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October 2017 (late) update
I never got around to putting this update up and I apologize for that. Life really has a way of "getting in the way", as many of you know. It is very difficult being a patient and being a caregiver at the same time. Sometimes more difficult than others (especially when an unexpected illness occurs).
My plan is to list 2 Multiple Sclerosis, 1 Alzheimer's, and 1 medical marijuana story on a daily basis here. I hope you don't mind the updates and please let me know if you wish to be removed from receiving them. Take care and be as well as possible!
My "story" and my connection to MSNC
When I first discovered I had MS I was extremely upset (to put things mildly). I thankfully became friends with a man named Stan Swartz (from Stansangels.com) who set up an MS support group along with an online news channel. I found the support group after watching a program about Montel Williams (who was diagnosed with MS in 1999). Stan and I are now very good friends. I worked at a University for close to twelve years before I was laid off (most likely due to my disability). I tried to get a similar position but was unable to due to a discloser of my illness to an employer (a violation of HIPPA rules but I was unable to do anything about it thanks to a poor choice in lawyers. The one I chose got suspended and didn't bother informing any of her clients until almost a year after it happened!)
Thanks to Stan I am able (finally!) to work as a daily news editor because I am able to work part-time from my home posting and sharing articles on the MS news Channel. I research the internet and I find and pick stories to publish (including at least one study) on a daily basis. I choose the stories based on what I think the interest level will be (and/or what is available). Despite what several other people appear to believe, we do not receive any funding from pharmaceutical industries for what I find and choose to post online. We also don't get (and/or accept) money for advertising. I make peanuts (i.e., next to nothing) but I know that keeping people informed is of utmost importance to this job means a lot to me.
If allowed (i.e., if this hub is not considered "overly promotional") I intend to use this space to share the daily news stories I put online with my fellow "Hubbers". I am also a published author (currently of the book "It's Not as Bad as it Sounds (my life with MS & Fibro)".
If I am ever able to locate an affordable editor I plan to start working on a second book (tentatively titled "MS ATTACKS!")!
If you have any interest, you can also see the posts I have written for the news page in the past at http://yvonnedecellis.msnewschannel.com/
What is Multiple Sclerosis?
"An unpredictable disease of the central nervous system, multiple sclerosis (MS) can range from relatively benign to somewhat disabling to devastating, as communication between the brain and other parts of the body is disrupted. Many investigators believe MS to be an autoimmune disease - one in which the body, through its immune system, launches a defensive attack against its own tissues.
In the case of MS, it is the nerve-insulating myelin that comes under assault. Such assaults may be linked to an unknown environmental trigger, perhaps a virus.
Most people experience their first symptoms of MS between the ages of 20 and 40; the initial symptom of MS is often blurred or double vision, red-green color distortion, or even blindness in one eye.
Most MS patients experience muscle weakness in their extremities and difficulty with coordination and balance. These symptoms may be severe enough to impair walking or even standing. NIH - National Institute for Neurological Disorders and Stroke"
Source: "Multiple Sclerosis (MS)." National Center for Biotechnology Information. U.S. National Library of Medicine, n.d. Web. 17 Feb. 2016.
Guest post by Healthline - That was then. THIS IS NOW.
"Before 1993, patients diagnosed with Multiple Sclerosis were told to go home and rest, remember to eat a well-balanced diet, and exercise if you can.
A neurologist’s medication arsenal for MS comprised of only one drug: IV-Solumedrol, (a/k/a corticosteroids) to battle an exacerbation.
That was then. THIS IS NOW.
As of August 2013 there are 10 FDA approved disease-modifying treatments .
Today, it’s hard to believe that in the Dark Ages of MS, patients had no medication soldiers to battle their illness. They needed to grin and bear their fatigue, pain or numbness. Many quit their job, stayed at home, and gave up living a full life.
There was no Internet to research information such as a clinical trial that could lead to an approved medication. No forums to exchange MS stories with other MS patients. There were limited chances to meet up with people that were going through a similar roller coaster ride of MS.
Doctors never discussed practicing complementary and alternative medicine (CAM (http://en.wikipedia.org/wiki/Complementary_and_alternative_medicine)). During a typical doctor’s appointment, no one suggested trying acupuncture to decrease pain, yoga to stretch muscles for better balance, or using meditation to help with stress or depression.
Today, the area of CAM is growing every day, much to the delight of MS patients.
(Before beginning any program, therapy or diet involving CAM, consult with your physician. Become your own advocate by staying informed. Speak to others, read all you can from reputable websites like Healthline (http://www.healthline.com/), and make a final decision based on your own knowledge.)
Remember, we all have Multiple Sclerosis differently, so results will vary from one person to the next.
Consider taking a yoga class, or perhaps you’d prefer t’ai chi (http://en.wikipedia.org/wiki/T%27ai_chi_ch%27uan), or another complementary therapy (http://nccam.nih.gov/health/whatiscam). Take a complimentary class first to see whether the class is right for you. Make a list of questions, and take them to class to talk to the instructor beforehand.
Take the time to learn about complementary medicine (http://www.nicm.edu.au/understanding-cm), its varying definitions, and its four domains: mind-body medicine, biologically based practices, manipulative and body-based practices and energy medicine.
You deserve to live a life of quality; taking the time to learn about complementary and alternative medicine is another step toward taking better care of yourself.
Post provided by Healthline.
Find trusted health information, free tools, news and doctor-reviewed resources to encourage a healthy living."