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Do any of you have PKU?


I was diagnosed at birth in 1972 and on a low protein diet until 5. Taken off of the diet, I developed well, but have heard that most people in that situation had adverse effects from too much phenylalanine. I am back on the low protein diet now, waiting to have a baby...Just wondering what others with PKU are going through...Any information would be greatly appreciated!! Thank you!

 

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