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Motor Neurone Disease: Sarah's Story

Updated on June 30, 2013

Sarah's Story ( This film received 15 certificates. Persons below 15 years old are advised not to view it.)


I stumbled upon this video and found this topic interesting after viewing it.

What is MND (Motor Neurone Disease)?

Motor neurone disease (MND) is a degenerative disease that affects the motor system through the motor neurone, and the nerve cells in the brain, and the spinal cord that controls muscles which will progressively lead to weakness and wasting of muscles, . It can affect any adult at any time. Its cause is not known and there is no known cure for this fatal disease. The only treatment for MND is a medication known as Riluzole, which simply decelerates the progression of the disease.

Losing control of the muscles that control breathing, swallowing, and even the most basic of movement are the things which an unfortunate victim of this disease is suffering. Motor neurone disease strike in middle age. In the UK alone, at least 5 people a day die from this disease. Life expectancy of people affected with MND is only 2-5 years, after the first appearance of symptoms.

What is Motor System?

The Motor system,as in an automobile, is the main engine of the human body. It controls every movement we make like nodding, walking, lifting a cup, singing or dancing. The main part of the motor system is the motor neurone.

Motor neurone is a complex system of motor nerve cells in the brain and spinal cord which control muscle's actions. Motor neurones are divided into two: the lower and the upper motor neurone.

The lower motor neuron disorders happens in the spinal cord and motor nerves in the muscles around the arms, legs, torso and motor cells in the brain stem which controls movement of face, tongue, eyes and throat.

The upper motor neurone are motor roads in the brain which integrates movement of the lower motor neuron from the brain stem to the spinal cord. A perfect example is how we adapt our body in a moving train, or moving or walking downhill.

Sarah's Story

Sarah Ezekiel, the real Sarah in the video was diagnosed with this disease at the age of 34. She was seven month old pregnant during the time and she had no any idea about the disease . She started to experience rapid loss of motor skills in all of her limbs and progressively losing her speech. To see her full story, please try to visit

The advert video is shocking and disturbing and reflects the devastation that Motor Neurone Disease causes to the person diagnosed with it. This will raises more awareness as mankind will be nearing of finding a cure for this disease.


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    • conradofontanilla profile image

      conradofontanilla 5 years ago from Philippines

      Nerve cells do not regenerate or replace themselves in a process called apoptosis. However, a lot of nerve cells are produced at the beginning of their development. Not all of them are put to use but some are kept as reserves that take the place of those that had been damaged by free radicals and reactive oxygen species(ROS), hydroxyl free radical being the most hazardous. This is tagged as the most likely cause of MND. Neutralizing free radicals and ROS protect reserve neurons. I am optimistic that catching free radicals and ROS at the same administering stem cell therapy can revive a victim of MND. EDTA (ethylene-diamine-tetra-acetate) given intravenously is more effective than oral chelation in catching free radicals and ROS. We have a family friend who is being given stem cells but she is not being given EDTA, may be because for lack of familiarity with EDTA. I have been having chelation therapy for my heart disease and I am getting stronger as you can see in the over 100 Hubs that I have posted since I started chelation sessions. After 35 session of chelation therapy my chelationist said that my angina is treated, so is my hypertension and the possibility of heart attack is eliminated. Heart disease is started by free radicals and ROS. I have several Hubs on this topic.

    • sunasia22 profile image

      sunasia22 5 years ago from Philippines

      Hi Peanutritious! Thanks for taking time to read this hub. Sometimes people keep asking for something why God did not give them riches in life, but, as we see people suffering from this disease, we are more lucky than them. We must always be thankful that we are healthy and we are living a normal life. Let's just pray for them especially to your friend. Sometimes, miracle really happens.

    • Peanutritious profile image

      Tara Carbery 5 years ago from Cheshire, UK

      This was so powerful and so tragic. My friend is now in a wheelchair, can't feed herself or speak and was given a 12-18 month prognosis for motor neurone disease 14 months ago. She's going to be in a hospice full time by christmas if indeed she is still here. It has shocked all her friends to the core. She is a wonderful woman and it's a tragic end to such a kind and worthwhile life. Thanks.

    • sunasia22 profile image

      sunasia22 6 years ago from Philippines

      Hello conradofontanilla! It's good to know that there is now a possible cure for this disease. Will read your hub regarding this. Thank you for stopping by.

    • conradofontanilla profile image

      conradofontanilla 6 years ago from Philippines

      I have just posted a Hub "How To Treat Motor Neuron Disease Also Called Amyotrophic Lateral Sclerosis (ALS). A possible cure belongs in alternative medicine involving intravenous chelation therapy and stem cell therapy

    • sunasia22 profile image

      sunasia22 6 years ago from Philippines

      Hi The Stages Of ME! Thank you for taking time to read the hub and for viewing the video, Thanks also for your honest and valuable comment.

    • The Stages Of ME profile image

      The Stages Of ME 6 years ago

      Wow ~ I have never seen this depicted so dramatically and yet so very honest and real ~ it is painful but so very true ~ thank you for sharing.