Hurler's Syndrome Awareness
Let's Raise Awareness for Hurler's Syndrome!!!
THIS LENS IS DEDICATED TO HAILEY & ANGEL ^^MAKAYLA^^ & TO FINDING A CURE TO HURLER'S SYNDROME!
What Is Hurler's Syndrome:
Hurler's syndrome is one of a group of inherited metabolic storage disorders in which the lack of an enzyme affects various organs and tissues, including the brain. Enzymes are proteins that play many roles, including to metabolize (break down) substances in the body. In metabolic storage disorders, the body lacks an enzyme needed to metabolize a substance, such as a sugar. Instead, the substance builds up in the body and causes damage.
Makayla & Hailey
"dedicated to Hailey & ^^angel^^ Makayla"
- This Lens is dedicated to two beautiful girls, Hailey & Makayla Chavers. They both were born with Hurler's Syndrome. We have had both the girls on our Prayer List for quite some time now and this whole time I thought that Hurler's was a type of cancer. I just found out that it's not cancer at all. I wanted to share the information that I've learned about Hurler's with all of you. Also, to introduce you to Hailey & Makayla - two beautiful lil' girls - one fighting Hurler's here on earth, and the other in Heaven With Jesus!!!
Much Love Always,
The Reich Family
Makayla's Caring Bridge Page
- MAKAYLA'S SITE
My name is Makayla Alexis Chavers. I was born on July 17, 2006. I left my Mommy and Daddys' arms to be with Jesus on December 17th 2006. I am the baby sister of Post Cord Blood Transplant survivor, Hailey Noel Chavers. This poem was written by Makay
Hurler's Syndrome Links
Definition of Hurler's Syndrome
- UNIVERSITY OF MARYLAND MEDICAL CENTER - WEBSITE LINK
Definition: Hurler syndrome is a rare, inherited disease of metabolism in which a person cannot break down long chains of sugar molecules called glycosaminoglycans (formerly called mucopolysaccharides). Hurler syndrome belongs to a group of disea
What Is Hurler's Syndrome?
- FAIRVIEW - WEBSITE LINK
Affecting one in 100,000 people, Hurler's syndrome is a rare genetic disorder where the enzyme (alpha-L-iduronidase), which normally breaks down the mucopolysaccharides dermatan and heparin sulphate, is missing. These mucopolysaccharides build up in
Duke Pediatric Blood & Marrow Transplant Program
- DUKE UNIVERSITY
What is the Duke Pediatric Blood and Marrow Transplant Program? Since its creation in 1990, the Duke Pediatric Blood and Marrow Transplant (BMT) Program has transplanted over 1200 children suffering from cancer, genetic defects or blood disorders. T