MOM HAS DEMENTIA, Our Second Stage
Early Onset Dementia
On this page, I would like to talk about my moms second stage of early onset Alzheimer's, Dementia. I would like to share with you some of the things that were going on with my mom. My mom at this time is about 59 years old. This stage went by so fast!
Our Second Stage
2 Year Period
Starting around 2009, this stage lasted about two years. During this stage we knew something was terribly wrong, but we had no idea what it was.
At this time, my dad, sister, brother and I started having conversations and exchanging stories. There was clearly something wrong with my mom. We originally had a lot of different thoughts of what it could be. Could it be a new medicine that she takes? Does she have a vitamin deficiency? Could it be because she is not managing her sugars, and it's causing confusion? Is the confusion causing her to mismanage her sugars? We still don't know what caused what. It's like, what came first the chicken or the egg?
It doesn't matter! Just spend every second cherishing your loved one. I wish that I had. This stage was quick, only lasting about two years.
What's wrong with Mom?
Everything that I mentioned in the first stage became very noticeable. She begin repeating the same story to me 2-3 times in one day. Phone calls were noticeably confusing for her, but for the most part okay conversations. She would get many names wrong with only sometimes correcting herself. She would lose many things and for longer periods of time. She stopped sewing. She stopped cooking dinner, so my father would take her out to eat or bring something home to eat every night. She would still prepare food just not as much. Her sugars were all over the place and she was not letting my father help her manage her medication. She would become easily frustrated with my dad.
She at this point is telling me that nothing is wrong with her. She had no idea what was going on.
Helpful in this stage was decorative containers. Don't get them too small because most likely they will be hidden. My mom was putting a lot of items in containers, and I enjoyed going through them with her. Her favorite had her jewelry in it, and she and I enjoyed talking about where she got each item. I'm almost positive most of the information that she told me about the items were not fact, but it didn't matter. There was a lot of neat things to look at. I wish that I would have gone through some of these containers with her sooner than I did because I could have actually got accurate information on some of her belongings. Some of the containers just had random stuff like a pen, picture, note pad, receipts, maybe a recipe.
I recommend getting MULTIPLE notarized POA's (Power of Attorney) and HIPPA's (medical release form) signed before it gets worse than this stage. We made that mistake, and waited until last minute. The POA would have given my dad at this stage authority to make decisions for my mom in general ONLY IF she should not be able to make decisions for herself. The POA became more useful to him after diagnosis anyhow, but she still needs to understand and sign it. The HIPAA, the the most important document at this stage, would have allowed my dad to access medical records and consult with her doctor outside her presence, but like I said, we made the mistake of not having these documents sign before this stage was over. Get several notarized copies of each. Some doctors might want to keep an original on file.