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Psoriasis - When Your Spouse Has and You Do Not

Updated on April 13, 2016

Psoriasis

When only one of you has it, it's hard to maintain composure. I would dream that the normal couple wakes up and says 'good morning, how are you?' and gets the smile and the 'good morning, I'm fine, even more so that I'm awake and with you'.

Not so with psoriasis. Psoriasis is the quiet thief that steals any joy that you would have in your relationship and replaces it with a sorrowful, angry 'what's so good about it? I hurt, I didn't sleep well and you snore.'

Psoriasis is Forever

As soon as you face the fact that there is something triggering your psoriasis and there is nothing you can do to change it, the sooner you can manage what causes the trigger.

In our household, we have spent the last 26 years, seeing doctors on a regular basis. We have seen dermatologists come and go. One dermatologist was successful in clearing the skin and then, we received a letter that she was moving to a different town.

Well. Since my husband was successful with her practice, he made the effort to follow her to the new facility.

We're Not Sure When It Started

He thinks that he had it when he was a child. But, sun helps to fix it, and he spent a lot of time outside on the farm and it went away.

When our children had a bout with impetigo, his body caught the impetigo and the psoriasis reared its ugly head.

He also received a wasp sting and things just went south from that moment forward. The bad part about psoriasis is that your body tries to fix itself but, psoriasis is stupid. It doesn't know when it is done fixing, and when it is half way through to done, it starts over.

Itchy Skin

Sometimes, he'll ask me to scratch his back because there is an itchy spot.

It's awful to do so, because sometimes, there are little spots of red that will appear while I am scratching and then, sometimes, those spots of blood will start to drip blood.

It's like being trapped in a bad movie.

I have read up on these blood spots and they are referred to as Auspitz points.

Yes It Itches

If you are a scratcher, it may feel good to scratch at that skin, but, beware, that scratching spreads the itchy spot worse. It's like using a hoe to make a hole bigger.

Over the Years

The doctors have tried phototherapy. This is using a tanning booth technology. The first time he was in the booth for 5 seconds and it gave him a sunburn. At the end of his treatment, he was up to 2 minutes in this special booth.

At one point, in the beginning, we were getting a spray from somewhere that had something in it that really worked. Then, it got pulled from the market. It was some sort of zinc spray.

Why is that? There was something in it that they were concerned with, but, the fact of the matter is, that it did work.

Skin-Cap Spray

I looked it up and discovered what the spray was called. It was sold in the 1990's. It was an oily spray. We purchased it through the mail. There was some advertisement on television and we got started on it.

The spray, according to what I've read online, contained clobetasol propionate and .25% zinc pyrithione. Then, there was some skirmish and they removed it from the market. It was irritating because his skin was responding favorably to it. Getting relief. Brand name seems to be Temovate.

Arthritis

Psoriasis is bad enough, but then, there is the joint pain. There is an arthritis that develops and there are medications to control the pain.

Stelara is one such medication. Embrel is another.

Maybe Someday

Maybe someday, we'll wake up and we'll say 'Good morning, how are you?" and the answer will be "I've never felt better in my life!"


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    • firstcookbooklady profile image
      Author

      Char Milbrett 16 months ago from Minnesota

      Thank you for your comment, NewLifeOutlook, and thanks for caring. Sometimes it becomes hard to keep sight of the fact that my health is important and has an impact, also

    • NewLifeOutlook profile image

      NewLifeOutlook 16 months ago

      Having a partner with psoriasis is not easy! Just remember, you're doing the best you can.

      Don't forget to take care of yourself while taking care of your partner. Caregiver burnout is very real and can be quite debilitating. Practise self-care and take time to relax every now and then.

    • sparkleyfinger profile image

      Lynsey Harte 19 months ago from Glasgow

      hi, Im not sure exactly what treatments your partner has tried, nor what is available. I am in the UK, and luckily we have the NHS to pay for all rounds of random treatments. My mum suffers and she has tried everything. One thing that has given a dramatic improvement is the use of light dose immunosuppressant drugs. Methotrexate I believe it is called. My mum has went from being covered- about 90% to maybe 10%. Unfortunately it does nothing for the arthritis side of things, and the meds can even clash with painkillers, but she definitely thinks there is a worthwhile difference to keep taking the pills.