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Updated on March 26, 2012


Last week {March 18 th 2012} I posted a Hub highlighting the special problems encountered by the learning disabled and the fears of their parents for their care when they are no longer around to care for them. The Hub followed my reading of the efforts of ROSA MONKTON and her campaign "Adults in Need". Ms Monkton herself has a daughter who comes into the category, hence her concern and the campaign she has rolled out to get the British Government to ring fence, in these austere times, the money they have allocated to local Councils to pay to social care. Having publicised the problem so well in the UK , Monkton is seeking to have the matter fully debated in the British Parliament.

The essence of the problems encountered by parents and cares for the learning disabled is crystal clear and stark. Whilst they are around they provide the essential support to enable the recipient to have a structured and meaningful, happy life. However, once they become unable to provide that care through their own demise or infirmity in later years, there is a huge void that awaits the cared for without adequate social provision.

Over 1,500 parents and carers have already made contact since the campaign was publicised just 2 weeks ago. The current Government in 2010 promised to increase by £2 billion, funds for Social Care for Adults by 2014 / 15. However that money was not ring fenced and carers have a real fear that it will be diverted elsewhere and deny help to the country"s vulnerable adults. These include those currently cared for by their families and who are afflicted by problems such as Down"s Syndrome, Cerebral Palsy, Epilepsy, Aspergers syndrome, Autism , Speech Disorders and all kinds of other afflictions that retard development and all of which demand round the clock care for adults who may function only as an 18 month infant may do.

The plight of these people and of those who devote themselves and their own lives to their care is easy to understand. The Government say that they are providing an extra £7.2 billion over 4 years to local authorities so they can protect access to care and support. However, those at the real sharp end of this ship are far from reassured. The British are well aware of the ability of their Governments to change goal posts to suit themselves and also that local councils are not to be counted on for committing themselves to such cause totally, nor providing equal services from one area to another. The threat of the post code lottery is too well known for there to be trust in these matters. As a result there is a considerable amount of fear, anguish and real anger amongst families and carers of the learning disabled who see a horrendous future for offspring who, when they are not able to provide, will be left effectively helpless and hopeless.


We are all used to receiving graphic and worthwhile appeals for help from special interest groups and these usually end by asking us to support them financially. The British are not backwards in coming forward to help such worthy causes from their own pockets. As an example, one night of televised Sport Relief raised over £50 million recently. However, the call from Rosa Monkton is not for the cash of the individual. It is not for more funding from the Public Purse. It is purely to seek to have that already committed by Central Government ring fenced for the purpose stated and for it not to be able to be diverted for, for example "nicely painted town halls".

Anyone who wishes to support this can do so very easily. The aim as stated is to secure a Parliamentary debate to confirm the previous commitment and ring fence the funding. To do this 100,000 signatures are required . Thankfully, in this modern age, the power of the Internet makes that a clearly obtainable figure. To add your voice to this very reasonable request, all that is required is to go to and follow the simple instructions. Already, a substantial number have so done and it is very much hoped that the 100.000 figure will be reached soon.

Those of us who were fortunate in the lottery of birth can, in this small but significant way, give our thanks for our good fortune and genuinely seek to help those who were the unfortunate, but still worthy, members of our hopefully caring society. Please go now to: and have your voice raised in support.


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      j w adams 5 years ago from Essex/ Alanya/ Hurghada

      Susie, My good wishes to you and your grandchild. Please encourage all your friends and family to sign the petition as it is numbers that matter to get this matter debated in Parliament.

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      susie kassem 5 years ago

      We have san adorabel grandchild with Down Syndrome thank you