Brain Tumor Glioblastoma Multiforme
Glioblastoma Multiforme brain tumor
To me there is no other expression more scary than "There is a brain tumor"! So - what is the treatment for brain cancer? Some can get well and some die. What are the different types of brain tumors? This lens is about GMB.
I tried to find facts and help on the internet but today I know - this is what I should have heard.
Fear tastes of metal
The doctor used the word "astrocytoma". He said Glioblastoma multiforme grade IV, brain tumor. I did not understand anything at that time. I did not know what to do, where to go or what to expect of the future.
The absolutely worst thing was that I was alone. My Darling husband - who had the brain tumor - did not understand much! He could not take in information or add up the words the onchologist said. But I could! I still remember the fear of suddenly being forced to take all the descicions and be in charge of the situation.
Descicions about surgery, chemotherapy, radiation, advanced treatments, managing side effects. Where do you find reference that is as fast, convenient, and portable - everything you need to know, from the federal sources you trust. Since navigating the Internet to find medical information can be confusing and you are so hysterical about doing the right thing! I went online to find out what other had said. Stories and facts in a dreadful mix. The stress and fear and press was almost more than I could bear.
The reason I do this lens is, that I really wish I had this information earlier, more detailed and presented with facts imediatelly. I did not know anything at all and I was in a foreign country with foreign language too. I am going to tell the story so if anybody is in this situation - you can benefit from my experience!
Read the comments in my guestbook!
So many personal thoughts and shared pain. We are many!
I want to warn you about one thing
A GMB always continue to grow - what ever you do
That is - do not listen to all "good" advices! You will be more and more stressed about what is best to do. What shall I buy, pay or order?
Any suggestions I made to my Husband he just said: Yes! Lets do it. He did not realize that he said yes because he trusted in me. I did know that types of head tumors differ. But this one is deadly and I was so alone.
Eat this, drink that, don't go out in the sun - spend much time in the sun, buy a machine that take away the edema, buy all the homepatic medicine you can get! Buy Vitamine B12 from Mexico! Cortisone is a must! Avoid sugar and be happy. Do not drink coffee. All these suggestions and many many more I got.
In the end I found out that all were not bad but many were not necessary. Even the doctors are helpless here. But they want to do what little they can. That is first the biopsy - to go in to the tumor and take a sample to see what kind it is. Then they want to give you radiation therapy and last there is chemo therapy. Of course cortison is given to reduce the edema (the swollen area around the tumor).
Some scientists say that if you give Radiation therapy together with temozolomid (Temodal) it can affect the tumor more.
One important advice from me
There is something you CAN do. Try to stay positive and enjoy each other as much as you can - while you can!
The tumors locations are different
This is only one of many stories
So therefore the symptoms are different too. When the tumor is on the left side of the skull, the memory, talk, writing and reading are affected. Also fits and shaking movements of the hand are common.
When the speech goes away it is frustrating for the patient. He cannot ask for anything at all. I my case I knew him so well so I guessed often right what he wanted. I had to feed him because the hand was shaking so much. I read about others who did not rememeber how to swollow the food. You had to tell them.
Of course you are the one to keep track of the medication and in our case - also eye drops. The tumor was pressing on behind the eye and the vision was slowly shutting down. We had pain killers at home but he never needed them. I was so grateful that there was no pain in this case.
In the end he started to sleep more and more and the breath was wheezeling. He could not open his eyes the last day. But silently and peacefully, he just stopped breathing.
Fighting Cancer audio book
what are the different types of brain tumors
Please note that the advices here are to strenghthen the patient. The GMB will not be removed or even shrunk from these suggestions. But - I do believe that the immun system can do some good to avoid pain.
An interview with Ralph Moss, PhD, editor of the Moss Reports, and author of Antioxidants Against Cancer, Cancer Therapy, Questioning Chemotherapy, and The Cancer Industry, as well as the award-winning PBS documentary The Cancer War.
BURZYNSKI Cancer treatment
So what are the different types of brain tumors?
The cat scan is a way to see what is going on inside the brain. Where the tumor is and how it is growing. Because - it NEVER STOPS GROWING!
Although common symptoms of the disease include seizure, nausea and vomiting, headache, and hemiparesis, the single most prevalent symptom is a progressive memory, personality, or neurological deficit due to temporal and frontal lobe involvement. The kind of symptoms produced depends highly on the location of the tumor, more so than on its pathological properties. The tumor can start producing symptoms quickly, but occasionally is asymptomatic until it reaches an enormous size.
One of the reasons for the resistance of
GBM to therapeutic intervention is the
complex character of the tumor itself. As
the name implies, glioblastoma is multiforme.
It is multiforme grossly, showing
regions of necrosis and hemorrhage. It is
multiforme microscopically, with regions
of pseudopalisading necrosis, pleomorphic
nuclei and cells, and microvascular
This is how a cat scan works
A magnetic camera (Computed Tomography)
Radiation therapy is made straight on the same spot for 34 days in a row. The hair will fall off and you will lose weight rapidly.
The median survival time from the time of diagnosis without any treatment is 3 months.
If you are treated with Radiation therapy and Chemo therapy the death comes often within a year. One in twenty of glioblastoma patients survive for more than three years.
Note the expression "survive". What kind of life is that really. In our case - the tumor was on the left side of the head. That means that the memory is affected rather quickly. Sick, cannot remember, read or write or understand anyting. Fits falling on the ground outdoors and indoors. I must say that "survival" time is no quality time at all!
Some more links about this killer tumor - So, what are the different types of brain tumors?
I know from hard experience that you need to act and find things to do to help. But please remember that there is absolutely nothing you can do to stop a GMB from growing!
To keep the patient as strong as possible, to support the imune system and to keep the food healthy is good to do.
- State-of-the-art Therapy for Glioblastoma Multiforme
The treatment of patients with glioblastoma multiforme (GBM) is conventionally considered to be a palliative venture with no hope of cure. Traditionally, patients are treated with maximal surgical resection based on the premise that, although surgery
- PubMed Central
Glioblastoma multiforme is the most aggressive of the gliomas, a collection of tumors arising from glia or their precursors within the central nervous system. Clinically, gliomas are divided into four grades; unfortunately, the most aggressive of the
- Brigham RAD
Glioblastoma multiforme is the most likely diagnosis given the irregular shape of the mass, the central necrosis, and the extensive surrounding edema and mass effect.
- Video about treatment of GMB
The video shows graphically what is to be done. Here you can clearly see why it is called astrocytica. Starshaped and evil I our case thou...no surgery was even suggested.
There are many different types of brain tumors. One type, know as astrocytomas, are tumors that arise from astrocyte cells - part of the supportive (neuroglial) tissue of the brain. Astrocytomas account for about half of all primary brain and spinal
- About the Swedish Cancer Society
They are working hard to find founds for research.
Learn about what you are up against - CD rom set
types of head tumors
This up-to-date and comprehensive set of two CD-ROM discs provides a superb collection of official Federal government documents on Glioblastoma Multiforme: signs and symptoms, diagnosis, lab tests, treatment and management options, and ongoing clinical research. Every aspect of the disease is thoroughly covered. Glioblastoma multiforme is a fast-growing type of central nervous system tumor that forms from glial (supportive) tissue of the brain and spinal cord and has cells that look very different from normal cells. Glioblastoma multiforme usually occurs in adults and affects the brain more often than the spinal cord. Also called GBM, glioblastoma, and grade IV astrocytoma.
This remarkable CD-ROM set is packed with tens of thousands of pages reproduced using Adobe Acrobat PDF software - allowing direct viewing on Windows and Macintosh systems. The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material.
Read about the enemy
If you have any questions or anyting to share - do it. I want to help and tell my story if it benefit anyone at all. I did the mistake to go for anything at all that was supposed to kill cancer or make it go away. I still remember the taste of fear in my mouth. I was on the verge of hysteria for months.