ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Wilson Disease

Updated on August 11, 2012

Wilson Disease and My Small Experience

December 13th, 1993 my father passed away. I was the youngest of six, he and my mother had just adopted 4. A brother and sister then a little later twin sisters as well.

My father had died from Wilson Disease. Wilson Disease is: a genetic disorder that prevents the body from getting rid of extra copper. Sure we need some amount of copper but to much will poison the body. This disease will build up copper in the liver, the brain, the eyes, and over time other organs as well.

My Mom said our Liver is like a windshield wiper. It cleans all the copper off leaving just the little bit that we need to function properly. My dads took that copper and flung it around the body. Poising him.
I am not sure if this is correct or not but it helped me to understand as a child what happened to my father. I am not so sure I could explain it to a child any better

What Is Wilson Disease To Me:

Wilson Disease took my father away from me a month before my third birthday. Some memories are with me and I am not always sure if it is just my imagination. The worse memory I have is touching his cold hand as he laid in the coffin. That I remember. My sister Candy lifted me up so I could say my last good-bye to my daddy.

To me Wilson Disease is a sickness that kept me from knowing my father. All I have is stories from other people. Opinions from other people. Wilson Disease, that took something away. Something a child will never get back.

Without this disease I would have had a different life.

Signs of the Disease

Wilson Disease does not always attack the liver at first. Sometimes it attacks the central nervous system and sometimes it attacks both the nervous system and liver.

Like my father's case liver failure can occur, although rare the patient will need a transplant or he/she will die.

Symptoms of chronic liver disease:

  • liver or spleen swelling

  • yellowing of the skin and white of the eyes; jaundice

  • buildup of fluid in the legs or abdomen

  • easily bruised

  • fatigued

Build up of copper in the central nervous system symptoms:

  • problems with speech, swallowing, or physical coordination

  • tremors or uncontrolled movements

  • stiffness of the muscles

  • changes in behavior

Some others symptoms of Wilson Disease:

  • anemia

  • low platelet or white blood cell count

  • slower blood clotting

  • elevated levels of amino acids, protein, uric acid, and carbohydrates in urine

  • premature osteoporosis and arthritis

As a child I knew I could end up with this disease and I was always worried. I worried that I would die like my father. Young and with children. My father will always be in my heart and I will never forget what little memories I have of him. Even if I am unsure if they are just dreams I had or if it really happened.

Who Should Be Tested

If you have abnormal liver tests with symptoms of liver disease with or without neurological symptoms you should be tested for Wilson Disease.

Anyone with a family history of this disease, especially those who have an affected parent or sibling, should also be screened.

Please get screened before symptoms appear, early treatment can reduce or prevent the illness.

Goodbye Daddy!

I wish my father was diagnosed sooner. Maybe we kids could have had some more time with him. Maybe he could have even met his grandchildren. He would have had 13 grandchildren and he would have just turned 51 years old in July.

RIP Daddy. I wish I could have gotten the time to get to know you as you watched me grow.

Comments

    0 of 8192 characters used
    Post Comment

    • TToombs08 profile image

      Terrye Toombs 

      6 years ago from Somewhere between Heaven and Hell without a road map.

      Wow, Traci, what a scary disease! Sorry for you loss. I, too, say farewell to my father in 1993, but I was 25 at the time, but my son (who was 18 months old) loved him and talked about him often for years afterwards. :) Thank you for sharing the information on this life stealing disease.

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://hubpages.com/privacy-policy#gdpr

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
    CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)