Psoriasis And Arthritis. How Terrible Can It Get? Does Chemo Work?
True Story of The Heart Break of Psoriasis
No one knows what psoriasis is like except for the people who have this awful disease. My husband lives with psoriasis every day. His psoriasis is not easy to manage. How terrible can it get? It can get very bad. This is his story. He has never found a medication which will take it away completely. It is in every place on his body. It itches; it looks awful he feels embarrassed when people are looking at it. People don't want to touch his hands. Right now he's on a medication they give to heart transplant patients and still he has psoriasis. I believe I have seen his health go downhill since he has had it. He goes every few months to see a dermatologist. We have changed dermatologist looking for the doctor who can help. Nothing changes and nothing gets better. What is the medication he's on doing to his body? We just don't know.
Mayo clinic says psoriasis runs in the family, so true. It runs in my husband's family, his Mom had it and two of his brothers and one sister has it. I can remember them putting his Mom on prednisone because it got so bad she was in stress with it. Every night his sister had to cream herself down and wrap her arms in Saran Wrap.
Psoriasis affects the life cycle of skin cells. Psoriasis causes cells to build up rapidly on the surface of the skin, forming thick silvery scales and itchy, dry, red patches are at times painful.
Psoriasis is a long-lasting (chronic) disease. There may be times when your psoriasis symptoms improve or go into remission and other times your psoriasis worsens.
It's disabling when associated with arthritis. My husband’s arthritis has gotten worse. His hands are in such bad shape from arthritis and they figure it comes from psoriasis. One in ten people will come down with arthritis. My husband didn't get arthritis (psoriatic arthritis) until years after he first got psoriasis.
There's no cure for psoriasis and it can cause complications with heart, blood pressure, easier to get cancer, bowel troubles, and high sugar levels. The only time my husband saw improvement with his psoriasis was when he was able to go in the ocean. It could have been the combination of the sun and ocean helped. We live in a very cold state so it doesn't help. When we got home from vacation he tried sea salt baths but it didn't work. We have no idea why the ocean helped.
I worry about the medication he is on, what is it doing to his body.
- Red patches of skin covered with silvery scales
- Small scaling spots (commonly seen in children)
- Dry, cracked skin may bleed
- Itching, burning or soreness
- Thickened, pitted or ridged nails
- Swollen and stiff joints
Psoriasis in the hair and ear.
Places Psoriasis can go on the body.
.Psoriasis can be everywhere on the body and I do mean everywhere. It started in my husband's hair right away. When he first got it he started getting staph infections on the spots where the psoriasis was. The doctors said psoriasis didn't cause staph, but we thought it did. Psoriasis can be an open sore and easy for staph to get in. Our family doctor told him to start using only anti-bacterial shower soap. He did and it has helped. He's very faithful about taking a shower every night, putting on the creams the doctor has prescribed and taking his medication.
Body Covered in Psoriasis,
The white scales from psoriasis fall off all over the place.
Now, our daughter has it, so far just small spots but she is worried about it. Has started to go to tanning beds to try to help it. She has been seeing a doctor. She started out with small spots on her legs and so far that is all she has.
I have read where Kim Kardashian has it. She has very good reason to be worried about it. It very well could really change her life. It can break out on a person's face.
It's an awful disease and don't let anyone ever tell you it isn't. Our family has had to deal with it for years. Your life changes when you get it just like it does with any kind of disease.
People with psoriasis can come down with psoriatic arthritis which my husband has.
There are lots of people out there who like to believe it is nothing. I don't think they would feel this way if they had it.
Mayo Clinic A Source For Psoriasis.
- Psoriasis: Symptoms - MayoClinic.com
Psoriasis — Comprehensive overview covers causes, symptoms and treatments of this chronic skin disorder.
Obeseity, Smokers and Psoriasis.
According to the Mayo clinic and what my husband has heard from his own doctors. People who are obese are more likely to get psoriasis. My husband is not obese. Believe me, many people who are not obese get this. I think the family connection can be one of strongest reasons people come down with psoriasis. Smokers are also more likely to get this disease. He is a smoker so were the relatives who had psoriasis.
It's a terrible, terrible disease and I feel bad for anyone who has it or gets it in the future. It can isolate people too ashamed of going out in public. I hate to say this and upset people who may be coming down with it. If you are getting patches of it get to a doctor right away and try to get it under control as fast as you can.
He takes a shower every night and it takes time after his shower just to put the creams on he needs to rub into the psoriasis he has. The disease takes constant care. If it wasn't the way he has taken care of it would be so much worse. He takes time away from your life.
Our experience, it is not easily treated. If you do not have psoriasis then you don't know how awful it can get.
I'm not a doctor or nurse. I'm just telling you our story. I have seen many hubs with lots of bad medical information. I'm not trying to give medical advice I'm just explaining what we have been through.
Please be sure to check doctor sites on information about this disease. This is just our experience with it.
My Husband's Experience with Chemo and His Psoriasis.
My husband was diagnosed with lung cancer a few days after Christmas. The surprise we got from his first chemo was his psoriasis was gone. The chemo they used was methotrexate and cyclosporine. The doctor said this wasn’t unusual it often happened with cancer patients. He did say psoriasis may come back after chemo and it may never come back.
For the first time in many years, he is free from psoriasis. He has always hated having psoriasis but is now facing another terrible disease so much worse in my opinion.
Gone But Not Forgotten
My husband has since passed away and we miss him every day. Spring is coming in our neck of the woods and it is hard to believe he won't be here to enjoy it.
© 2011 moonlake