ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Huntington's Disease Life Expectancy

Updated on July 7, 2017

Is There a Possible Cure For Huntington's Disease?

New advancements in technology and treatment provide a much brighter future for its patients. This article will give you a better understanding of one's life expectancy after diagnosis

What is Huntington’s Disease?

The first question that seems to come to everyone's mind when they are unforgivingly thrown a the curveball of this horrific disease is; WHAT AM I/my family member/friend in for? Huntington’s Disease is a neurodegenerative genetic, single gene disorder which is passed down from parent to child in which the nerve cells in certain areas of the brain essentially degenerate. This disorder affects muscle coordination and leads to a decline in the patient’s cognitive and psychological capabilities ultimately affecting their ability to think, talk, and move. HD is caused by a mutation in a gene on chromosome 4. The job of its protein product, when normal is to direct the delivery of vesicles containing important molecules to the outside of the cell. Normally, the region of this gene contains the DNA sequence of “CAG” repeated over and over varying from person to person; ranging from 10 to 26 times. People who have HD have an abnormally high number of the CAG DNA sequence, roughly 40 or more. The brain cells of HD patients gather bundles of protein that become toxic to the cells causing them to die.

Who is at risk?

Huntington’s Disease is transmitted from parent to child, meaning only the children of a parent who has the abnormal gene are at risk. Children of HD patients are at an extremely unfair advantage because they have a 50 percent chance of developing the disease. If they do end up getting the abnormal gene, and they have children, their offspring will also have a 50 percent chance of falling ill. However, if they do not inherit the abnormal gene, the disease will end with their mother or father, no longer being carried down their gene-line.

One of my parent’s has HD. What are my chances and can I be tested for the abnormal gene?

While there are tests available to children of HD patients, there are a few steps to take before the initial testing. Most testing programs include but are not limited to:

· A neurological exam

· Pre-test counseling

· Follow-up visit

The reason for the neurological examination, counseling and follow-up visit are to first determine whether or not the person requesting the test is showing any symptoms of HD. Once approved for the test, a team of the following specialists will be involved and closely monitor the patient:

· Neurologists

· Genetic Counselors

· Social Workers

· Psychiatrists

· Psychologists

This team of experts will work together to help the at risk person decide whether or not testing is the right decision to make, and will very carefully guide and prepare the person for a negative, or positive test result. While the person may want more than anything to know their fate, HD is fatal, there is no known cure, and once they receive the information, there is no going back.

For the test itself, the patient will provide a small sample of blood that is screened in a laboratory for the presence, or absence of the Huntington’s disease.

When will Huntington’s disease appear?

Huntington’s disease typically becomes noticeable in mid-adult life between the ages of 30-50. However, there have been a few cases where patients have been diagnosed at a much younger age; as early as two years old.

Is there a cure for Huntington’s disease?

At this time, there is no known cure for HD. However, there are several medications and treatments that help to slow down the deterioration of the brain. Researchers and scientists have made great strides to beat this disease, and one day, there will be hope at the end of the tunnel.

Huntington’s Disease Life Expectancy

While there is no known cure for Huntington's Disease, new advancements in technology and treatment have been a huge aide in providing a much brighter future for its patients. The life expectancy and mortality rate for Huntington’s disease is something that many people tend to be worried about. Unfortunately, when it comes to an exact answer, there is no way of telling. Generally, once diagnosed with HD, patients can live from 10-30 years more depending on the severity of the symptoms.

Understanding Huntington's Disease

How To: Live With This Disease

How common is Huntington's Disease?

Someone I know is suffering from Huntington's Disease

See results

The Inevitable Test

Would you get tested for the HD gene?

See results

© 2012 BriannaGalapir

Comments

    0 of 8192 characters used
    Post Comment

    • profile image

      Melody mel 

      13 months ago

      I have this but have not tested as I couldn't cope with the knowledge and hope something else takes me before the really late symptoms. I have seen this distructive illness in my mother starting at age 40 and death at 52. I take supplements fish oils and read a lot and keep active, but have had the chorea for al0ng time.

    • profile image

      me 

      2 years ago

      very good source

    • David Roalsen profile image

      David Roalsen 

      3 years ago

      Virginia, look up CNN report on "Weed" . It will tell you more about Charlotte web.

    • profile image

      Virginia 

      3 years ago

      has anyone ever heard of Charlotte web

      medical marijuana it was on date last night dateline

    • profile image

      Shell Shic 

      6 years ago

      This is very well written as well as informative on a subject that is not covered often. Impressive.

    • pringoooals profile image

      Karina 

      6 years ago from Edinburgh

      Clear explenation of Huntington's disease. Very informative and useful article.

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://hubpages.com/privacy-policy#gdpr

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)