ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Letter to Family and Friends from a Sjogren's Syndrome Sufferer

Updated on December 30, 2011

Looks Can Be Deceiving!

Dear Family and Friends,

Please excuse my Sjogrens….I may “look” okay some days but behind my smile you have no idea what battles are being waged. Every day is a crap shoot and I never know, from day to day, how the Sjogrens dice will fall.

  • · Will today be the day my eyes are so gritty I can’t see to drive?
  • · Will today be the day my mouth is so dry my tongue sticks to the roof of my mouth and it’s an effort to talk?
  • · Will today be the day my ears feel like they are going to implode and just hearing any type of noise is unnerving?
  • · Will today be the day I have to cancel plans with a friend because I don’t have the strength to leave the house?
  • · Will today be the day the glands in my neck are so swollen and heavy – it’s an effort to hold my head up?
  • · Will today be the day I have to stay in a dark room all day because any type of light sends me reeling into a migraine?
  • · Will today be the day I have deep uncontrollable coughing?
  • · Will today be the day I come down with a virus because my immune system is too busy attacking me and fails to attack real invaders?
  • · Will today be the day I have to lay down all day because every joint in my body is painfully inflamed and I can’t walk without assistance?
  • · Will today be the day I drop everything I pick up because my hands are too weak to grip?
  • · Will today be the day I can literally see my hair falling out?
  • · Will today be the day my blood pressure is so low I’m afraid to stand up.
  • · Will today be the day I realize how crappy I feel and I break down and cry
  • · Will today be the day someone says…”awww…you look fine….you’re not sick!”

Or will today – be one of those rare blessed days – where I actually feel pretty darn good! I can walk, I can talk, I can see, I can hear, I can breathe, I’m not dizzy, and I’m happy! It’s going to be a great day. These are the days I cherish and want to share with family and friends. Those other days – I still need you – but please excuse the Sjogrens- it’s left me quite a mess.

A Fantastic Quote by Collen McKee

"As a feminist, being ill puts a whole new spin on being sick. Shouldn’t I be independent, in control, not a victim? How do I resign myself to needing help, to having to ask anyone for anything? The fragile porcelain doll was never my female ideal. I am a child of the seventies. Wonder Woman never got sick. The needs of your body are valid, and you need and deserve to have them met. Not asking for help when you need it is a great way to go from under the weather to sick. Feminists value the female body. Let that begin with yours."


    0 of 8192 characters used
    Post Comment

    • brakel2 profile image

      Audrey Selig 

      7 years ago from Oklahoma City, Oklahoma

      Excellent article. I have a friend who suffers from the disease. You explained all the symptoms in an easy manner and then explained good days. It is easy to understand the pain and suffering from autoimmune diseases. However, many people do not know about such diseases, so thanks for sharing. Now people will know about this disease. Good luck as you fight to get better.


    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at:

    Show Details
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the or domains, for performance and efficiency reasons. (Privacy Policy)
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)