I hope you are enjoying nice weather these days. It was sunny and low 70's today. This whole week looks good and then it gets hot and humid for the weekend. I did get a small garden planted and some container pots. My RA has been a bit worse. Today I am hurting a lot more and feel so exhausted. Can't wait to crash tonight and hope that tomorrow is better. As a mother I breathe a lot easier when I don't see PAIN written all over my daughter's face. She lacks any real energy but at least she isn't suffering with so much pain anymore. Write when you can (soon). When will your daughter be out of school for the year? Vacation plans??? Get well soon.

      Kim

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      pksmdrag 7 years ago

      Hi Diana - sorry I just missed you. There is medicine out there for muscle spasms. I know how painful they can be. My mother has suffered terribly at times from muscle spasms in her leg after her stroke. She used to be on (maybe Rozerem - can't remember). Anyway, that stroke occurred 5.5 years ago and she still has spasms but not as bad. The medicine stopped working so they took her off of it. But it did help for many years. I am sorry that you lost your job. Most importantly, I hope you cna take this time to get better!! How is your fatigue level? Your blood pressure? Your heart rate? When do you go for the stress test? Good luck. I have to go do something, so I'll try to hop back on and write more later.

      Kim

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      Diana 7 years ago

      Hi Kim, So nice to hear from you again. Sorry to hear that Megan hasn't improved much since the last time we talked.I cannot believe we are still feeling the effects from this for me 7 months later and your poor daughter even longer. I have been through so many different infections and lung issues and muscle spasms in my upper back so bad. Sometimes they last all day and it's almost gets intolerable at times. I've been going for massages and chiroprator appt's so much and it's so expensive. But I don't know what else to do. I know what you mean by low ferritin levels mine is always low now it seems,sometimes it gets back up to normal on a good month. I am going for a heart stress test on June 17 & 18th just to check out my heart after all this sickness and all the upper back pain. I had to take a sickness layoff from my work so I'm not even working anymore.That was depressing cause I loved my job and all the people I worked with. So now I am sitting at home trying to deal with the stress of losing my job and the abdominal swelling that keeps happening, back pains in my muscles so back in the lung area. Now I really am getting stressed cause it's just been too long for me.I just wish this would all settle down already and go away for good. But I'm sure you are just as tired of it as I am since you have been dealing with it even longer. Can you imagine how many other people must be going through the same things we are. It's sad that they don't know more about this that could help us in some way. As for my daughter knock on wood she has made a really good recovery. I see her sometimes get stressed when I'm sick cause it scares her and I wish I didn't have to put her through that. I just want to heal!!!! Enough is enough already! I would like to live a regular healthy life again anytime soon!!! Be careful what you ask for cause I remember saying I wish I could be a stay at home mom but I didn't wish to stay at home with stress and being sick all the time. I wanted to be a stay at home mom that goes to the gym and has coffee with her friends and that's what I would still love to be able to do someday!! But I just want to be healthy that's all I'm asking for now!!!! Please god!!! Sorry to go on so long but it feels nice to just vent to someone who knows what we are going through. All I ask is that God heal us all soon!!! I wish Megan a Belated Happy Birthday and I hope she will be able to go out and enjoy herself real soon! Take Care and keep in touch! Always Diana

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      pksmdrag 7 years ago

      Hi KC - sorry this response took so long. This one is actually my third response back. We had some computer troubles yesterday. Anyway, it sounds like your son ended up missing some of his 10th grade. It also sounds like you are saying that most of his classes are half year classes so he was able to do half and still has half left??? My daughter's classes are all full year exvept that gym is a half year. So, when school wraps up in another couple of weeks she will have two credits out of the 5.5 she needs. She will continue with the geometry over the summer and gym. So she will hopefully get another 1.5 credits before the start of school next year. However, she will still be behind by 2 credits (no Spanish or science). She has decided not to take Spanish right now. She wants to try to do some things over the summer and she knows she always has major setbacks. So she knows she will be resting alot too. I guess we aren't going to push her. She'll just do the geometry and gym this summer. I don't know what the fall will bring. I don't think she will be much different than from what she is now. How will your son do all that he has missed on top of the regular work? Do I have this right, he will be a Junior next year? My heart goes out to him. I hope he continues to recover and get his energy back. The weather here (Connecticut) is beautiful today. I just came back from walking our dog. Its so nice having the windows open!!! Hope you are enjoying good weather as well.

      Kim

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      KC 7 years ago

      Hi Kim - He had to medically withdraw from this last semester. He is taking online Algebra this summer. He will take English and History through online courses probably during the winter semester. The counselor doesn't want him to try and do any with the fall semester since it will be a big adjustment getting back to school. They too will just be regular classes and not honors now. He is taking an AP class in the fall that he has two books to read before school starts, so he won't really have time to do any other online courses. He is retaking Spanish from the fall semester last year so that it is not a whole year for him to take the second semester of Spanish and then not understand what's going on. The counselor thinks he will still be able to graduate with honors. He needs to make up Honors Chem during the regular school year. Since he took summer PE the last couple of years, so that gives him a little extra room for the additional classes he needs. We'll see how it goes. My son just gets tired easily still and am really hoping he doesn't have issues when schools starts up again. He had the tilt table test done a couple of months ago for the dizziness and everything was normal, except his heart rate was a little high. Isn't it amazing how a virus can affect you. It will just be nice when we can all look back and this will just be a bad memory. Happy Birthday to your daughter and glad she was able to get out and enjoy it. How did you get the school to let you do home studies?

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      pksmdrag 7 years ago

      Hi KC - I am glad your son is doing better. Sure hope he gets back to 100% soon. Was he able to complete most of his classes? What one is he taking online this summer? Is your son going to be a junior next year? Since my daughter wasn't able to go to school all of her classes are regular classes now - they don't do any honors at home. She has completed her social studies for the year and is almost done with English. She just started back on geometry but will be doing that through the summer. She had to stop taking geometry the beginning of December because she just couldn't get to school. She will start Spanish in another week or so along with an academic physical education class. That will take all summer since she has the whole year to cover. She may do health online but we aren't sure at this point. We have to decide this week what we are doing about that. Come September she will be behind in credits but there isn't much I can do about that. She has to get her health back first. We are going to do a sleep study test and a tilt table test in the coming weeks. Hopefully that will shed some light on things. We are redoing some of her blood work to see for one thing if her iron levels have improved any. Today is her birthday. It was a nice day. I took her on a short shopping trip this afternoon. Yesterday she celebrated with a few friends. Now she is sitting and trying to do homework but feels horrible. She does the littlest thing and pays for it. I feel so bad for her. Best wishes to your son and hope he feels 100% soon! Take care and write when you can....

      Kim

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      KC 7 years ago

      Hi Kim,

      So sorry to hear your daughter is still having problems. I hope she continues to improve and is able to tolerate more activity. My son continues to get better, but is still not 100%. The biggest issues he is having now is the tiredness and just a little dizziness. He is doing some physical activity, but if he does too much he's pretty tired. We are starting an online course for school shortly, so we'll see how that goes. He actually started seeing a chiropractor a couple of months ago and I think it is helping. The nerves in your body are all connected to your spine and if it's out of alignment, then the nerves aren't sending all the right signals out to the different organs.

      KC

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      pksmdrag 7 years ago

      Hi KC - If you check in here again, I was wondering how your son is doing? Does he have any limitations now or is he back to normal? Any persistant symptoms? Just wondering. I hope he is doing alot better. Thanks.

      Kim

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      pksmdrag 7 years ago

      Hey Diana - it has been a very long time since I was here! Well, the battle still goes on. Megan is a little better but still not back to normal. We have tutors that come to the house to try to get her caught up. She has a long way to go. She still only leaves the house about once a week at best. Saturday I took her and a friend and the friends mom to a mall 35 minutes away. We shopped and bought her some clothes and ate lunch out. She had a great time but has been paying the price ever since. So her activity is very restricted yet. She tries to ride a stationary bike for 15 minutes in the evening. She also does some yoga that helps alot. She takes Lyrica for the fibromyalgia and it helps to make the pain tolerable. She still has sleep issues. Her attitude is still very good and positive. I don't think our battles are over with the school. I think they think she will be back in school full time in the fall and for the life of me I don't see how that will happen.

      I am sorry to see you are still struggling with lung issues. I don't really know you but from what I do know of you on here I think they are so wrong to think your asthma might be anxiety. I know they kept thinking when Megan had those three weeks in November when she would hyperventilate they thought it was anxiety. I knew it wasn't. She just isn't an anxious person. I now know that her nervous system was affected from the illness and that's what was doing it. The medical field doesn't have it all figured out but I do know that Megan is affected by fibromyalgia, POTS, and low ferritin levels. All of these can leave a person so fatigued. She doesn't hyperventilate anymore. And her chest isn't tight anymore. However, she still has shooting pains in the chest and the heart does something.

      How is your daughter? Is she back to normal and enjoying being a kid again. I sure hope so. Well, I need to go buy some plants for my garden. I will check in again. It was good to see that you were still around.

      Kim

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      TW 7 years ago

      I'm so glad I'm not the only one who can't quite shake this after more than 6 months! I feel fine most of the time, but with even the slightest bit of exercise it's difficult to take a deep breath. I'm admittedly not in the best shape I've ever been in, but I should be able to run for more than 2 minutes without struggling for a good breath. Most annoying and gross though, I also cough something up every morning; at least I don't have a cough throughout the day.

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      KC 7 years ago

      Hi Ashley,

      My son is 16 and got H1N1 (they think) in early October. He then got a mcyoplasma infection after that in Nov. He had stomach issues also. Nauseous a lot of the time and he would throw up about once a week if he had to get up really early in the a.m. The good news is that he has not had any stomach problems for about a month now, so hopefully you will be feeling better too. He still is not 100% better, but is improving. Hang in there. If his timing is similar to yours, then you should be getting past the stomach part of it soon. I have heard of people taking a very long time to totally get over the H1N1.

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      Ashley. 7 years ago

      hi, i'm a 19 year old female and i had H1N1 late november early december and for some reason i still feel really sick to the stomach sometimes and just randomly feel like throwing up.

      (i've already got checked to see if i was pregnant and i'm not)

      one of my friends had H1N1 and shes going threw the same thing as me and we have no idea whats wrong with us. any tips? please i want this to stop!!

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      Diana 7 years ago

      Hi Laurie, I was on alot of antibiotics and after awile I don't think they were doing any good. You're right your lungs always feel like there is something in there. I always seem to get alot of muscle pain around them as well.It feels like pluerisy alot of the time when I breath so I have been going for alot of massages to loosen the muscles and it has been helping but then I have to get adjusted by the chiropractor right after as well.I was the one who tried the hydrogen peroxide and it worked for awhile but then my stomach started to get alot of acid reflux.I could only get up to 5 drops then I had to back off cause way too much stomach problems.1 or 2 drops is ok but I don't know.I think it does work well for some people I was doing the drinking one but some people are doing it like an inhaler so it goes directly into the lungs but I would be very causious about doing that.My friend has been on it for 10 months and he is doing great he never seems to be sick ever.Even when I did it this girl was sick in the office with a bad cold and I always would catch everything anybody had but I didn't when I was doing the hydrogen therapy.It's weird when you first start it you get energy bursts so I would go on my treadmill and work out. But I really don't know what the long term effects might be.You can read about it on the internet just punch up hydrogen peroxide therapy and theres tons on it.Oh and as for a doctors blog on H1N1 I would love to see that as well but sure haven't found one. Well all I can say is I hope this gets out of our system soon!!! TTYS Always Diana

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      nurse1 7 years ago

      Hi Dianna, i feel it pretty much stays in my lungs i feel like i just woke up and the heaviness stays with me in my lungs all day. I did get strep throat which i havent had since i was like 12 years old, and other respitory infections and have been on antibiotics which they we very reulctant to give me 3 times and they helped everytime. I do run out of energy now and get tired alot easier and sooner. Have been taking vitamins every day. Did the one person ever write back that said she was going to try Hydrogen Peroxide therapy i have heard of that too and was thinging of trying it as well, wonder how it is working for her!!!!Wonder if there is a blog of people that actually have gotten totally healed from this i would love to hear from them as well!!!! Or a doctors blog on the H1N1 and what they have learned about it.. Talk Soon get better Dianna Laurie:)

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      diana 7 years ago

      Hi Nurse , I still have upper back pain and lung pain as well & I also have asthma so it's been hard on me to get back to normal. I go about 3 week spans of feeling better and then back on the prednisone again.But I can't say I have felt normal yet.Maybe one or two days out of the last 5 months I feel really normal and then back to hurting again.I would like to know if it stays dormant in our bodies and then just keeps acting up when something triggers it.But I am like you it has gotten better but i still feel sick like it won't quite leave my body fully yet. Did you get a secondary infection or do you still get flare ups in your lungs? I had a intestinal infection in Febuary which we think might have been colitis from all the antibiotics I was on for months during H1n1.But when I left the hospital I left with a upper respiratory infection which felt like H1n1 all over again. So I was on prednisone for 24 days again.I really believe it stays in your body and attacks you when your immune system is low.The prednisone seem to clear up the intestinal infection but my lungs are still not the same with every infection they seem to get weaker and harder to bring them back to health. I was going on my treadmill 45 minutes a day and then it just seems to strike you again when you are trying to heal yourself. Have you had any other problems like this? Always Diana

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      nurse1 7 years ago

      Hi again, SOB is shortness of breathe sorry.When i first got this sickness i had the worst upper back as well as lung pain, the back pain has gotten so much better but is still there and to take a deep breathe in still hurts my lungs again not as bad but still there. My doctor asked me how i was doing and i told her about this blog and she thought that was awesome, i also told im about 70% better but still not back to my norm and hope and pray to get back to normal :)

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      Susana S 7 years ago

      Hi Nurse - the flu can be a nasty disease and can take a long while to recover from. If you aren't getting much help or many answers from the medical profession it's definitely worth thinking about alternative medicine. Alternative therapies such as homeopathy can help support your body's healing process and get you back to strength a lot quicker. Just a thought :) Best wishes and I hope you are back to 100% again soon.

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      diana 7 years ago

      Hi Nurse 1, You sound like you are descibing me. I caught H1N1 in Nov. and I still have pain in my lungs all the time. I can't do as much with out being out of air. Yes they prescibed ativan for me as well saying it was anxiety and my asthma specialist is now questioning if my asthma is just anxiety or really asthma. But my body still hurts and I still don't feel right but all my tests keep coming back normal as well.Except my red blood cell count is staying a little below normal it been months since it's been in it's range at my age it's supposed to be 120-160 and now it's 112 so they are trying to at least figure that out. But as for my lungs they just keep saying everything sounds clear but I feel like crap and I don't know why. So I know exactly what you are talking about. My body just has not gone back to normal yet.It's like as if it stays in your body and makes you feel like crap for a very long time. What is SOB? Do you know other people that are still suffering from the effects of it? I really hope it just leaves our bodies soon for good!!! Enough is enough already!! Always Diana

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      nurse1 7 years ago

      HI all, just wanted to say im a nurse of 27 years i caught the H1N1 in October and i am still having lung issues as well, it does help to be able to hear other people experiencing the same things it makes you feel not as alone, crazy how they cant seem to come up with something that helps i have so many test and blood work done as well they come back normal and the one pulmonary doctor said it was my anxiety making it hard to breath and told me to start ativan, he didnt believe me either. Funny how when you arent text book and they cant come up with a answer they say its you. Excuse me but i know the difference between anxiety and SOB. I have a new pulmonary doctor who believes something did happen to me in Oct from the H1N1 she believes it will take time and assures me its not life threatening, but it does slow me down my lungs hurt, just feel "sick". Its been 6 months for me now i can breathe easier but still dont feel right. I pray the body fights this off for all of us so we can cont. to live a good healthy life once again. Thank you everyone ME

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      Diana 7 years ago

      Hey Kim, If you come on here again how is Megan doing? I've been wondering about you & her I haven't seen you back on here in awhile. Let me know! Always diana

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      Susana S 7 years ago

      Hi Garnet - that's interesting about the use of garlic capsules to fend off the flu. How many do you take and over how long a time period?

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      Gloria Siess 7 years ago from Wrightwood, California

      Great Hub-I fended off some of the flu around here by taking large amounts of Garlic capsules; which is said to be a natural Anti-viral.. Tami-flu sounds wonderful.

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      diana 7 years ago

      Hi Kim, I haven't been on here in awhile because I am still battling with my lungs.Still on the prednisone and have now gained 10 pounds in a month being on it.I can't wait to get off it. I just need them to find something to help with my lungs. Today is Thursday and I feel like Megan has more energy is she getting better? I can't explain it but I see white healing energy around her so I hope she is getting more energy and being able to move around more.I hope all is well with you too!!! I am healing very slowly but it will come I'm trying to stay positive! Write back when you can Always Diana

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      Susana S 7 years ago

      P.S. Well done for winning the weekly comp!

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      Susana S 7 years ago

      Hey Laura - Oh you poor thing, I do feel for you. Epidermis ache sounds more than sucky and I bet you can't rest that much with looking after your children? Might be worth a trip to the real Doctors office - if it's not flu it could be a secondary infection from the virus which could be worse. We've also all had a nasty virus with a persistent cough and ear splitting headaches, though I think we're finally recovering. It's horrible when it's just one thing after another! I've been working my butt off but always feel like I'm not getting anywhere fast, lol. I do hope you're feeling better soon. X X

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      wordscribe41 7 years ago

      I had to come back and visit this as I'm afraid I might have jinxed myself by saying I haven't had it. Okay, Susana, so I feel like death. My fever is not as high as yours, but a steady 100.5 going on day three now. The rest of the symptoms match pretty well. I'm very achy and my skin is killing me. Ever had an epidermis ache? lol So, here's the thing, Dr. S... Before this I had a virus that landed and stayed in my lungs, had been there for about 6 weeks, was still there when I came down with this beaut. Swine flu, regular flu, bad cold, or secondary infection??? Which is it, or does it really matter? Hmmm. My son's been sick, too, but he's been fine. No fever, nothing except he's stuffy. Anyhoo, just needed to get that off my chest. I'm a train wreck. Can't sleep, nights are awful. Thanks for listening. How are you??? Hope you're well. I miss seeing you around here.

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      Diana 7 years ago

      Hi Kim, Thanks for your nice words!!! Yes it's nice to have someone to vent this too! You are right if the food isn't nailed down I want to eat it and I had lost 30 pounds in these last few months being sick and now I have gained 3 pounds back so far so I'm really trying to watch but it makes me so hungry.So I'm trying to grab for fruit if possible! But tim hortons always looks so good!!! I sure have the shakes alot jitters I guess you would call them. I just want to get off the prednisone and get my lungs healthy again. I was just back to normal for 3 weeks maybe a month and then this hits again dam it!!! Why??? I've really got to get my immune system back I can't believe this.I can sleep on this stuff but I wake up with the jitters like I've had too much coffee already. I feel so sorry for your daughter how is she ever going to get caught up? I can't believe the school system where you live. Sorry to hear you are still struggling. I really wish some thing good would happen for you & your family soon!!! Have agreat weekend and we'll keep in touch. Hey kim are you on face book maybe we could become friends on face book if you are? Just a thought. Always Diana

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      pksmdrag 7 years ago

      Hi Diana - I am so sorry that you are still having a horrible time with this. It certainly isn't fair. I hardly know you, but you seem like such a nice person. Are you able to sleep with all that prednisone? I know when my daughter was on that dose, it was very hard. She was so tired, but so wired. Has your appetite increased? I know mine did at 20 mg of prednisone. If it wasn't nailed down I wanted to eat it!!!! Thankfully, I am on a very low dose now and the extra 10 - 12 pounds just disappeared over time. Hang in there and know if you just want to vent I'll be here! I hope you can get th is crap knocked out of you soon and start feeling better - spring is on its way! I hope that your daughter doesn't relapse. My daughter is about the same but possibly with maybe a little less pain. I am still disgusted with our school. Still no tutor. Its jsut so unfair to my daughter. And I am so tired of the stress. Its pretty simple - you are either part of the problem or part of the solution. I just want to get her caught up and then maybe she can attend school next year even if only part time. She always loved school. What a shame! Well, I hope you can rest most of this weekend and start getting better. Have a nice weekend.

      Kim

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      diana 7 years ago

      Hi Kim, Yes I did have asthma before the h1n1 soit hits me even harder. My lungs are so screwed up again it sucks. I'm still on 40 mg of prednisone and doing my rescue inhalers up to 20 times a day not good!!!! I know it is h1n1 again I have all the same problems again.I still have the spots at the back of my throat and all the breathing problems.Cannot exert yourself much without being out of air. My daughter said yesterday she felt short on taking a deep breath again and so I'm scared for her again. No I don't have alot of people here where I live to take care of her for me so it's just me & her.I really just want to be healthy I thought the h1n1 was done with and here it is again. When does this shit ever end!!! I hope Megan is feeling a little better and that things are starting to open up for you.All I can say is Please God watch over us all!!! always Diana

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      pksmdrag 7 years ago

      Oh Diana - I can't believe all that you are going through. It has to be so hard with your young daughter. Is she still doing ok? Is there anyone helping you with her? I feel so bad for you. At least my daughter doesn't hae to take care of anyone else besides herself! Plus, I do alot for her since she has been sick. I will keep you and KC in my prayers. Gotta take my son to the library now. Give me an update when you can. Did you have asthma before the H1N1? I just can't believe all that you have been through.

      Get well soon.

      Kim

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      pksmdrag 7 years ago

      Hi KC - We had a meeting exactly one week ago and the assistant principal had a tutor lined up (no one else knew of that). The two teachers were supposed to pull some work together for my daughter. I suspect they did their part, but I have heard nothing from the tutor. I maintain a daily contact with her guidance counselor on this. He never says more than I will contact her again. I don't think he has personally talked to her, I think he has only left messages. The assistant principal's secretary supposedly talked to her right after our PPT last week. Anyway, our lawyer just e-mailed me and wanted an update. She will contact the district again. My daughter would love to get moving on some work!

      My daughter got sick with what was most likely the H1N1 on Sept. 9th (her first day home from school.) She had a low grade fever, some congestion, and minor cough. My son had just come down with it the day or two before. They both ran a fever for 3 days. Anyway, the weekend came and the fever left. I sent her back to school on Monday and Tuesday even though she was still feeling awful. However, by Tuesday night she was running a fever again, a very sore throat, and really congested with a bad headache. The headache has never gone away since then although the intensity varies. I was already having trouble with the school at this point (5 days of absences). By Friday she had a double ear infection. Took antibiotic - that cleared up the infection but was weeks before they really drained and she got relief. She also sounded congested for weeks. She had some larynchitis(sp?). I kept taking her back to the doctor every few days (school kept needing notes). She did go back to school some during this time but really counldn't do crew. She tried for awhile. She then had a few days where she had a low body temperature. (~96.6 degrees.) By mid to late October she was having breathing issues. She kept complaining that her chest was still tight and she couldn't get a deep breath. She would having some wheezing. They kept checking her for asthma - no, it wasn't asthma. One daoctor heard something but nothing showed up on the chest x-ray. We tried an inhaler (she had pneumonia a year before and used an inhaler then and it helped then.) This time the inhaler wasn't doing anything. The nurses at school could hear the wheezing, too. My daughter said it was different than when she had pneumonia. Although my daughter's main complaint at that time was chest and breathing, our primary at that time didn't think it was a lung issue. So she contacts an infectious disease doctor and sends us to see him about a week later. He says right off the bat, "If she had been sick like this for six months, then we would consider Chronic Fatigue Syndrome. But since its only been a couple of months (its mid Nov. at this point) its not that. He listens to her lungs and doesn't hear anything. He says, "Go to school, stop thinking about it, and it will go away. He gives us an example of himself as a little boy with a limp. Then he gives us an inhaler and walks us over to pulmonary so we can get an appointment there in case he is wrong!!!!" I was so disgusted at that point. So we then wait 5 weeks to see the lung doctor. It was right around the timewe saw the infectious disease doctor that she started hyperventilating. I wasn't sure what was happening at first. Anyway, for about 3 weeks she would hyperventilate if her lungs were exerted - hardy laugh or climbing stairs. She was also very pale most of the time. Chrst still tight and painful. Really couldn't take deep breaths. Even when I would check on her breathing at night it was rapid, short, shallow breaths. She was trying to go to school for a couple of periods during this time. Couldn't always go. She hyperventilated after a firedrill at school upon coming back in - she couldn't walk fast and the stairs did her in. She was still doing well on the limited school work that she was doing at that point. By the beginning of December she was having pain all over especially in her back. She was experiencing hand tremors and weak shaky legs. She couldn't write dur to muscle weakness and cramps in her hands. She was having trouble reading and thinking. She couldn't retain what she was reading, she had trouble adding 5 + 7. The tremors actually started in November. It was assumed it was the inhalers. After more than 3 weeks not using the inhalers she would still have tremors. She also had discoloration in her lower legs and tingling and burning in her hands and feet. She had trouble walking and would bump into things. She sometimes crawled. The headaches are always there. Sometimes very debilitating. Lately, they are tolerable. Seh can write again and type. She thinks much better again. We hope she can do her homework again without too much trouble. Time will tell. Oh, she spent many, many hours on the floor with icy hot all over her and heating pads. Nothing really worked. Sleep issues which still continue. She just can't get to sleep. Once asleep she is fine. However she doesn't ever wake up feeling refreshed. She can't get to sleep until somewhere between midnight and 2am. She has had trouble with heartburn but I don't think its as bad in the last few weeks. No digestive issues. There has been no energy in any of this - very debilitating. She has been on Lyrica for about 3 weeks and we just upped the dose a few days ago. She appears to be getting some pain relief. I hope it lasts. Sleep still unresolved. The cognitive issues are better than they were back in the beginning of December, but I don't know if we are out of the woods on that. We need for the school to start educating her again to really know that. Oh, she has had sensitivity to light and sound. The sound issue was the first thing I noticed. The light can still be a problem at times. Sunglasses indoors help alot. The slightest bit of exercise (like walking around school and going to doctor appointments) would do her in and she would be bed or couch bound for a couple of days. The paln is to get some of the pain under control and get her physical therapy. She used to be very active. She played soccer from 2nd grade up through 8th grade. She had just started crew and loved it when this all started.

      Well, I hope that helps. I do believe she has POTS as one doctor diagnosed her with but we aren't doing anything about it now. The goal is still to get her back up and moving more. I hope your son starts feeling better cognitively. My daughter really got into the Rhubics(sp?) cube during that difficult time. We are still hopeful that she can get most of her life back. Keep in touch....

      Kim

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      kac 7 years ago

      Hi Kim - All the blood work came back normal even on the weird things they checked. My son's biggest complaint right now is the dizziness and lack of concentration which is what is keeping him home from school. We are going to ENT next week to see if there is possibly an inner ear issue. We are also schedule for another MRI, which I think we will hold off on until we go to the ENT. You go to one doc and it takes a couple of weeks to get in and then for them to run tests and before you know it a month has gone by with no set answer. I am so thankful that we are not having the issues this semester with the school that you are. Their number one priority is supposed to be the kids. Remind me again what the neurological issues with your daughter are and when they started. They sound a little familiar to my sons.

      KC

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      Diana 7 years ago

      Hi Kim, Well still sick now after all the appendix and colon problems I came out of the hospital with a cold or something not sure what it is but I ended up back at the hospital for my asthma. I was wheezing so bad and so tight she couldn't hear air moving so she gave me a ventolin treatment and then hooked me up to steroids by intervenous.I went to work in the afternoon very exhausted from trying to breath but showed up to make it look good. I should have stayed home was so weak. So then I had to go back in the morning with the intervenous still in my hand over night to get more steroids to keep my lungs open but this time they just gave me pill form of course prednisone again.So it took longer to kick in and I was back at the hospital again 3 days in a row. It's been since friday and I am still having problems not as bad of course but it's taking awhile to settle down. 50mg of prednisone for 5 days then taper off by 10mg every 3 days. Then what? Man I really wonder what I did so bad this year to be going through all of this. Kim it honestly feels like H1N1 in my lungs again and I'm praying that it isn't. But I do have spots at the back of my throat again and the last time it started out like a cold too.Please god do not let it be that again. You go in the hospital for one thing and come out with another.I asked the hospital to test me for H1N1 but they said because I had it before that it will still show the antibodies so it's no use. Please pray for me that it is not that again!!! If it is hopefully my body will fight it off with the antibodies.Wish me Luck!!! I just need some extra rest at night so I can feel better during the days at work. Oh Kim I just want to be healthy I hope your daughter is feeling better this is way to long to be sick.I feel so sorry for her too!!! & You! Please God watch over us and put your healing hands upon us so we can be healthy happy individuals again!!! Take care keep in touch Always Diana

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      pksmdrag 7 years ago

      Hi KC! I'm glad your son is starting to improve. Hope that continues and he is able to get back on track. When mu daughter was in 8th grade they recommended that she be placed in all honors classes for 9th grade. We didn't want her to take all honors since she wanted to do crew and other things. She opted to take all honors except for social studies. Then the school year started and she was sick by the night of the 6th day. She missed 3 days. Then went back to school for two days. Then was out sick for the next 3 days. It was during that week that I talked her into dropping spanish down to a regular level class to help the situation. Well, our school said she couldn't drop down for another 3 weeks. Now the school guidance counselor, social worker and school psychologist who has never met my daughter are questioning that move. She rarely attended school this year. She was able to teach herself the geometry through the beginning of December. Then some of the nuerological issues set in and she couldn't add 5+7 or retain what she was reading. I know her intelligence hasn't been affected, but I am not sure what our learning issues are right now. Plus with fibromyalgia, my understanding is that things will be fine one minute and not fine the next. The school throughout this ordeal has continued to take classes away and to lower the level. They never offered to get her a tutor. They only kept insisting that she come to school. Between taking classes away, changing teachers, and not being in school she doesn't have work to work on most of the time. She says she doesn't need a tutor. I believe she can do it on her own. Our problems are with the school. I need to do more reasearch on home schooling. She isn't likely to get any great relief or energy anytime soon. This most likely will be a long term issue maybe even for life. I wish the school would offer more support and accept the doctors' diagnosises. I am so tired of all of this. Well, I am glad your son is doing alot better. Please pop in once in awhile and let me know how things are going.

      Kim

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      kac 7 years ago

      Hi Kim - The headaches are gone which is great. His fatigue is actually better - still there, but not as bad. We get the blood results back tomorrow so maybe an answer. I had a friend ask me about possibly an inner ear problem since he has the dizziness that started. This is one thing that hasn't been brought up. May be worth checking into if blood work shows nothing. The neurologist said we might do another MRI as well.

      He has a couple of electives that we will most likely drop. His AP history class we will definitely try and keep if he can get to the point of being able to do homework. I'm not sure if this can be made up outside of the school year. The other classes (English, Math, Spanish)can be made up thru internet courses if we have to. Hopefully he will be feeling better soon and he can get back it. That's what I keep saying from week to week.

      It is frustrating when you have people saying it is psychological and you know that it is not. Involved parents know what their kids are like and are feeling (as you and I are). Is your daughter able to get some homework done? Since she is an honors student, can she self teach herself some of the work without the tutor? Hopefully she will start feeling some relief soon from the fibromyalgia.

      KC

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      Susana S 7 years ago

      Hi WS :) Yes having the swine flu was a nightmare. It took me and my youngest daughter a long while to fully recover and we kept on coming down with more viruses and colds afterwards. Thought we'd finally shaken it all off, then we recently came down with another flu virus! Total bummer. My husband is a sod, lol. He doesn't really look after himself at all yet he got over the swine flu the quickest.

      I shall have to get the antibac out and do all the door handles again - I can't keep being ill I NEED TO WRITE - lol!

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      wordscribe41 7 years ago

      Oh Susana (great now I'm singing THE song), what a nightmare that was, huh? I'm impressed you trucked right on through with the writing, too. It sounds like yours was worse than some of the cases people have told me about. I haven't had it, so I cannot comment from personal experience. A couple of my friends had a very mild version. I just hope the more virulent strain doesn't come knocking. Ick. It's strange how long it took for your husband to get it... We've had some strange experiences like that with the stomach flu and the kids... Have the barf buckets all put away, the bleach back in its proper place, not sleeping with one eye open when WHAM... barforama. Anyway, great hub. It was interesting for me to read, thanks for being such a brave soul...

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      pksmdrag 7 years ago

      Hi KC - I am sorry to see that your son is still suffering with this crap. (Although it was nice to see you again!). Anyway, you are very lucky that the school is working with you. Our school still doesn't believe in her illness and doesn't want to get a tutor long term. They are doing it now but I am sure will give me more trouble in 6 weeks. She will not be better in 6 weeks. Fibromyalgia is basically the same thing as CFIDS except Fibro has lots of trigger points. Last year (when she was in 8th grade - she is in 9th now)she got pneumonia in Nov. It didn't clear up with the first antibiotic. After a couple of weeks we had to go to the emergency room. They gave her a breathing treatment, did a chest x-ray, and put her on another antibiotic. She turned out to be allergic to that. Then we tried another one for 10 days. She basically missed the month of Nov. (She did go in for 1 - 2 days in between antibiotics before it got worse again.) After that she started having abdominal pain and still couldn't go back to school full time for two weeks. Then she was fine after that. Well, the high school is questioning that and believes she is avoiding school or has some social or emotional issues. I am so sick of this. So basically the same thing that happened to your son is what happened to my daughter and now its being used against us.

      KC - what classes will your son be able to complete this school year and what will he have to take over the summer?

      Hope he feels better soon. It looks like if nothing shows up positive in the blood work and he doesn't get better he probably will get diagnosed with CFIDS. How is his fatigue? Does he get headaches anymore? I th ink last time you said the headaches were gone. Well, I wish you guys well - this is not fun to be going through. If its CFIDS tht can cause lots of concentration issues. Write when you can.

      Kim

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      kac 7 years ago

      Kim - Sorry to hear your daughter is still not feeling well and the school is not cooperating. I know how frustrating that is.

      Diana - Hopefully you get positive results at the surgeons. It seems strange though that the Appendix could leak and then stop.

      My son's stomach feels a lot better now with it only hurting him a couple of times a day. However, when he was on the Flagyl he started getting dizzy and can't concentrate. He is still having this problem after stopping the Flagyl 3 weeks ago. The doctor says it should be out of his system by now. We went to the infectious disease doctor last week and he took several vials of blood to run different tests. He thinks it is possible he is still trying to get past the mycoplasma infection he got after the H1N1. Also went back to the neurologist and she wants to wait and see what the blood tests say. I know the docs say it shouldn't be the antibiotic causing his problems, but these are side effects of the drug and they started on day 4 of Flagyl.

      One positive though - the school is working with us. My son will probably do a medical withdrawal on half his classes to lighten the load since he has not been able to do any homework for the last month or so. He then can take some internet courses this summer or fall to make up for what he needs to drop. They are working with us a lot easier now which is a huge blessing. I just want my son back to normal and healthy again.

      kac

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      pksmdrag 7 years ago

      Hi Diana - I am so sorry that you have been that sick. I wonder if the body will absorb the fluid over time or will they have to drain it. What are they going to do about the 3 cysts? Frankly, I don't think this crap ever ends. Nothing is really new with my daughter's health. However, we had her PPT meeting today with the school. There were 10 of them against my husband, myself, and our lawyer. I beleive everyone except the school nurse is against us. They just want to classify my daughter as some nut case and drug her. Its going to be one long ugly battle. I kid you not when I say that I don't know how much more my heart can take. The stress is killing me. I try to walk most days and take baths, but this just never ends. Without a resolution I jsut can't relax and move on. I have not heard anything more from Julie. Hopefully she is all better and enjoying life again. I feel so bad for you. It must be so hard trying to raise your daughter and work while being sick. I will keep you in my prayers. Keep me posted on your progress if you can. Take care...

      Kim

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      diana 7 years ago

      Hi Kim, Sorry I ended up being admitted to the hospital and didn't have access to a computer. My appendix was acting up and they think leaked fluid into my abdomin cause there's fluid around the appendix and the front of it was swollen. Plus they found 3 cysts on my right ovary so I have been pretty sick this last week.They didn't take the appendix they said it looked good again on the cat scan after 4 days of being on antibiotics and anti inflammatory's so now I hope it stays calmed down cause they don't know what caused it to act up in the first place so the fluid is still in there and I'm wondering is it going to go away on it's own or are they going to have to do something. I have to go for follow up with the surgeon on Thursday I hope He say's they will check me out again to see how everything is inside.cause I don't know what happens if you just leave it. Like I said does this crap ever end. I just want to be healthy again so I can start working out again. I hope things are improving for your daughter I pray she gets her life back too!!This is just unreal. I wonder how Julie is doing? Have you heard from her? I'll keep in touch. write back when you can. Always Diana

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      pksmdrag 7 years ago

      Diana - I haven't seen you on here for a few days. I hope you are doing better. When you are up to it, please drop me a line and let me know how you are doing.

      Kim

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      Susana S 7 years ago

      Hi Doubting Thomas - it will be interesting to see what happens with the H1N1 this season - are you in Australia? In the UK we're just coming out of flu season and the cases of swine flu dropped off dramatically - they've now shut the flu pandemic helpline. Hopefully it won't mutate into something nastier. Thanks for stopping by :)

      Hi Adam, Yes you certainly know the difference between a flu and cold once you've had the flu! It totally knocks you for 6. :)

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      Adam80 7 years ago from Omaha, Nebraska

      Great hub! I usually get aches and chills once a year or so and that is what I have accepted as being the flu. Earlier this year my daughter got H1N1 and passed it on to me. . .wow such a difference.

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      DoubtingThomas 7 years ago

      Great Hub! We are about to go back into swine flu season here, so it's good to hear from someone who has had it. It actually sounds worse than I expected. Mild? pah.

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      pksmdrag 7 years ago

      Hi Diana - what other symptoms do you have besides lung issues and now back pain? My daughter went from lung issues to back pain and then pain all over. That's how we eventually got to fibromyalgia. When she had the lung issues she would wheeze. She would also hyperventilate if her lungs were exerted. The hyperventilating lasted about 3 weeks. There are alot of people that have lung issues/chest pain with chronic fatigue syndrome and/or fibromyalgia. Usually all the lung tests show up normal. I know some of yours didn't. Besides the prednisone, have you found any other medicine to help with your lungs? I sure hope your back pain is short lived. I am devistated by my daughter having fibromyalgia. I just want her fixed and that won't be happening any time soon. It breaks my heart to see how much this has changed her life. I personally believe that she will create a new life in time, but right now I am mourning the loss of her old life. That's going to take me some time. I'm going to go watch some more of the Olympics! Amazing story about the Canadian Ice Skater who just lost her mom on Sunday. My heart goes out to her. Unfortuneately, I don't get to see much of the Olympics because I keep falling asleep!!! Well, hope your back pain is better. Write when you can.

      Kim

      P.S. No tutor yet or anytime soon. The lawyer is still trying to get a PPT meeting together. It would be at that point that a tutor would be requested. We had vacation last week and a snow day today. So things are going slow here.

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      Diana 7 years ago

      Hi Kim, Well I got back on sunday and all my asthma tests weht very well.There's one more test he wants to do cause he thinks that alot of my symptoms are caused by stress and this last test will show if it is definetly bronchial asthma because every time he see's me I'm either coming off prednisone or I'm on prednisone na dthat can give false results. So in May I go for 1 more test and then we'll no more as to what my problem is.I can see stress causing alot of asthma episodes so I am not ruling it out by any means.But the breathing tests went well but I was still on prednisone again so in May will be the real test. I'm actually looking forward to it. Then when I got home sunday I was having severe lower back pain so I ended up going to our hospital here and they said I was dehydrated.By Monday morning I was in severe abdominal pain and went back and she said now there was a bladder infection.Came home 15 minutes and I was in exteme upper back pain so I went back and they hooked me up to intervenous and got fluids in me and said I have a gastro intestinal infection and didn't give me any antibiotics to kill it cause they think it's viral. But I think it's from doing all the medications I was doing and so now I want them to do a stool sample to make sure I haven't killed all the good bacteria in my colon. They did do blood work but I forgot to tell the doctor that I had been on so many medications in the last few months so I would like to go back and just find out if any of the levels show possible pseudomembranous colitis just in case they weren't looking for that in me. That shows if your white blood cell count is high and if there may be loss of good bateria in the body.So that will be my day again going back to the doctor once again. Does this crap ever end. If it's not one thing it's another. But I do remember Julie saying she had a 48 hr intestinal problem so hopefully this is all this is but I doubt it just the way I feel right now seems like more bacteria again we'll see. Wish me luck again!!! How is everything going with your daughter? Has she been able to get a home tooter now? Is she improving any? I sure hope so!!! Talk to ya soon Always Diana

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      pksmdrag 7 years ago

      Diana - just a quick note to wish you good luck with your appointment and testing. Have a great weekend and we will catch up when you return!

      Kim

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      Diana 7 years ago

      Hi Kim, I feel so sorry for your mom that's horrible. But at least she is still alive hopefully not in too much pain I hope.Today I go for asthma education and then tomorrow all the tests start wish me luck! yes I did try advair and it was working well with Qvar but I started to get tingling in my hards at night and then after 2-1/2 weeks I had a real bad asthma attack. We are not sure if it was too much too soon or if I was getting sick when the attack happened. I would like to try the advair again but I know my body needs more steroids so I don't know what they will come up with this time I've just been praying for something to help!

      My lungs haven't felt this crappy in a long time so I hope they can help me!!!!Sorry to hear that Megan isn't any bbetter yet I sure hope she starts to improve soon! Maybe wwith some of the stress off of her she will be able to heal soon. I wish her well soon! I hope Julie had a great time on her vacation she really needed it as well as all of us! We have a 12 yr. old Bordie collie named Cola he's awesome.I hope he lasts us a few more years cause he is getting up there.I won't be back until Sunday so I will update you when I get back! Have a great weekend! Always diana

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      pksmdrag 7 years ago

      Hello Diana - that sure sounds like a fun family day! I'm with you - I think the great outdoors makes all of one's health issues better! It sounds like the cold air doesn't make your asthma worse, that's good. Do you use advair at all? I just took my mother to her lung doctor yesterday. He is so nice to her. He truly cares about her even though she had a major stroke 5 years ago that left her totally paralyzed on her left side. She requires someone to care for her, so she lives in a nursing home now. Because of her stroke (she had lots of lung issues before the stroke) her spine is now curved and compressing her lungs a bit. Just makes it harder to breathe. Her lungs are always full of nasty stuff. She uses all kinds of breathing treatments and even wears a vest that shakes her to help loosen up the stuff in her lungs. Somehow her doctor keeps her going. I hope your test on Thursday shows something or that things are improving!

      Hopefully I will be able to talk to the doctor today that we want to treat Megan. Depending on what this doctor diagnosis her with (either Fibromyalgia, Chronic Fatigue Syndrome, and/or POTS) there isn't alot that works for most people. A few do get better, a few don't improve at all, and the majority do improve some (but not a full recovery). I am still hoping for the best (although it will be years) but believe she can get better. Somehow we will great a new life for her. The biggest hurdle right now is dealing with the schools. I hope to get a note from the new doctor stating her diagnosis and what the school needs to do to accomodate her. At this point I hope he can request homebound tutoring for her so we can try to catch up. She would love to graduate with her class in 4 years.

      Oh, what type of dog do you guys have? We have a 5 year old golden retriever. He likes to play, too! Enjoy the Olympics and write when you can.

      Kim

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      Diana 7 years ago

      Hi Kim, Well I was on 12-1/2 mg of prednisone then I went to 10 now today I am trying to taper down to 5mg.But I was supposed to be off them already cause my lung test is on Thusday but I have to taper down slowly so I hope it doesn't interfere with my tests.I just want to be able to get off this crap it hurts my lungs when I do it.I just want new inhalers that can do the same thing prednisone does. You must be sick of it too being on it that long wow! My daughter knock on wood has been doing very well thank god!!! It's my stupid body thats having a hard time bouncing back.I've tried eating very properly and exercising and this still lingers on. Dam! When will this ever go away! As for the olympics I'm 15 hours away from them. I would have loved to go to the winter olympics if they were closer.They are great to watch it would be exciting to be there. So as far as your daughter they haven't found anything to help her yet? What are they going to do for her? Or can they do anything for her? Today in canada is family day and my daughter & I spent most the day outside playing in the snow. We played keep away from our dog and they catch between us. I also took her to a jungle gym to play for an hour or so she loved that as well. It was just nice to get out and get some fresh air for once and just spend some quality time with my daughter.My lungs felt great being outside in the fresh air if only we could bring that in the house. At the lake here they had horse sled rides for the kids and ice fishing and tin can curling on ice. Summerlin wanted to go but I didn't want to be to far from my vehicle in case my asthma acted up so we made fun out of what we did together today. Dam asthma screws up alot of things in life when it's not under control. Hopefully soon they can get it under control. I'm crossing my fingers for better health this year to come. Good luck with all your new doctors I hope they can help her with everything she is going through. Write back when you can. Always Diana

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      pksmdrag 7 years ago

      Hi Diana - I am so sorry that things are so bad for you. How much prednisone are you on now? At least prednisone usually will raise your blood pressure if anything - better than lowering it for you. I've been on prednisone now for two years. I started out at 20 mg and now am down to 2.5 mg. I never liked the bloated, pregnant feeling prednisone can do to you. It sure has to be hard trying to take care of yourself and your daughter. Hopefully your daughter is staying well. Are you taking iron supplements now?

      Where in Canada are you? Are you anywhere near the Olympics? I live in Connecticut but am enjoying watching the Olympics. Its a nice diversion from the stress of my daughters illness. My daughter is the same, but she did have two friends over this afternoon. They had a nice time, but I am sure she will be horizontal most of the day tomorrow and in pain. At least my kids are on school vacation this week. My son is coming home late tonight from a backpacking trip. They weren't supposed to get home until tomorrow evening. They could not go to the summit today due to the weather conditions so they are on their way home. They (my son and fellow Boy Scouts) were backpacking in New Hampshire.

      Well, I need to get off the computer. I sure hope you feel better soon. Enough sufferng! I'm enjoying living life through all the great athletes!!! Write when you can...

      Kim

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      Diana 7 years ago

      Hi Kim, Well this just never ends last week I started on prednisone again cause my asthma was so bad again and then I found out that I was very anemic so you get short of breath with that as well. So between being so weak and tired from anemia and short of air from both of the causes my blood pressure is so low that I have to watch that as well.basically my body isn't creating enough red blood cells to carry oxygen from my lungs to the rest of my body. So I have been doing alot of vitamins and iron and prednisone and it gets scary cause I get pain in my left arm and my hand gets cold. you can have a heart attack or stroke if it gets to low so I'm just trying to stay as healthy as I can cause it's pretty low right now. Man I wish this would all just go away and let us live our lives happy and healthy already!!! Hope all is well with your daughter and hopefully she is improving!!! keep in touch always Diana

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      Diana 7 years ago

      Hi Kim & Julie No I haven't been to the lung specialists yet I go on Feb.18th but I have had to start back on prednisone this week as my inhalers were just not doing enough.But I will have to quit it by the end of the week so I can get the true results from the lung tests. Man I hate being out of air all the time it gets really depressing. I'm really hopeing they can find an inhaler that will work for me this time.And hopefully there's no further damage done to my lungs! Cross my fingers! Julie I wish you a very happy healthy trip!!! And kim I hope that with this you new doctor you chose that they can get your daughter back to her old self again in time.I hope to god that we are all coming to the end of all the problems soon! I wish you all well and lets just keep positive for better health this year! Hey julie how are your lungs now that you have the advair do they feel better even though you are having to do an inhaler. Do they ever hurt anymore or is that pretty much gone? Write back when you can. Always Diana

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      Julie  7 years ago

      Hello Ladies:

      It sounds like everyone is making progress with this illness - thats some good news (finally)!!! I cannot believe how Dr's will come up with differing opions on whats wrong with a patient - how in the world are we ever suppose to get better??? I had a check up today and finally was able to get my regular flu shot. I'm still on the Advair puffer for my lungs and will remain on it for at least another month - my Dr. does not want to take any chances with me coming off the puffer too soon. So far no more chest pain/wheezing, etc and the stomach illness was just a 48 hr intestinal virus (which is going around my town) - so "knock on wood" in a few more weeks I will be well enought to fly to FL as I'm taking my daughter to Walt Disney (planned long before I got sick) --- just hope I stay healthy!!! Keep fighting for health everyone and good luck in your battles.....:)

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      pksmdrag 7 years ago

      Hi Diana, Julie and KAC - I hope this finds everyone (or their child) doing better. Things are about the same here. We are getting ready for a snowstorm tomorrow. We actually took my daughter to another doctor on Friday, so we saw two doctors last week. The first one diagnosed her with fibromyalgia and POTS (a problem with her heart rate when going from lying down to standing up). The second doctor wasn't quick to diagnose POTS because he would want to do a tilt table test to confirm that (I actually agree with that). But he also said she has symptoms of both fibromyalgia (16 out of 18 trigger points) and Chronic Fatigue Syndrome. We have to decide which doctor we are going to work with. It looks like there aren't any quick fixes. The school does have to come up with a 504 plan for her. Its a plan to educate her with her special needs now. That part of the battle goes on and I find it extremely stressful.

      Diana - did you have any of your other lung doctor appointments since you last wrote? If so, how did they go?

      KAC - is your son doing better now?

      Julie - how is your stomach?

      I sure hope everyone is improving! Write when you can.

      Kim

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      KAC 7 years ago

      Hi Kim - I'm sure you are relieved that you finally have an answer to your daughters symptoms. It has been a long time. Hopefully she will finally be feeling better soon.

      KC

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      KAC 7 years ago

      Hi Julie - Hopefully you are feeling better. My son's main issues have been the extreme tiredness and nauseau until the beginning of Jan. it was the tiredness and stomach pain. He had some coughing in Oct, but that was the only lung issue and is when found a slight case of pneumonia. He is almost finished with the 14 days of Flagyl and his stomach isn't bothering him as much as it had been, so hopefully this a positive that the antibiotic is working. He is still really tired and is foggy which is a side effect.

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      diana 7 years ago

      Hi Kim, Well at least you now have some answers. Can the doctors help her with these two things now? What is pots? I understand the fibromyalgia that explains the chronic fatique and pain. But can they medically help her back to how she was before? I'm glad you finally found someone that believes you and is behind you on this. That's a big mile stone in itself! Good luck from here on keep us up dated. I still have 3 more doctors appts. for my lungs coming up so hopefully they can get my asthma back under control cause my lungs feel damaged from the h1n1.I had pain in my right lung today trying to take a deep breath it's just so frustrating I just want to be healthy again. Well have a great weekend and we'll keep checking in on your progress as well.

      Always Diana

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      pksmdrag 7 years ago

      Hi Diana, Julie, and KC - We found out yesterday that our daughter has fibromyalgia and POTS (blood pressure issues). Other than a diagnosis, not much has changed. We still struggle here daily. I hope everyone is continuing to improve.

      Kim

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      pksmdrag 7 years ago

      Good morning Julie - Your stomach/intestines might be all messed up from the multiple rounds of antibiotics. The antibiotics wipe out the good with the bad. If you continue to have problems you might try taking probiotics from the heath food store to help restore the good bacteria. Of course, I am no doctor. Feel better soon.

      Kim

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      Julie  7 years ago

      Hi KC/Kim/Diana:

      I'm so glad I found this site back in October when I first got H1N1 -- I cannot believe the symptoms continue but by sharing our stories its giving hope to us all that we are NOT crazy!!! KC I got H1N1 on Oct 23rd and was off work for 10 weeks - I just went went back to work Jan 4/10 but could only work half days because by noon by lungs would be wheezing/severe chest pain and short of breath. Since then I've been on 3 rounds of antibiotics (so most of January) and just finished my last antibiotic on Jan 24th. Last week I felt great -the symptoms in my lungs never came back. However, since the weekend I've had really bad stomach cramps, which turns into gas pain. Saturday night I was up from midnight - 3:30am with diarrehea.....I'm convinced its still the H1N1 virus --- only now its moved from my lungs to my stomach/bowels....did your son have this KC? What did they do for him? Diana - hang in there I had my lung infection once when I first got sick and then again in January for 4 weeks - it just doesn't want to give up.......I'm tired!!!!

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      diana 7 years ago

      Hi Kim, I can't believe the difference between Canadian schools and Massachusette schools.You should move to Canada!LOL! A little humour! As for my lungs it feels like h1n1 caused damage to them. I can't explain it but they just don't feel normal anymore on any day. It just seems like I'm doing my inhalers so much more now and not getting the same relief I used too.I have now resorted to trying hydrogen peroxide therapy. My friend has been doing it for 8 months and he feels fabulous so I thought I might as well give it a shot.It usually done intervenously but you can take it orally as well. So I got the book the 1 minute cure on how to take it properly and it sure gives me energy when I drink it. It is supposed to kill bacteria and viruses in your body. Cause bacteria and viruses can't live in oxygenated cells and this is what it does. I'll keep you posted on how it works for me. You should look it up on the internet. It's called hydrogen peroxide therapy(the one minute cure) Wish me luck!!! Always Diana

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      pksmdrag 7 years ago

      Hi KC - I was hoping you were the mom in Massachusettes. I want to know how they made out. Your son's story is too similar to the other 9th grade boy in Mass. Where he lives you automatically get a tutor if you are out 2 weeks. I hope your son gets better and stays better. I think if nothing else when you have digestive problems you get weak because your body doesn't get the nutrition it needs. Keep us posted on his recovery.

      Hi Diana - its nice to hear from you again. Glad to hear your daughter has energy even though she has a pretty good cough. Hopefully it won't get any worse. What exactly do you think is going on with your lungs? Can you take deep breaths or not? Does it still feel like something is there? I know Megan's lungs aren't right either, but that is the least of our problems. I would love for her to be able to exercise because I know that helps move stuff out of your lungs. She is working on a little homework now. Oh KC, the school does accept notes from doctors but they also want to talk to the doctors. The main problem was that my doctor of almost 30 years decided to wash her hands of this and told the school nothing was wrong with her and that she could go back to school. That doctor never bothered to call and tell me this. However, while she was telling the school she was fine to go back to school she was telling me to get her admitted to either a partial hospital program (for emotional/mental ill people) or admit her to the hospital for psychiatric evaluation. My daughter isn't mentally ill. She got sick and has never gotten better. She loves school (well, maybe not after all the trouble we are having!), was a high honors student,loved going out with friends, and participating in sports. I am just amazed how quickly doctors will tell you that you aren't mentally right if you tell them you have pain and they can't find it. I don't know if she has Chronic fatigue syndrome, fibromyalgia, or something else. I know with the first two possibilities alot of people are told that its all in their heads or are referred to shrinks. Many take years to get the proper diagnosis. Hopefully this week will go in our favor! I will certainly let you guys know. OUr first appointment is late Wednesday afternoon. Sure wish the CDC or some organization kept track of all the complications everyone has had after the H1N1. Write when you can.

      Kim

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      Diana 7 years ago

      Hi Kim, Sorry to hear your daughter still isn't improving I hope with these new doctors you can get some answers.I was talking to my hairdresser and her two daughters had h1n1 over christmas and the one daughter that was very active is very tired all the time still. So I think it hits teenagers very hard. My daughter still has a chesty cough but seems to have her energy back but she is only 7 yrs. old. On the other hand my lungs still aren't back to normal I've been trying to eat very properly and do breathing exercises as much as I can plus go on my treadmill to try and strenghten them back to normal. I do have a appt. with my lung specialist in Feb. so I will see where I am at then. It just seems like you start feeling better and then you get a cough or a chest infection again & again. It just doesn't seem to want to leave the body very easily.Alot of people are saying that they seem to catch everything now and it seems like everyone is sick everywhere you go. It's a really bad year for viruses.I hope you get the help you need when you see these other two doctors. Good Luck! I'll keep you in my prayers always!! Always Diana

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      kac 7 years ago

      Hi Kim - No, we don't live in Massachusetts. My son did not have a tutor, he got caught up all on his own except for my neighbor college student helped him with Math for things he couldn't understand. He has seen a little improvement in his stomach pain, but he is still pretty tired which is probably natural from the antibiotic battling away in his system. I am just really hoping this is going to be the end of his feeling horrible. Will the school accept letters from the doctor of what's going on with your daughter? I get the fact that the schools have problems with problem kids, but when they are good kids you would think they could be a little understanding and more cooperative. Let me know how things turn out with your doctor visits.

      KC

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      pksmdrag 7 years ago

      Hi KC - You don't by any chance live in Massachusetts? My niece's mother-in-law was tutoring a 9th grade boy with the same story you are describing. I am taking my daughter to a pediatric rheumatologist this coming Wednesday and to a Chronic Fatigue specialist on Friday. I switched doctor's recently and hired a lawyer because we are facing truancy charges. The new pediatrician thought my daughter might have fibromyalgia. Either way, chronic fatigue syndrome and fibromyalgia are under the same umbrella. Did your son have a tutor? Was her first name Nancy? I have wanted an update on the boy that Nancy was tutoring, but Nancy had surgery so I don't know if she even knows the current condition of the boy. Oh, the reason I am seeing both doctors next week is because I got the chronic fatigue doctor on my own when it was very clear that the doctor I had been with for 30 years and who had delivered both of my kids didn't believe my daughter. Please keep in touch. I want to know how everything turns out for you and your son. I hope that it all passes and doesn't turn out to be CFS for your son. I have been educating myself on fibromyalgia and CFS and hope that isn't what my daughter has. However, it has been a living nightmare not having a diagnosis and all that we are enduring with our school system. It doesn't seem to matter that my daughter was a high honors student, loved life and her friends, and did lots of thing, then got sick and can't function!!! Write when you can.

      Kim

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      kac 7 years ago

      Hi Kim - I was so happy to find out we are not alone with the H1N1 experience. My son is in high school and came down with H1N1 in early Oct. It has been one thing after the other since. He missed around 35 days of school last semester. His constant issues have been LOTS of fatigue, nausea, headache. He also would vomit about once a week which seemed to be on days he would have to get up early. After the H1N1 he had some slight patchiness on his lungs in Oct and then a mycoplasma infection in Nov. He has had several blood tests, chest xray, head CT and MRI due to constant headache which is finally gone. We thought he was finally starting to feel better and then got worse about 3 weeks ago. He ended up having a complete GI scope last week which found nothing long term which is good. The GI Dr thinks he may be having a problem now from the Doxycycline and Zpack he was on in Nov. to get rid of the mycoplasma infection. It kills the bacteria, but leaves an environment for some other bad bacteria to flourish in. He is now on Flagyl which is used in colon issues and will kill this other bacteria if that's the problem. Our pediatrician too was beginning to wonder if he didn't need to see a therapist for anxiety, etc. I told him more than once that it's not in his head. He is so laid back and things really don't bother him. The pediatrician also mentioned chronic fatigue syndrome as a possibility but didn't recommend seeing another Dr about it. My son is an honor student. He had to drop 2 classes last semester and the school let him finish out the semester on the first day back in Jan. It was quite an ordeal to get this accomplished. So far he has missed 14 days out of 17 this semester and am really hoping he is able to get caught back up and the school understands. Hopefully the Flagyl will start working soon and he doesn't have any of the stomach issue side effects and will get back to school soon. This whole thing has been very stressful and I really don't think the Dr's know very much about long term effects of H1N1.

      KC

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      pksmdrag 7 years ago

      Hi Julie and Diana - I hope this finds you both doing better. My daughter is about the same but looking a bit more rested. She is still in pain. We just have to hold out for two more weeks. Then we get to see two different doctors that may be of some help. I do like my daughter's new pediatrician. She is so supportive. Let me know how you are doing. I sure hope you can tell me you are doing much better. Have a nice weekend.

      Kim

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      HerbalScience 7 years ago from Naples, Florida

      Susana, your personal account of suffering through the H1N1 virus is an important reminder to all that we be proactive by eating right and taking vitamins and herbal supplements that are known to boost immunity. It's also helpful to hear that your husband's flu symptoms were cut short. Natural products such as elderberry extract are another way to shorten flu symptoms without a prescription and are readily available to everyone.

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      mark 7 years ago

      Hi it Great.Thanks for such an important hub. Nice to meet you.Then I will come back again.

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      vasutkin 7 years ago

      it's awful

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      Diana 7 years ago

      Hi Kim & Julie, Well Kim I spoke too soon for my daughter today she came home with the stomach flu.She's been vomiting since she got home but there's nothing left now.But my fiance had it on Friday & so did summerlin's babysitter so I kinda expected it but was hopeing she wasn't there long enough to catch it.Ray only had it for a day or two & same with Darlene so I hope summerlin recovers just as fast and they keep it to themselves!Julie I totally understand what you mean by do your antibiotics and then a week later on some more. I'm so tired of it as well!! I'm just hopeing that our lungs are ok after all of this not scared from it.I still have about another 5 days of med's then hopefully be good for awhile hopefully! But I still get pain in my centre of my chest as well it has to be from the h1n1 if we all have it.Anyway the saga goes on!Good Luck Ladies and lets all try & have a great week anyway!Always Diana

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      pksmdrag 7 years ago

      Hey Julie - I am sorry you aren't doing any better. The lung specialist that saw Megan back in mid December said that its possible that she may have had pleurisy but he couldn't tell for sure. He did say that the 5 days of 40 mg prednisone would not have been a high enough dose nor long enough treatment. What did your doctor treat your pleurisy with and for how long? That may be part of the problem. Like you Megan had lots of wheezing, but it wasn't asthma. They tried two different inhalers (but not advair) which were the same just a different name (dah!). Neither one worked. It sure sounds like the same issues with you guys and no one knows what to do about it. Nothing ever showed up on the x-ray. Well, the battle goes on. We will keep you posted on the progress we make on this end. My daughter said the pain patch may be working (at least right over the spot where it is being worn - 12 hours on and 12 hours off.) Do you sleep ok or is that difficult, too? Feel better soon. Three months is a long time to be miserable. My daughter has been not well since Sept. 9th and we are so sick of all of this! Well, battle on. We will be right there with you!! Feel better soon.

      Kim

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      Julie  7 years ago

      Hello Diana/Kim:

      Sounds like you both have had your hands full and this nightmare does not want to end. I finished another round of antibiotics last Tuesday and felt awesome (Tuesday-Friday) and then by the weekend the shortness of breath is back and tonight my upper chest in the middle started to hurt again in the bone (similar to what your daughter is describing Kim). I suspected when I had this 2 weeks ago that it was pluesy caused from the H1N1 but my Dr. was insistent that its not from the having the H1N1 for so long. I don't think he is right and now that the med's are done and my symptoms are coming back I'm fed up - I'm calling him tomorrow and won't likely get back in to see him until later this week and this time I'm requesting a referral to an internist who knows more about the lungs. Its been 3 months that I've had respiratory problems associated with the H1N1 and I'm just sick of my Dr. ignoring the real issue and masking it with antibiotics!!!

      I will let you all know how I make out and hang in there - I know its hard and very frustrating.

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      Diana 7 years ago

      Hi Kim, Nice to hear you got to spend some time on yourself it takes alot out of a person to care for someone else all the time.Good for you!I hope that with this new doctor they can get her back to the girl she used to be.I really wish you luck always!My daughter has been doing pretty good knock on wood.They went swimming 4 days last week with school and I was worried about the chlorine going to bug her lungs but she had a great time.She does have a bit of a cold now again just the stuffed up nose but that's to be expected with our immune systems right now.Over all though she seems to be getting on well.I've still got something in my lungs that is hanging in there so if these med's don't take it away then back to the doctor again.Hopefully it will clear soon.I talked to the radioligist who did my ct scan and she said they are still seeing people from Oct. that had h1n1 coming in with recurring pnuemonia and pluerisy.So this doesn't like to go away easy that's for sure.I just keep praying that it hasn't damaged my lungs and that one day they will go back to being healthy again.Well I'll keep you updated and you Have a great week!!! Always Diana

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      pksmdrag 7 years ago

      Hi Diana - my daughter has pain in alot of muscles all over her body and some joint pain in her elbows, knees, and hips. However, the pain in her back is the worst and tends to be in her lower back. She is wearing prescription medicated patches but they aren't doing anything yet. They told us it could take awhile to work. She has been wearing them for 9 days I think. I got to go out with a friend today for a few hours so that was most enjoyable. My husband had my lifeless daughter move a big tv with him. Ever since she did that she has been coughing alot. So, even though her lungs haven't really been a problem for weeks, it sure seems like something isn't perfect yet. She says this time it seems to be at the top of her lungs in the middle (right above the heart). I would do anything for my daughter to have her previous life back. I personally think she has Chronic Fatigue Immune Disfunction Syndrome. Time will tell. Atleast we have one doctor that seems willing to help us. Oh, we haven't had any CT Scans done. They don't like to radiate kids much. We'll see what the future holds. I think our new doctor will do more tests to figure this out. I hope your daughter is doing much better. Is she able to play with friends again and do some of her normal activities? Enjoy your weekend.

      Kim

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      Diana 7 years ago

      Hi Kim & Julie, I hope you're feeling better Julie it's been a long week but I made it through! Hi Kim, what part of your daughters back is still in so much pain? Is it her lower back or by her lungs? Has she had a ct scan done on her lungs & or back yet? That might be something you want to ask to have done.I went for an xray and they saw some arthritis in my back so today I went for a Ct scan to see whats going on. But I wanted him to do a ct scan on my lungs again just to see where they are at and he said they would do my lungs with the back but when i had it done they said that's another ct scan that he would have to book.So now do i go put my body through anymore radiation this year or just hold out & let my body heal on it's own. I'm trying for the healing on it's own.But I still would suggest they do a ct scan on your daughters back & lungs. Listen to me I sound like I'm a doctor or something far from it! Just giving a little suggestion. I'm still on medication for another 6 or 7 days so hopefully this is the last of it for awhile.But it seems like everywhere you go right now someone is sick. Is it just me or does it seem like this year is really bad for illness's? I don't remember so many people being sick in one year. Anyway I hope all is well with you daughter and I really hope they get her the help she needs. Julie I hope you're doing better! Have a great weekend and we'll keep in touch. Always Diana

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      pksmdrag 7 years ago

      Hi Diana and Julie - I hope this finds that you both made it through the week and are feeling a little better. I got to take my daughter to a new pediatrician this morning. I do believe she is going to really try to help us. After we met with her, then my daughter had alot more blood work done. Even if all that turns up negative at least we can rule out some other things! I am in the process of getting her a rheumatology appointment since I have both Rheumatoid Arthritis and Polymyalgia Rheumatica. I don't think she has RA, but I do think whatever is going on has something to do with her immune system at this point. She still suffers terribly from fatigue, muscle/joint pain all over but mainly back, headaches, and possible cognitive impairment. Well, feel better and let us know how you all are doing.

      Kim

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      Diana 7 years ago

      Hi Kim & Julie, I know how you feel Julie it's my second week back and I am working full days but my lungs are closing up on me alot. I use my inhalers alot and I still am short of air. I am even doing prednisone with my inhalers and I am still tightening up it's so scary.I'm just hoping that this h1n1 hasn't damaged my lungs cause I can't see myself on all these medications for the rest of my life and having to fight for air all the time really sucks!!! I think I have an infection in my lungs again I thought maybe it was just viral but I'm having my doubts so I'm off to my doctors again today.Plus I have to go for a ct scan on friday again. I really felt awesome my first week back but a few people at work were sick so I could have caught a bit of their bug. Great!!!! Still trying to stay positive and work through all this again & again! Hi Julie sorry to hear things still haven't got any better for you & your daughter. Hopefully with these new doctors everything will turn around for you.Hey Kim you said it was about 2 months for your daughters lungs to stop wheezing and hurting right? It's now 9 weeks for me and I think if no one around me had bugs my lungs would have been fine but I have to work and I can't work in a bubble so here I am again fighting with my lungs again! Good Luck ladies and hopefully this turns around for the good for us all soon!!! Always Diana

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      pksmdrag 7 years ago

      Hi Julie - I am glad you are slowly starting to get some of your life back. Boy, it sure can be a long road to recovery for some! We are frustrated on this end. I made an appointment to get my daughter into a pain management program for kids that is supposed to be very good. The only thing is that they can't see her until the beginning of March. I have her seeing a therapist once a week now. I am tired of dealing with all of this. The school wants to be able to talk to all therapists and doctors that I take my daughter to. I have been open and honest with them, but I am just tired of it. I feel like some of the school personnel just want to drug her to make this all go away. I keep saying there isn't a quick fix to this. Of course, they won't try providing a tutor. So, my daughter has been dealing with all of this for over 4 months now with no tutor. She won't even attempt to do any work anymore. I don't know how much of that is from giving up or from cognitive impairment or whatever. She is still in pain daily. At least I have a doctor that knows alot about chronic fatigue syndrome who we will see the beginning of February. It won't be the 6 months that is necessary for a diagnosis, but its a step closer. At least this doctor should be able to give us a better idea if its a possibility or to try something else. Julie, I would think that your lungs should slowly continue to improve. All I know is that all of my daughter's symptoms improved very, very, slowly. You could not see or feel improvement on a daily basis which is frustrating. Feel better soon....

      Kim

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      Julie  7 years ago

      Hi Ladies:

      I'm still having chest/breathing problems so I've increased my Advair puffer back up to twice daily. The Dr. he is treating this like Asthma and its a complication from the H1N1. I'm almost done my antibiotics for the pluersy (lung inflammation) and I'm still exhausted. I'm into my second week back at work but am only working until noon then home due to exhaustion, shortness or breath and I was wheezing but the Advair helps. So, after 10 weeks and like you Diana I was excited to get back to my life last week but am now very cautious not to overdo it. I tried getting back on my treadmill last week and after 10 min's was short of air and have not gotten back on since. Its definately going to take more time before we are fully recovered. I"m glad to hear you have a new Dr. Kim....I hope things work out.......get lots of rest and take it easy ladies!