Help Dealing with Epilepsy
I have had epilepsy for almost 25 years. I have several types of seizures, take several anti convulsants, and I’ve also had a vagus nerve stimulator (VNS) fitted. As you can see from my photos I'm not one to give in to my epilepsy. I like to have fun, but relax when I need to as well.
If you find any of this information useful then I am glad I have helped. If you would like to contact me please feel free to do so, I will give the best advice I can.
- Don’t let it take over your life, you must fight back.
- If there are side effects to medication that induce bullying; ignore the bullies.
- Stay strong even if you end up with severe injuries.
- Ask for help, there are normally a lot of support networks around for you. Take advantage of them.
- If you are young with epilepsy, make sure you still have fun. Do not become a recluse.
- Be open about your epilepsy, tell people you have it. They’ll be happier you did that, so they know what to do if you have a seizure around them.
- Don’t be afraid to get upset and/or have down days. It happens to us all no matter how positive we are.
- Have realistic goals; don’t feel like a failure if your brain is not allowing you to complete something.
- If you are scared of new tests, repetitive tests, new medication or if you hear the words “we’ve run out of drugs to try,” then show your fear. If you want to cry in the doctor’s office then do so; they’ve seen it hundreds of times before.
- Ask questions at any appointments you have. Make sure you get as much information from the doctors and/or nurses as you can. You don’t want to walk away thinking ‘oh I wish I’d asked...’
- Make your life and environment as safe as you can. For example: make sure someone is with you when crossing roads.
- Some seizures can cause memory loss; this can make you exceptionally angry when you can’t remember saying certain things. Stay calm and know that you cannot help it.
- You must keep smiling! There will always be someone worse off than you somewhere.