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Updated on October 29, 2010


 Regular readers here will be aware of the way in which various sections of the Hospital system all are involved in patient treatment and coordinate together to provide what is required in the order and time necessary. Check LYMPHOMA/33 for a resume. Of course, the success relies on a fully working partnership betwixt Patient and the treating agency.

The need for this was brought into clear relief to me, by the events of the past 2 days, and which serve to show not only awareness but flexibility, on behalf of the agencies to deliver, at least to this patient, the care required,My initial appointment on Wednesday was to be at the next town Hospital to join the mobile CT Scanning Unit. These travel areas of the country and it is vital patients are there for the scan or they may have to wait over a week for the next opportunity.

Due to circumstances we need not touch on here, my appointment time was muddled , our fault,, leaving me 45 minutes late arriving for the scan. The guys were very accommodating and said they could fix me in after the next two patients. The trouble was that after the scan I had to dash back to my home Hospital for Chemo and the times did not fit. Fortunately, a call to Chemo saw them also accommodate me and to ensure that I was treated that day as required under my treatment plan.For me, the patient, the stress factor of both getting my treatment and not disrupting the agencies was high, for I am aware of how the cost of"no show patients" affects the service and forces expenditure to levels that could be avoided.

In the event, thanks to the cooperation of the CT boys, all was done and dusted in time for my rally driving son to get me to Chemo on time, or close to time, where we found a rest time of 45 minutes before treatment.At the commencement of each treatment the nurse appointed goes through questions and checks on facts. As I had had a blood test, the results were readily available and started Emergency 2 for the day! My Haemoglobin levels were low, accounted for by a pretty severe nose bleed 2 days previously. As Chemo drags down, Haemoglobin levels routinely, there was thus a question as to whether I could be treated. Our nurse went not one, but at least five miles extra for me to find a solution, and eventually, in association with the Doctor who weeks ago, had done my blood marrow test ,eventually arranged with Blood Transfusion Service { another Agency to add to the list involved} for blood to be available next day. This effectively could have meant me staying in overnight after Chemo, but explaining my grandchildren were on half term and had come to see me for just 3 days, our super nurse then arranged for me to book in and go home to report to the ward at 8.30/9.00am next day and to be taken there earlier if I had any overnight problems. These did not result so we reported at 8.45am for transfusion.

I was told, to my surprise,that the transfusion would take around 6 hours to complete as I would need 2 bags{practically an arm full} by the Chemo team but was completely taken aback to be told in the ward the order was for 3 bags{practically a leg full} and I would be there all day to 7.30 pm approx.My son and I repeated what Chemo had told us and the sister said she would investigate further and that this had been an emergency booking but with the day to check out. Thus I spent a relaxing 6 hours with blood pressure checks every 20 mins or 1 hour as the blood dripped slowly,very slowly into my arm. I had snacks, a decent lunch of gluten free roast pork and had regular visits from wife and son. Sad to report my wife"s father was also there but in vigil by the bedside of his 84 year old YOUNGER brother who sadly died the following night.wife of course, split the time between wards quite rightly.

As bag 2 ended and the subsequent saline flush was operating, sister returned with the good news that 2 bags, just over 600 ml was enough, according to Doctor and I could thus depart. Emergency met ,dealt with and completed satisfactorily.Do I feel different today, in all honesty no. I am on the Steroids so plenty of energy and ready to help aged father in law ,as next of kin, with the logistics relocating to the death of his brother. I would not have been in shape to do this 4/6 weeks ago, so signs are encouraging.


CT results are on their way and Thursday next, top man Dr Cervi, will a see me to tell me how far we have, or have not gone forward in the battle. PMA and thus optimism reign supreme, but there is no bubble that will be pricked if the news is not as we want it, it will be a case of on to the next treatment, whatever he determines The past 6 weeks of treatment{ 2 left in this one of course} have seen ups and downs, so being prepared is preparing to succeed but failing to prepare is preparing to fail. The latter is not and cannot be, an option for anything let alone this battle.

I am conscious that this has been a very personal hub, but daily in Lymphoma treatments all over, things like these, and far worse, take place. My emergency, like the majority are dealt with calmly, fairly and effectively by the agencies and thus, I urge faith in them and a POSITIVE MENTAL ATTITUDE to things, from yourself and/or the patient as it may affect you.






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