ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Blood Clotting Disorder: Antiphospholipid Antibody Syndrome

Updated on November 3, 2012

What is Antiphospholipid Syndrome?

Antiphospholipid Syndrome is one of many auto immunie diseases. It has several names including APS and Hughes Syndrome.

It is possibly an inherited disorder, no-one is quite sure as yet. My first manifestation was severe migraine headaches around my mid twenties. These went ignored by doctors at the time and stopped as quickly as they began. In 2001 when I was 40 years old, I bent over in a supermarket to pick up a can of beans and as I stood up, my vision blurred and I felt dizzy and got a headache. I ignored the vision problem for several weeks, until a cold and bronchitis took me to my doctor. As the consultation ended I mentioned the problem, he asked me to read a chart on the wall of his office with the affected eye. I couldn't see the wall.

He sent me immediately to a specialist eye hospital, they diagnosed a retinal vein occlusion, essentially a blood clot behind the retina. The eye was essentially dead and permanently blinded. The eye surgeon ordered blood tests and several weeks later reported I had Antiphospholipid syndrome and sent me to a Haemotologist. At first I was placed on an aspirin regime, but had several minor strokes, TIA's. So was placed on Wargarin in varying doses.

Even after nine years on Warfarin I have problems controlling dosages, my body rapidly adjusts to reductions of dose, this puts me rapidly at risk of further clots and damage, in 2008 during a low dose period I suffered a second Retinal Vein Occlusion which though treated quickly has caused me to lose most of my vision, this despite regular treatments of steroids injected directly into my eye.


Do Not Despair

 I know it can seem a devastating diagnosis, but it is not the end of the world.

Since being diagnosed in 2002, I have married and successfully completed a Bachelor of Arts Degree in History and Politics. I have travelled across the world and done things I had always wanted to try. All legal by the way. In short it does not place limits on anything other than driving and reading. The reading problem is easily my most problematic upset, but is solved by making friends at the local library to get me lots of good audiobooks.


    0 of 8192 characters used
    Post Comment

    No comments yet.


    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at:

    Show Details
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the or domains, for performance and efficiency reasons. (Privacy Policy)
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)