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Labyrinthitis: An Inner Ear Condition

Updated on August 8, 2007
I feel like I am seasick, but I am landlocked!
I feel like I am seasick, but I am landlocked!

Reminds me of the Labryinth

My Experience with Labryinthitis: A Personal Look at the Condition

A few months ago I had these dizzy spells that came and went. They lasted for a long time when I had them, but came and went. One day, it was so bad I went to the ER, which I blogged about. The ER doctor told me it was vertigo and prescribed me an antihistamine, meclizine.

I followed up with my Dr. the next day and he said I had acute labrynthitis. To the layman, this is from a virus in my inner ear. Basically, since that is where balance is controlled my brain is confused. It doesn't know where I am or what I am doing, which makes me dizzy all the time. He said the ER doctor gave me the right medication. I took if for about a week and it went away.

The bad part about this is that this condition can last for years- there is no cure. I can only mask the symptoms. So, yesterday it came back. However, I shrugged the dizziness off as not eating. When I got home, it became worse and today, even worse. I had some comp time from work I was using this morning, but asked if I could take the afternoon off. I also realized that we have training on Weds., snd told my boss I would still come on for that. However, I just got out of the shower from a scary experience.

While I was showering-and no I was not singing-I lost my balance and almost fell. I caught myself, but my heart was racing and I was petrified at the thought of me getting knocked out and laying in the shower, naked with water failing on me and no one around to help since I am home alone. It was a scary thought.

I usually shrug things off, but I need to start taking care of myself. I called the Dr. and the earliest they can see me is at 1:00 tomorrow. I called my boss to let her know. She advised that I stay home-even if I did go to the Dr. driving this dizzy is not a very smart idea.

The medicine does not seem to be working this time, although maybe I do need to take a few doses before it kicks in. When I took it last night, about a half hour later, around 8:00, my eyes were so heavy and I was slurring my speech. The next thing I knew, I woke up this morning on the loveseat, half sitting up. It conked me right out. I remembered that my doc said to take just half if that happens.

It upsets me feeling this groggy from a medication-first of all, I have more energy than ever since I became a vegetarian and it is also a lovely day. It's terrible I feel that way. Second, from a general standpoint, it's terrible that all a lot of medications do is make you sicker or have bad side effects. Sure, I can't feel that I am dizzy-BECAUSE I AM ASLEEP.

I am not sure what more the doc can do for me. Maybe there is a different medication, or maybe there is something else they can think of that I may have. In a strange sort of way, I like the name of my illness- acute labrynthitis because the Labyrinth was always one of my favorite movies.

Labryinthitis: A Medical Look at this Ear Condition

According to e-medicine.com, Labryinthitis is somewhat of not so much a rare condition, but one the medical community does not fully understand.

Labryinthitis is defined like this:

Labyrinthitis is an inflammation or dysfunction of the vestibular labyrinth (a system of intercommunicating cavities and canals in the inner ear). The syndrome is defined by the acute onset of vertigo, commonly associated with head or body movement. Vertigo is often accompanied by nausea, vomiting, or malaise.

What causes Labryinthitis?

According to e-medicine, physiologically, a mismatch of vestibular, visual, and somatosensory systems is present. This mismatch is triggered by an external stimulus, such as a stop after turning, a change in altitude, or motion/height sickness. A lesion within vestibular pathways (ie, inner ear to cerebral cortex) causes this imbalance.

Who Gets Labryinthitis?

More women than men contract labryinthitis, and most people are in their 40s.

What happens when someone gets Labryinthitis?

Although the vast majority of cases of labyrinthitis are self-limited, a minority of patients can have a more chronic and prolonged course. Patients express difficulties involving vertigo and hearing.

--Vertigo from movements, not limited to turning over in bed, reaching above the head, turning the head and more.

--Nausea and vomitting

--Temporary loss or change in hearing

How long does Labryinthitis last?

--Doctors say that this condition is self-limiting and usually goes away in a few weeks, however reoccurances are very common.

--Reoccuring episodes can last up to five years after the first case hits.

How is Labryinthitis treated?

Usually, medication is given to help treat the symptoms of the ear condition. Most commonly, antihistamines are given. Several medications have antivertiginous properties (eg, meclizine, scopolamine, ephedrine, dimenhydrinate, diazepam) and others are useful as antiemetics (eg, promethazine, prochlorperazine).

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      Sherri 2 years ago

      My fiance' has this. He was off work for 8 weeks... bedridden because of it. Every time he would get up and move he would vomit or at the very least get very nauseous/dizzy, like his brain couldn't keep up with his movements. After he got past the worst part of it (less vomiting)... around 5-6 weeks into this, we started doing things that would force his brain/body to adapt to this damage/change in his inner ear. I would throw a ball to him while he sat on the couch... toss it to the left... to the right, etc... Force him to get dizzy so that the body would know what to adapt to. This helped tremendously. While he isn't 100%, he improvement much quicker and he was able to go back to work about 2-3 weeks after we started working on this. It is my understanding that if the brain/body never gets a chance to adapt, because you continue to lay around immobile or take meds(which didn't help my fiance' anyway) to conceal the symptoms, then it prolongs the recovery. So even if it makes you nauseous, if you can do so without throwing up, make little steps to help your body learn to adapt. Walk around the house, in the yard, close to home, exercises like tossing a light ball, etc. He still has a light ringing in his left ear and some hearing loss as well in that ear, but he's about 85/90% better than before. He didn't drive his work truck the 1 1/2 weeks after he returned just for safety precautions, but he's now fully functional at his job. We hope the ringing goes away eventually and hearing returns, but if it still hasn't after about 12 months there's a good chance that damage is permanent.

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      Marcelo 2 years ago

      Hi Paul,I thought I was nuts until I found your post today. For years I have been geitntg very bad headaches that I related to allergies. I get them mostly from fall to spring but still get them occasionally in the summer. Last fall I flew to Vegas in early December. I always have problems with my ears plugging up/extreme pain when I fly. This trip wasn't to bad but after a day or so my chest felt like a weight was sitting on it and I had bad headaches plus dizzyness. This didn't go away when I got home to Rotterdam, NY. Actually, it didn't subside until summer and now that it's fall, it has all started coming back. My doctor told me it was anxiety. His PA said he saw fluid in my ears and gave me a sample of nasonex which did nothing to help. My ears click each time I swallow. I can feel fluid move from one side to the other when I lay on one side and then rollover. I suffer from acid reflux which I believe is from the tons of post nasal drip I deal with daily. It seems to flare up when I am suffering one of these attacks. I feel off ballance and dizzy, almost like I'm a split second behind. I turn my head and it feels like im still moving in that direction for a split second after I stopped. I'm also exhausted all the time. I have tried nasal salines and they work to a small degree. Also Claritin D and Benadryl but they only ease the symptoms enough that I can somewhat function. Hot tea and hot showers help also. I love the northeast and really don't wish to move but if I found a place where these headaches would go away I'd be there in a heartbeat.

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      Randa 2 years ago

      In response to Jeanette's post, (although 2007), reinrdgag the effectiveness of the Earpopper, I purchased this device for year-roud allergic rhinitis. I had done a round of skin testing with my allergist who found sensitivities to cats, pollens, and molds. My symptoms were occasional bouts with vertigo, frequent dizziness resulting from eustachian tube dysfunction. She prescribed Claritin, decongestants, and Flonase. She also uses the Earpopper in her office and I can tell you the relief from the dizziness would be immediate,and the tubes would drain over the next two days. (It helps to sleep in an elevated position, also). I do not like using drugs because they carry the same side effects I am trying to avoid. She also suggested anti-inflammatory dietary measures such as fresh ginger (ground and boiled into a tea), the use of tumeric in cooking, vitamin C,quercetin, and the elimination of dairy, wheat and soy. The Earpopper can only be obtained by prescription, but she would notgive me one. Perhaps if I had persisted long enough, she may have, but my family physician readily did, since he used it himself. His warnings were probably the reasons that the allergist had: the Earpopper can create a momentary dizziness ifnot used properly. The company says that their product is totally safe, and will not rupture the eardrum. I use the Earpopper onlywhen I am dizzy. (I do not have hearing loss.) This amounts to once a week or once every twoweeks, depending. I will sometimes take a Claritin but that would be so rare, maybe once every three weeks, if that. Also, I am being treated by a chiropractor for neck and back problems. He does not crack the neck in his practice (not a safe practice,related to stroke, please google for more info), but uses an activator and manipulation. All designed to align the vertebrae, and also relieve blocked eustachian tubes. He does not make any claims toward curing allergies, he just relieves the symptoms, andprevents furthur degeneration in my neck.

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      HappyGurl 3 years ago

      I have been reading all your sufferings and symptoms and I can't believe how little I read about VRT. I have been suffering for years with bouts of vertigo and the intensity of it just kept increasing. I am a personal trainer and it was interfering with work, social and sleep and all the other symptoms you all have been suffering with. The last time I went to the ER, it was really bad, after tests to make sure my head, blood pressure, heart etc were found to be in fine working order, thank God, the doc referred me to a physio therapist that does VRT. I call it magic. Incredible! no pills, no more suffering. I am free and clear. Now when I forget to put plugs in my ears in the wind, it will come back, I just go to see the physio therapist, have a VRT treatment and I am back to normal in less than 5 minutes. Incredible!!! Please try it, it will change your life.

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      Harmonica17 5 years ago

      Update: My latest round of Docs for the last two months point toward Spinal Stenosis as being one of the culprits, as in the nerve endings in my c-spine. The other is some sort of inner ear damage that they cannot see. as far as medical test I'am out of options. Apparently according to my Doctors any further testing would only cause more harm than good. So until I come across anymore suggestions I will try to live with this the best that I can. I wish that I could have been able to discover the exact cause of this but it has proven to be very difficult. I have now spent close to "one million dollars" on chasing this problem and I'm no closer now than I was when I started.

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      fi 5 years ago

      good therapy for me is my furry little four legged friends !

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      fi 5 years ago

      your symptoms are exactly the same as mine, and l have been to a lot of doctors that look at you like you have come from outerspace !! which is how you feel spaced out some days ! big spaces such as large shopping centres is hard for your brain to signal your body that there are boundries to keep walking straite, but my right side has lost the plot and cant comprehend, my inner eye aches all the time and is damaged as l have explained in my other posts, my condition started from a bad cold, virus which l didn't get treated antibiotics in time to fix the problem, the inner ear is very delicate and once the hairs are damaged theirs no going back you have to start training the other side of your brain with the excersises, because all your pain and energy has been concentrating on the dicky side, l donate money to the organization that is currently trying to find a cure for us in Australia, so l live in hope and try to educate other people about this condition, we have a Meniers group through out our states which is a great therapy group which concentrates on all balance and inner ear conditions, 15 years for me !

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      Harmonica17 5 years ago

      I know this to be true all too well. Somethings you just can't see. But that's the way it goes. The stats on the number pf people that go and see the doctor for this type of dis-order is staggering, 10% of the population, that's a lot of dizzy people. Where do you think the report is on people that have had this and passed away and they found out what it was???? It seems to be as hard to find as the problem itself.

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      fi 5 years ago

      it comes from the inner ear and they can not see what's going on unless you are dead, only then they can open you up and take a look l am afraid to say but its true !

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      Harmonica17 5 years ago

      Ok, now I have been to my fifth Nero and my 18th specialist. I had a one hour consult as he went over my scans and checked me out. Again, I was told this time that I may have Migrane issues along with cervical vertigo, but that I my balance was ultra senstive and that no evidence could be found except for the moderate stenosis of the cervical spine that I have. He recommended neck therapy and some muscle relaxers. So I'm not any closer to finding out my condition than I was when I went in. I have no idea what this is, but it is very hard to deal with. Now back to the drawing board for another round of tests and new Docs etc... I will keep you posted.

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      Harmonica17 5 years ago

      I appreciate the email that I received concerning Lyme Disease, But I have never had a rash or a tick bite that developed into a problem associated with that issue, I haven't had fevers, My problem is a progressive one, what started out as being off balance just slightly has now developed into a full time problem, always there, just sometimes it's manageable and sometimes you are bedridden, you never know. I still remember what it was like to be normal, and that keeps me searching for an answer. Tommorow my FIFTH Nerologist. Who knows maybe this is the one that will be able to think outside the box, And that's what it takes a doctor who starts searching for needles in haystacks.

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      Harmonica17 5 years ago

      After reading the post I thought I would share with this group something that would take me on a 12 year journey. In the year 1992 I woke up one morning and decided to take my morning walk about 1 mile, during my walk I noticed that I had this slight motion issue, very slight but I did notice it, It frightened me and I rushed home, I then started to going to ENT's Nero Docs, Brain MRI's blood work, you name it I had it done, but no doctor could find anything wrong. Then about 6 months later I woke up one morning and it was gone! and it stayed gone until the year 2002, I came home from a trip about a 2 hour car ride and when I got to my house I stepped out of my car and there it was, the monster that I had back in 1992 had returned! I could not believe it, but this time I was ready to fight it, so with Insurance card in hand I started my journey, I've been to some of the worlds leading doctors, from heart specialist to Nero Docs to Blood specialist to the worlds leading ENT's and that list includes the Mayo Clinics and Duke University and the Dr. House of New York City Dr. Thomas Bolte who is really great. NO ONE to date has been able to find anything that would cause these symptoms, Here are the symptoms, I feel like I just got off a boat, nothing ever spins or moves but it feels like it's about to. I'm in a fog, off balance just enough to make you bed-ridden sometimes for minutes to hours to days and even months. It has slowly taken away my life as I once new it, I use to run 10 miles per day and work out 2 hours per day in the gym, I was always full of energy and traveled everywhere, but now I think I've really accomplished something if I can make it to Walmart and back by myself. My ears ring a lot, and sometimes I get a little sick feeling in the stomach, I've had my cervical spine looked out with contrast in an MRI to search for a clue, I do have mild stenosis, but the Docs tell me that it really is not life altering. I cannot tell you how many brain wave nerve test and MRI's I've ad over the years, but it has been a wild ride, it started when I was 31 and now I'm 52. My journey continues as I search for the answer to the big question,(What Happened?) I have found that drinking makes it 10 times worse, I've found that in my case sometimes Advil will help, I also take Klonopin, but that is all the meds that I take for this, Antivert just made it worse. I did find that driving will make the symptoms vanish for several hours, but when you stop the car it returns. I've been told that it is not MS, that is not MDDS, or BVVP. I've been told that they (the docs) Have no idea what this is. But hey that has not stopped me from trying to find the answer to this bizzare condition, One minute I can be fine and 2 minutes later I have to lay down. Beware the Docs who tell you it's all in your head, I tell them well I tell you what this feels like and this is how I describe this condition to them, it's like someone came up behind you and hit you in the back of the head with a 2x4 but you don't have the pain you just have that stunned feeling, kinda whacky feeling, Dis-equalbrium. I will try and keep you updated on my Quest. Until then try and relax. And don't stop searching for the answers to the condition that changed your life.

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      Julie 5 years ago

      Been over two months for me now and must admit I have had more helpful information from people on here than from the medical profession.

      Still trying to find a local physio for the VRT and a seven week wait for the MRI but at least I can now tie my own shoelaces (only took me two months). At least I am getting my sense of humour back - I keep forgotting my boss's name and have a medical reason for it.

      Thank you to the lady who started this link as you have saved my sanity.

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      AW 5 years ago

      lts pretty sad really, all l do now with my time is look for a cure for this illness so we can all get better.

      l did have an out going fun life, and now l am looking every where for the person l use to be and wish the pain cloud would leave me alone.

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      anna 5 years ago

      l had a CT scan of my sinuses which showed a large nasal spur, well let me tell you the symptoms which l have had for along time which was miss diagnosed.

      l have had constant pain in the nose , cheeks , jaw, forhead ,top of the head, my ear , my eye, feeling very dizzy, fatigue, migraine headaches.

      Now l have a sinus infection from it and l felt like l was going insane from all the pressure and pain and dizzyness, that is another medical condition that can have the same symptoms as Menieres, l going to have the nasal spur removed which lm told will be the end of all my problems !! thank god !

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      Lorraine 5 years ago

      Oh I feel better already having read all your comments. I think it is because I now know there are other people out

      there who are experiencing the same awful symptoms as me.

      I can pick out so many things that other people have found

      helps - like, cutting down on dairy products, staying away

      from gardens during high pollen days (I am convinced there is a connection with sinuses)keeping stress out of my life, cutting back on wine and coffee.

      I value Bill's comments. I totally agree with VRT. I have been to all the Specialists, had the ENT test, MRI

      bloods tested and the Epley Man. done and eventually

      went to see a Physio at our major Eye and Ear Hospital.

      He gave me the exercises to do and it has helped me to

      take control of my balance. I am now in my 4th month of

      this awful awful illness that makes you feel bewildered

      and scared when out in Supermarkets or walking in crowds.

      You may not look ill to your family and friends but you

      know yourself how it is affecting your life. I feel like

      I have aged 10 yrs overnight. The days when I am really

      bad are days when the weather is heavy and grey. I feel

      it in my eyes. The pupils in the eyes almost disappear

      and my eyes get so sore and small. I have had all the

      medications - Serc, Stematil and other anti sea sickness

      tablets. They do nothing to clear this up.

      I have found Niacin to be of some benefit and also benefit from blowing my nose regularly.

      I will now continue with my exercises and will try to spend more time on them now that I have read all the

      positive comments on VRT. Stay positive. L

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      Shahid 5 years ago

      I have the same condition, it helps me to sneeze and blow my nose. I usually induce sneezes by rubbing the bone in the nose with a twisted tissue/napkin. I know seems wiered, but works for me, might help someone else! God help us all!

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      AW 5 years ago

      l was off work for a month, l wanted to keep falling over and plenty of brain fog, you have to keep repeating your thoughts because its like you are drunk,and it feels like someone has spun you round and around and around then let you go!! but the worse part about it is the feeling in your head, like you have a hose stuck in your ear and toxic chemicles is feed into you, you actually find it so hard to make decisions and it is like your thoughts are in slow motion, and it takes your brain so long to process your thoughts, it is "monstrous" and trying to drive, well it takes so long to concentrate, and the trip that dosnt take to long actually takes forever, its like your mind has been possessed, in its in slow motion, l feel so sorry for anyone who encounters this disability ! head pain is a silent killer !

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      Julie 5 years ago

      It has been nearly a month for me of being terrified, sick, hallucinating and hating the world. Family and friends definitely have no idea what is happening and think there is really nothing wrong with me.

      The comments on here have been most helpful and now I know where to start. Will ring the doctor tomorrow and say that yet again I cannot go into work and perhaps he could suggest some VRT for me.

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      AW 5 years ago

      l think its a viral infection that lays dormant like a valcano, and erupts when you least expect it !!

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      RL 5 years ago

      I had a similar case with all of you guys. I loss my hearing at exactly 11:30PM Monday April 9, 2012. Two days after I experienced extreme dizziness that leads to nausea and vomiting. April 13, 2012 Friday, I decided to go to hospital, because I haven't eaten nor drunk for 3 straight days I was confined in the hospital for about a week. After I was discharged, little by little I could walk without any support. Week two, I could walk but with difficulty. Its been a month now but still my hearing have not fully restored yet. Sad part is if I'm hungry, tired, stressed and if I'm in very hot place it triggers my symptoms of vertigo. My doctor told me not to take medicine that was the instruction when I got out of the hospital. He told me that my hearing will eventually come back but he can't say when. Until now, researchers still can't find the direct answer on what's the really cause of Labyrnthitis, Meniere's and Vestibular cochlear infection.

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      fi 5 years ago

      lm going to get tested for MS, because this can also have the same symptoms.

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      Donna 5 years ago

      This condition is horrendous, I've been off work three months with Labrynthitis and it's the second time I've had it now. I am on no effective medical treatment and just doing VRT excersises twice daily. I've been dizzy, light headed and faint. Blurred vision in he distance and letters close up in a newspaper or computer look 3d and stand out. Vision goes worse when I try and focus on someone to talk to them and worse in a busy environment like supermarkets. I've had a horrible headache and sensations inside my head, photophobiaans sensitive to noises. I feel I am trembling inside and have a hand tremor. O have bilateral tinnitus, feel spaced out and not here like I am on drugs and difficulty concentrating. I don't feel safe to drive, have panic attacks and feel absolutley shocking. Tge only thing keeping me sane is the fact I made a full recovery last time and lived normally for nine years until this happened again three months ago. My heart goes out to all you suffering it really is a terrible illness with very little GP's offering any real help and family and friends can't understand either. I think this condition should be publicised more and taken far more seriously for the crippling long lasting effect it has, it's terrible.....

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      36nold 5 years ago

      Hi iv got a this vertigo thing doctor is not sure if it Labryinth or meniere...iv been given drugs for my vertigo that are a daily thing these day....,i cant seem to find out what is causing my vertigo..i just know the best thing when it happens is Marijuana i didn't tell this to my doctor cause of the fear of him telling me its bad when it seem to help a lot...im talking about 50/50 marijuana sativa/indica and in small amounts 1/2 joint here there...also helps whit the eating and not vometing..the thing is im not sure about taking the drug the doctor gave me and if they don't work can i still smoke my small amount of marijuana? please ppl no blah blah about weed its killed 0 ppl in last 5000 years!and im NEW to weed :P and suport Medical marijuana has a DRUG!!

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      Sue 5 years ago

      Just to add some to the above. I have had this since August 2005. Started with dizzy and room spinning out of control. I had never been sick. Just came out of the blue. Went to the emergency room, they did CT, blood test and etc. Said I had an inner ear infection?? Said it would go away. Well the spinning stopped after about 4 days. But, 5 months later still out of balance. Went to a ENT, did test, MRI (3), balance, and etc. Said I had a tumor. Well, I chased that for 3 years. Finally ended up at the Mayo Clinic in Jacksonville, Florida. They said I had a virus and it had destroyed 93% of the nerve in my left ear. Nothing, nothing can be done!!! Also found out when Doctor's don't really know....it's a virus. I have been to therapy, acupuncture, 3-different ENT's, 2-different Dr.'s of surgeons of the ear & brain, chiropractor, neurologist,Chinese medicine, health foods,Psychiatrist, you name it I have tried. They only thing that has helped me some is chiropractor. No medicine's have helped. When I am really out of balance...I go to bed, close my eyes until my head settles down. It too has robed me of a great deal of my life. I stay tired, my eyes bother me, can't go into crowds or where there is loud noise. I hold my husband's hand wherever we go. Sometimes I can only stay a few minutes. It is my left ear that is damaged and I have learned I can balance myself somewhat with my right hand. They call it touch balancing. The Mayo Clinic told me, I am like a twin engine plane, I have lost an engine and the pilot (brain) doesn't know it. So my brain is on over load trying to balance me. This effects your entire body because your brain uses your entire body to balance you. It's not like losing an eye and your brain will automatically use your other eye. It has left me with what they call motion sickness. I have been told several times that deafening my left ear has a great chance of healing me. Then my brain will recognize that my ear is not working and will use the right ear to balance me. However, they have highly recommended that I not do this for 2 reasons. I was only 50 years old when this happened, and I don't know what my happen in latter years to my right ear and they really don't know how the brain will react. The greatest thing I can encourage everyone to do is rely on the Lord and praise him that he is in control and all things happen for a reason. I also have to praise him that I am not in ANY pain. Just keep looking up and be thankful we can still do the things we do. God Bless

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      Rebeccah 5 years ago

      Thanks Fi I'll give it a shot :)

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      fi 5 years ago

      If this persists ,first thing to do is to go to an ear nose and throat specialist,ask for a MRI to rule out any other problems, if they find nothing and you still experience the same symptoms for some time, you need to ring the Menieres society group that you may have in your area, they will suggest the best ENTs and VRT centres, they gave me so much help when l was so sick, and l mean very sick, they helped me through the dark days, they have councellors that have experienced the same disorder.

      Over the years l have found chiropratic, and massage therapy really helped, and when l had to go out l would take Stemzine just to manage a little, also l had to change my diet completely, no alchol, cigs, salt, sugar, late nights, food as raw as possiable, all of this helps me.

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      Rebeccah 5 years ago

      I started feeling dizzy when i woke up one morning. I decided to ignore it because i assumed it would go away but later in the day when i was lifting a hay bale my legs collapsed so i headed home and i started feeling sick and i had the privalege of spending the night with the toilet, if you get my drift. I went to the doctor the next day and he told me that i have Viral Labyrinthitis. It is extremerly annoying and is preventing me from doing many things. It is the middle of the school holidays and as i am 15 my friends and i have plans but i cannot do anything because i am too dizzy to walk in a straight line and i feel like i'm going to vomit all the time. I've been doing research to see what it actually is because i had never heard of it and I sure as hell hope it doesn't last for as long as it has for some people because i juat cant take it any more.

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      fi 5 years ago

      oh and l remember how it all started, l had a really bad cold, l lost my voice and the infection made its way into my ears, my ears became blocked, that's when the damage started,l came home from work and went into a spin, fell to my knees and felt dizzy for some time,from then on the inner ear felt full and l had a slight unsteadyness,the attacks come and go for 15 years, but now while lm driving l had to stop the car, felt like l was having a stroke on the right side, felt like l was hit by lightning ! l went numbish and my sensors dulled, top of my head, eye , ear, and nose affected, very scarrey ! my ear inner ear has been damaged from all those years ago from a virus, fluid goes into the brain where it shouldn't go, affecting the balance sensors, also look at Menieres disease, of course anxiety, depression come with it, it also feels like a constant dirty hangover ! everyone is different, talk to as many ENTs as you can, its your body and no one else will understand what you are going through except the ones who have the same symptoms, virus, disease what ever you want to call it ! keep searching for answers !

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      fi 5 years ago

      this has been with me for 15 years, lm 45, l was very active, loved work, now it is a disability, l have wasted my time with doctors who know nothing !!! l cant even walk to fare with the dog, my world is trying to fight the right side of my body from falling over, my ear feels like l have a hot poker in it all the time,every nerve only on the right side of my head is acheing and pulling at me, now my eye aches and feels full.

      My head feels like l have a Hawlks claw digging into my scalp, and l walk like lm drunk, have had 3 MRIs, back and forth to the ENTs, only now lve been told to teach the left side of my brain to get back into balance, l live in the country and it has been a long road for answers, please throw away the antidepressants and keep looking for positive feedback, life is to short ! Bill is right !

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      Suzanne 5 years ago

      Hello. I have suffered with this for the past five weeks and had symptoms of the flu aswell. Lots of people have mentioned on here about anxiety which is exactly what I have. I have been sooo worried and convinced myself I have a brain tumour. Ive been in tears with worry which is so unlike me and find it very hard to remain positive. I'm 29 years old and have been deaf in one ear since birth so I the swaying is quite bad. I find one side of my body suffers the most. I get a hot/tingling side of the face and aching arm too. Has anyone else had this.

      Although from reading the posts it seems that this is quite a serious problem, it has helped to calm me a little and know I'm not the only one suffering.

      Thank you for your posts and shedding some light on this. I'm getting married in August and want to be better

      Suzanne

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      dawn 5 years ago

      Thank you Ben I will take a look at the book you suggested.I am usually a very positive person, glass always half full and all that,but as everyone who's been through or going through this horrible experience knows,its very difficult at times.Maybe tomorrow will be a better day,I know one is round the corner.

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      ben 5 years ago

      Dawn Re: depression I would strongly advice this book its changing the way I look at life "The mindful way through depression".

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      ben 5 years ago

      Dawn Re: depression I would strongly advice this book its changing the way I look at life "The mindful way through depression".

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      Sally 5 years ago

      I have had spinning attacks each morning and a CONSTANT feeling like I am bobbing on a boat at sea for three months. Was diagnosed with labynthitis by GP however ENT doc thinks it's to do with a couple of bulging discs in my neck C6/C7 and sent me for physio. Two physios do not think it's to do with my discs and that it is an inner ear condition......I'm told different things by different doctors. So scared I'm going to have this for years as no one can even say what it is for sure!! I'm 35 with two children and I also work. This is getting me really down :(

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      Dawn 5 years ago

      Just coming out of the worst 5 days I've had in weeks.Just when I thought that's it,its sorted,bang.I have no real idea what caused this setback other than the presence of cold symptoms,which disappeared this morning along with my regained intense dizziness,ear popping etc...My VRT therapist did say that until I have fully compensated through VRT the slightest upset be it physical or mental could set me back.But this time depression hit me also,something I have managed to keep at bay till now,probably its because I was SO sure that was it over.I know VRT is working for me & this is just a set back,I just have to keep up the exercises even when at times they are the last thing I want to do.

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      ben 5 years ago

      I had my first bout of Labyrinthitis at the start of 2008 and lost 60% hearing in my left ear. It lasted about 2 months and went away. 2 years later I had a really bad attack after quite a heavy night out with my company (I used to drink) this attack ended up lasting the best part of 6 months with at least 2 of those months off work. The company I worked for at the time were amazing and sent me to the doctor, they did all the tests they could and after being prescribed lots of drugs, prochlorperazine and betahistine and other serc nothing was really happening. I then came across Vestibular Rehabilitation Therapy (VRT) thanks to the doctor. It is very hard going to start with if anything it makes you a lot worse but keep on going and week 4 you will start to feel big improvements.

      In January 2011 I had my last attack and have had a good year. I have had to lower my expectancies of myself and realise that I am more tired than others.

      So in August 2011 I got my dream job and time to go to the city, everything has gone really well until 2 weeks ago I had an unexpected vertigo spin. I have had the last 2 weeks off work and the symptoms are disappearing but I am sat here with a throbbing ear and an uneasy dizzy feeling. I am hopeful of work next week as it would be nice to get out of the house and after all I haven’t actually spun for 2 days now but I have felt rotten for parts of today although all day yesterday was good.

      So what advice can I share? what help can I give. Well unless someone has had this they don't seem to understand, the medical profession (unless your lucky, I was with some) don't seem to totally understand. Its a horrible condition, its really scary, your body does things it isn't meant to do, it is out of control and all you can do is sit down and hold on and fall asleep when its done. It is the first I have gone to the doctor about and they didn't have an answer! In public people think you are drunk, and it does bring on anxiety and depression. But my VRT is a life saver, I also practice Tai chi which I feel helps my balance and de-stresses me and I get exercise, running and cycling when I am not spinning.

      So what happens next I mean hopefully this is only going to last 5 years right? Well I don't smoke, I don't drink, I don't take anything else, I don't drink caffeine or eat cafinated products. I am dairy and wheat free, I get exercise when I can and when I can cycle to work each day, don't watch to much TV, get regular breaks from my computer (I am a Software Engineer). I practice Tai Chi and I am starting a course on mindfullness to help with my stress, anxiety and depression. I take Ginkgo Biloba and oil of Oregano daily (not yet convinced on this – will give it a year) and I try to stay away from anything that will potentially make me ill.

      Its a strange thing (Labyrinthitis), I cant find one thing that will set me off (a part from the starting sequence to Eastenders = seriously!) but I suspect its a perfect storm of all or some of the following:

      Stress, fatique, tiredness, Cold/flu, high salt food, generally bad food.

      Its also mentally very hard because one minute your fine (and very happy about it) and the next your not and very low about it and people do not understand how you feel. I would say make sure you have family around you and friend/s that understand. Keep positive, remove stress from your life if you can or find ways to combat it. Use your VRT and you will see it really helps.

      Its hard work, one day I hope stem cells or some fantastic technology will fix this for me.

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      Lawrence 5 years ago

      3 months in now for me. Been doing VRT for 1 month now and my advice to anybody with this horrible illness is to get started on VRT RIGHT AWAY. Its slowly getting better for me now, good days and bad. Just remain positive, I know its difficult, but you WILL get better. best of luck to all.

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      Dawn 5 years ago

      symptoms for 5 months now,caloric test showed acute dysfunction in one ear,been doing VRT for 3 months,have good days & bad but definite improvement with balance.I am getting extreme fatigue now also,just got to hang in there I suppose.

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      Rhys 5 years ago

      18 months of all these symptoms, ringing in ears, extreme fatigue, deja vu, forgetfulness, spaced out, ear pain. Had blood test, MRI, ct scan, caloric testing got 23% damage in left lug, done vestibular rehabilitation therapy still no joy, I'm pretty sure it's reinfection physio says decompensation, now in limbo, life's hard to live and doctors can't do no more, worst condition ever ! I'm a 28year old male and my life feels impossible at times, just hanging on to the hope it'll get better, keep the faith people !

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      christine 5 years ago

      My GP has just diagnosed labyrinthitis. After collapsing at work a week ago I was taken to hospital and in retropect (now that I know all about it) I can't understand why they didn't suspect it, although I had/have none of the nausea or vomiting that so many of you mention. The worst part was the feeling I was dying followed by total lack of energy for 5 days although the GP suggests that's the virus rather than the condition.

      I'm now worried about driving, flying and whether I'll be able to work again (teacher in a 'challenging' secondary school.)

      I will try VRT.

      Just grateful it didn't happen when I was younger (I'm 56)although I don't exactly have it easy (widow with four 'children' all boys from 16 to 23, but one is learning disabled, autistic, and Down's with severly challenging behaviour.

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      andrea 5 years ago

      Hi I have had this condition before a few years ago and today it has come back! It feels like my brain is in a boat on a calm sea and all of a sudden the sea starts to really move I can be just sitting still when it happens it feels awful i hate this x

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      Nicola 5 years ago

      Omg! This is just how I feel! Constantly dizzy and unwell! I wake up in a panic every single day worrying about how I'm going to feel. It's such a horrendous disorder iv suffered for 2 yrs up to now! Every night I pray I will wake up and it's gone. No such luck! I really feel for everyone who is struggling through this disorder! Xx

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      babak 5 years ago

      billy is right , VRT is the only solution for it , i have been dizzy for 18 months now and for last 4 months i have been doing VRT and i feel much better . it takes time but it works

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      Rachel 5 years ago

      Have been feeling just like this for weeks and when i think back it has obviously been with me for a long time. I have had an operation to staighton my septum, diagnosed with allergies but never been told about this. I recently saw the doctor and he mentioned eustacien tube dysfunction which it could be but it does sound more like this as it also causes me severe anxiety and adrenal rushes and fizzy feelings in my hands aswell as nauseau. Thought I was dying. Glad in a way that i am not alone. I will see about this vestibular therapy but i cant guarantee i will get a diagnosis or a referral. Sometimes I find doctors don't consider all possibilities and are too quick to blame stress on everything which slows down getting proper treatment and causes problems at work. I do feel and empathise with you all, It is truly awfull.

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      kat 5 years ago

      Hi Matt

      It does get better. Took me around 3 months to get anyway back to 'normal' however do have relapses every few weeks. Nothing to the degree it was ie room spinning, sick etc but do go light headed and quite often walk into the bedroom door when I get up as I go off balance. My memory has not been the same since and for some reason my eyesight has deteriorated which has always been 20-20. Not sure if this has affected anyone else like this or perhaps I'm just getting older!

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      Matt W H 5 years ago

      Hi all, it's been just under 4 weeks since I came down with this. I had just driven to home and felt slightly unsteady then all of a sudden, my eyes were all over the place, couldn't concentrate and the room was spinning and I vomitted. Went to the Docs and she said it was vestibular neuronitis and gave me some anti sickness pills. They seemed to work for few days but then one night I woke up with the room spinning and again I vomitted. Next day I went to the Docs (saw a different doc) and he said that I had Labyrinthitis but said it was just all the same!!! He prescribed me some serc (betahistine) which seemed to work for a week but since then i've had a cold which I think has exaserbated my condition. I'm back in work but I still have mild symptoms like my eyes are slow when I move my head or walk. Driving is ok in low level light but sometimes it feels like im on a rollercoaster. I know i'm fortunate to be able to go back to work so early but is there anyone here who has fully recovered within the 3-8 weeks its supposed to last for???

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      julie 6 years ago

      hi ive been poorly now for 4 months it started with dizzy spells everytime i turned or looked up or down then i had a severe vertigo attack and collapsed and got taken to a and e during the next 2 weeks i collapsed a further 3 times i also had twitching muscles everywhere due to the anxiety that comes hand in hand with inner ear problems i really thought i was dying i had an mri which was clear ,i couldn't work at all this is the worse i have ever felt in my life then last week after 4 months of being constantly dizzy i have had a couple of good days , i have been through all this with no medication as the doc wanted test results fist . yesterday i was given cinnerzine to take i hope it works x

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      Tom 6 years ago

      Read this It helped me

      http://www.labyrinthitis.org.uk/

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      Bill 6 years ago

      All GPS have no clue about this. You are not Neurotic. Audiologist, Nuerotologist, will help with this. The Therapy is hard at first and can make things worse at first, This is why most get frustrated and quit, but you have to soldier thru, it takes time to see results. After a year and a half of daily exercises I am in the mid to high 90% range. All people recover at different times. The success rate for VRT is 95 %. So this is only a life sentence if you do nothing and just take medications. It takes hard work at first and then about an hour worth of vestibular exercices a day and that will squash this.

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      Dee 6 years ago

      Thanx Tom, I have appointment tomorrow with Audiology dept who I believe will assess me and give me some exercises....

      Because I look normal friends and family don't understand why I won't go out. This is because I feel dizzy in shops and the more I walk my balance goes, always sway to the right, however if I turn over on the left when lying down I go dizzy (strange)

      GP doesn't understand and makes me feel I'm some sort of neurotic....

      May be the apt tomorrow will help??

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      Tom 6 years ago

      Dee , Have you tried doing VRT ? As brash as Bill is, he is right . VRT is the only thing that can help you. Worked for me. Took a very very long time but it does work. If you start a VRT program, It won't be like this forever.

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      Dee 6 years ago

      First of all Billy - get a life your the pathetic one. People on here have enough to deal with,without comments like that!

      I started with this problem ex 5 years ago.Lost my job find it hard to live life. Things started to improve 6 months ago, only to all come back 6 weeks ago following a bad head cold.

      I am at my wits end, don't want to go out, find life reallt dificult at the moment. Anxiety and depression is starting to kick in now and I wonder will I be like this forever??

      Have a good day fellow dizzy people

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      Billy 6 years ago

      Kat, Go ahead and be dizzy for the rest of your miserable pathetic life.

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      Randi 6 years ago

      I am 34 and my first bout happened at 26 with my second bout happening the follwing year AND my daughter was 6 mths old. I did go to Vestibular Rehab which helped tremendously. I have been on every med know. I suffer from depression, anxiety, over stimulation, and pretty much all of the above from this. It has been a complete mind over matter. But I still suffer everyday. The worst is you look fine on the outside and no one gets it. The one thing I do know is that it sucks but it has made me a stronger person. I do still work but have had to change jobs which I HATE!!!!!!! And my employer, (GOVERNMENT) has transferred me, and is discriminatory. I cannot find support groups in Central New Jersey. If anyone is interested in contacting me: Randi821@gmail.com

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      kat 6 years ago

      Billy -Stop selling VRT and go abuse another website.

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      Billy 6 years ago

      Are you people just plain stupid? You have permanent damage to your inner ear. The only way to fix this is thru a long drawn out process called Vestibular Rehabilitation Thearpy, VRT. It takea a very long time but it does work. Quit whinning , Bitching and taking meds that don't work. get on a VRT program right now you dumb asses !!!!!

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      cath 6 years ago

      hi i ve had this horrible condiction for over a year now vetigo,dizziness etc I went and seen an ent doctor she sent me for an mri scan so am just waiting to hear back ,ive let the condiction control my life am really depressed i don't go out,its horrible and evil,sorry for being so blunt about it.

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      kat 6 years ago

      deb, sorry to hear you have experienced it too. I went back to work after about 3 weeks, only for one day, then 2 days the following week until fully back about 2 months later. I felt totally washed out and tired very easily, I had been clear from dizziness for about 3 weeks and had a bug which lasted only 48 hours and to my dismay, the dizziness came back. I was so disappointed, it's another 2 weeks now and gradually going again. Think that it will always be in your body and pops up now and then when you least expect it. Pills don't work for me - just rest. Hope you feel better soon

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      ronnie 6 years ago

      I Woke up 3 weeks ago felt i was drowing and so dizzy all pins and needles hubby called doc who rang paramedics suspected tva had totally deafness in right hear 5 days later ended up at A&E and put through to ENT who advise lost of hearing and sent for urgent mri scan possible tumor today I am told no tumor that's good but have acure labyrinthinthius and the feeling are awful , now have to learn to live with deafness and the awful inbalance and sickenss and tiredness that I currently have .I have never experieced anything quite so debilating as this and with little support for the condition ,was interesting to read other people experience of this horrible condition

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      Deb 6 years ago

      Woke up 3 days ago very dizzy, holding on to things to get around the house. Went to my dr who diagnosed me with labyrinthitis and gave me 2 meds that are not working. Vertigo is with me all day, gets a little better when I lay down, but still there. How long until it goes away and I can return to work?

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      Billy 6 years ago

      You people need to listen up. Start Vestibular Rehabilitation therapy right now. Keep doing it everyday. It takes a long time but it does work. You have to do about an hour everyday of these exercices. do not skip a day and keep doing them through the frustrating period. After 6 months I had noticeable improvement. It has been a year and a half and I am almost back to 100%. I'm in the high 90's. The problem I see on here is most people say 'I did VRT and it didn't work" well that's because they got frustrated and quit. See a balance specialist now and get on a VRT program now !!!!

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      leila 6 years ago

      like many of you i was diagnosed with labrynthitis over 6 weeks ago, ive so far been given 2 lots of different medication but still NO improvement, its driving me mad, i no longer feel like ME anymore, my illness came from no-where. i feel drunk ALL the time, this medication is NOT working. ive brought ear drops to see if that helps but to no availe:(((( im so fed up and depressed, can anynone recommend anything else to try please, i cant cope with this anymore.I just want to feel normal again, i see no light at the end of the tunnel, im 32 with 7 children, and what i can and cant do with them is so limited its not fair on them.

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      julie 6 years ago

      hi everyone..just been reading all your posts,i'm the same i've had this condition for over 5 years now some months i don't notice it other times its there constantly.i've had balance tests and its shows that i've lost about 25 percent on my right hand side.ive had vrt but it's constantly there everyday,i can't even go out shopping or even for a walk i feel so trapped all the time..i just don't know what to do i've tryed everything...but recently it's got much worse it's progressed now to panic attacks i don't even like going out the house at the minuite.so i really do understand what you are all going through.

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      Nathan 6 years ago

      I've had this for close to 10 weeks now. It started with dizzy spells that were giving me panic attacks at Uni and then it got really bad all of a sudden and I was basically bedridden for 4 weeks with the room constantly spinning, a feeling this someone was throwing my body around, a feeling of immense pressure in my head and a bunch of other symptoms I think were just caused by the anxiety that this condition brings on.

      After 3 trips to the ENT, 4 to the doctor and having taken a few courses of antibiotics, serc, nasonex spray and sleeping pills I was finally able to get out of bed and do some light weightlifting & walking to start get my strength back. I got off the medication as soon as possible (except for the serc and occasionally the sleeping pills), because it's obviously not healthy to shove lots of chemicals into your system.

      Now after 10 weeks it's still there (although not as bad as the 4 weeks I was bedridden) but because i've had it for so long the anxiety is almost gone. Even when the room is spinning heavily I can lie in bed, read a book to distract myself and not let it phase me because I know i'm not going to die, the MRI and blood-test results proved that to me. I realized that this problem is only as bad as the anxiety it causes you, if you fight the anxiety the condition becomes 10x less bad. I would recommend anyone with this to try and find a way of thinking without panicking when you get a bad attack, it really works.

      I also found dancing helped a LOT with my balance and co-ordination, I have been dancing regularly because I think it helps teach my brain to balance with the signals from my legs and body instead of with the signals from my middle-ear, which makes walking around a hell of a lot easier for me.

      I'd say this condition is 50% mental, because like I said the vertigo is only as bad as the anxiety it causes you. If you deal with the anxiety, the vertigo becomes much more manageable.

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      Lisa 6 years ago

      I was diagnosed with labrynthitis almost 2 years ago and was told if the symptoms persisted for 12 months that I may have Meyniers disease and I was to go back to ENT in 12 months if I still had issues. My symptoms (dizziness, blurred vision and nausea) got worse but as it happened over a 12 month period I did not notice how bad it had got and accepted the diagnosis of labrynthitis as being correct. One month before my "12 month revisit" my vision was causing great issues so I had an eye test (just at the opticians). Here I was found to have swollen optical nerves and was sent straight to A&E/Eye clinic/ MRI scan and then hospital for surgery for a giany unruptured aneurysm,(I am very thankful for the suregry and am in great health now). My comments above are not posted to frighten anyone but merely to say please don't delay getting a second opinion or pushing for an MRI scan if you feel things are getting worse.

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      Billy 6 years ago

      VRT Vestibular Rehabilitation Therapy, takes a long time but it does work. One year later I am almost back to normal.

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      Kat 6 years ago

      Went back to work last week after suffering nearly 3 weeks. Managed a few hours Monday and Thursday, didn't feel great Friday but went in anyway, BIG mistake! Suffered all day and even worse at night, so think I over did it. Will try again this week but perhaps stick to 2 days for now, been advised by GP not to drive so getting lifts everywhere.

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      Aicha 6 years ago

      Had cancellation app at ENT a few days ago..I had a feeling before i went it would be a waste of time and i was right..After my GP diagnosing me with Labyrinthitis, I saw a doctor at ENT who described himself as a scientist..He said i may also be suffering from a stroke which i know im not as have previously suffered a mini stroke a few years ago, he got me to do a few very silly exercises and then said he couldn't hep me and that i would just have to live with this condition!.. Great!!Been very ill since my last op at the end of september and only been back to work for a short while since then..Off again for 8 weeks after being diagnosed with this. Have been taking Stemitl which doesn't seem to do much. The dizziness is there all the time. Cant even have a break from it..Feeling stressed out with all this at the moment although trying not to feel stressed as im sure this makes it worse..

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      Aicha 6 years ago

      This all started since my last operation.O have had many opeeations over the years and hve always recovered extremly quickly. I had an operation last May to remove a kidney stone from my utheter. Eveyting was fine and i was bckat work a few weeks later. Thw last op i had was the end of september last year. This was to remove 2 stones from my left kidney. Since then i have been very ill and after the op i couldn't even lift my head from the pillow. This went on fo a long time and i missed so much time from work. One nurse who examined me told me i had Post operarive virus, which, if i mention this to any doctor they deny there is any such thing. Anyway i was back at work for short time and then 4 weeks ago i was due to work but hd to go home as i felt very ill. The doctor told me i had labyrinthitis. I collapsed 3 times obe of which was outside. I ws staggering like i was drunk (i don't drink) and thenfell to the ground. There was noone about to help me. Finally after a time with enormous difficulty i was able to get up. 4 weeks on i am not gtting any better. My ears feel worse than ever ad i feel very weak and dizzy. Nothing is improving. Also over the last couple of years my ears have never felt "right". I had a few visits to ENT who told me there was nothing wrong with ny ears. I knew there was as we all know our own bodies. After my op my ears got worse. I told the doctors over a hundred times my ears didn't feel right but they did nothing. This is a very scary feeling and seems to be gtting worse. I have felt at times that i am absolutely steaming drunk. I also told the doctors on numerous accassions that the weather seemed to affect my ears eg i know hen its going to rain before it does as my ears ill get worse. so the weather also affects my ears. As mentioned i have not felt right since my last op and have been back in hospital 6 times since then, No doctor can tell me why i feel so weak and so ill other than my gp to say i have labyrinthitis. Its ahorriblr way to have to live and at this moment in time there seems to be no end to it..I am never a person to feel sorry for myself as therer are always people worse off than me but is bad enough i have other conditions like M E, Barratts esophegus nd much more without this not to mention iv had so many monts off work bcoz of it. I just want to go back toleading a normal life.

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      Margo 6 years ago

      I have been experiencing similar conditions as you mentioned: in my left ear has been ringing, roaring along with dizzyness. It all started the day before Thanksgiving last year and saw an ENT in the Urgent Care and he said I have excess fluid that's causing the roaring in my ear. I told him that I have had hearing loss since I was five-could that be the problem? He said no and that I should take sudafed for a month and it should go away. For the month of December the loud noise went up and down like a stock market grid. I thought I was doing okay. Then when I flew back from vacation, I started to experience the loud noises again and saw my audiologist for a hearing test. The week after I experienced ringing in my ears and dizzyness. I saw another ENT in the UR that same week and she said I had an ear infection because she saw redness in my ear. So I was on an antibiotic for 10 days. Something about this condition with slight bouts of vertigo scares me too. So I went to see a ENT specialist and was very distrubed to hear the experience I have been going through. He had some blood work done and am having an MRI this week. I am not on any medication for this yet. Will keep you posted.

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      Kat 6 years ago

      Hi

      I had influenza in Jan 2011 which knocked me out for a couple of weeks but was back at work soon after. A week later I woke up and the room was spinning, I tried several times to sit up but just kept falling back into bed. I tel. the dr who said I had Labyrinthitis. I managed to get up but had to hold onto the walls to walk. it is nearly a week later and my head is still fuzzy, wake up every morning with the room spinning although that subsides after a few minutes and cannot do much as I keep losing my balance. Has anyone gone back to work with this condition, I am frightened to drive. If so how long did you leave it before you went back? Thanks for your help.

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      mrd 6 years ago

      Same I agree heather had it since 1994 best u can do is get used to it sometimes the brain adapts,since stopped coca cola,eat healthy i walk everywhere ,even when it happens and most of the time it goes away,if I walk,maybe u trick the brain or something ,maybe I just know it seems to work for me ,If u give up this thing ruins ur life ,u got adapt and conquer it

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      heather  6 years ago

      i am 32 years old and have suffered from this condition since i was 19 years old!! sorry folks but there is no guarantee that this will go away,i tend 2 find the winter months are the worst due tho the wind blowing in my ears so if you go out wear a hat!! it is a horrible condition which used to get me down as i suffer from it about 5 times a year, all i can say is try as often as you can to protect your ears( wear a hat when swimming) it wont cure you but i have found it less frequent when protecting my ears, hope this helps.

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      donna 6 years ago

      Hi

      Ive had this since sept 09 woke up spinning one morning and then I got stuck dizzy! Ive seen three ENTS and am on a neuro-tologist now. Ive had a MRI scan and just had an inner ear scan. I tend to be ok for a few weeks with only mild symptoms and then BAM Im in another episode . Got vertigo again on Xmas day which I haven't had in seven months . I spent most of the day crying . Im only 24 and feel my life is over I don't get why it wont go away and am due to start VRT therapy in January which I have been waiting for for well over a year! GPs are a joke they make out this disorder is nothing when it compleltely ruins life as you know it.

      Im also now getting panic attacks which I cant get under control ! Im sick of having this disorder its ruined my life

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      Wood 6 years ago

      It's like I'm reading the story of my life with dizziness on this blog. I have been dizzy on and off since Thanksgiving. Somehow, I think my brain has learned to cope with being dizzy. I too, had to take a trip to the ER when the first onset came on, due to motion sickness...I have always been motion sick when it comes to spinning or backseats of cars etc. I was prescribed, phenigren, meclizine, steroids, and an anti-anxiety medication. It all seemed to help the motion sickness, but not the dizziness. Now my ears constantly ring, and any vibration of my head, like sudden turns, laughing, sudden head movement of any kind will trigger a slow motion reaction in my mind. It drives you nuts! E.N.T. Doctor said viral labrynthitis......i hate those two words!

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      Deb 6 years ago

      Several months ago I woke up one day and found myself so ill, I couldn't even stand. The nausea was unbelievable. I never go to the doctor but I was so ill my husband forced me to go to the emergency room. I was diagnosed with Labrynthitis and given medication. After a few days, I seemed to go back to normal. Recently I have been having some mild dizziness and extreme hearing loss in my left ear. All I hear is a ringing and muffled sounds. I hope the hearing loss isn't permanent.

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      Lisa 6 years ago

      I have been suffering vertigo, brain fog, headaches, ringing in ears, it came on all of a sudden back in June after I had been lifting some materials. I began doing stretches for my sternacloidmastoid neck muscles ans scalene and it did dissapear, however returns if I do lifting type work, raking or digging, which i think causes the muscles to tighten on my right side neck as I am right handed and then pulls on the tiny middle ear muscles. Trigger point therapy. massage and stretching of the neck muscles mentioned has helped me.

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      claire 6 years ago

      Hi I have posted on here before I had all the same symptoms & following tests as everyone seems to mention on here. i was diagnosed with Labrynthitis as MRI etc ruled out any nasties. Mine all started in January and is finally starting to subside I have good weeks and bad weeks and have noticed the good is now lasting longer than before. It has been a long hard haul I celebrated (??) my 40th Bday in July & have 2 daughters aged 12 & 11 my whole life has been affected by this horrible condition but I am trying to stay positive & hope that 2011 will be dizzy free!!

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      Randall 6 years ago

      Hi ,

      I have been feeling the effects of what a GP very casually diagnosed as Labyrinitis for 4 weeks now.My main symptoms are lightheadedness, dizziness, out of focus eyes and ringing in the ears ( ive had that for years anyway ) , and im also sensitive to noisy crowded places also.

      My symptoms with my vision and diziness get get worse with activity such as, walking , typing , watching tv, and focusing on people or objects. It improves with sitting down and more so with lying down.

      It just hit me all of a sudden one day , and i thought i just had a virus and took anti-biotics, but after a week nothing.

      This is very frustrating as you all know , i am just grateful that i don't experience the wild spinning vertigo that some had like my father who had Meniares for 2 years. The GP said that it will probably just disapear within a couple of months which im pinning my hopes on. Does anyone know if in most cases its does just clear up on its own?

      Anyway i have an appointment in 5 weeks with an ENT , but im really hoping it has gone by then.

      wishing you all good heatlh

      Randall.

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      dermot 6 years ago

      three months ago after i night of booze i was havin trouble with balance,which i put down to a hangover.after four days i went to the doc and was told i had a sinus infection. after two months of meds that didn't work another doc said it was labrynthitis. same sensations as above:feeling drunk all the time,lack of co-ordination and preception,difficulty with speech,vivd dreams and problems sleeping. for a while i thought i was loosing it and my mind started racing.going for an mri scan shortly and hope this all comes to an end soon. it's though to deal with your whole world not making scence anymore and people tell you it's all in your head!!! ironic or what!

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      sean 6 years ago

      also i'm 18 years old

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      sean sullivan 6 years ago

      Hey i have the same problem.it all started a couple weeks ago when i was getting stoned with my frinds lol don't judge. as all of you i had a quick case of virtigo along with side affects of dizziness that last a while. it was all gone until i woke up one morning not feeling well with dizziness.

      i have learnd that sleep or laying dowm seems to help A lot. the doc perscribed me Meclizine it seems to help with a really drowsy side affect. best thing if you smoke Marijuana to not smoke. also if you think positive it can help since Labrynthitis is viral, bacterial, and somewhat mental lol. Labrynthitis can trigger panick attack along with heavy breathing. so don't worry if you freak out it will subside. also do not stare at things that move in unison, or look at patterns because it can trigger the dizziness, virtigo, and panick attacks. i smoked a little marijuana to see if it would help and it triggerd the affects so avoid the herb. i hope this has helped i know its scary but it will pass with proper treatment and positive thinking. my email is SeanE.Sullivan@yahoo.com if you feel like talking about Labrynthitis it helps to share our owen stories. we are all troopers of our owen fears. so stick in their :)

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      Laura 6 years ago

      Hi All, I developed labrynthitis July of this year. This has been 3 hard months. I suddenly lost all hearing in my right ear and became very dizzy. I ended up in the hospital with vertigo. They did multiple scans to make sure I didn't have a stroke or brain tumor. They were negative. I am very healthy otherwise. I was treated at Johns Hopkins within 8 days and was immediately given intra-tympanic steroids and was on IV steroids in the hospital and then high dose oral steroids for 3 weeks. I was followed and given 2 additional intra-tympanic steroid injections. A little hearing returned but it is almost worse than no hearing at all. I feel a reverberation in my ear when babies cry or someone screams. It is almost painful. I have no true hearing. I remain dizzy and foggy despite vestibular rehab. The vestibular rehab just didn't work for me at all. My big question to others is "Are you having a feeling in your head, that is heavy and uncomfortable?" It makes it impossible for me to focus and live my life in any way. I also hear terrible sounds in my bad ear like a squeaky wheel and water running. At times it is so loud I can hear nothing else. I'd love to hear if anyone else has had that experience. Good luck to all of you.

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      Karen 6 years ago

      My Labyrinthitis started 4 weeks ago after a very mild sinus infection. I am a fairly healthy 37 year old with three children ages 4, 5 & 7. I'm finding it difficult to function normally. It's been hard to keep up with household chores, grocery shopping, taking care of my kids and driving them to all their activities (and they have a lot of them) and helping with homework.

      My symptoms came on gradually and are now steady. I suffer from bouts of nausea and have to drive with a plastic bag in my car "just in case". I feel dizzy all the time, it's like looking at the world through very drunk eyes. Sureal, everything looks a bit "off". I have trouble concentrating and can't remember what word to use at times. Additionally, I have this squeezing sensation, which pops up occassionally, deep inside my head and behind my eyes. It feels like someones wringing a towel out in my head.

      My GP sent me for an MRI (to rule out MS and blood clots)which revealed nothing of significance. The doctor suggested that I see a neurologist and an ENT. Is it worth it? I might just wait it out and hope it doesn't return.

      Side Note: I suffer from seasonal allergies and use a Nettie Pot depending on the severity. My GP said the Nettie Pot may have pushed the infection deep into my sinuses which may have caused the labyrinthtis This is his opinion only but it sounds plausible.

      Best wishes for a speedy recovery to all that are suffering from this.

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      Carol 6 years ago

      Hi all

      I developed labythrinitis about three weeks ago, like many of you, it was out of the blue. I was out with my husband and I became dizzy and had to return to our car. On the journey home I felt nauseous but the next day I was fine. A day later, it was back and hasn't gone away. I drive a lot as part of my job and have been off work since as obviously I cannot drive. I'm taking the meds which are giving me awful headaches. I'm worried that it will not go away as I need my job. I live in a rural area do driving is necessary to go anywhere. Neighbours are helping but I am hoping it will go away and that I'll get back to normal. Feeling worried....I've had a lot of health problems and thought that after several surgeries to put things right, I should now deservedly be enjoying good health.

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      Izzy  6 years ago

      Hi everyone i have now been dealing with this for 4 weeks now ive had to quit work and school and have been having to have my mother help me out with my 2 year old son, who is a hand full. the strange thing is that it started out of nowhere. Im 22 and was perfecly healthy until this happened. I haven't been able to get out of bed and finally had enough of the dizziness and the nausea that comes along with it, it is horrible!!! I lost weight in the past week and been to afraid to eat, not to mention the anxiety that comes along with it. Today i finally went to the ER and got admitted and had a CT scan everything was normal, my doctor said that he would refer me to a neurologist so i have to see one this week. At the hospital they gave me a Valium which did calm the symptoms for now. So for everyone going through this right now, your not alone. I know exactly how miserable this feels.

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      kimberley moss 6 years ago

      Hi Everyone, im petrified to go out now. My first experience was 3 weeks ago at work. For no reason at all i felt as though i was going to pass out. I crawled and then very sick. Ive seen my GP again!!! i was convinced that i have a brain tumour. Doctor has said that i have labythrinitis. I have never heard of this condition before. My heart goes out to all of you who suffer this. I pray that i will feel better soon. I cant work now, because im absolutely petrified of passing out and ambulance etc etc. xxxx

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      Kalib 7 years ago

      i have had this for 5 weeks its terrible!! im too freaked out to go anywhere incase i have one of the attacks in public.

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      Nina 7 years ago

      Im so glad i found this! I had this when I was in grade 6. I am now 20 yrs old. When I first found out I had it I had a bad fainting spell. I was then dizzy and out of it completely for about 5 months, I had it very bad, in and out of the hospital testing. It faded out but then a few months after I had it again for a few days. It slowly improved but I am now 20 and I still feel the symptoms, in my opinion I don't ever think it completely goes away. You learn to live with it though. I don't know why they never found a cure though..

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      cahterine 7 years ago

      my symptoms started in february of this year with a brief feeling of being on a boat. two days later i had awful visual disturbances very surreal, it was like i could not focus on one thing it felt like my eyes were going left to right very quickly- everything seemed to have a vibration to it. i went to the dr. he said i had water on my ear. 10 days later went to an ENT he diagnosed me with acute labyrinthitis and vestibular neuritis. my vibrating vision and subtle dizziness would last weeks at a time with a day or 2 of feeling 100% normal.it was like i was looking through somebody else eyes i was scared to open my eyes each morning. my ENT explained to me this would come in episodes and the episodes would start to get shorter and shorter with more and more normal days in between. it slowly got to where i would have a week or so of feeling normal. after a period of 3 normal weeks it hit again, it did not seem a bad as it had been in feb. but i was more devastated by it because i thought it was gone. back for more tests..i saw a neurologist i had an audiology, VNG, and a MRI with and without contrast. all were normal. heading into the end of may i was doing great. i had an episode that lasted one day in mid june(very mild). through the rest of june and all of july were perfect . july 30 it hit again a little vibrating/surreal vision and subtle dizziness. i am going in my 10th day in this episode. went to my dr. b/c my ear felt like it had water in it which it never had this sensation before. she said my ear canal was narrowed-and gave me drops. i am now waiting an appt. with an otoligist (ear specialist) they are scheduling 6 weeks out.

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      claire 7 years ago

      Hi everyone, I have had this now since January. Had ENT referral MRI scan Caloric/ENG testing this showed 18% damage in my left ear (balance system) Now having VRT so hoping it all goes very soon. Some days/weeks better than others have had the noise going on in my Ear dizziness is worse especially round my monthly cycle (sorry guys). If you can get a referral & VRT then push as hard a syou can as the Docs are not very helpful on this one I live in the UK & ended up going privately as the NHS is such a long wait for appointments. Just keep as active as you can walk a lot you need to retrain the brain to compensate for the dizziness as simple as that really just really crappy along the way.

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      Ang 7 years ago

      Hi All,

      Just a couple of questions. Has anyone recovered fully from this? I'm on my 3rd week now and the doc said it usually clears after 3-6 weeks but so far it sounds like most people have it for longer.

      I didn't have any symptoms previous to this such as a cold or sore throat but my doctor says that with some viruses you don't?

      The same week as the dizziness and the fatigue started I had high blood pressure, has anyone of you had high blood pressure with this?

      My dizziness usually gets worse after I've had something to eat or if I'm stressed, does this sound like something which anyone of you have experienced as well?

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      Jan  7 years ago

      This condition really is horrible. I am 32 and after a trip to LA-the next day I attempted to go to work-I took a lunch break and after eating i fell asleep in my car. I woke up to this piercing ringing in my left ear. Fast forward ENT put me on prednisone didn't work. Trip to ER becuz of extreme dizziness..he puts me on anxiety pills.(helps me sleep at night)

      I am going back to primary care phys to get a referal for a nuerologist and try the VRT. In my research it seems that time frames seem to vary for recovery. I do hope and pray that the symtoms improve as it has been very debilitating; keeping me from driving, cant function at work; loss of apetite and thoughts that I may be dying soon. This has been going on for 3 weeks.

      Could the change in climate i.e, it was very dry in LA when I got back to Florida the humidity was almost at 100%? would that alone possibly cause tinnitus for this long of time??

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      Erin 7 years ago

      I get this often. The meclizine just makes it last longer. Don't take past day one. I take a very very strong antibiotic the minute it begins as it is almost always due to an inner ear infection. Two days after I start the medicine, it gets better. SOOO tired of the reoccurance though.

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      mandy 7 years ago

      i have had this dizzyness now for 6 weeks i have been in hospital twice, the second time being for 5 days, docs have said labrynthitis, i am constantly dizzy no matter what i do, i am sick anything upto 3-4 times a day, i am just waiting to see the ENT specialist, as sometimes i feel i just cant go on much longer like this i have lost over a stone in weight in 6 weeks because of the vomiting, i feel i just cant eat or drink in fear of being sick , there must be a cure for this surely ?????

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      Peter 7 years ago

      The Dr told me not to long ago that I had Labryinthitis and gave me some antibiotics. I took them and seemed ok. Thinking back, I have had these feelings for a while but put it down to my other medication, or lack of - I seemed to feel dizzy if I forgot to take them.

      Right now I have blurred vision in me left eye, ringing in both ears, feel dizzy and when I look from left to right (or even dart from one point in space to another) I get a louder ringing in my ears. Just clench your jaw shut really hard for a second... hear that noise ? That's the noise that comes and goes as I look around the room. Its more pronounced when its quiet, laid in bed etc, but I can hear it over most everyday sounds.

      Does this sound like Labryinthitis or could this just be tiredness, being stressed out and needing glasses?

      The other day as I was driving to work I realised that I couldn't even read the word airbag on the steering wheel. I got an opticians appointment the next day but by that time my sight was almost normal. Turns out I do need a stronger prescription (very very mild anyway) for my glasses but it was nowhere near as bad as it was the day before.

      Right now im struggling to read this text with me left eye so it seems like it happens randomly.

      Any ideas or suggestions? I do have another Doctors appointment on the 7th....

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      Lisa 7 years ago

      I have been suffering with Dizzyness ,surreal feelings. lack of concentration,foggy eyes,heavy arms for about a year now ans have had long periods off work, i have had a ct scan and now waiting for a mri but my doctor does think it Labyrinthitis.People do not and cannot under stand what and how you feel so i wrote a long list of symptoms out for my work so they could understand.I can go a few day or week and not feel too bad and then WHAM it hits me for six.

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      Zoezing 7 years ago

      Glad I found this. It helps to know that others are going thru the same (some better - some worse) experience.

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      amber 7 years ago

      After posting to this website a few months ago....We have seen improvement. Although with the damage done to the labyrinth I don't know if my husband will ever be "cured" But he has learned to cope through VRT. I really hope that many of you will find relief. After seeing my husband go through this and the time it took to diagnose labrynthitis makes me wonder about our health care system. Again, goodluck to all of you!