Walking through a Miracle
So my son, Kevin, has always been such a special and sweet kid, I would hear it from almost everyone. There were times he would be socially awkward and I would notice that. One day my sister, who is doctor and worked with children, said to me: "I'm scared he might have autism."
When she told me this I immediately agreed that he definitely was different and noticed a difference when caring for my nephews. I tried for a couple months to convince my husband to get him tested and he kept saying, "No he is fine, he is just a kid." In the Hispanic culture all of these symptoms weren't anything out of the norm. There is an unspoken word that "every child is different and just let him be."
I decided to consult with his pediatrician. I was very concerned for my child and didn't want him to have trouble in school because of lack of communication or lack of essential social skills any kid needs. I did what any strong-willed mom would do: ignore the dis-concern of most of my family and even my husband. I made the decision to go with my gut and seek help for him.
This was walking into an unknown world. I had no clue what to do or how to seek treatment for him. Luckily his pediatrician recommended a local preschool and there they tested him. To my relief, he would finally start the process to the road of recovery and preparation called Kindergarten.
Most days I would just feel so helpless as to how to get him to eat new foods and make sure he was getting the correct nutrition. I would have to and still do give him nutritional shakes due to his unbearable fight to eat real food. His stubbornness, which he inherited from me, never helped. He was terrified of running water and taking baths or showers were a verbal fight with him and I'd just couldn't help but cry, at times.
But like every day, the sun comes out to greet you with its warmth; I never gave up hope that he one day would overcome his fears.
He started getting physical, occupational, and speech therapy at Pediatric Plus in Russellville, Arkansas. When I got a job in a different city I made sure he would continue his therapy, which he did within that same Owned Pediatric Preschool, since there was another one in Conway, Arkansas. I will never be able to repay all those therapist that worked with him in the past and still today get to "play together." And as for all the teachers who tirelessly work with these kids day in and day out, just know it is not in vain.
Throughout this entire process, the one thing that he helped me and keeps me standing is my faith. I knew and prayed for the day to come home to a somewhat normal kid. At times I remember thinking, "Why me?"
Such patience and grace that was needed and still remains, yet comes so easy to me. One day I had an eye opening moment; God gave me my son because he trusted me. He knew I'd fight for his growth and reap the rich benefits of seeing such unexplained drastic changes. He still gets therapy. I have such a busy schedule since he just recently finished Kindergarden and was getting his sessions after school. I'm just so thankful that he is finally starting to test out of some of the therapy.
So many days where I felt so isolated and alone yet knew I wasn't. Just living day by day and hoping for him to have a good day. Most of the time they weren't that bad, but my o my when the tantrums would start; I'd feel my belly boiling with anger and all I could do was just breathe.
I would beg my husband to be a little more involved to discipline him but we both have different views on the type of discipline that was needed, which didn't help. But I never gave up or gave in to the lies that crossed my mind that would say, "I'm not good enough or strong enough to endure this."
Short Video Blog about Kevin
What Is Asperger Syndrome?
Asperger syndrome is one of several previously separate subtypes of autism that were folded into the single diagnosis autism spectrum disorder (ASD) with the publication of the DSM-5 diagnostic manual in 2013.
Asperger syndrome was generally considered to be on the “high functioning” end of the spectrum. Affected children and adults have difficulty with social interactions and exhibit a restricted range of interests and/or repetitive behaviors. Motor development may be delayed, leading to clumsiness or uncoordinated motor movements. Compared with those affected by other forms of ASD, however, those with Asperger syndrome do not have significant delays or difficulties in language or cognitive development. Some even demonstrate precocious vocabulary – often in a highly specialized field of interest.
The following behaviors are often associated with Asperger syndrome. However, they are seldom all present in any one individual and vary widely in degree:
• limited or inappropriate social interactions
• "robotic" or repetitive speech
• challenges with nonverbal communication (gestures, facial expression, etc.) coupled with average to above average verbal skills
• tendency to discuss self rather than others
• inability to understand social/emotional issues or nonliteral phrases
• lack of eye contact or reciprocal conversation
• obsession with specific, often unusual, topics
• one-sided conversations
• awkward movements and/or mannerisms
Read more at:
Does your child experience any of these symptoms?
Leaning Day by Day
With a sigh of relief, I'm so grateful and happy to have such a special kid. I've never experienced such joy, love, and adventure walking through this wonderful thing called life with Kevin by my side. It has been such a roller coaster that I'd gladly ride again. He is about to turn 7 and I'm just waiting and enjoying the breakthroughs that are yet to come.
Being a family and having the support of my husband has been great. I never asked him how he felt about it but he just would do as much as he could to help me with our child. He did what is expected of the man and has always provided for our material needs. We have never gone hungry or didn't have a day without a smile. We just make the most of the journey and with open eyes and ears wait for the day that we pray is coming. God never fails and is so faithful. It is so comforting to know the One who is all-knowing. Just like every day families all over the world we have our moments of stress and conflict but never forget to hug each other everyday.
I have such a heart and passion for children in general and this experience has increased it. Walking day by day with the needed guidance of our Lord has been essential. Now all that's left is to look up and smile at the wonders God shows us.
If you or anyone close to you is around special needs kids give them a pat on the back for me. Trust me, they need it. Also, if you think your own child might need help don't hesitate to seek it. That is the hardest step but most vital. Also I'd love to connect with you and see if we can exchange tips on how to conquer this parenting life so leave me a comment or add me on Facebook. I love talking to people and spreading hope and the knowledge that I've learned in my years. Hope you find me and thank you for reading. God Bless you and your family.