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P.O.T.S. (Postural Orthostatic Tachycardia Syndrome)

Updated on March 26, 2013


Postural Orthostatic Tachycardia Syndrome


(Postural Orthostatic Tachycardia Syndrome)

I’d like to introduce you to a new syndrome, but actually it is not new because I know a lady that is just into her thirties and she had it when she was a teenager. My granddaughter has P.O.T.S and now is nineteen she has been suffering with this since she was sixteen.

This past year she has been in the hospital so many times I have lost count. It has been very scary with a heart rate of 150 blood pressure of 85/42. At times it has been close to life threatening. She has done so much research she knows more than her doctors do. They do not know enough about this syndrome to help patients. P.O.T.S affects your whole autonomic nervous system. It makes you dizzy, nauseated, fibromyalgia and many, many more symptoms.

My granddaughter has started a group and even some of the parents have actually called her to get information on where to go and what to do. It is very sad because these kids or teens use walkers and can’t even drive because of their dizziness and fainting. They can’t go out with their friends they want to sleep a lot due to always being so weak. Some of these teens are on disability.

I was at a baby shower with about 25 young girls and they were all talking about their illnesses and hospitalizations. I thought to myself this is unbelievable that so many teens have this and other grave illnesses. As I mentioned above I want to help the population be aware

of health issues and how to alternatively find ways to bring about a cure.

Some day I hope to find some investors to start a POTS clinic and fund more research into finding a cure. Maybe even a P.O.T.S foundation. Go here for Kayla’s Journey her fight to beat this disease.


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