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Celiac Disease

Updated on August 8, 2015
Celiac Disease
Celiac Disease

What Is Celiac Disease?

Celiac Disease, also known as Celiac Sprue or simply Sprue, is a genetically predisposed, systemic, autoimmune disease that attacks the small intestinal villi however; Celiac disease can affect any organ system in the human body. And ...

All to many people go undiagnosed for years because doctors do not routinely check for celiac disease. In fact most will simply either misdiagnose or reject the possibility because you may not present with "classic celiac symptoms." So ...

If you have been experiencing symptoms that are troubling to both you and your doctor, you may want to ask him or her about celiac disease. And ...

If your doctor says "I don't think you have it" ask why and if he or she says "because you don't have this or that symptom" insist that you be tested anyway because ...

I rarely had the most "classic symptom" which is diarrhea and so nobody caught it until 2009 when I happened to tell my present physcian that I was concerned about another condition I have because the symptoms had changed. I explained that I began noticing that I became nauseated after eating bread, corn, oatmeal and rice which were staples in my diet for years yet symptoms upon eating them had somehow gone unnoticed previously or my condition had changed. So ...

Without saying anything to me about his suspicions he order some more blood tests and viola! Celiac disease. My present doctor is darn good at his job and he listens to me which probably helps however ...

My mother is a different story. She suffered for years, complained about excessive diarrhea and nausea yet her doctor just let her suffer because he's incompetent. If it weren't for my doctor diagnosing me, my knowledge that celiac disease is genetically predisposed and me insisting that she be tested she would still be suffering. Now, she doesn't need to look for the nearest bathroom everywhere she goes.

If you or a family member have already been diagnosed with celiac disease then you need to take the steps to help your body heal so that your symptoms disappear or at least lessen in severity so that you can lead a more productive and healthier life. You can learn how to live with celiac disease especially if it is diagnosed early and that is why I created this page.

By the way I am an anal celiac so I research for hours to find what is new and or harmful when I have a condition and many of the research resources I have used to learn about celiac disease are listed below in different areas so you can have fast access without investing hours of time like I have and still do. You may want to bookmark this site because it will help you learn what you need to do in order to relieve symptoms and heal your gastrointestinal tract. It is extremely important to heal in order to avoid the myriad of complications that can emerge should you for some reason choose not to treat celiac disease properly.

The unfortunate thing about celiac disease is that for so many years nobody cared about it and knowledge was limited. Now, since it's been recognized as a more prevalent problem, more research is available. What was thought to be true several years ago has been found to be untrue in many cases because researchers are looking at gluten, prolamins and lectins. They are really looking and what they are finding is interesting to say the least.

Wheat, Barley and Rye Are NOT Celiac Foods
Wheat, Barley and Rye Are NOT Celiac Foods

The Cause of Celiac Disease

Gliadin, a glycoprotein, and a protein known as glutenin both of which are found in abundance in wheat, barley and rye, together create the cause of celiac disease which is called gluten. So in easy to understand layman terms celiac disease is caused by a reaction to proteins (prolamins) found in wheat, barley, rye and other grains. However ...

Celiac disease is not the same as a wheat allergy or an other food allergy. A true wheat allergy can become immediately life threatening due to anaphylaxis whereas celiac disease may become life threatening over time depending upon severity of damage to the small intestine and comorbity with other autoimmune diseases.

Celiac disease is known by several other names such as coeliac disease, coeliac sprue, sprue, non-tropical sprue, endemic sprue, gluten enteropathy or gluten-sensitive enteropathy. As of this date there is only one treatment for celiac disease.

Gluten sensitivity or gluten intolerance are often used in the same breath as celiac disease, often present with similar symptoms of celiac disease yet are not celiac disease. Celiac disease damages the intestines whereas gluten sensitivity does not. Celiac disease is an autoimmune disease whereas gluten sensitivity is not.

Celiac Disease Symptoms
Celiac Disease Symptoms

Celiac Disease Symptoms

Celiac disease can present with a myriad of possible symptoms at anytime during ones lifetime. Symptoms may appear shortly after infancy or celiac sprue can lie dormant for years and present with symptoms during the third or fourth decade of life or even later.

Due to the myriad of symptoms which are also associated with other conditions it is often overlooked, misdiagnosed, discovered accidentially, or the patient is simply told they are hypocondriacs and so endure needless suffering along with some potentially lethal complications such as intestinal cancer.

Common Celiac Sprue Symptoms

The most common or "classic" and readily recognizable gastrointestinal symptoms are:

  1. Diarrhea (classic, what doctors look for)
  2. Bloating
  3. Nausea
  4. Vomiting
  5. Reflux
  6. Steatorrhea or Fatty stools (they float like a boat)
  7. Abdominal pain

My diagnosis took years even though I had symptoms in childhood. When I was a kid I didn't present with the "hallmark" symptom of diarrhea. Instead I had nausea and canker sores.

My mother who had persistent, even what might be called debilitating diarrhea didn't get diagnosed either because her doctor simply wasn't and isn't much good. However, when I found out I had celiac disease and knew that celiac disease was genetically predisposed I had her doctor test her and guess what the test showed?

dermatitis herpetiformis can be subdued, similar to this pic, or extreme with blisters.
dermatitis herpetiformis can be subdued, similar to this pic, or extreme with blisters.

Non-Gastrointestinal Symptoms of Celiac Disease

Celiac disease can cause non-gastrointestinal symptoms. Skin disorders, neurologic symptoms, hormonal disorders can also be found in those who suffer from celiac disease. For example ...

  • Skin disorders such as dermatitis herpetiformis, an itchy skin condition characterized by a rash or blisters involving the extremities, the trunk, the buttocks, the scalp, and the neck. I'm lucky and have this. My doctor thought it was eczema because it can and does look like eczema.
  • Neurologic (nervous system) symptoms such as weakness, problems with balance, and sensory changes (for example,sensation of touch and pain).
  • Hormonal disorders, such as loss of menstruation and infertility in women, and impotence and infertility in men, are very uncommon.

Celiac disease symptoms usually first present in children when cerals are introduced into their diet and the onset of symptoms is usually gradual. Since celiac disease impairs nutrient absorption, essential for growth, children may suffer growth impairment and resulting short stature. Behavioral distriburances including depression, irritability and poor school performance are also common.

The symptoms of adult onset celiac sprue may seem to simply appear out of the blue however celiac disease is often first triggered by severely stressful events such as the death of a spouse or similar tragedy.

The above is an incomplete list of celiac disease symptoms and here's the thing ...

There isn't really a "typical" senario when it comes to celiac disease. Your symptoms could be different from the "classical" or you could present with a classical symptom and several other non-classicals and ...

Due to the real possibility of complications caused by long-term undiagnosed celiac disease you could be experiencing a vast number of symptoms not even mentioned here.

Unexplained Symptoms Could Be Celiac Disease

Refractory Celiac Disease
Refractory Celiac Disease

Unexplained Symptoms?

Celiac disease can present with many different symptoms. It may make your doctor think you are a hypocondriac but you need to insist that he or she do some digging to actually find a diagnosis because ...

Celiac disease is directly linked to intestinal cancer and small bowel lymphoma so even though the chance of your CD developing into complicated or refractory celiac disease and then intestinal cancer or small bowel lymphoma is small evidence suggests that untreated celiac disease can ptoentially lead to an early demise. Also ...

Undiagnosed and uncontrolled CD often triggers other autoimmune diseases; therefore it is imperative to get it under control as soon as possible. So get your doctor digging to actually find a diagnosis for your unexplained symptoms before the grave digger does his digging and you find yourself pushing up new grass in the local bone yard.

Who Should Be Tested?

It is this authors opinion that anyone with unexplained/undiagnosed GI symptoms should be tested. If other weird symptoms such as mouth ulcerations (canker sores), tingling hands or feet, RLS (restless leg syndrome which has been linked to celiac disease), rash or any other off-the-wall symptoms are present either concurrent with GI symptoms or they present intermittently in those with undiagnosed GI symptoms should definitely be tested for celiac disease.

The problem with celiac disease is that it can present with a myriad of off-the-wall, seemly unrelated symptoms that have a tendency to not only confuse your doctor but incline him/her towards believing you are lonely and simply looking for attention.

The reason for this mass confusion in regards to symptoms is because CD can attack any of the major organ systems thereby creating one to a dozen symptoms that do not seem to point to any one diagnosis in particular. For example:

You could have mouth sores, steatorrhea (fatty stools that float), nausea, tingling hands, restless leg syndrome, one week, and constant diarrhea the next with no other symptoms. Your doctor may begin to think you are a hypochondriac and not take your symptoms seriously. This could mean you go through years of undiagnosed suffering and intestinal damage which then causes other problems such as malabsorption, lactose intolerance, even intestinal cancer. Read more info here: Celiac Disease and Malabsoprtive Disorders

DIAGNOSING Celiac Disease

Diagnosing celiac disease starts with your doctor listening to you and your history so that he/she can get a good feel for your past and current medical situation. Your doctor should also know about any medical condition your parents may have had especially if one or both had celiac disease or similar symptoms that you also are experiencing. Then your doctor may order certain blood tests that will either rule in or rule out celiac disease.

Diagnosing Celiac Sprue

Celiac Disease Tests

Accuracy of Diagnostic Antibody Tests for Coeliac Disease in Children

Real People, Real Symptoms

It's one thing to read various medical sites, learning about the classic symptoms celiacs present with according to doctors. When you read about real life celiacs you learn about symptoms that you may otherwise think have nothing to do with celiac disease. Read about real life symptoms experienced by real people before and after being diagnosed with celiac disease visit this site

Unexplained symptoms? Ask your physcian to test you! You can fill out this form, print it out and take it to your doctor: Celiac Disease Check List

Celiac Disease Video Presentation

This videos will explain in detail what Celiac Disease is, what causes it, the most common symptoms, how it is diagnosed, treated and so forth. .

Celiac Disease: The Most Important Info About Celiac Disease Is:

Celiac Disease all to often goes undiagnosed for years because it can present with a myriad of confusing symptoms. Childhood symptoms may be different from adult onset and Celiac Disease can affect any organ system in the human body. Long-term undiagnosed Celiac disease can affect the heart, lungs, liver, pancreas and kidneys, not just the small intestines. People with long-term, undiagnosed CD may experience GI, hormonal, neurological and other systemic symptoms together or intermittently.

Celiac Disease Diet - Gluten Free for You and Me!
Celiac Disease Diet - Gluten Free for You and Me!

Is Your Toothpaste Gluten Free?

It is so hard to get ones head around the fact that ANYTHING you put into your mouth needs to be gluten free if you have been diagnosed with celiac disease.

Is It Really Gluten Free?

When you purchase products to make recipes, eat for snacks or simply brush your teeth, only purchase GLUTEN FREE products. Before you buy anything check the label for "Gluten Free." If it isn't on the label there may be a reason for that, it probably is NOT gluten free. If you want to buy or use any product that is NOT labeled "Gluten Free" make sure you either check out that company and product either online or by telephone. Don't be afraid to ask for a confirmation letter!

Celiac Disease Treatment Means A Gluten Free Diet

The only treatment for celiac disease is a gluten free diet. A gluten free diet means NO wheat, barley, rye or products that contain them or substances (deriviatives) made wholey or partially from them - No gluten period.

The gluten free diet is much more difficult to adhere to than one would think because wheat and barley or some food ingredient or additive that contains them such as malt (barley) may be found in almost anything. Canned soups are a prime example. Who would think at first thought that tomato soup would contain wheat? Yet many tomato soups do contain wheat. Wheat flour is used as a thickening agent.

It's not as easy as it would seem to maintain a gluten free diet because the cause, gluten (from wheat, rye, barley), is used in almost everything from flour, pasta and gravey mixes to spices! It would seem that all you may have to do is give up regular bread but oh no, you will find you need to give up tons of foods you may have been relishing previously.

I learned the hard way how difficult it is to know which foods contain gluten and which foods do not. IF it's "processed" you best be vary careful because it isn't just tomato soup that contains wheat or glutens from wheat, barley and rye. You can find gluten or derivitives in tons of foods. Soy sauce, wine, liquor, beer, immitation crab, even spices (the combination types used for grilling etc). Then there is the problem called ...

Cross Contamination

Cross contamination is a real problem for celiacs. Cross contamination simply means that non-gluten foods can become contaminated with gluten due to being processed or cooked in a gluten environment.

Cross contamination drives me nuts. It only takes a very small portion of gluten (the amount that could fit on a pin head) to create symptoms and less to create damage to the small intestines.

The cooking environment is almost always contaminated with gluten containing foods if those foods were cooked anywhere other than your own kitchen. For example ...

All someone has to do is butter your gluten free toast using the same knife that was used to butter someone else's regular toast and bam! You get sick! If the butter was in a community butter bowl you got nailed that way too, a double whammy!

Processed foods are often manufactured on the same equiptment as foods containing gluten. Even if gluten isn't directly in the product it may be manufactured in a facility that creates cross contamination. For example ...

You may want some cornmeal but when you read the label carefully you notice, in fine print, that the product in manufactured in a facility that processes wheat, barley or rye. Plus ...

If you call manufacturers of a product to ask them if their product is gluten free they may not be able to give you a definitive "yes" answer because they may not be familiar with all of the ingredients obtained from 3rd party suppliers.

Even peanuts (any nuts) which are NOT a gluten containing food, pose problems because nut products are usually processed in plants that also process wheat and barley plus many peanut products use wheat in the coatings/spices. This is a major problem for me because I love peanuts!

I love peanut butter!

And guess what?

At this time it is almost impossible to find a nut that hasn't been cross contaminated and most peanut butter is NOT gluten free. At this time I have only found one brand of peanut butter that is gluten free and that brand is Smart Balance.

That's the diet for celiac disease - NO gluten. And there is no other real treatment coming in the near future. But what IF you do NOT respond to the normal gluten free diet? I'll address this more bluntly is a moment and ...

Big pharma is working diligently to produce some more toxic drugs for us Celiacs to take but when those come to market I will still opt for the diet route. Fresh veggies, grass fed beef, and true free range chicken, turkey, and wild fish won't kill you but FDA approved drugs are different story.

Gluten Free Yet You Still Have Symptoms? Diarrhea, bloating, nausea, fatigue, weight loss etc?
Gluten Free Yet You Still Have Symptoms? Diarrhea, bloating, nausea, fatigue, weight loss etc?

What IF You Don't Respond To A Gluten Free Diet?

For most people the normal gluten free diet is effective at eliminating celiac disease symptoms yet a certain percentage of people do not respond well to a normal gluten free diet. So what do you do if you are among that group of people?

You make a list and re-check everything!

Did you clean your kitchen totally to make it gluten free? Which means did you throw out all food products that are not gluten free or might be suspect? Did you thoroughly clean (scrub) all appliances, containers, cupboards, dishes, silverware, utensils and counters? If not that could be your problem. You need to do it.

Did you check everything that you curently put in your mouth? What you put in your mouth on a daily, weekly, monthly or even a sometime basis matters! What do you eat and drink daily? If you eat mainly processed foods re-look at the labels, check the ingredients. Go online and find out what the ingredients are, how they are made etc, if you don't know.

Fresh, raw, unprocessed vegetables and fruits are safe.

Meats on the other hand should come under close scrutiny because, smoked meats, deli meats, processed meats (bacon, weiners, ham, hamburger, sausage), processed fish and seafood (smoked, fake crab, canned tuna and more) are usually unsafe. If you didn't grow it, catch it and butcher it, it vary well may be unsafe. Usually fresh or frozen fish from the butcher area of your store is safe as is chicken, cornish game hens, steak, roasts, chops and other cuts of beef, pork and lamb but ANYTHING that is the least bit processed, stuffed, self basting, or contains any weird ingredients (hydrolized vegetable protein is usually wheat) is probably unsafe. If it's processed and doesn't say "Gluten Free" it probably isn't.

Once you have re-checked EVERYTHING, including ANY prescription medications, OTC remedies for colds and flu, toothpaste, mouthwash, lip balm, vitamins, minerals, antioxidants, shampoo, conditioner, sunscreen, anything that you put in your mouth or can be absorbed through the skin, and have found nothing that you can point a suspicious finger at then it may be time to try excluding other grains from your diet.

What About Corn?

It could be that corn causes a response in you too! Corn and anything made with or from corn may also be a problem for about 1/3rd of Celiacs. In several studies the gluten in corn created an unwanted response so ...

If you are one of the Celiacs in that 30% - 40% of unlucky folks that means no corn, corn flour, corn oil, corn syrup, corn starch nor anything containing those things or anything made from corn. In one small study 6 out of 13 patients realized a poor response to corn gluten (the prolamin called zein), that is almost 1/2 of the patients in that study - Read here

What About Oats?

Many people believe oats to be safe but that isn't necessarily true for two reasons. One reason is that some celiacs, according to studies do NOT tolerate oats. There is a protein (prolamin family) in oats called avenin which is similar to the proteins in wheat, barley and rye. As a result the protein in oats seems to cause the same reaction in a small majority of celiacs, about 1 in 165. Some Celiacs Can't Do Oats

The other reason oats can be unsafe for Celiacs is that most oats are either grown next to wheat, barley or rye and then processed in facilities that also process wheat, barley and rye. This is where "cross contamination" becomes a real problem because even a little gluten from wheat, barley or rye dust will make you sick if you have celiac disease.

What About Rice?

As of this date I have yet to find any research stating even a possibility of a glutin-like response yet when I eat any rice product I get nausea and feel sick, just like with corn, oats, quinoa, sorghum, buckwheat, wheat, barley and rye.

Prolamins The Common Denominator

I'm one of the lucky few who simply can not eat grains with prolamins. Prolamins are a group of plant storage proteins having a high proline content and found in the seeds of cereal grains and pseudocereals: wheat (gliadin), barley (hordein), rye (secalin), oats (avenin), corn (zein), rice (orzenin), millet (panicin), sorghum (kafirin), quinoa (?). I'm still researching prolamins and why they seem to be the common denominator in the cereal grains and and pseudocereals that cause me problems. Why? Because it may help someone other than myself.

Grain – Prolamin – %
Wheat – Gliadin – 69%
Rye – Secalinin – 30-50%
Oats – Avenin – 16%
Barley – Hordein – 46-52%
Millet – Panicin – 40%
Corn – Zien – 55%
Rice – Orzenin – 5%
Sorghum – Kafirin – 52%

Bottom Line

I quit eating grains and similar substitutes. What happened? My symptoms disappeared. But do I miss cookies, biscuits, pancakes, and bread? Even the gluten free varieties? Oh yes, you bet I do.

Gluten Sensitivity Vs. Celiac Disease Vs. Gluten Intolerance - YOU NEED to watch this video!

Dr. Osborne explains how ALL grains contain gluten. This means if you are a true Celiac and want to not only avoid symptoms which may only come with grains like wheat, barley and rye but stop the damage that may be done by continuing to eat different grains that still contain gluten which may eventually end up doing irreparable damage that could lead to more life threatening complication such a small bowel cancer and lymphoma you may wish to consider avoiding ALL grains period. This is a must watch!

Celiac Poll

Celiac Disease
Celiac Disease

Have you been diagnosed with Celiac Disease?

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As a Celiac you have a lifelong commitment to a gluten free diet if you wish to heal your intestinal tract and avoid symptoms and unpleasant complications; however, adhering to a gluten free diet can be much easier said than done because gluten is everywhere! Gluten can be found in sauces, thickening and texture agents, flavors and certain combination and grilling spices. Unfortunately gluten is many times hidden and/or disguised using names many are not familiar with and I am not kidding. Cross contamination is also a real problem as is the dubious cooking practices of family, friends and restaurants. So ...

For a Celiac to be completely gluten free is a major task that is NOT easy and since it takes as little gluten as that which will fit on the head of a pin to cause a reaction and damage the intestinal tract it may be beneficial to try what could be termed as a Celiac's First-Aid Kit. Something quick and easy like CeliacAid which can be taken anytime you think you may have been glutenized.

CeliacAid works on gluten, in the stomach, to neutralize it BEFORE it reaches your intestines. Give it a try to see if it may help you however please be advised this is not a product that is meant to enable a Celiac to eat everything in site and does NOT take the place of a strict gluten free diet. CeliacAid is merely a line of defense to be used when you suspect you have been glutenized. It certainly couldn't hurt to keep some at home, the office, your car, your purse or some other handy place just in case.

Your Medication: Is It Gluten Free?
Your Medication: Is It Gluten Free?

Are Your Medications Gluten Free?

You may be doing everything right in regards to your gluten free diet but you need to think more along the lines of a gluten free lifestyle and that means checking your medications, both OTC (over-the-counter) and prescription.

Gluten Free Medications List

If you have Celiac disease your choice of pain relievers is limited. Most OTC (over-the-counter) and many prescription medications are NOT gluten free. Make sure you check because you could be doing everything right except for your medications. That baby aspirin for added protection against a heart attack or your blood pressure, arthritis, diabetes medications or the antibiotic for strep throat could ALL be a problem.

Here is a list (usually current) of medications with indications as to whether they are currently gluten free. The thing to remember is that both OTC and prescription manufacturers change their formulas from time to time. Also your current medications may not be on the list. In the event your prescription is not on the list or if it is generic the manufacturer is not listed as manufacturing that drug gluten free you'll need to call or ...

Google the manufacturer, find your drug and then look for the binding agents and fillers used. IF the drug is gluten free for most people you'll see either corn starch or potato starch as binder and/or fillers. I prefer this route because if you call chances are whoever you talk to won't know.

This may seem anal to you but my mother takes a number of prescriptions and she was becoming sick after she was prescribed a new one. This is how I found out that drugs, that are NOT gluten free, can ruin months of healing. IF you are on medications and are not improving checking out your meds is a good place to start looking for answers.

Lactose Intolerance

Celiac Sprue causes lactose intolerance

Lactose intolerance is basically the inability to digest the sugar called lactose which is found in milk and other dairy products such as cheese, cottage cheese, chocolate and yogurt. Some dairy products such as yogurt, buttermilk and cheese have less lactose than milk but if you have suffered from Celiac Disease for sometime and have become lactose intolerant you may not be able to eat anything containing lactose without suffering discomfort.

Luckily there are products on the market that have enzymes added that neutralize the lactose thereby creating what is deemed to be a lactose free product, one such product is lactose free milk. The milk really isn't lactose free but the lactose is neutralized with enzymes. For example lactose-free milk can be produced by passing milk over lactase enzyme bound to an inert carrier; once the molecule is cleaved, there are no lactose ill-effects.

You can also use a supplement such as Lactaid to help you digest lactose so that you can enjoy dairy products again.

Gluten Free Vitamins and Minerals

All One Powder Multiple Vitamins & Minerals, Fruit Antioxidant Formula, 2.2-Pound Can
All One Powder Multiple Vitamins & Minerals, Fruit Antioxidant Formula, 2.2-Pound Can

This is an excellent mutivitamin, mineral and antioxidant product boasting many real live, quality vitamins instead of only synthetic, fractionated vitamins and minerals.


Celiac Disease Causes Vitamin and Mineral Deficiencies

Vitamin and mineral deficiencies are common among people suffering from Celiac Disease. Vitamin and mineral supplementation is not only wise but often required due to a conditon, created by Celiac Sprue, called malabsorption. Malabsorption occurs when there is damage to the small intestine villi. Both vitamins and minerals that are soluble in fat are commonly not absorbed and thus the occurring deficits.

This abnormality in the absorption of necessary nutrients may result in anemia (low red blood cell count) due to deficiets in iron and folic acid because iron and folic acid are essential for the production of normal red blood cells (erythrocytes). Vitamin B-12 deficiencies can also contribute to the anemia noticed in affected persons.

Vitamin K is essential for the production of clotting proteins. As a result, vitamin K deficiency causes a bleeding tendency among persons with celiac sprue. Vitamin D is essential for the absorption of calcium, which is required for appropriate bone growth. As a result, vitamin D deficiency may cause low blood calcium levels (hypocalcemia). This predisposes children with celiac sprue to bone disorders such as rickets. Adults with celiac sprue have decreased calcium in the bones, a condition referred to as osteomalacia, and may develop fractures. Loss of protein and calcium may lead to osteoporosis.

UDI's Gluten Free Sandwich Bread

One of the hardest things to find, at least for me, was a gluten free bread that tasted like good bread. I didn't want to have to spend hours baking bread and I have no idea how to make bagels so I started searching for and trying some of the gluten free breads available and ...

YUCK! I just didn't want to eat that garbage. And ...

Since I have a dog that'll eat almost anything and not wanting to waste it I gave that stuff to my dog but she wouldn't eat it! That has to tell you something right? Well luckily ...

I finally found UDI's bread and other goodies so that I could again enjoy eating sandwiches, toast, french toast, bagels, muffins and more without having to always bake those items myself. Try UDI's, you won't be disappointed, at least not compared to the other options you have!

You can find UDI's bread at Winco's in the bakery. They keep it frozen because it doesn't come in one of those vacuum sealed bags like the others that will last 6 months without refridgeration. If you don't have a Winco's or another store that carries UDI's bread products you can check out the link below where I highlight UDI's gluten free bread.

What About Alcohol?
What About Alcohol?

What About Alcohol?

I am not an alcohol drinker due to another condition called pancreatitis but for those of you who do not have a codition that prohibits the consumption of alcohol you may want to know if alcohol is safe for celiacs.

Hard Liquor

According to this article on any distilled alcohol such as rum, gin, whiskey and vodka is safe and fine for celiacs but ...

You can also find where the site owner of clearly states that corn, amaranth (a corn cousin), oats and rice are fine for all celiacs when there is current scientific data that says otherwise with 6 out of 13 celiacs (46%) illiciting an unwanted response to corn. Smaller percentages celiacs receive and unfavorable response from oats and rice in other studies. MY body says no corn, no oats, no rice and no amaranth. Once I eliminated all major grains (and their cousins) I started getting well.


Beer is made from the malts of barley and wheat which of course means that beer is full of gluten and not safe for celiacs.


Wine is NOT gluten free unless it has been stored in steel. If it has been stored in oak barrels, as most wine is, there is a great possibility that the barrel has been treated with a wheat flour paste to stop leakage and the gluten from that wheat flour paste WILL leach into the wine. Unless you know that the wine has been stored and aged in steel barrels it would be wise to pass it by.

Please Let Me Know You Dropped By and ...

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    • profile image

      S. Jaramillo 70 minutes ago

      Thank you for this article. I was just diagnosed at 40 with Celiacs. I have to say drs thought I was nuts when I explained all my symptoms. I did my own research and asked to be tested. My blood test came back as borderline. The Dr finally said to know for sure you need an upper gi test and havea sample taken. So glad I agreed to that test. GI Dr said he knew what I had just by looking. I was so glad to finally have an answer. The diet is a challenge but I am finally feeling better. I am going to forward this article to family, great explanation.

    • profile image

      Linda L Smith 3 weeks ago

      Thanks for the excellent info and your research. Very appreciated. And helps to explain why my adding other grains to my diet has not gone well.

    • profile image

      Maggie Mueller 8 weeks ago

      Thanks for all the hard work I wasn't diagnosed until I was in my late 50's for me it is one day at a time.

    • profile image

      Jo ann 3 months ago

      Thanks. This information was awesome. My doctor didn't diagnose me for 8 years. I have no more stomach pain or diarrhea

    • profile image

      Michelle 3 months ago

      Thank you this article gives me more to think about and look up like medications and corn. It's been very helpful.

    • profile image

      mrsvickie 4 months ago

      Thank you for so much great info and taking the time to share it with us!

    • profile image

      Deb Serafini 8 months ago

      Thank you so much for this wealth of info! I have been wondering why I have symptoms when I felt I was eating totally gluten free!

      I will now have to discuss this with my gastroenterologist, as well as my dietitian!

    • profile image

      Donna 9 months ago

      Ahhh, I hate Celiac disease....You basically can't eat ANYTHING!

    • profile image

      Lisa 12 months ago

      Lots of good info. Much of it I had figured out on my own as I've been dealing with this for a while. I was diagnosed with Celiac disease five or six years ago, after suffering for several years. My first doctor kept brushing my symptoms off as "another lupus symptom" and "what do you expect; you're pushing 50"! I also have lupus and sjogrens. I finally figured it out, myself and went to another doctor for confirmation and testing.

      I didn't know that wine barrels were treated with wheat flour paste, but I have been drinking wines with no problem. Have I just been lucky? Also, I had to throw out my toaster and buy a new one. There's just no way to clean out the inside of a toaster! lol

      I bought Udi's bread for a few years and rarely ate it because I thought the taste and texture was much like cardboard. A loaf of Udi's bread would last me several months in the freezer. Sorry, I really didn't like Udi's. I found Franz gluten-free breads and bagels and I just LOVE those.

      I don't know how many others are like me and can't touch gluten or touch anything that has been touched by gluten? Everywhere I go, I have to avoid touching doorknobs, light switches, flush handles, shopping carts, credit card touch pads...basically anything that people put their hands on. Shopping carts have been a nightmare because people eat in the store, then handle the cart and their children eat in the carts! I have to carry wipes in my purse in order to deal with all the glutenous surfaces. I know I look like a germaphobe, but it's better than having to pull over to the side of the road on the way home!

      Oh, one more thing, more and more restaurants are having their food handlers and wait staff trained to deal with Celiacs and I can eat at Outback Steakhouse and Chipotle Grill with no problems at all! I recently spent a week in Sandpoint, Idaho and found every single restaurant there knew how to handle my meals safely. It was a wonderful vacation!

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      Alexa 3 years ago

      Thank you for posting, may your post provide information to others that experience the same condition.

    • Lynn Klobuchar profile image

      Lynn Klobuchar 3 years ago from Minneapolis, Minnesota

      Thank you for a wealth of information! I discovered I was gluten intolerant on an elimination diet. What is terrifying me right now is the possibility that most humans should not be eating gluten but will not show any of the symptoms until real damage is done.

    • TheHealthGuy LM profile image

      TheHealthGuy LM 4 years ago from U.S.A.

      @JenwithMisty: Hi JenwithFlash. One of the symptoms I remember most as a kid were the canker sores. Once I started using quality vitamins with B-complex they disappeared. So, it may have been something to do with bowel damage and nutrient absorption.You should get tested especially since you have Graves Disease because if you have one autoimmune disease there are usually others lurking about. And isn't that just dandy? Oh, for the tests to be of any value you should not be on a gluten free diet.

    • TheHealthGuy LM profile image

      TheHealthGuy LM 4 years ago from U.S.A.

      @emilysmaids: Thanks emilysmaids - you are right. I should invest more time on this lens and add in more info about children and celaic symptoms in children. I'll try to do that in the near future. Thank you for visiting. I appreciate it :-)

    • emilysmaids profile image

      emilysmaids 4 years ago

      You have built a wonderful resource here. My 7 year old daughter was diagnosed this year and we are learning a lot :) Maybe add a section about specific symptoms to watch for in children: weak tooth enamel/tooth development, underweight, under normal height for age, frequent accidents (bm's) in older children, to name a few.

    • JenwithMisty profile image

      Jen withFlash 4 years ago

      I've been suspecting celiac for a long time, especially since I have graves disease (autoimmune thyroid disease). The worst thing is, and I'm glad you mentioned it, is the canker sores. I can hardly stand them anymore!!! OUCH!!! I totally forgot that they totally went away during the 4 months that I tried a gluten free diet. I guess I better get back to it!

    • TheHealthGuy LM profile image

      TheHealthGuy LM 5 years ago from U.S.A.

      @adenoidcysticca: Thank you for the kind words, I appreciate you and am glad you found this lensabout celiac disease worthwhile.

    • adenoidcysticca profile image

      adenoidcysticca 5 years ago

      This is an AWESOME lens! Thank you so much for sharing this information with us. There are many diseases where nutrient absorption can be hindered, such as Chrone's or UC, and of course Celiac. Really good stuff you've shared with us.

    • TheHealthGuy LM profile image

      TheHealthGuy LM 6 years ago from U.S.A.

      @anonymous: Hey Susie thanks for stopping by and SquidLiking and your kind comments. I appreciate you :-)

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      anonymous 6 years ago

      I didn't know anything about Celiac disease until just now, may you be of help to many!