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OH NO! A KIDNEY STONE!

Updated on February 18, 2014

Kidney stones can be the most horrible pain on earth!

I have passed kidney stones for 22 years. I pass stones several times a month. I am a kidney stone master! I would like to share what I do to cope when I am passing a stone and also explain a little about why I have so many kidney stones. I have Medullary Sponge Kidney, also known as MSK or Cacchi-Ricci disease. I hope you find some answers to your questions here.

COULD IT BE A KIDNEY STONE?

Some symptoms of kidney stone

Waves of sharp pain that start in your back and side, and move toward the groin or testicles.

Inability to find a comfortable position. People with kidney stones often pace the floor.

Nausea and vomiting with ongoing flank pain.

Blood in the urine.

The frequent urge to urinate.

Sometimes an infection is also present, and may cause these additional symptoms:

Fever and chills.

Painful urination.

Cloudy or foul-smelling urine.

I had a migraine the night before this large stone passed, but no kidney stone pain, just really grumpy.

I had a migraine the night before this large stone passed, but no kidney stone pain, just really grumpy.
I had a migraine the night before this large stone passed, but no kidney stone pain, just really grumpy.

Different kinds of pain from a kidney stone:Visceral and Referred

Pain from the organs of your abdomen and pelvis is called visceral pain. Visceral Pain is often referred to another part of the body. My kidney stone pain can in my back, right over my kidneys, on my side, low in the front near my groin.

It can be constant or intermittent, dull and achy or sharp enough to make it hurt to breath.

I can also get referred pain up my jaw behind my ear.

Don't try to tough it out!

A stone can block your kidney from draining and cause permanent damage. If you seek medical help, the diagnostic tests will check the size of your kidney to make sure it is not blocked. While you are there, they can give you something to take away the pain!

Hydronephrosis-A stone blocking your kidney is a medical EMERGENCY!

Hydronephrosis-A stone blocking your kidney is a medical EMERGENCY!
Hydronephrosis-A stone blocking your kidney is a medical EMERGENCY!

Pain control during a stone episode.

Sometimes a heating pad is all I need. Usually I need something stronger. I used to go to the ER and they would give me an IV with morphine or some other really strong drug that just drugged me up into a fog. Then one time they gave me something that took away the pain but did not affect my alertness. I was thrilled. It is called Toradol and I ask for it every time now.

Since I have hundreds of stones in each kidney, my urologist has me stocked with meds so I can treat myself at home for all but the worst pain.

I have Dilauded, Toradol and Ativan that I take depending on the severity of the pain.I also used to take Demerol but they took it off the market last year. Toradol is my favorite, but you can only use it 5 days.

I always take an ativan with the medicine. It calms me down and I am able to tolerate the pain better.

I use Fenergan for the nausea that the pain meds can cause. I am allergic to percocet and vicodan but they help some people.

Heating Pads are my Best Friend

Here are some heating pads that would be great for kidney pain.

Sunbeam 901-505 Flexible Heating Pad
Sunbeam 901-505 Flexible Heating Pad

This heating pad wraps around your back and sides and heats right where your kidneys hurt. This is a favorite among my friends with kidney stones. Highly recommended.

 
Venture Heated Clothing SH-55M Heated Back Wrap Max
Venture Heated Clothing SH-55M Heated Back Wrap Max

This one also wraps around you so you can place the heat in just the right spot. This will be my next heating pad. It incorporates FAR INFARED HEATING, which is different from standard heating pads and the heat penetrates 2-3 inches deep. Just deep enough to really get to those pesky kidneys.

 
Sunbeam Heat To Go Rechargeable Cordless Heat Back Wrap
Sunbeam Heat To Go Rechargeable Cordless Heat Back Wrap

This heating pad wraps over your kidneys to provide direct heat where you want it. It is battery operated so you can move freely while wearing it.

 
Qfiber Body Wrap - Portable USB Powered Heat Wrap
Qfiber Body Wrap - Portable USB Powered Heat Wrap

This one comes with a wall plug, USBplug for when you are at your computer and a car plug for when you are in the car! And it wraps around you to position right on your back.

 
Sunbeam Health at Home King Size Heating Pad with HeatSense Technology, Grey
Sunbeam Health at Home King Size Heating Pad with HeatSense Technology, Grey

I have had this one for a couple of years. It is much nicer than the cheaper ones with removable covers. It does not have a belt to wrap around your back. I lay on it and it works fine, but I have to lay on it or lean against it. I am not mobile.

 

YOUR TREATMENT TEAM

You are the TEAM LEADER

Develop a treatment team: A primary Doctor, A Urologist and a Nephrologist are a good start.

If needed you can add a Pain doctor and an Endocronologist. Your primary doctor keeps communication between your team flowing. A Urologist is for physical stone care and removal surgery. The Nephrologist is going to keep up with kidney function and stone formation prevention. If your doctors are reluctant to prescribe needed pain medications, you may need a Pain specialist. If your stones are caused by a metabolic imbalance you may need an Endocronologist.

Have you had a kidney stone

How many kidney stones have you had

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Try to catch your stone!

If you are able to catch your stone, it can be analyzed. Once the type of stone is identified, you can take steps to prevent further stone formation.

Tools to Catch a Kidney Stone.

Ableware 726760001 Collecting Funnel with Filter
Ableware 726760001 Collecting Funnel with Filter

This strainer will help you strain your urine to collect your kidney stone. As soon as you start feeling the kidney stone pain, collect and strain your urine. The stone usually passes after the pain has stopped. To make this easier and to prevent forgetting, use a urine collection unit to keep under your toilet seat to collect every urine. You might have more than one stone, so keep collecting.

 
Kendall Calculi strainer for kidney stone analysis test, non-sterile - 1 ea
Kendall Calculi strainer for kidney stone analysis test, non-sterile - 1 ea

This strainer will help you strain your urine to collect your kidney stone. As soon as you start feeling the kidney stone pain, collect and strain your urine. The stone usually passes after the pain has stopped. To make this easier and to prevent forgetting, use a urine collection unit to keep under your toilet seat to collect every urine. You might have more than one stone, so keep collecting.

 
Urine Calculi Strainer - Covidien 2110SA
Urine Calculi Strainer - Covidien 2110SA

This strainer will help you strain your urine to collect your kidney stone. As soon as you start feeling the kidney stone pain, collect and strain your urine. The stone usually passes after the pain has stopped. To make this easier and to prevent forgetting, use a urine collection unit to keep under your toilet seat to collect every urine. You might have more than one stone, so keep collecting.

 
Specimen Collection Bowl
Specimen Collection Bowl

This is also called a urine hat. This sits under the toilet seat so you can urinate as usual, then pour the urine through the strainer to check for stone when you are done. Watch for small crystals the size of grains of sand in the bottom of the hat. These are important to save too.

 

Some ways to prevent more stones.

Drinking 3 ounces of lemon juice from concentrate is supposed to help.

Stop the soda! Any of the dark sodas and mountain dew are bad.

If I drink Iced tea I am almost guaranteed to end up in the ER within a few days. JUST SAY NO!

Spinach is high in Oxalate which is in many stones.

Too little calcium can make your body hoard the calcium it does have. That can cause more stones. Don't overdo the calcium but do not restrict it severely.

If you have gout, you may form uric acid stones. Treat your gout preventatively.

The Low Oxalate Cookbook: Book 2
The Low Oxalate Cookbook: Book 2

This book is excellent for people trying to limit Oxalate in their diet.

 

Medical Interventions

When you can't just wait it out.

When a stone is too big to pass on it's own, you may have to have it removed. One way is Lithotripsy:

Many times after lithotripsy a stent will be placed in your ureter to keep any stone fragments from blocking your kidney.

My experience with a stent ranged from uncomfortable to painful. Also my urine was full of blood until the stent was removed. This is normal.

My Urologist Holding a Cystoscope

Cystoscope is used by the urologist to see into the bladder. It has a camera, a tube for irrigation and a tool to grab things.

My urologist was about to use this to remove a stent 3 weeks after my last stone removal procedure. (I HATE GETTING THEM REMOVED!)

Dr. Perez, my urologist, gave me my stents to show my kids!

Dr. Perez, my urologist, gave me my stents to show my kids!
Dr. Perez, my urologist, gave me my stents to show my kids!

I have so many stones because I have a congenital kidney defect: Medullary Sponge Kidney or MSK.

Ultrasound of my left kidney loaded with stones!

Ultrasound of my left kidney loaded with stones!
Ultrasound of my left kidney loaded with stones!

My right kidney on 8/26/08. I had surgery 9/15/08 and had many of these removed

My right kidney on 8/26/08. I had surgery 9/15/08 and had many of these removed
My right kidney on 8/26/08. I had surgery 9/15/08 and had many of these removed

Ultrasound with Kidney diagram overlay

The white areas are clusters of kidney stones. When I lined up the drawing of a kidney, the pockets align with the renal pyramids.

The renal pyramids contain nephrons. The nephrons are connected to the collecting tubules which deliver the urine to the renal pelvis, which empties through the ureter to the bladder.

In MSK the the collecting tubules, which are in the renal pyramids, are enlarged and urine can pool and stagnate in them, which can cause kidney stones to form.

Kidney stones typically form in the renal pelvis, which is an open area so they can be broken up and removed without damaging kidney tissue.

In MSK the stones are embedded in the collecting tubules. Breaking them up would cause the tubules to be cut up and damaged, causing loss of kidney function and possible kidney failure.

Dr. Wolf, at The University of Michigan, has developed a procedure to remove the stones from the collecting tubules without damaging the kidneys. It is called URETEROSCOPIC LASER PAPILLOTOMY.

Right Kidney Procedure 9/15/08

I had many stones removed from my right kidney on 9/15/08. I still had a lot of left kidney pain and needed narcotic pain relief almost every day. The stent was in for 4 weeks, but I did not feel it for the last 2 weeks. It was removed during the left kidney procedure so I did not feel it this time.

Left Kidney Procedure 10/13/08

I finally had my second procedure done. It ended up being scheduled on my son's 8th birthday. Dr. said he took out about two-thirds of the stones. The new stent is more painful when I am on my feet for more than a few minutes. Can't wait 11/13 I get it out. I do have a big decrease in kidney pain!

Why would I be thankful I caught the Flu and Bronchitis?

Kidney Stone Song - Country Song!

Very timely.

Loss Of Kidney Function

Antibiotics help with pain control

A few days after having the last stent removed, I had a blood test. This test showed a dramatic drop in my kidney function. From eGFR went from 69 in June 08 to 53 in Nov. 08.

I was quite scared.

Then in December the entire family caught the Flu. Greg and I developed bronchitis and were prescribed Bactrim. Although I was sick, my kidneys were not painful for the first time in one and a half years. After the Bactrim ran out, my kidneys started aching again. My Urologist agreed to give me 3 months of Bactrim. My kidneys are feeling much better and I am not even passing as many stones.

We think I had a kidney infection that did not culture in the lab.

I am so thankful that I caught the flu. I feel 10 years younger and am active again!

In January my eGFR was improved to 59!

Update July 2009 :Kidney function eGFR is down to 57.

Update August 27, 2009:Kidney function is down to 47. I have been in much less pain and I was surprised at these results.

Update December 26, 2009:

I have been on Bactrim for a year now and I am still doing well and functioning on an almost daily basis without pain medicine.

KIDNEY FUNCTION

Kidney function is measured by estimating your Glomerular Filtration Rate.(how quickly the kidneys clean out toxins)The GFR may be calculated from the amount of waste products in the 24-hour urine or by using special markers administered intravenously. An estimation of the GFR (eGFR) can be calculated from the patient's routine blood tests of the Serum creatinine, age, gender and race. I have a link to a calculator below:

What is your kidney function?

See results

WAITING...

A lot of time with a kidney stone is spent waiting... waiting for a stone to pass or waiting to have a stone removed via lithotripsy or waiting to have a stent removed.

I have been waiting for a stone to pass since Thursday. Now I am waiting for lithotripsy to be scheduled. In pain-waiting...

Some are smooth and brown, others are crystals growing over the smooth brown stones.

Some are smooth and brown, others are crystals growing over the smooth brown stones.
Some are smooth and brown, others are crystals growing over the smooth brown stones.

Vitamin D

Are you deficient in Vitamin D?

See results

Medulary Sponge Kidney Links

Just don't believe it is asymptomatic, even if you read it online or a Dr. tells you! If you are experiencing pain it is not asymptomatic in your case.

Social Life

I had kidney stone pain last night and needed to take meds to get through the pain. Now today, I am home alone while my family goes out and has fun. I wish I felt well enough to go with them, but I would not last the entire time and we would end up coming home early. I miss out on a lot with my kids and husband because of these kidney stones. Hopefully tomorrow I will be well enough to go to church with the family. I hate missing out on family time because I am stuck in bed with kidney pain.

My Family are all Squidoo Lensmasters

Check out their Lenses.

Please note! I am not a medical professional and no doctor monitors this lens. I try to help from my experience as a patient. I enjoy helping, so keep the questions coming.

What do you think?

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    • profile image

      Dr.David William 2 years ago

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      today and we shall offer you good amount for your Kidney.

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    • profile image

      2 years ago

      Hi. So glad I came upon this site. I suffer from stones. They develop at a rapid pace. I will be cleaned out & 30 more will develop in 3 months. I had one Parathyroid removed due to calcium. Then had about 15 removal of stones. The scar tissue on my left side was so bad it closed my Urter. I was stented & it helped a little. But now I'm in pain 24/7 for the past 8 months or so. I'm only 34 & have been dealing with this for 14 years. I have a great Nephrologist, Urologist & Family Doc who all work together. Finally found a great crew (that's what I call them) Now Dr. Wolf (U of M) wants to do a procedure on me called Endopapillotomy, to clean out the cryatals in the "nipples" in my kidney. Wasn't sure if anyone has had this & what they thought.....also, recovery. Doctor said it would be painful. Just like to prepare myself. Thanks so much. Any info ia great info to me:) Thanks

    • ngio64 profile image
      Author

      ngio64 3 years ago

      @bcruthis: Has he seen a urologist? Has a kidneystone been confirmed by x-ray or CATscan. If he is still in terrible pain take him to the emergency room. Vomiting can be from the pain of the stone or from many other reasons not related to a kidney stone.

      kidney stones can pass quickly or take weeks or months. It is important to get checked to make sure it is small enough to pass on its own and it is not blocking urine flow from the kidney. A blocked kidney is an emergency.

      Surgery might be required to unblock the kidney and remove the stone.

      See a specialist or the ER if he is not better today. I AM NOT A DOCTOR. I am just giving friendly advice of another patient not professional medical advice.

    • profile image

      bcruthis 3 years ago

      wwhat happends if you dont pass the kidney stones

    • profile image

      bcruthis 3 years ago

      how can i get a answer asap

    • profile image

      bcruthis 3 years ago

      please help ,wew ent to r family doc knowi ng whatw asg oing on.h e said there was blood in hisurine.the doc gave him pain meds and something to stop makingh im throw up.well he never did pass it no more pain .now just flu like systems.normal? he wont eat. but why feeling so bad.?i feel so helpless

    • profile image

      bcruthis 3 years ago

      we went tor f amly docy esterday and yes ge gave scot some pain meds,well thep aini s gon but nowh eh as he ish avin flu likes tstms.i s this normal and is that kidney stinec omib nach. what cani d ot o help

    • profile image

      DrElizabethAnn 4 years ago

      Great Lens! Its so important to keep a positive circle of friends to help with the possible depression that can come from Kidney Stones. I know a few instances of sufferers relying on their close circle of friends to pull them through what would have otherwise been nearly unbearable.

      Good info here. thanks!

    • profile image

      Notafraid 4 years ago

      I think I have one. Had a cat scan and the doc is going to give me the results tomorrow. I kind of hope it's a kidney stone, and not bladder cancer.

    • profile image

      anonymous 5 years ago

      ICE PACK!!!

      Lay on one and if it relieves the pain that's priceless.

      If it doesn't then you are out nothing, ice packs are always handy to have around.

      (Not a doctor here, just someone who would like to pass on something that worked for them).

    • profile image

      anonymous 5 years ago

      @anonymous: Get an ice pack and at least try it.

    • profile image

      anonymous 5 years ago

      I RELIEVED THE PAIN IN A SUPER EASY WAY, BUT BOY AM I TICKED!

      I am going in for lithopresy (sp?) in a few hours and I've had it before, so I've been there. And, laying there in pain last night (the meds did little good) I made a discovery that is so simple I can't believe I haven't read it from anywhere, heard it from my doctor, heard it from the ER, heard it from others who have kidney stones, or anywhere. After checking on the internet I see it that has been said, but not much. Unfortunately I've never seen it prior to this.

      But I believe this advice should go to the top of the list.

      If you are suffering kidney stone pain, LAY ON AN ICEPACK!!! (One with a towel over it)

      Last night, pouring down sweat, trying to figure out anything I could do to even slightly ease the pain, this occurred to me out of thin air. It won't work, I thought, if something so easy to do would work then all kinds of people would be making a big deal out of it. But of course when the thought occurs and you have one handy you try it, it might at least ease the sweat.

      So I laid down on it, and guess what, the pain reduced to nothingness and I fell into a deep restful sleep. Yes I was wakened hours later when the ice pack lost it's coolness and the pain began returning. I then laid on a new one and away the pain went again!

      Like I said, I'm ticked off. Because I didn't know this years ago and who knows how much pain I might have avoided if only I'd known. (I think I could have avoided a trip to the emergency too).

      Standard warning-I am not a doctor and I can't tell you for sure that this will work for you because I don't know for sure. I pray that it will, because I know that the pain I relieved last night, the horrible uncomfortable sweaty restlessness drifting off to a sweet and peaceful restful sleep was absolutely priceless.

      ICE PACK. Cheap. No medicine involved. No trip to your doctor or worse, ER.

      If it works its totally wonderful. If it doesn't, you've lost nothing because ice packs are great to have for emergencies anyway.

      ICE PACK. Get one and if it works, well, pay it forward!

      (Just remember though, if you have a kidney stone and an ice pack relieves the pain, that doesn't mean you've passed the stone and are out of the woods).

    • profile image

      anonymous 5 years ago

      @anonymous: I, too, refuse many offers of more pain medications as afraid of looking like a drug seeker, so instead I have a great deal more suffering! Some doctors and ER's are so not friendly or helpful! You have to keep a strong front and when feeling better continue to seek treatment or doctors who understand and can help. This is easier, of course, if you live near a larger city or university!

    • profile image

      anonymous 5 years ago

      @anonymous: Some more jagged than others, or become lodged...our ureters also dev. scar tissue from all the stones, and that makes them narrower. I am now 57 and diagnosed at 24, this past year has been my worst year ever, passing 22 stones in Jan., and many more recently. Now onto another specialist as ruining my life! The heating pad is my best friend...:)

    • profile image

      anonymous 5 years ago

      @anonymous: Yes!!! It is a symptom I now recognize...I am usually sweet and patient, right before the stone I become a crazy person, LOL. The fatigue is terrible, I am in the middle of working and have to lay down so fatigued...in the middle of passing I become very emotional, crying and having a mini breakdown. I celebrate as soon as the stone passes! (I have passed over 70 that I have caught.)

    • profile image

      anonymous 5 years ago

      What are the two types of infections? My kidneys are killing me(I also have msk and nephrocalcinosis) and the urine dip came back clean. They took my blood to check my kidney function and to see if I had another kind of infection. Hurts so bad and I am just sitting and waiting.

    • profile image

      anonymous 5 years ago

      @anonymous: sounds like you need to sit down with your urologist and have all these questions answered, stents can remain in for many months depending on the type of stent. but if you are having pain that bad, you should let the urologist know. 10mm stone is not going to pass on its own, even with a stent. you need to have it broken up to pass (lithotripsy) or have it surgically removed. if broken up, the smaller pieces should pass, but you should have a scan prior to the stent being removed.

      TALK TO YOUR UROLOGIST!

    • profile image

      anonymous 5 years ago

      Had a kidney stone stent put in on the 31st August for a 10mm kidney stone that is stuck in my urinary tract and had caused an infection around it. Was told by the consultant it will only be in for 4 weeks, then they will shatter it whilst it is in my bladder and still waiting... have no appointment to have the stent taken out.. This has been the most uncomfortable 6 weeks of my life. I'm needing the toilet every 15 mins have constant pain underneath and still don't know if the kidney stone has moved to my bladder.

      The worst thing of all is i am having to phone the hospital to arrange for it to be taken out but have been told i do not need a scan to see if it has passed to my bladder and still have got no date to have the stent removed. I am scared to go out of the house as the urge to pee can happen at any time and when i need to go i need to go..How long is a kidney stent allowed to stay in for and has anyone else locked themselves from the outside world or is it just all in my head??

    • profile image

      anonymous 5 years ago

      Have you ever had a stone hurt you IN your kidney? I have been told that my kidney cannot in fact hurt when a stone is in there. It will only hurt once it enters the ureter. Not in my experience.

    • profile image

      anonymous 5 years ago

      Lemon juice and apple cider vinegar every hour for several hours helped me a great deal. I was scheduled for removal surgery in three days, for a .6 stone, tried the above homeo remedy; stone was gone as per pre-surgery CAT scan at hospital; surgery was canx by visibly disbelieving and somewhat astonished Urologist Resident MD!

      Thanks, and blessings to fellow sufferers,

      Joseph

    • profile image

      anonymous 5 years ago

      Had kidney pain at 9-10 level. Drove as best I could to Hospital. Pulled car over several times to vomit; got to VA and was put in waiting room for over 10 hours. Pleaded with staff for a short eval and pain meds.

      Had three different nurses come to my gurney, while in a hospital gown, closed the curtains, lift the elastic in my briefs, stare at my penis area, walk out. No words, no help.

      Went back to the window at nurse station 3X in the ten hours to ask for help. Finally a chubby, short male nurse came to my gurney and told me to "stop bothering his staff "

      Two more hours later an ER nurse with annnoyed attitude brought me some

      meds.

      I have a great RNP normally; but the ER staff was truly a pathetic bunch.

      Makes a person want to shop for real pain meds "elsewhere", as the pathetic MD's in hospitals have been traumatized by lawyers who sue about real meds.

      I don't do any street drugs; but maybe next time.... a doobie?

      Joseph

    • profile image

      anonymous 5 years ago

      Had a severe pain in L kidney; stopped my car several

    • profile image

      anonymous 5 years ago

      Very useful information. Went through a similar pain back in May 12. Now I'm trying all I can to avoid getting this friggin stone in my body including natural remedies but drinking lots of water (I drink 1.5 litres as soon as I wake up) is helping too.

      Cheers,

      Danham

      www.kidneystonesexperience.org

    • profile image

      anonymous 5 years ago

      @anonymous: I'm so glad you wrote this. My doctor also insists that if a stone were in my ureter I would have blood in my urine. I know the pain I was having. Sever pain all through my hips and right up my sign. The PA also told me it was constipation and I knew it wasn't.

      I think the big problem with it all is they don't want to give out pain medication. I can't help the kind of pain I'm in and want them out as soon as possible. They just keep telling me to drink more water.

      the second stone I passed, a week before I went to the ER because my urine was dark red--blood. They did a ct scan and said that it had just passed and I knew that was crap because I could feel it! A week later that god awful thing popped out. It was like a bear trap that was open--lots of claws and spikes.

      I'm glad for this website.

      Oh and the last one I passed I went back to the ER and insisted on an XRay. Wehn I went to see my GP doc, he said it wasn't much and that there was not much blood in my urine so he wouldn't prescribe me pain medication. Tylenol and Aleve were not cutting it. It really makes me angry. Esp. since a week after that, I popped out another stone that was pure white and soft.

    • profile image

      anonymous 5 years ago

      I want to know if anyone else gets moody and grumpy and really tired before the stone starts to move?

    • profile image

      anonymous 5 years ago

      Great site. I have had kidney stones(calcium) for about 8yrs now. Passed several and several operations( inc. 4 operations on one stone alone). Tried to pass 7mm stone thru 3mm ureter. They tried to remove it from the front, then from the back(and installed nefrostomy bag for 4 months) and finally had to blast it with ultra-sonics twice. The original ER visit, they pumped me full of morphine and dilauded to no avail...then they tried Toradol---WHAT A LIFESAVER!! It is non-narcotic, the pain was gone within 5 min. and I was asking for something to eat after having vomiting for the previous 3 hrs.

    • profile image

      anonymous 5 years ago

      Great site! Thank you for the helpful info!

    • profile image

      anonymous 5 years ago

      I'm back. I ended up having calcium phosphate stones. They ended up testing my thyroid and found multiple tumors that required biopsies. All benign. Thank goodness. Not the cause of the kidney stones. Well, that took about a month and a half to figure out. Still don't know what caused them. Possibly my last pregnancy. Lil guy is 8 months old already. I am scheduled for litho on The right side on Friday, but I feel like I am passing a stone on my left. I have had that dull cramping pain that I had 2 weeks before it got really bad last time. Can I still have the litho done on the right? Doesn't that increase the risk for blockage of both kidneys? I called the scheduler at the doc office today, but she said it was fine. No worries. I am worried now.

    • profile image

      anonymous 5 years ago

      I was diagnosed with MSK at about age 32, after I passed my first stone. It was then that I learned I have hundreds of stones in both kidneys, some as large as 9mm. I was doing well for several years, only passing 2-3 per year, but I've had a huge increase in problems the last six months (I'm almost 45 now). Passing stones or at least feeling the extreme pain of them moving around (since I don't always catch them). Just this week I had a bad cold over the weekend which left me feeling wiped out, then I felt the pain of a kidney stone to the point of needing rx pain meds (I try to avoid them if possible), then developed blood in my urine and a severe migraine that sent me to the e/r in the middle of the night. The migraine actually woke me up, which I hear is unusual. I still have residual headache pain and also low back/side pain, more of an ache than anything else, but also still have blood in my urine. I'm worried about kidney failure and have a call in to my urologist

    • profile image

      anonymous 5 years ago

      I've passed several kidney stones since i was 21 years old. Now I'm 48 and had the most severe pain ever just with a stone that's 5 mm. It seem not to want to come out. i was hospitalized for 4 days and sent home after no pain was felt. But the pain shot up to the ceiling again. I'm getting it removed through lithotripsy. Why so much pain with a small stone while other bigger ones hurt less?

    • profile image

      anonymous 5 years ago

      @anonymous: It will get better each day. For me it took about a week after stent removal to feel back to normal.

    • profile image

      anonymous 5 years ago

      @anonymous: It will get better each day. For me it took about a week after stent removal to feel back to normal.

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      anonymous 5 years ago

      I can't thank you enough for all of this information. I feel like I'm reading straight from my personal journal! I'm 32 and have been struggling with kidney stones since I was 15. I'm actually home from work this week passing a stone. It makes me feel less alone to read that others are dealing with the same issues and actually understand how I may be feeling! And I do agree, I hate stents. I understand the need but they are so unpleasant

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      anonymous 5 years ago

      had stent taken out today pain in kidney still sore an peein sore too an lots ov blood how long does this last any ideas ????

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      anonymous 5 years ago

      @ngio64: just had stent removed god it kills to pee an god lot ov pain in me kidney still how long will this last ????

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      anonymous 5 years ago

      hi, i had kidney opperation on thursday just gone, when i came round frm opperarion docs said couldnt get stones as they were embedded in kidney flesh, still in pain, but what happens nxt???

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      anonymous 5 years ago

      @ngio64: this tuesday it wil be 2 weeks but first day was so painful when peein lol !!

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: Stents can hurt terribly and constantly or only if you move in a certain way. I know it hurts, but be thankful it is now and again. How long will you have it in? I have had one for 2 weeks yesterday.

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      ngio64 5 years ago

      @anonymous: Stents can hurt terribly and constantly or only if you move in a certain way. I know it hurts, but be thankful it is now and again. How long will you have it in? I have had one for 2 weeks yesterday.

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      ngio64 5 years ago

      @anonymous: Stents can hurt terribly and constantly or only if you move in a certain way. I know it hurts, but be thankful it is now and again. How long will you have it in? I have had one for 2 weeks yesterday.

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      anonymous 5 years ago

      got stent fitted but now and again get pain right up my ass ??

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      anonymous 5 years ago

      I've passed 3-5 each year for the past 15 years. Some have been too large, requiring litho, laser and/or a stent. Lots of "experience". Usually they pass on their own since my last stent, so I wait a few days and just take toroidal,Voltarin, and some Percocet if it gets unbearable.

      It's pain that you never forget. Unfortunatly, some doctors are too arrogant to accept "self diagnosis" like "I'm having a bad kidney stone attack."

      This bout, has lasted over almost 2 weeks and the pain is getting out of control. I went to the ER with the unmistakable pain and the Dr told me "you don't have any stones or there would be blood in your urine. You're just constipated, take a laxative and you'll be fine". Like a good patient, I did what I was told, even though I KNEW what the pain was. (by the time you are my age, you've experienced constipation once or twice... The pain isn't even comparable :-) )

      I ended up in the ER two days later, completely "purged" from the powerful laxative I used..with pain still getting progressively worse. Got another new doctor, this time also ignoring the previous history who diagnosed the pain as a "pulled muscle, get some rest"...And told me not to ever return to an ER for back pain as the ER is for actual "Emergencies".

      Finally, I decided that I couldn't take it anymore, and went in 5 days later, but to a different hospital... Yay!!! A doctor finally believes me that I recognize the pain... and even said that blood isn't always in the urine for all kidney stones. He has seen many without testing positive for blood.

      I guess I should have taken him up on the offer for stronger pain killers, but didn't as I wanted to be clear that I wasn't just drug seeking.

      Oh well, at least now, he did a CT and found a least 5 "large stones" with one obstructing the uriter..l and finally I have what I wanted in the first place, a referral back to the urologist to hopefully get something done about it. After 2 weeks of this, I'm starting to feel sick in addition to the pain.

      So for future reference for everyone, if you have severe back, side and/or groin pain, get it checked. If they just do a urine test and quit, telling you that since they don't see blood, to go home, MAKE them at least do an X-ray, ultrasound or CT scan to be sure.

      I wholeheartedly agree with the author of this article. As an "experienced" stone generator, the hints given are excellent tips to help relieve the pain and get through it.

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      anonymous 5 years ago

      @anonymous: The stent remained uncomfortable for me during the time it was in. What helped me is to take a heating pad and keep it on the area that hurts. Also, I took the pain medication religiously and made myself urinate everytime I took the pain medication to keep things going, even though it hurt. For me, I found that sitting up normally was pretty uncomfortable- this may be different for men than women due to anatomy but it felt like I was sitting on a stick. The heating pad did help and the pain medication did too. i did not work while I had the stent in- I had too much urgency and frequency and just felt more comfortable being at home. Hang in there- take it one day at a time.

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      anonymous 5 years ago

      @anonymous: Brand new member here, 7mm, 3mm and 2mm. Two 4-5 hour intense episodes before going in for laser treatment yesterday. Incredibly the stent hurts more than the stones did, very painful to urinate as it radiates right up into my kidneys, feels like my insides are being pulled out. I don't want to miss too much work but if this condition persists until the stent comes out, I have another week to go. Been 24 hours, does it get better with time?

      For those of you who have a chronic condition, my sympathies and admiration, I can't imagine going through this another time.

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      anonymous 5 years ago

      This is silly but, what can I look for if I have to worry about going through them again? When I went into the Dr. last time they said I had 2 small kidney stones in each of my kidneys after passing a 5mm stone that got stuck at the exit of the ureter and the opening of the bladder that took me 3+ weeks to pass and I want to know other then the extreme pain in my back what other common signs are that your going to pass one?

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      anonymous 5 years ago

      @anonymous: I also ended up at the ER on Easter sunday with my first kidney stone! That day I had blood in my urine everytime I went, with no pain other than a slight discomfort in my lower abdomen that I didn't think anything of. I was scared to see the blood in my urine so I sort of just didn't look when I went, and went about my day. Until about 11pm when I went to bathroom, and inexplicably passed out. I woke up a few moments later confused and scared, and got taken to the hospital. They took blood, EKG, all the basics and basically sent me home and told me to have a follow up with my doctor in a week, or sooner if the blood continued and the pain worsened. I went about the week, my stomach got worse and worse and the blood in the urine came and went. Until 3 days ago, the following sunday, when I woke up with extreme pain in my stomach. I tried to just tough it out and it worked for an hour or two until I suddenly felt a quickly increasing intense pain in my kidney. I went to the bathroom and had a good amount of dark urine, so I quickly drove myself to the ER. Well, long story short, I have a kidney stone about 6mm. My first one. I kind of suspected it as my dad gets them frequently, as did his father. I spent two nights in the hospital with Cipro and fluid IV. The first night I woke up with such intense pain that the nurse had to give me a morphine injection.

      Tommorow I go in for my lithotripsy, I got lucky in that the machine for it was coming to my towns hospital and there was opening for me to get it done right away. I'm a little nervous but definitely excited to get this thing out, fingers crossed. I'll be drinking a lot more water now and a whole lot less soda, and no iced tea AT ALL. I had been drinking iced almost ritually the month before and up until this happened, and I think that may have been a small factor.

      I really would wish this pain on nobody, and I feel for anyone that has to go through this, especially the author of this page who gets more than I can even fathom. I don't know how I could handle such a thing. Good luck to everyone and hopefully we can all have a stoneless future!

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      anonymous 5 years ago

      @anonymous: I also ended up at the ER on Easter sunday with my first kidney stone! That day I had blood in my urine everytime I went, with no pain other than a slight discomfort in my lower abdomen that I didn't think anything of. I was scared to see the blood in my urine so I sort of just didn't look when I went, and went about my day. Until about 11pm when I went to bathroom, and inexplicably passed out. I woke up a few moments later confused and scared, and got taken to the hospital. They took blood, EKG, all the basics and basically sent me home and told me to have a follow up with my doctor in a week, or sooner if the blood continued and the pain worsened. I went about the week, my stomach got worse and worse and the blood in the urine came and went. Until 3 days ago, the following sunday, when I woke up with extreme pain in my stomach. I tried to just tough it out and it worked for an hour or two until I suddenly felt a quickly increasing intense pain in my kidney. I went to the bathroom and had a good amount of dark urine, so I quickly drove myself to the ER. Well, long story short, I have a kidney stone about 6mm. My first one. I kind of suspected it as my dad gets them frequently, as did his father. I spent two nights in the hospital with Cipro and fluid IV. The first night I woke up with such intense pain that the nurse had to give me a morphine injection.

      Tommorow I go in for my lithotripsy, I got lucky in that the machine for it was coming to my towns hospital and there was opening for me to get it done right away. I'm a little nervous but definitely excited to get this thing out, fingers crossed. I'll be drinking a lot more water now and a whole lot less soda, and no iced tea AT ALL. I had been drinking iced almost ritually the month before and up until this happened, and I think that may have been a small factor.

      I really would wish this pain on nobody, and I feel for anyone that has to go through this, especially the author of this page who gets more than I can even fathom. I don't know how I could handle such a thing. Good luck to everyone and hopefully we can all have a stoneless future!

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      anonymous 5 years ago

      @anonymous: I ended up going to the doctor today who did a repeat CBC and urine culture. He said that when I went to the ER last Tuesday, my bloodwork did show positive for an infection (which I'm guessing came from the stent) but since I've completed a round of antibiotics, the nitrates are now negative. He said he didn't think it was unusual to be still be sore (and that does seem better each day). I'm going to take one more day off work and return Weds and think I'll be good to go. I think the infection probably set me back a little.

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      anonymous 5 years ago

      @anonymous: I ended up going to the doctor today who did a repeat CBC and urine culture. He said that when I went to the ER last Tuesday, my bloodwork did show positive for an infection (which I'm guessing came from the stent) but since I've completed a round of antibiotics, the nitrates are now negative. He said he didn't think it was unusual to be still be sore (and that does seem better each day). I'm going to take one more day off work and return Weds and think I'll be good to go. I think the infection probably set me back a little.

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      anonymous 5 years ago

      Susan-

      I would call the doc if I were you. I don't think you should still be in a lot of pain. I felt pretty much back to normal about 4 days after removing the stent. Still had a little funny feeling in my urethra for about 7-8 days after stent removal. LOL my doc told me to resume normal activity the day after surgery. I couldn't even sit down in a chair until the stent came out. Do they have a clue? Maybe it's not as bad for a man?

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      anonymous 5 years ago

      Susan-

      I would call the doc if I were you. I don't think you should still be in a lot of pain. I felt pretty much back to normal about 4 days after removing the stent. Still had a little funny feeling in my urethra for about 7-8 days after stent removal. LOL my doc told me to resume normal activity the day after surgery. I couldn't even sit down in a chair until the stent came out. Do they have a clue? Maybe it's not as bad for a man?

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      anonymous 5 years ago

      I had a ureteroscopy on Good Friday (a week ago Friday) and removal of a 7mm stone from the lower ureter and a 2 mm stone from my kidney. My stent came out last Tuesday, followed by the worst pain I had ever experienced in the form of ureter spasms. I felt for sure they had ripped my ureter during the stent removal. So, it's now Sunday and I'm 5 days post stent removal. I was planning to return to work tomorrow and I am just not sure i can do it..I'm still having urgency and frequency, feel like I've been kicked in the back and stomach. I'm wondering what's customary to take off from work? My urologist said I could go back to work on Monday follwoing my surgery on Friday (um, no thank you Marquis de Sade). My job isn't extremelly physically demanding, but does involve traveling to peoples houses and a fair amount of stress (social worker). Any thoughts?

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      anonymous 5 years ago

      @anonymous: So sorry you have joined the club. My understanding is that you have a very good chance of passing a 5 mm stone. Over 6 mm the chances drop. If it is at all possible to pass, I would encourage you to continue trying to pass it before moving to a procedure, especially if you can bear the pain. I just had a ureteroscopy on Friday and will do anything to avoid having another one. Did you doctor prescribed Flomax? That sometimes will dialate your ureters and help move it down. I've also heard lemon water. Good luck and hang in there.

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      anonymous 5 years ago

      FANTASTIC site! So full of valuable info. Thanks to everyone. I am a first time "contestant" with a stone. ER on Easter Sunday. Pain in my abdomen/groin area beyond words! 5 mm stone that hasn't passed yet. I am fortunate that my pain since the ER has been very manageable. BUT, going to the loo every 20 mins has me up all night! Very disturbed sleep/no sleep at all has been hard. Urology appointment in 2 weeks. In the meantime I'm "panning for gold" as directed! Sounds like the norm is to have frequent pain until the stone passes? Guess I'm freaking out a little now thinking that that brutal pain could return at any time. Do 5 mm stones normally pass on their own? My ER was excellent. Gave me IV with Toradol and fluids right away, before CT Scan. Toradol killed the pain almost immediately.

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      anonymous 5 years ago

      And thanks for all the great information! I admire your sunny disposition, especially when dealing with what you have on your plate. :-)

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      anonymous 5 years ago

      I have never had stone before that I know of. Last month I had back pain and a few days later, severe hematuria, My GP sent me for a CT scan, which revealed a 3x6mm stone in the UPJ region. I was then referred to a local urologist who recommended lithotripsy. However, upon finding out I didn't have health insurance, he gave me a script for Flomax and sent me home with a strainer. When I asked if passing this stone was really possible, he said it had a 60% chance. I asked what would happen if it got stuck, and he said, "I guess you'll be going to the ER." Great. $$$$$. So I called our hospital and asked for a self-pay price for litho...and was told $30,000. But since I was self-pay, they'd be gracious enough to accept $8,000. Ummm...I don't think so.

      So I started calling around and found a hospital 60 miles from here who offered me the procedure for $1,000...not including the anesthesia and urologist's fee. They told me I'd need to see a urologist there and schedule the litho. So I go see this new doctor, who is very informative and friendly, even with the knowledge that we DON'T have insurance. However, he tells me that on plain x-ray they cannot even see the stone now and therefore, he'd recommend the urethroscopy! I asked his opinion on passing it, and he said 40%. Wow. What a difference in opinion. I had my mind set to have the urethroscopy, but after reading this forum, I'm changing my mind.

      I guess I'll have to fork over another $700 for another CT scan to see where the heck this stone is...or just wait. I'm not in too much pain at the moment at all. Maybe I can find a job in the meantime with good insurance. LOL

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      anonymous 5 years ago

      just had app with consultant today, in agony with stones since nov,, getting lipotripsy done but have to go for another scan in a week or two to see exactly where it is and whats left of it, where the stone is i was told a few weeks ago its in the pocket of kidney and now the lipotripsy mightn,d work on it cause where it is, so pissed off as im like this since nov, and work hasnt cleared me to go back

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      anonymous 5 years ago

      My ureteroscopy is scheduled for Friday. Now that it's been a month without passing, I'm wishing I hadn't waited because I've had so much time to stew about having the procedure that I have it built up to be something unbearable. I've had 2 kids, passed 2 kidney stones and had shingles...I can do this, right?

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      anonymous 5 years ago

      My ureteroscopy is scheduled for Friday. Now that it's been a month without passing, I'm wishing I hadn't waited because I've had so much time to stew about having the procedure that I have it built up to be something unbearable. I've had 2 kids, passed 2 kidney stones and had shingles...I can do this, right?

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      slotowngal 5 years ago

      Wonderful info! I have a friend who has been suffering from kidney stones lately and I learned a lot here. angel blessed.

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      slotowngal 5 years ago

      Wonderful info! I have a friend who has been suffering from kidney stones lately and I learned a lot here. angel blessed.

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      anonymous 5 years ago

      @anonymous: Susa-

      Best of luck to you. This is day5. I feel better today but overdid the walking I think. My back is hurting pretty bad and my stomach is cramping again- similar to menstrual cramps. Make sure you get a stent with a string attached. I was able to remove it myself this morning. It wasn't that bad to remove - similar to removing a very long tampon but with a bit of pain. I have heard horror stories about the stents that the doctor has to remove with the cystoscope. I definitely feel better without the stent. I can finally sit.I only caught 2 pieces of stone worth mentioning. The others are like grains of sand. I hope your procedure goes well. Prepare yourself for immense pain and burning. Ask for some good drugs. My stuff did nothing and I consider myself to have a high tolerance for pain.

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      anonymous 5 years ago

      My husband had a kidney stone four years ago. He had severe pain, and I rushed him to the ER. We never dreamed it was a kidney stone. He had to have a lithroscopy to have it removed, plus a stent. The whole thing was a horribly painful ordeal for him. My heart goes out to you, having to suffer like that so much of the time! Hope the antibiotics continue to help.

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      anonymous 5 years ago

      My husband had a kidney stone four years ago. He had severe pain, and I rushed him to the ER. We never dreamed it was a kidney stone. He had to have a lithroscopy to have it removed, plus a stent. The whole thing was a horribly painful ordeal for him. My heart goes out to you, having to suffer like that so much of the time! Hope the antibiotics continue to help.

    • Bill Armstrong profile image

      Bill Armstrong 5 years ago from Valencia, California

      Interesting, I never actually knew what the symptoms were for a kidney stone even although many friends have had, guess I have been lucky so far, appreciate you sharing this

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      Marc 5 years ago from Edinburgh

      Wow - all I can think is OUCH! Amazingly informative and interesting lens x

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      anonymous 5 years ago

      @anonymous: Thanks for the support. I have stopped the pyridium. I am trying to only take the hydrocodeine if I really can't stand it and only taking one at a time. I tried to breastfeed about 10:00 last night after pumping and dumping twice. He threw everything up so I gave bottles till this morning. He is keeping it down now since I stopped the pyridium. The things we moms do for our children amaze me. I never thought I would put up with this much pain just so my little guy could have breast milk. I still have 2 bags of pumped breast milk so I may do the same tonight if the pain gets too much to bear. Yes he is still small enough to hang out in bed. That's where we have been all day. It's my older kids that are driving me batty. They don't understand that momma is really sick. I've never been "out of service" to them. Again, thanks for the support. This is my first experience with stones, and unfortunately not my last. I can't go back to work till I am stone free. So I will be having ESW on both kidneys at different times of course. They also found gallstones as well so I don't know what they will want to do about those. Moms just gotta keep going. Not allowed to be down. :)

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      anonymous 5 years ago

      @anonymous: Thanks for the support. I have stopped the pyridium. I am trying to only take the hydrocodeine if I really can't stand it and only taking one at a time. I tried to breastfeed about 10:00 last night after pumping and dumping twice. He threw everything up so I gave bottles till this morning. He is keeping it down now since I stopped the pyridium. The things we moms do for our children amaze me. I never thought I would put up with this much pain just so my little guy could have breast milk. I still have 2 bags of pumped breast milk so I may do the same tonight if the pain gets too much to bear. Yes he is still small enough to hang out in bed. That's where we have been all day. It's my older kids that are driving me batty. They don't understand that momma is really sick. I've never been "out of service" to them. Again, thanks for the support. This is my first experience with stones, and unfortunately not my last. I can't go back to work till I am stone free. So I will be having ESW on both kidneys at different times of course. They also found gallstones as well so I don't know what they will want to do about those. Moms just gotta keep going. Not allowed to be down. :)

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      anonymous 5 years ago

      @anonymous: Unfortunately with stones we deal with way too much pain....I had the ureteroscopy done in Oct. and informed the MD no stent, which he didn't place. The day after surgery the pain was brutal (and bleeding) and I had a hard time caring for myself. The second day I passed a stone, the third felt better, the fourth day back in bed with sever pain and passed another stone....before getting better. Awful surgery but sometimes necessary, whenever I have a choice I always choose litho as a breeze compared to the ureteroscopy. I could have had more pain because I have two ureters on each side, so they had to explore both of them. Work on fluids, and pain relieving methods other than pills....good luck and you will pull through thiis and a new day coming! HUGS

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: You are probably feeling pain from the stent, If you keep changing positions while it is hurting, you might find one that is less painful. Stay off your feet as much as possible. overdoing it can make the stent worse. It should ease up pretty soon. The truth is, sometimes it can hurt until they remove the stent. Try keeping a heating pad wherever it hurts the most. Heat really can be a comfort. Look up online positions to nurse laying down. Is your son young enough to just hang out on the bed with you? Pyridium may stain your breastmilk, it does other bodily fluids. Don't be alarmed if you bleed a lot with the stent. No one told me this and I was freaked out;.

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      anonymous 5 years ago

      @anonymous: Thank you for this information. My urologist basically said "no" on the lithotripsy because of the location of the stone and indicated the stent was not optional. Saturday will be 3 weeks since diagnosis and I go back Monday for an xray to see if there is more movement. I had said I was "done" if it hadn't moved by Monday but as we get closer, I feel less sure about the procedure.

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      anonymous 5 years ago

      @anonymous: Oh no- I'm so sorry you are in this much pain! I am due to have the procedure next week if my stone has not passed and no one has really talked to me about post procedure pain. Was their some infection as well that is causing pain?

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      anonymous 5 years ago

      Ok you never said after the cystoscope and ureteroscopy and laser and stent that it would feel almost as bad as it did at the beginning onset. I am in immense pain again not excruciating but immense with cramping. I can literally feel the urine flow down my back from my kidney to the bladder and then sting like hell as it exits my body. I don't know how you deal with this regularly. I've only caught a tiny fragment so far. Please tell me it gets better. I can't tolerate the pain much longer. They put me on pyridium and hydro condone. I wouldn't wish this on my worst enemy. The good news is that the anesthesia and percusset leave the body in 6 hours and I can breastfeed tonight. Although, I don't know how I am going to sit up to do that. This sucks!

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      anonymous 5 years ago

      Ok you never said after the cystoscope and ureteroscopy and laser and stent that it would feel almost as bad as it did at the beginning onset. I am in immense pain again not excruciating but immense with cramping. I can literally feel the urine flow down my back from my kidney to the bladder and then sting like hell as it exits my body. I don't know how you deal with this regularly. I've only caught a tiny fragment so far. Please tell me it gets better. I can't tolerate the pain much longer. They put me on pyridium and hydro condone. I wouldn't wish this on my worst enemy. The good news is that the anesthesia and percusset leave the body in 6 hours and I can breastfeed tonight. Although, I don't know how I am going to sit up to do that. This sucks!

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      anonymous 5 years ago

      @anonymous: Hey I was in the same situation as you 4 months ago! My urologist waited it out but my stone had other ideas and after 3 months I ended up in a and e with unbearable renal colic do they decided to remove it the next day via uretoscopy and blast it.

      I was breast feeding, and although I had to supplement and went 2 days without food they gave me iv fluids and chose anaesthetics and pain relief that I could still bf with.

      My milk supply wasn't great while I was in hospital but I was able to feed my son straight after the operation and was able to Breastfeed until I stopped 3 months later.

      I'm in the uk but all this should still be available to you too xxx

      Don't stress over it but stand your ground, Breastfeeding is amazing and you will still be able to afterwards xxxx

    • profile image

      anonymous 5 years ago

      @anonymous: Hey I was in the same situation as you 4 months ago! My urologist waited it out but my stone had other ideas and after 3 months I ended up in a and e with unbearable renal colic do they decided to remove it the next day via uretoscopy and blast it.

      I was breast feeding, and although I had to supplement and went 2 days without food they gave me iv fluids and chose anaesthetics and pain relief that I could still bf with.

      My milk supply wasn't great while I was in hospital but I was able to feed my son straight after the operation and was able to Breastfeed until I stopped 3 months later.

      I'm in the uk but all this should still be available to you too xxx

      Don't stress over it but stand your ground, Breastfeeding is amazing and you will still be able to afterwards xxxx

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: That is a ton of stones for one month. So glad you are getting somewhere in your ability to control the way these stupid stones effect you. I am going to ask about flowmax when I see my uro Friday.

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: That is a ton of stones for one month. So glad you are getting somewhere in your ability to control the way these stupid stones effect you. I am going to ask about flowmax when I see my uro Friday.

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: That is a ton of stones for one month. So glad you are getting somewhere in your ability to control the way these stupid stones effect you. I am going to ask about flowmax when I see my uro Friday.

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      ngio64 5 years ago

      @anonymous: Can you ask them to use the same anesthesia they would use during a C-Section? I had my gallbladder out when my daughter was 2 weeks old. They gave me anesthesia and pain meds that were compatible with nursing. Congratulations on your son. You will feel so much better after the surgery! I loved being a nursing mom, enjoy every minute!

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: Can you ask them to use the same anesthesia they would use during a C-Section? I had my gallbladder out when my daughter was 2 weeks old. They gave me anesthesia and pain meds that were compatible with nursing. Congratulations on your son. You will feel so much better after the surgery! I loved being a nursing mom, enjoy every minute!

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: Can you ask them to use the same anesthesia they would use during a C-Section? I had my gallbladder out when my daughter was 2 weeks old. They gave me anesthesia and pain meds that were compatible with nursing. Congratulations on your son. You will feel so much better after the surgery! I loved being a nursing mom, enjoy every minute!

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      anonymous 5 years ago

      Thanks for the reply. I called the urologist today and asked more questions. They are doing a ureteroscopy with possible laser or basket retrieval. They did a KUB today with my pretesting for surgery. I am still scared. The urologist is convinced that this will not pass.

      It's hard to believe I can push out a 8 pound 9 ounce baby with my 4'11" frame but not a little stone. I have a 5 month old son that I am breastfeeding or trying to keep breastfeeding at this point since all of this started last week. I am weak, not getting enough calories and stressed. I only got 2 days to try to pump enough milk dor 48 hours after surgery. It didnt happen. He'll have to be supplemented with formula- adding to my stress. My husband is not supporting my decision for surgery and has told me to wait it out-adding to my stress.

      The urologist has said that pain and urine flow will fluctuate as the stone moves. I am just lucky to not have a lot of pain now I guess just some back tenderness. I do feel like another stone may be trying to pass on my right . The uretal stone is on my left . I can't risk both sides. I would rather just get this over with. I guess i will find out tomorrow. Thanks for this lens. It's nice to have people who've experienced this answer questions. Best of luck to you all!

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      anonymous 5 years ago

      Hey all stone sufferers,

      This last stone I had passed yesterday. At work. I did catch it and will be headed to the doctor to find out size and details.

      However, I wanted to share with you what worked this last time. We all know that WATER is the miracle for us. My parents have bought a KANGEN water filter, and have bringing me water for a few months now. This is an expensive system but an amazing product. It creates alkaline water. So, for the past week I have been drinking a half to whole gallon of this alkaline water and it worked. No really bad pain and flushed it out in less than a week. The other thing I added to my diet last week was Goutrin, which helps with uric acid and my stones have typically been uric acid.

      Here is a link about this water and goutrin.

      http://kangen.net/

      http://www.amazon.com/Goutrin-Uric-Neutralizer-Cap...

      I would advise that if you can go the holistic route then do it.

      GOOD LUCK and FEEL WELL!

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      anonymous 5 years ago

      Hi everyone. I recently posted my frustration at passing 24 stones in Jan., and frustrated with my urologists doing nothing and a not caring attitude (Other than "do you need more pain meds?) I do have MSK, diagnosed for over 30 years now, with 4 ureters, so I could have all four have stones come down at once! I saw a Nephrologist, who is the BEST! He is so much more knowledgeable and pointed out many things the urologists were doing wrong or had not taken action on. He ordered tests, and then put me on Pottasium citrate as well as a low sodium diet. He is encouraging and said less than 10 % of MSK patient's will go on dialysis. I also saw an accupuncturist and after one treatment (I am going weekly though) my left sided flank and side pain is gone, and this pain I have had interfer with my life for the last 6 months without a break. She encouraged me to also try a vegan diet for a few months, and I started that a week ago, as well. The difference in my urine color, the pain gone, as well as an overall feeling of better health and more energy has kept me going on this diet. It has truly changed my life from constant pain and stones, being in bed trying to recover and struggling with work and life in general, to overall healthy feeling and energized is a miracle. The diet I am following is tough: low sodium, low carb's, low in oxalates, no sugar and vegan...which is no foods from an animal source, including no fish, was a shock at first. The first few days are the hardest and then it gets easier as the cravings are going away. If anyone would like ideas or to talk about this change, let me know. I also take HCTZ, 50 mg a day, as well as Flomax as needed, for when a stone is passing. I do drink only water 4 - 5 liters, vicodin for extreme kidney stone pain. (I have been on Vicodin for the pain as needed for over 20 years and no addiction, hardly take it but a few a year as the heating pad, the flomax, and the increased fluids as soon as I know a stone moving down saves me.) The message: keep fighting, see a nephrologist, try a different lifestyle and diet change and perhaps you can "save" your life too!

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      anonymous 5 years ago

      @anonymous: Newkid: Sorry, this message was meant for you.. not Susan:

      "NEWKID, glad to hear you're not in pain (at the moment). I'm not an expert, but certainly experienced with my own stones - and just dealt with a 6mm stone. You mention a 6 mm "uretal" stone. If you mean ureteral (in the ureter), a 6mm stone usually has a tough time traveling down the ureter which is quite a small tube. It IS possible though, and this probably accounts for the pain you've had. Where it is NOW is the question. If you're still feeling pressure, it may well still be in the ureter somewhere, even though you're not experiencing colic pain (ureter spasms) at the moment. It could also be right where the ureter joins the bladder (the ureterovesical junction). Stones often get stuck at this location because the ureter narrows at that point.

      As for "surgery", I'm assuming they're talking about ureteroscopy, which isn't really surgery, per se, and involves entering the ureter with a tiny scope, and then either extracting it with a basket, or pulverizing it with a laser. I'd check with your urologist to see what he/she means by "surgery". (If, however, by surgery, they mean PNL (Percutaneous Nephrolithotomy), that's IS surgery, under general anaesthetic, and more significant, and it's a but I doubt that's what he means, given the stone you've described..

      There's also a procedure called ESWL (Shock Wave Lithotripsy) that breaks up the stone without the need to go into the ureter. It's much less invasive, but a facility that can do this may or may not be close to where you live ... and also some urologists don't want to use this with stones in the lower ureter.

      Back to your questions: Should you wait? It's a tough call. Again, a 6mm stone is a large one for the ureter. I'd be fully discussing the options with the urologist, and getting an up to date x-ray (KUB) that shows the current location of that stone. If it's still there, having a procedure to remove it would get it over with. (Of course if it HAS passed into the bladder, it's almost guaranteed to pass, without much discomfort.)

      In summary:

      Talk to your doc, and make sure you cover ALL the options available.

      Get another x-ray, if possible, that shows the stone's current location. (I'm sure the urologist would do this anyway, prior to any procedure.)

      Make sure you've got access to some good pain meds (In my opinion Tylenol 3's don't even touch kidney stone pain, and you need something stronger.)

      Regarding macrobid decreasing pain, again I'm not at all an expert, but pressure and pain can certainly be caused (or added to) by UTI (infection), so it is possible that the macrobid has helped decrease the pain/pressure. Labs, by the way, can usually do a urine culture to determine for certain, whether there is an infection.

      Finally, you are entitled to all the information from your doc about what options are available to you, given current lab info, x-rays, etc.

      With regard to the stones in the kidney itself, what do about these should again be discussed with your urologist. Part of the approach with these, I think, depends upon: size of the stones, location in the kidney, whether they're causing any current pain, etc. Personally, my tendency, provided they're less than 4mm, and not causing pain, would be to give them some time to pass

      Hope this gets resolved quickly for you!"

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      anonymous 5 years ago

      @anonymous: Susan, glad to hear you're not in pain (at the moment). I'm not an expert, but certainly experienced with my own stones - and just dealt with a 6mm stone. You mention a 6 mm "uretal" stone. If you mean ureteral (in the ureter), a 6mm stone usually has a tough time traveling down the ureter which is quite a small tube. It IS possible though, and this probably accounts for the pain you've had. Where it is NOW is the question. If you're still feeling pressure, it may well still be in the ureter somewhere, even though you're not experiencing colic pain (ureter spasms) at the moment. It could also be right where the ureter joins the bladder (the ureterovesical junction). Stones often get stuck at this location because the ureter narrows at that point.

      As for "surgery", I'm assuming they're talking about ureteroscopy, which isn't really surgery, per se, and involves entering the ureter with a tiny scope, and then either extracting it with a basket, or pulverizing it with a laser. I'd check with your urologist to see what he/she means by "surgery". (If, however, by surgery, they mean PNL (Percutaneous Nephrolithotomy), that's IS surgery, under general anaesthetic, and more significant, and it's a but I doubt that's what he means, given the stone you've described..

      There's also a procedure called ESWL (Shock Wave Lithotripsy) that breaks up the stone without the need to go into the ureter. It's much less invasive, but a facility that can do this may or may not be close to where you live ... and also some urologists don't want to use this with stones in the lower ureter.

      Back to your questions: Should you wait? It's a tough call. Again, a 6mm stone is a large one for the ureter. I'd be fully discussing the options with the urologist, and getting an up to date x-ray (KUB) that shows the current location of that stone. If it's still there, having a procedure to remove it would get it over with. (Of course if it HAS passed into the bladder, it's almost guaranteed to pass, without much discomfort.)

      In summary:

      Talk to your doc, and make sure you cover ALL the options available.

      Get another x-ray, if possible, that shows the stone's current location. (I'm sure the urologist would do this anyway, prior to any procedure.)

      Make sure you've got access to some good pain meds (In my opinion Tylenol 3's don't even touch kidney stone pain, and you need something stronger.)

      Regarding macrobid decreasing pain, again I'm not at all an expert, but pressure and pain can certainly be caused (or added to) by UTI (infection), so it is possible that the macrobid has helped decrease the pain/pressure. Labs, by the way, can usually do a urine culture to determine for certain, whether there is an infection.

      Finally, you are entitled to all the information from your doc about what options are available to you, given current lab info, x-rays, etc.

      Hope this gets resolved quickly for you!

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      anonymous 5 years ago

      I was just diagnosed last week with a uretal stone and multiple kidney stones on both sides. They want to do surgery tomorrow for a 6 mn uretal stone. My urination has improved and I am not in pain. Should I continue to do the surgery? I am so scared. I was told if the pain stops that it has moved into the bladder. However I have had the excruciating pain in waves 4 times now lasting about 2-6 hours each time. Then no pain now for 24 hours. Should I just wait? I feel pressure but not really pain. I still have aching in my back. They gave me macrobid for a possible infection because my white blood cell count was high. Could that decrease the pain?

    • profile image

      anonymous 5 years ago

      I was just diagnosed last week with a uretal stone and multiple kidney stones on both sides. They want to do surgery tomorrow for a 6 mn uretal stone. My urination has improved and I am not in pain. Should I continue to do the surgery? I am so scared. I was told if the pain stops that it has moved into the bladder. However I have had the excruciating pain in waves 4 times now lasting about 2-6 hours each time. Then no pain now for 24 hours. Should I just wait? I feel pressure but not really pain. I still have aching in my back. They gave me macrobid for a possible infection because my white blood cell count was high. Could that decrease the pain?

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      anonymous 5 years ago

      @ngio64: Ok, thank you for that information. Maybe the person telling me either doesn't remember the local or their doctor didn't do it. I will ask mine when I go on Monday. Thank you.

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      ngio64 5 years ago

      @anonymous: I have not experienced hunger related increase in pain. When my bladder is full I do notice an increase in pain. The longest it took me to pass a stone was 18 days and it was horrible. I hope you feel better soon.

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      ngio64 5 years ago

      @anonymous: The only NY doctor my kidney stone friends have recommended is DR JOSEPH MIHINDU NEPHROLOGY

      518- 798-3838

      Glens Falls NY

    • ngio64 profile image
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      ngio64 5 years ago

      @anonymous: There is a local anesthetic administered by gel, then they wait a few minutes. It is scary but it never really hurt me. More of a tugging. I am always terrified, then surprised that it did not hurt. I have done it many times.

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      anonymous 5 years ago

      When they take the stent out, they don't give you any anesthesia? This is really freaking me out. I'm 2 weeks in to a 7 mm stone not passing and this is my hold up to agreeing to the ureteroscopy. Urologist says lithotripsy isn't possible due to location.

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      anonymous 5 years ago

      Wow... this makes me feel so less alone. I have had stones every few years for the past 20 years. And of course, last night, the first relaxing evening I have had in a few weeks after producing a big event... there it was blood in my pee, soreness in my back and the stress of knowing what is coming. Now I'm sitting at work trying to get as much done as I can before the ER visit to come.

      I wanted to thank you all for posting. You've given me some new tricks. And here I was thinking...I am an old pro at this.

      Yes Toradol is the best. I wish I had some. Today I was able to borrow a few Vicodin to get by but it doesnt really help.

      I think it's time to find a new doc to get to the bottom of this. Anyone have any recommendations for someone in NYC?

      Thanks again & I hope none of you ever suffer this way again.

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      anonymous 5 years ago

      I have passed 5 stones over the past 7 years, some took a few days and others several months. What I am curious about is why the spasmodic pain in my ureter becomes much worse when I get hungry?

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      anonymous 5 years ago

      @anonymous: Susan, I can really empathize with you. Even when the pain isn't severe, it's constant, it's preoccupying, and it interferes with everything. (I had it yesterday.) Hang in there!

      Just a couple of thoughts based on recent experience: My 6 mm stone, I was informed, had a very low chance of passing on its own. I was informed by my urologist that my options were either ESWL (shock wave lithotripsy), or laser lithotripsy (using ureteroscopy). I chose ESWL for these two reasons: 1) it's worked for me in the past, successfully blasting stones into fragments which then pass in a few days, and (2) even though I've never had ureteroscopy, what I read and hear about this, makes it NOT my choice, mainly because urologists typically want to place a stent afterwards. (LIke you, I don't want a stent - for a few days, well, okay, if I absolutely had to, but the idea of having a stent for three weeks isn't appealing.) The necessity for stents is of course a matter for ongoing debate among urologists, and the current thinking seems to be that they're NOT necessary unless there's been trauma to the ureter (which can certainly happen) or there are other issues. The problem is, how many of us would really be prepared to say no to the urologist, if he said, "Look, I think you need this, just as a precaution" ? I'd be reluctantly agreeing to this, though I think I'd want assurance that the stent would be in place for the minimum amount of time possible.

      Anyway, back to ESWL. I've had this procedure four times now in the past eight years or so. The advantage is that it's non-invasive, and "relatively" comfortable. I learned also that the new generation of ESWL lithotriptors can deal with stones almost anywhere including the lower ureter. Earlier generation lithotriptors couldn't really deal with stones in the lower ureter. It is true that with ESWL there are usually fragments left that can sometimes be uncomfortable to pass, whereas laser lithotripsy (through ureteroscopy), as I understand it, essentially pulverizes the stone, leaving no fragments. And of course if it's a ureteroscopy with basket removal, nothing would be left behind.

      Of course in some cases - depending on where you live, the treatment - whether it's ESWL or URS - will be governed by what's available. We have a facility close to us that can do ESWL and I was lucky to get a fairly quick booking. (When you've got a stone you want it dealt with NOW, not to placed on a six week waiting list.)

      For me, if ESWL wasn't available, I would be going ahead with ureteroscopy (either basket or laser), but hopefully it would be without a stent, or at least the stent in place for only a few days or the minimum time possible.

      Anyway, hope your urologist appointment goes well, and that you get that stone out quickly!

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      brynimagire 5 years ago

      I find a lot of information here! These info. helpful for me ! Thanks for sharing.

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      anonymous 5 years ago

      It's been a week since my last diagnosis and still no stone. I've never had a problem passing them in the past so I'm worried. My pain is not severe but hurts like a bladder infection at this point. The stone was 7mm. I'm wondering what the urologist will do on Monday? I don't want a stent.

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      ngio64 5 years ago

      @anonymous: That is good that you are getting in to a urologist so quickly. You definitely sound like I act when I have a bad kidney stone. ER's have a bad reputation among my kidney stone friends on facebook for treating kidney stone patients appropriately. I hope you pass it quickly and are feeling better soon.