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A Special Diet for Multiple Myeloma

Updated on April 22, 2013

Our Day of Devastation!

This story is about my husband's diagnosis of Multiple Myeloma and the impact this had on our lives. It's about a desire to live and to continue living a quality life. It's about fear, tears and a feeling of hopelessness. It's also a story about God, our Sustain-er, our Comforter and our Shelter in the storm.

We had both served God nearly 30 years and were in the habit of "casting all our cares on Him". Now.....He had allowed something to come into our lives that would put us through the ultimate test of our faith and our trust in Him.

Here is a more recent picture of Paul taken at our visit last year to the Myeloma Center in Little Rock, Arkansas. He's doing so well and we thank the Lord every day for this.

Our visit to San Antonio last Thanksgiving. Doesn't Paul look good?
Our visit to San Antonio last Thanksgiving. Doesn't Paul look good?

Paul and Multiple Myeloma

Paul's diet and his battle with Multiple Myeloma

Paul was diagnosed with Multiple Myeloma in February 2007. I remember very well when he came home from work after being at the doctor's office that day. After his appointment, he went back to work and looked up his diagnosis on Google. That was a mistake! The prognosis was not at all encouraging. It said, "Multiple myeloma is cancer of the plasma cells in bone marrow. Blood Cancer. Plasma cells help the body's immune system fight disease by producing proteins called antibodies. In multiple myeloma, plasma cells grow out of control in the bone marrow and form tumors in the areas of solid bone. The growth of these bone tumors makes it harder for the bone marrow to make red blood cells, white blood cells, and platelets. This causes anemia, which makes a person more likely to get infections and have abnormal bleeding.

As the cancer cells grow in the bone marrow, they can cause pain and destruction of the bones. If the bones in the spine are affected, it can put pressure on the nerves, resulting in numbness or paralysis."

The normal blood protein in the body is 350-400; Paul's was 1,360! His cancer doctor told him that he did have multiple myeloma and as soon as his blood protein level reached about 2200, they would begin chemotherapy. He explicitly told Paul that his current reading of 1,360 would NOT go down. Needless to say, his quality of life dropped to a level of 0. In his mind anyway.

God's remedy for Multiple Myeloma - Our prayers answered!

Needless to say, there were some sad days ahead for both of us. I don't know why it is, but all of a sudden one begins to hear all the horrible things about a disease, etc, when before one never even knew it existed! So many people, who I'm sure meant well and had good intentions, began to tell us their horror stories and give us advice on the subject.

We continued praying and the Lord led us to some very interesting subjects. We began to research cancer and noticed two points that really stood out in our minds;

1.) Cancer cells feed on sugar

2.) Our bodies lack antioxidants

So, Paul completely stopped sugar. He did not eat or drink ANYTHING that contained sugar. We bought Concord grapes and I put them in a food mill and added the juice to regular concord grape juice. (100% natural sweetener only, no added sugar.) He began drinking this daily, plus eating either the red or black grapes. He ate nothing until the supper hour, except grapes and juice, because we learned that the cancer cells will be forced to eat the "high-in-antioxidant" foods and this was lethal to them. At the supper hour, Paul ate only white meat, either chicken, fish or turkey with no preservatives. He ate a salad with a homemade oil and vinegar dressing, rice and either peas or beans. We were scheduled to return to the Myeloma Center in a few months and were very anxious to see what the results would be after being on the diet.

The day came and Paul was scheduled to have several tests at the Myeloma Center. They did blood work, MRI or Pet Scan and a bone marrow biopsy. A couple days later we went back for the results.

The blood protein level that was 1,360 dropped to 680!! The bone marrow biopsy that showed 45% myeloma cells had dropped to 5%!!

When we finished talking to the doctor we headed to the parking garage. When we stepped into the elevator, Paul leaned against the side and began to weep. The Lord had done it! He had given us something natural in which to fight this most horrendous disease.

This is 2011 and Paul's numbers are still down. They have never reached the "normal range", but they stay in the 600-700 range. Paul has gradually added other items to his diet, but still does not eat sugar. He continues just having grapes and grape juice before his one meal.

We have never told the doctor about this diet because we felt it would not mean much to him or to his colleagues. However, we do tell everyone that asks us about Paul's condition.

There is much more about this diet and the incidents in Paul's life, but there was not enough room to fit it all on this blog. Suffice it to say, Paul is leading a very natural and healthy life now and says he feels better than he has ever felt before.

UAMS In Little Rock, Arkansas - Myeloma Center

Here is Paul singing in church with our son, Brandon.
Here is Paul singing in church with our son, Brandon.

Here's Paul in the Myeloma Center of UAMS. Doesn't he look well? He has just received another good report and we don't have to return for another year! The Lord is so good, always, under any circumstances.

Books about Multiple Myeloma

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    • profile image

      Thelma 6 months ago

      Alane ,

      I was diagnosed with MM , Dec 2014.

      I really can't give details abt my numbers cos I was so ignorant abt MM.

      Did chemo for a yr plus, has an autologous stem cell transplant in may 2016 .

      Follow up biopsies showing transplant was not succedsful.

      I have prayed to God for healing

      I know he works in ways in which we don't know and I believe he has showed up for my by directing me to this blog.

      Bc my neutrophils dropped to 500, the chemo pills I was taking at home has been stopped. I take neupogen injection once monthly to force myself body to produce more white blood cells. It's gone up to 600, dats it. My oncologist wants it up to 1500 bf he can decide what next to do.

      Is it a blessing that I found your site?

      What quantity of grapes did Paul eat

      What quantity of juice did he drink, bf dinner?

      How can I give you my contact so we can talk Pls

      I am currently taking vitamins b17, have u heard of it. If not look it up.

      I wait to hear from you.

      Instead of buying Welch's grape juice, can I just eat the the grapes or maybe make my own juice from red and black grapes

      Waiting

      May the good lord bless and keep up and heal your husband completely

    • profile image

      Thelma 6 months ago

      Alane

      God bless you for sharing this impt infos that has helped and will continue to help others

    • profile image

      helen 2 years ago

      how is your husband?

    • afg21052 profile image
      Author

      afg21052 3 years ago

      @anonymous: Hi Ayez! Thank you for your kind words! No, thank the Lord, Paul has not had to take any medicine whatsoever since he was diagnosed with Multiple Myeloma! He has had Myeloma now going on seven years and is healthier than he's ever been.

      He has kept to the diet that he felt the Lord has given him and especially has kept away from any type of sugar.

      I trust you are doing well and hope to hear a good report from you soon!

      Alane

    • profile image

      anonymous 3 years ago

      hi! I'm ayez. Thank you very much for this information. may I ask if you're husband take any medicine that the doctor prescribed? do you combine this with the concord juice that he drinks.

    • profile image

      anonymous 4 years ago

      @afg21052: Thanks for letting me know Alane - really appreciate it!

    • afg21052 profile image
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      afg21052 4 years ago

      @anonymous: Lena, Paul drinks Welch's 100% Concord Grape Juice. It states on the front of the bottle, "No Sugar Added" which means that the sugar that's listed on the back of the bottle is ALL natural sugar from the grapes.

      I trust this helps!

      Alane

    • profile image

      anonymous 4 years ago

      thank you very much alane for sharing your story! can you please advise the brand of concord grape juice your husband is drinking, and whether there are any natural sugars in that particular juice?

    • afg21052 profile image
      Author

      afg21052 4 years ago

      @anonymous: Lucas, thank you so much for your kind words. I trust all is going well for your Mom. Please let me hear from you. Alane

    • afg21052 profile image
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      afg21052 4 years ago

      @anonymous: You are very welcome!! Alane

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      anonymous 4 years ago

      Lucas

    • afg21052 profile image
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      afg21052 4 years ago

      @anonymous: Karen, it's so good to hear from you again! Have you scrolled down the page and noticed if you can see any of the replies that I've made to the other people who have sent comments? If so, I sent a lengthly description to a lady named Debbie or Debra, I believe, and the information you need is there. If not, please let me know and I will copy and paste right to you. You'll also see a long reply from Paul to Debra. It's very detailed. Please let me hear from you! Alane

    • profile image

      anonymous 4 years ago

      Do you have a complete list of your what your husband is eating. I am really interested. I am multiple myeloma also with IgA of 1860 last checked. Really interested. Thanks, Karen

    • profile image

      anonymous 4 years ago

      thank you so much for sharing this valuable information

    • profile image

      anonymous 4 years ago

      thank you so much for sharing this valuable information

    • afg21052 profile image
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      afg21052 4 years ago

      @Neondebbie: Debbie,

      To date, Paul is still doing great. He told me just yesterday that he has never felt better, however, it has cost him much just to stay on this paticular diet we feel the Lord has given him.

      I can feel the fear and anxiety in your comments and all I can tell you is about Paul's experience and faith in a God that is bigger than any doctor or clinic in the entire world.

      Paul was diagnosed with MM by an Oncology doctor in 2007. He was a kind man, but he gave us no hope whatsoever. Paul's IgA was 1,366 and he had 40% Myeloma cells in his bone marrow. This doctor told Paul there was nothing he could do and that we needed to wait until the IgA (which is protein in the blood) increased to around 2300. We couldn't believe it! We were supposed to just sit and wait until Paul's numbers increased and then just sucumb to a bone marrow transplant? This just did not seem right that there was NOTHING we could do in the mean time. So....needless to say, we changed Oncology doctors and this next doctor is the one that told us about the 40% myeloma cells in the bone marrow. Paul asked him if those numbers (IgA of 1366 and the 40% cells would ever go down and he put his had down and said no.)

      But he recommended us to one of the bigger cancer clinics like Mayo or UAMS. We chose UAMS because it's in Little Rock, Arkansas and we live out side of Fort Smith.

      In the meantime, while we waited for our appointment at UAMS, we began to pray earnestly for some guidance on Myeloma cells. The Lord led us to just the right resources and we learned some very interesting things about cancer cells. We learned they thrive on sugar! Paul COMPLETELY STOPPED eating sugar that day and has not had one bite of it for these many years. WE also learned that 100% Concord Grapes were lethal to the Myeloma cells, along with many other fruits that were high in antioxidants. (But the cancer cells had no sugar to eat so they had to eat the sugar from the grapes.) So, what Paul did was eat absolutely NOTHING but grapes (black and red only) and drink 100% Concord grape juice (made with natural sugar only) until around noon. (Paul has now completely stopped eating the grapes, but still drinks the juice like clockwork.) Then, he had nothing for lunch, but for supper he had white meat only, a veggie, salad made with homemade dressing (sugar-free of course) and a little rice. We have since added a few other veggies, but he has still had no sugar or any type of red meat to date. This diet can not be recommended exactly as it is because, for instance, a diabetic would never be able to go without eating or drink so much natural sugar, so it's got to be something that each individual works out for themselves. All I can tell you is that it has worked for Paul and I know if nothing else, just the idea of stopping sugar and red meat can't be bad for anyone.

      Debbie, the big cancer centers are doing wonderful things for people nowadays. We go once a year and see many people that came in to the Myeloma center in the late stages that are doing very well now. Some had to go through the bone marrow transplants, etc., but are leading productive lives. Please don't misunderstand me, I'm not saying Paul will never have to have any kind of cancer therapy, I'm just saying the Lord has enabled us to prolong the smoldering myeloma by living healthier.

      The miracle for us came when we finally were able to get our appointment at the Myeloma Center in Little Rock. They did many tests and we went back for our results. The IgA, which was 1,366, was down to 660, and the 40% myeloma cells were down to 5%! And this was after the Oncology doctor told us that those numbers would never go down on their own. No one knows our bodies like the One who created them does!

      Please keep me posted on your results and let us know what you have decided to do. I wish there was some way for me to get your email address or send mine without everyone seeing it, but I don't know how to do it.

      But....please know that we have already started praying for you just as we pray for each one that has sent comments.

      Much love & prayers,

      Alane

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      Neondebbie 4 years ago

      @afg21052: What is the current status of Paul? Did he have lytic lesions at the beginning of diagnosis? I am waiting on my diagnosis pending labs. Thank you

    • afg21052 profile image
      Author

      afg21052 4 years ago

      @anonymous: Hello Neha!

      I'm sorry this reply is so late and I'm terribly sorry about your Dad. I trust he is doing well. The diet that my husband, Paul, is on would be much too drastic for a diabetic. He doesn't eat or drink anything but 100% Concord Grape Juice until supper time. There is no way your Dad can go without eating and I don't think his body could tolerate all the natural sugar in the grape juice. The Lord gave us this diet specifically for Paul, but He can do the same thing for your Dad, I'm sure, if you ask Him.

      Please keep us posted on how he is doing!

      In Christ,

      Alane

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      anonymous 4 years ago

      Dear, Paul

      Can my mother is sick multiple myeloma after transplantation now is ok. We are hopping that disease never come back if you can send me that diet to Flashius@gmail.com. Thak you and good luck, Andrius.

    • profile image

      anonymous 4 years ago

      Hello i m neha nd my dad(age 52yrs) was diagnosed with multiple myeloma in april 2010 and at the same time he is also diagnosed with diabetes . Now his blood sugar level is under controle. Please guide me for a proper diet

    • profile image

      anonymous 5 years ago

      Paul thank you for the time you took to answer my post. You have given me the hope of maybe getting off the medicine. I thank you again.

      I will pray for your continued success with your diet.

      God Bless

      Debra

    • profile image

      anonymous 5 years ago

      Alane thank you for your quick response and prayers. This gives me hope for maybe getting off the medications if its Gods plan. I will let you know how things are going.

      God bless

      Debra

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      anonymous 5 years ago

      My name is Debra was diagnosed with Smoldering Multiple Myoloma in July of 2003. This August 2012 my blood numbers went from 700 to over 2300 in just 6 months. They say I need to start a treatment to protect the kidneys. I had been watching my diet eating balanced and high antioxadant food. Last summer found myself at 59 raising three grandkids. With three kids and a busier schedule my diet changed. I believe the change indiet changed my numbers. I am very interested in the diet you used. I would like to try it while on medication hoping for lower number. I can keep down with only diet and prayer for guidance like I have done for 9 years. If you can give me more information I would appreciate.

    • profile image

      anonymous 5 years ago

      My name is Debra was diagnosed with Smoldering Multiple Myoloma in July of 2003. This August 2012 my blood numbers went from 700 to over 2300 in just 6 months. They say I need to start a treatment to protect the kidneys. I had been watching my diet eating balanced and high antioxadant food. Last summer found myself at 59 raising three grandkids. With three kids and a busier schedule my diet changed. I believe the change indiet changed my numbers. I am very interested in the diet you used. I would like to try it while on medication hoping for lower number. I can keep down with only diet and prayer for guidance like I have done for 9 years. If you can give me more information I would appreciate.

    • afg21052 profile image
      Author

      afg21052 6 years ago

      @happynutritionist: Thank-you so much for your kind words! May the Lord bless you abundantly! :)

    • profile image

      happynutritionist 6 years ago

      This is a remarkable story, I pray that you husband continues to do well!