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The Specific Carbohydrate Diet: SCD Benefits for Autism and Asperger's Syndrome

Updated on August 10, 2012

I know first hand that the Specific Carbohydrate Diet (SCD) can benefit children with autism and Asperger's Syndrome. My son was diagnosed with Asperger's when he was eight years old. After several incidents where he developed extreme anxiety after eating sugary sweets, and lots of research, I decided to start him on the SCD. Needless to say, he wasn't thrilled with the idea. You see, he was 'addicted' to the refined carbs he'd been eating including pasta, white rice, candy, cake, cookies, bread, etc. but he was willing to give it a try because he too had noticed a connection between what he ate and how he felt. It was a very difficult transition in that he actually got worse before he got better, which I now understand is a typical process. Now, after nearly two years, he's still following the diet and wants to stay on it indefinitely. His anxiety is nearly non-existent, he's doing well in school, and has friends. What is it about SCD that helps children on the autism spectrum?

How the Diet Works

Does your child on the spectrum have digestive issues? Does he or she have bouts of diarrhea alternating with constipation as well as stomach aches? My son did. I had some testing done for him including the Urinary Organic Acid Test (OAT) and a comprehensive stool analysis. What these tests revealed was that my son had an overgrowth of undesirable intestinal bacteria and almost no beneficial bacteria. When this happens, a child can exhibit bizarre behaviors since their bodies are being negatively affected by the toxins produced by these harmful bacteria. In fact, some of the bi-products of bacteria are known to cause neurological symptoms that are remarkably similar to autism spectrum disorders. The SCD helps to normalize the digestive flora by actually starving the unwanted and harmful bacteria.

How does this actually work? By limiting the child to simple carbohydrates that can be easily digested, the harmful bacteria are deprived of their source of food and die away. All simple carbs can still be eaten - this is not a low carb diet. For example, fruit is allowed as is honey. Grains and starches are not allowed but beans are. The theory is that if a complex carbohydrate is consumed but not fully digested due to issues with the digestive tract then those undigested carbs end up being food for harmful bacteria at the bottom of the small intestine and in the colon and can cause an intestinal imbalance.

Benefits of SCD

I've personally noticed many changes in my son that I attribute directly to the SCD. For example:

  • Better overall mood: My son used to be angry and depressed almost all the time. At one point, the school recommended putting him on anti-depressant medication. Now, my son nearly always has a happy disposition. His teachers have commented too that he seems a lot happier and smiles a lot.
  • Less anxiety: As I mentioned above, anxiety was a big issue with my son and we noticed a connection between what he ate and his level of anxiety. He would become agitated and obsessive about various topics when he ate sugar especially. Now, his anxiety is nearly non-existent. He still has a few obsessive tendencies but I expect those to clear up over time as well.
  • More ability to focus: I've noticed a huge improvement in my son's ability to focus on his homework to complete it sooner with almost no supervision. I used to have to sit down and do the homework with him every night. Now I simply get it out for him and ask him if he understands the assignment. If he does, he completes it himself.
  • Better fine motor skills: My son was recommended for Occupational Therapy support at school because of fine motor issues that affected his hand writing. He had an unusual pencil grasp that made writing more difficult as well. Now, he's improved so much, and holds the pencil correctly, that the school is recommending phases out OT services next year.
  • Fewer sensory issues: In the past, my son had many sensory issues such as avoiding certain textures and loud noises, like the vacuum cleaner. Now, his sensitivity to these things is much improved. He no longer runs into his room with his hands over his ears when I start vacuuming.
  • Increased flexibility: My son still has issues with flexibility and doing things that he doesn't want to do but this too has improved over time. He's been significantly more open to trying new things every once in a while.
  • Elimination of chronic diarrhea and constipation: These are gone now.
  • Elimination of skin rashes: Gone too.

Although my son has Asperger's rather than a more severe form of autism, it's my understanding that this diet helps all children on the spectrum. Some of the benefits include increased use of language, less stimming, more affectionate behavior, and all of the benefits shown above. In fact, according to TACA (Talk About Curing Autism), the anecdotal success rate is 80-85%. One DAN doctor has said that SCD is the best treatment he's found so far for children on the spectrum.

Getting Started

In order to get started with the SCD, I would recommend reading the book, "Breaking the Vicious Cycle," by Elaine Gottschall. I'd also recommend browsing the websites www.pecanbread.com, and www.tacanow.org. These will give you the background information you'll need to get started. For on-going support, pecan bread has a Yahoo Group that you can join. The diet may seem difficult but once you get started you'll realize that it's not that hard to do. In addition, the benefits outweigh any inconvenience it may cause.

Comments

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    • thewritingowl profile image

      Mary Kelly Godley 

      3 years ago from Ireland

      Thanks for this. I am waiting to get the book at the moment. My son has Autism and has recently been diagnosed with Inflammatory bowel disease so looks like this diet will have to be next on the list once his treatment stabilizes.

    • SD Dickens profile imageAUTHOR

      SD Dickens 

      6 years ago

      Thanks Chris - my son actually is taking enzymes already with great results. I get the scd legal enzymes from GI ProHealth. Thanks for reading!

    • profile image

      chris 

      6 years ago

      Get him an enzymes formula. it will help him digest the complex carbs. eventually, when his body is used to digesting them, he only needs to take them with large meals, and eventually not at all. May i recommend RAW ENZYMES from garden of life. it's found at most health food stores.

    • SD Dickens profile imageAUTHOR

      SD Dickens 

      7 years ago

      Hi Kristi,

      Yes, he did and I've seen it improve. He has a small group of close friends now and gets along well with them. They've been friends for a couple of years now with no problems. My son still has some issues with anxiety about going to his friends houses to hang out. He usually wants them to come to our house instead. But this is also getting better.

    • profile image

      Kristi 

      7 years ago

      Did your son have difficulty with making and keeping friends? If so, have you seen improvement in that area?

    • BlissfulWriter profile image

      BlissfulWriter 

      7 years ago

      Good idea. Let's starve those bad bacteria.

    • SD Dickens profile imageAUTHOR

      SD Dickens 

      7 years ago

      Thanks for your comment JamaGenee. I agree completely with your theory!

    • JamaGenee profile image

      Joanna McKenna 

      7 years ago from Central Oklahoma

      How wise you are to have researched your son's condition instead of allowing him to be inappropriately medicated! My theory is and has always been that the majority of childhood behavior issues are food-related, and that sugar should be the first food item eliminated from the child's diet, then go from there.

      Great hub! Extremely well written!

    • A.A. Zavala profile image

      Augustine A Zavala 

      7 years ago from Texas

      Fascinating! There are several diets that help with autism, anxiety, even seisures. Thank you for sharing.

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