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Watching a Parent Who Has Pick's Disease Slowly Slip Away - Part 4

Updated on May 7, 2013

Mom Enjoying Wedding Cake

Mom Enjoying Wedding Cake from My Wedding June 28,th 2008
Mom Enjoying Wedding Cake from My Wedding June 28,th 2008

My Mom's Ongoing Battle With Pick's Disease

My mom has been in full time Alzhemier's care facility for a few months now. She has finally settled into her new home and seems happy at the facility. They facility has a few animals that belong to some of the residents; however, those animals are free to roam around. My mother loved cats so she loved it when one of the cats came to her room for a visit.

When I went to visit her, I often found her wondering the halls or watching tv. Her face always seemed to light up when I would bring the kids up to see her. She seemed like she still remembered who we were but she couldn't talk to us. It broke my heart to not be able to have a conversation with my own mother. She was way to young for this to happen to her.

While I visiting with her, I would often times sit with her and hold her hand or brush her hair. This made her smile really big. And when it was time to leave, she always seemed sad that we were going. Often times we would have to get the nurses to distract her so that we could sneak out. She would try to follow us. The facility was well protected so that she couldn't escape.

By April of 2008, mom was slowly losing her ability to control her bodily functions. She now has to wear depends. She is also starting to lose weight. These are symptoms of Pick's disease and it is part of the disease slowly shutting down her ability to control body functions. Her appetite is decreasing and she is beginning to lose weight.

I was getting married in a few months, and my husband met my mom for the first time. She didn't seem to understand but I am thankful that my husband had the opportunity to at least meet my mom. He didn't know her when she was well. I was very sad that she was unable to attend my wedding. But she was not far away, she was in my heart that day. I was able to honor my mother that day with a white rose. The white rose was a symbol of her participation in the ceremony. I carried the rose down the aisle with my daddy and placed it in the pew where she would have sat. After my wedding reception, my family took my mother a piece of cake. My dad said she sure did enjoy it.

My mom started having problems swallowing her pills in July of 2008. She now had to have them crushed up and put into some food such as applesauce. She is still slowly losing weight. And when we go to visit her, we are finding her in bed more often.

Purchase a Burial Plot Early On

If you have a loved one that has this Picks disease or Alzheimer's, it would be very beneficial to go ahead and make funeral arrangements for their burial as soon as you first get the diagnoses. My mom was given about 5 years to live from the initial onset of her disease. This was a pretty good estimate.

Go ahead and figure out where they would like to be buried at. Include them in the process if necessary. The next step would be to go ahead and purchase the burial plots and pay for the expenses up front or put them on a payment plan. The advantage to getting this taken care of early on, it will be one less thing that you have to worry about when the day comes.

Another benefit to taking care of this early, you will pay today's prices for the services and your money will gain interest as well.


Dealing With Grief

I realize this is probably not something that someone wants to hear, but I am speaking from my family's experience. It's very hard knowing that a loved one may not be with you much longer.

Pick's disease is very difficult to watch a loved one go through. And you have to give yourself time to grieve while they are still alive. They aren't going to be the same person that you once used to know. And they will continue to slip away and may not recognize you toward the end.

It is important that you take care of yourself during these hard time. Allow yourself to grieve.

Seek guidance from God during these times of heartache. Praise him for the small things.

If you find yourself becoming depressed, please seek medical treatment from your doctor or other health care provider. Some of the symptoms of depression include:

  • feelings of over whelming sadness
  • not interested in things that you were once interested in
  • difficulty concentrating, making important decisions, or remembering details
  • lack of energy or extreme fatigue
  • irritable or restless
  • insomnia
  • excessive sleeping
  • feeling hopeless, worthless, guilty, helpless
  • over eating
  • loss of appetite
  • persistent pain, stomach problems, cramps, headache
  • empty feelings
  • thoughts of committing suicide
  • attempted suicide

If your are feeling suicidal, get immediate help. Go to your nearest mental health hospital or emergency room.

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    • breastpumpreviews profile image
      Author

      Christy Garrett 4 years ago from TX

      Ttrace - I am sorry that you are going through this, it is very tough and said situation. Please feel free to message me on Twitter @upliftingfam, I will be more than happy to answer any questions that you may have. I wrote this hub series to help people in your situation and hope that you found this hub useful. Thank you for visiting.

    • profile image

      ttrace 4 years ago

      This brought tear to my eyes. I am going through the same thing now with my mom and at time I am having a hard time dealing with it. It hurts to watch my mom and not see the person I was raised by, or her not knowing my children.

      It just hurts!!!! I am trying to deal with it. Not sure how it will get better with time.?.?

    • BEAUTYBABE profile image

      BEAUTYBABE 5 years ago from QUEENSLAND AUSTRALIA.

      She would have been with you watching her third little grandchild coming into the world.

      Your mother is probably watching over all of you every day to keep you from harm wherever she is.

      God Bless. Pam

    • breastpumpreviews profile image
      Author

      Christy Garrett 5 years ago from TX

      My mom was fortunate enough to know two of her grandchildren. I had my third child in May of 2011, and it was hard knowing that my mom missed out of this opportunity.

    • BEAUTYBABE profile image

      BEAUTYBABE 5 years ago from QUEENSLAND AUSTRALIA.

      Hello it's Pam. I was moved to tears when I read this particular story. In particular, your beautiful gesture to place the white rose on seat where she would have been sitting had she still been with you at your wedding.

      She would have been there in spirit and when you had your daughter, her beautiful new baby granddaughter she would have been there in spirit also. It would have been very hard to give birth without your mother their to support you and put her arms around you saying how very proud she was of you.

      We all want our mums to be there to talk to about pregnancy things when we are going through this exciting time. I'm sure many of our hubbers would agree with me in saying this.

      By writing this, it gives others the opportunity to share their stories also and that way, here at Hubpages, we are able to give each other support.

      In my thoughts

      Pam x

    • breastpumpreviews profile image
      Author

      Christy Garrett 5 years ago from TX

      Thank you. Pick's is a form of Alzheimers. Pick's attacks the frontal lobe of the brain and causes it to shrink. This was definitely not easy to write about, she missed my wedding, the birth of her new grand baby, and so much more.

    • Pollyannalana profile image

      Pollyannalana 5 years ago from US

      Voted up. Thank you for sharing. My mom died from Alzheimer's and it is not really all that different, doesn't sound like. She died two years ago and I have never stopped missing her. My first writing here was because of her.