ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

New Blighted Ovum Guidelines! Chances Are You ARE Being Diagnosed Too Soon!

Updated on September 7, 2014
image courtesy of istockphoto/ValuaVitaly
image courtesy of istockphoto/ValuaVitaly

Before You Agree to End Your Pregnancy, You Really Need to Know This!

Hi. I'm Kay. As a result of my own misdiagnosed blighted ovum, I started the Misdiagnosed Miscarriage site.

I don't know if you are here because you are going through a blighted ovum scare or know somebody who is but I want to encourage you to save this page and share it! Yes, this may save a life!

The UK has implemented new guidelines that, as a result, will save many babies. The United States and most other countries are still woefully behind and using antiquated standards causing many women to be misdiagnosed. Even if you are from the UK, not all doctors are up to date, I encourage you to take these new standards with you.

You are your own best advocate!

Disclaimer

I am not a medical professional. The information I share is meant to supplement the information given you by your doctor. If you feel your doctor is not doing enough for you or not willing to listen to your concerns, I strongly encourage you to take what you've learned here and get a second opinion.

Before you read this page, let me give you the takeaway message: Unless your gestational sac is 25mm and you've waited one week past this mark, it may be too early to diagnose your blighted ovum.

Why is this page so important? Because now you have something FROM doctors BY doctors to show YOUR doctor. You have 'proof' (besides the hundreds, if not thousands of stories online) to show you are being diagnosed too soon!

What Is a Blighted Ovum?

because that is pretty important in understanding the diagnosis

I hear from women that they've been diagnosed with a blighted ovum because they doctor only sees a yolk sac in the gestational sac. No! This is not a blighted ovum.

What a Blighted ovum is (taken from WebMD's page Blighted Ovum page):

A blighted ovum occurs when a fertilized egg implants in the uterus but doesn't develop into an embryo.

Simple enough, it just means the baby doesn't develop past implantation or so early that we wouldn't see evidence of it via ultrasound.

Let me say, a yolk sac? Strong evidence of a baby and here is why:

While this is a very technical page on the growth of the yolk sac, you can see from The Journal of Ultrasound in Medicine's page Sonographic Evaluation of the Yolk Sac in the "Structure of the Yolk Sac" section that a yolk sac first develops near the developing heart of the baby.

Takeaway from this: If you see a yolk sac, there was at some point a baby. Yes, the pregnancy could stop developing from this point but this is not a true blighted ovum

The UK's Misdiagnosed Miscarriage Scandal

In 2011, the issue of misdiagnosed miscarriages came to light (in a big way) in the UK.

For a little history, check out a few of the news articles:

Babies may have died after miscarriage misdiagnoses

Flawed miscarriage diagnosis criteria may lead to abortion of healthy babies: study

HSE apologises for miscarriage misdiagnoses

For years, we, have been collecting stories of women who have had misdiagnosed miscarriages. In fact, on average, I hear from at least one woman a week who has gone through a misdiagnosed miscarriage. Rare occurrence? Absolutely not. And, if I hear from around one woman a week who has been misdiagnosed, how many more are there who are not contacting me?

Misdiagnosed Miscarriages are very real. As a result of the scandal in the UK, they've revised their guidelines. Our goal now is to get all doctors to realize the standard has changed and to save these babies lives.

What The Guidelines will NOT do

Sadly, miscarriages are very common. These guidelines will not prevent a miscarriage from happening. What these guidelines will do, however, is prevent a viable pregnancy from being ended too early.

Have you been diagnosed with a blighted ovum (empty gestational sac)?

See results

Let's First Talk about How UNRELIABLE Ultrasound Measurements Are

For years, I've talked with women who had two ultrasounds by two different techs the same day and the measurements were very different. I've blogged about a woman who shared with me two different techs measured the exact same ultrasound picture and got two different measurement.

WebMD in their Does ultrasound sometimes misdiagnose miscarriage article has this to say on ultrasound accuracy. In a nutshell:

A study was done to look at the actual accuracy of ultrasound measurements between doctors. The study found that gestational sac measurements could vary by, roughly, + or - 4mm either direction. This raised great concern especially when so close to the cut-off measurement in diagnosing a miscarriage.

When you boil it down, ultrasound measurements are not accurate enough to be used to diagnose a blighted ovum.

Next, Let's Talk Gestational Sacs.

Keeping in mind that ultrasound measurements are not as reliable as our doctors would have us believe, they can be useful in helping us determine if there is still hope.

As I said before, the UK has some new guidelines. Let's take a look at them, shall we?

(to view these new guidelines for yourself, you can download the PDF from the National Institute for Health and Care Excellence's site CG154 Ectopic pregnancy and miscarriage: NICE guideline)

For gestational sacs that are more than 25mm:

If the mean gestational sac diameter is 25.0 mm or more using a transvaginal ultrasound scan and there is no visible fetal pole:

- seek a second opinion on the viability of the pregnancy and/or

- perform a second scan a minimum of 7 days after the first before making a

diagnosis.

For gestational sacs that are less than 25mm:

If the mean gestational sac diameter is less than 25.0 mm with a transvaginal

ultrasound scan and there is no visible fetal pole, perform a second scan a

minimum of 7 days after the first before making a diagnosis. Further scans

may be needed before a diagnosis can be made.

Summed up in a nutshell? A blighted ovum should not be diagnosed the first appointment. If your doctor is diagnosing you in the first appointment, may be time to find a new doctor. Whether the sac is bigger than or less than 25mm, unless there is an immediate need to end the pregnancy, an ultrasound should be scheduled at least seven days out (six days? Too soon!). If the gestational sac is growing, keep having ultrasounds a week apart until you reach 25mm and THEN schedule one more a week out to verify.

Let's Talk about Your Last Period

it's not so important

Many doctors are all about the dates of your last period and, as a result, more likely to misdiagnose you.

Taken from the Office of Women's Health, U.S. Department of Health and Human Service:

Cycles can range anywhere from 21 to 35 days in adults and from 21 to 45 days in young teens.

Your doctor knows this and now you know this so why are they still insisting upon dating your pregnancy as if it is the average cycle?

According to that same NICE report (CG154 Ectopic pregnancy and miscarriage: NICE guideline) you looked at above (on page 17):

Do not use gestational age from the last menstrual period alone to determine

whether a fetal heartbeat should be visible.

and

Inform women that the date of their last menstrual period may not give an

accurate representation of gestational age because of variability in the

menstrual cycle.

LMPs (last menstrual period)? Not so important. Sure, it gives a good general guideline but unless you are coming up on the second trimester, it's not a good indication of a blighted ovum?

Takeaway: If your doctor is basing your blighted ovum diagnosis on the fact that you are seven or eight weeks and the baby isn't seen, he's wrong. It's still too early.

So You Know Your hCG Levels

again, not so important.

Generally, hCG levels seem most useful in helping to determine whether a pregnancy is ectopic or not. Once the gestational sac is seen, most doctors stop taking hCG levels because they can go up and be normal. They can slow and plateau and be normal. I've even talked to women whose numbers have declined and they've been normal.

For more on hCG levels, I put together a page here to talk about this topic:

The First Trimester and Non-Doubling hCG Levels

Takeaway: If your gestational sac has already been found, won't really do much. With a blighted ovum, numbers can sometimes rise normally and in a viable pregnancy, they may slow considerably. Your doctor needs to stop focusing on your levels.

Is Your Doctor Scaring You Into Ending Your Pregnancy

for a blighted ovum?

In that same study (CG154 Ectopic pregnancy and miscarriage: NICE guideline), I loved reading this (page 17):

Inform women what to expect while waiting for a repeat scan and that waiting

for a repeat scan has no detrimental effects on the outcome of the pregnancy.

I cannot even begin to count the number of women who have contacted me and told me their doctors have told them they are risking future fertility or even their lives if they do not have an IMMEDIATE D&C for their blighted ovum. My own doctor told me at seven and eight weeks what a risk I was taking by turning down the D&C. And, like me, a number of these women went on to find their babies.

Takeaway: If the gestational sac is seen and there are no additional risks happening (high fever, foul discharge, etc...), waiting it out is not only acceptable, it is now advisable.

What Have We Learned Here?

about diagnosing a blighte ovum

In a nutshell, the size of the gestational sac is probably the most important key to diagnosing a blighted ovum.

Remember:

- First things first, make sure the pregnancy is not ectopic and stay closely monitored into the gestational sac is seen if this is a concern.

- Keep those ultrasound spaced out by AT LEAST seven days (gives everything time enough to grow and be seen if the pregnancy is viable.

- Your hCG levels are really only useful in determining a) you're pregnant and b) whether this is ectopic or not. Once the gestational sac is viewed, hCG levels can do many different things in both blighted ova pregnancies and normal, viable pregnancies. Don't get caught up in your hCG levels.

- If there is a yolk sac or a fetal pole, this is not a blighted ovum. Doesn't mean the pregnancy is necessarily viable because miscarriage can occur after these things are seen. Just means it is not a blighted ovum (and your doctor should know that).

- For a blighted ovum diagnosis, it is perfectly acceptable to wait out a diagnosis and, now, with the new guidelines, it is preferable. If there are no complications, find a doctor who won't try to scare you into ending your pregnancy too early.-

- If your doctor is just diagnosing you too soon, get a second opinion. Women do it all the time and some times they end up finding awesome doctors that way.

In a nutshell, the size of the gestational sac is probably the most important key to diagnosing a blighted ovum.

Are you going through a miscarriage scare? Do you think you are being diagnosed too soon? I'd love to hear from you.

Would Love to Hear From You

    0 of 8192 characters used
    Post Comment

    • profile image

      Jenny 2 weeks ago

      I did an ultrasound tummy scan at week 7 but there was nothing visible. The doctor gave me a vaginal sonogram instead and estimated the pregnancy to be at 6 weeks 2 days based on the embryo size. The embryo measures 5mm and there was a heartbeat. The hospital in Singapore KKH scheduled me to do a scan in 3 weeks time and at 9 weeks 4 days the fetus size is measured at 6.5mm using a tummy ultrasound device this time. The nurses said they couldn't detect any heartbeat on the tiny white patch and looked worried. They told me the doctor will explain what's happening. I thought it's normal as the fetus is too tiny and they did not detect anything as well last time. I did not request for a vaginal sonogram as I was afraid the radiation might be too strong and harm the fetus. I rather not hear any heartbeat than risk harming my fetus again. The doctor finally saw me and based on the scan report, she said I had a miscarriage. I told her I had no bleeding or cramps. I still feel nauseous the day and slept 12 hours the day before. The doctor said it was a missed miscarriage since the fetus has stopped growing and there wasn't a heartbeat. By now the fetus should be around 2-3cm not 6.5mm. She thought I was in denial and recommended me to do the D&C procedure. I refused. I said I will let my body do its work of flushing the tissues out. I am still wondering could the ultrasound be wrong? Did my fetus really die at week 6 day 5? Did the vaginal sonogram radiation cause the fetus heartbeat to stop? I had no miscarriage symptoms at all. What should I do?

    • profile image

      Amanda 2 weeks ago

      I am currently pregnant I am 40 years old. My hcg is 5300 I have had 3 ultrasounds all within days of each other. My obgyn just called and said" let's give thus until Tuesday and if nothing is seen in scan we need to terminate" I am in no pain, no bleedibg. I am at a loss. I refuse to take something that will terminate this pregnancy unless they can prove to me without a dought that my life is at risk. My lmp was May 11, 2017

    • profile image

      Kelly 6 weeks ago

      Hi, I am currently 7 weeks and 5 days pregnant.

      My Obn-Gyane cannot find the heartbeat of my baby. or see the baby on the ultra sound.

      He has taken blood to check my HCG levels. If the levels have drops to half then what it was previously I will need to go for a D&C. He said it could be a Blighted Ovum. I am so scared.

      I dont know what to do.

    • profile image

      Jackie 7 weeks ago

      My comment below... And, my hcg quantative beta was 44 today. I'm so beside myself in this emotional rollercoaster.

    • profile image

      Jackie 7 weeks ago

      Kay, first, I am such a reader. I have always done so much research in everything I learn, find interest in it need answers outside the box. It has certainly been helpful advocating, and improving all I do, usually for others. With that said, I like clear information, and have read much that you've researched and shared. I want to thank you, from myself, and remind you that so many others I am sure are just as grateful. Please continue what you are doing.. It's awareness we all need and can benefit from.

      I am currently pregnant, my 12th pregnancy, two live children 16, one was a 33 weeker conceived 10 days after d/c and he and I dealt with total placenta previa/natural delivery, and a 9 year old, no issues. I have lost 9 babies to date. One was ectopic., 450 hcg in ER that started to drop as they wheeled me in for surgery. In 2015, hcg stopped at 26 and miscarriage started hours later after finding out. I have had one d/c besides the one before my oldest son. Every other chemical or miscarriage I have opted to endure unassisted in any way at home, even when a hospital setting was provided. None of these pregnancies ever saw past 9 weeks, if memory serves correct. This week, has been torture. Last MC was last May, 2015. 5 weeks pregnant. Typical. My bf and I have been pregnant a total of 5 times since Aug 2013 and have lost the other 4. All were lost at 5-6 mark. Hormones checked, fine. Thyroid, fine. Progesterone, fine. I know I have some scar tissue, I also question cycles now. I'm thin at 5' 7" 130 lbs typically. Cycle is now somewhat irregular but all my life it was 28 days. Now it's usually 24-25 but can vary. Nobody thinks luteal phase defect but I often wonder. On Monday, I awoke to the worst breast pain. I smiled and really didn't believe it could be. We stopped trying last year. An early test proved positive immediately. 3 more tests, the same. Qweezy, too. LMP maybe April 1? Maybe March 26? Light bleeding April 19-20 for a bit over a week. Didn't resemble my periods at all, or signs of a period per symptoms. Seemed odd. Vag exam on Tues. Excellent. Spotting stopped. Closed cervix, where it belongs. Fertility Dr is ok with this. Hcg on Mon, 38.7 Wed 37.0 and just now, 36.7 We are down two points in 70 hours. Lil tiny tiny, I'm beyond in tune to it all, pressure above my bum. No spotting. No pains. Swear my breasts feel just a tiny bit less painful today. Left my ob office again, too much error and incompetence for me over two years. Expecting ectopic is going on. Progesterone is at 19.5. Waiting game, again. If you have any further info I could read, pls let me know. Or I'd be happy to use email etc as well. Again, thank you, very much for your shares, and education. When many of us likely already know the answer, sometimes this education, for myself, lightens the heartache, and replaces it with helpful knowledge.. It lightens the burden some.. And gives us control, too. It's always nice to have a conversation that leaves your Dr wide eyed, when they realize you're paying more attention that they might be.. Thank you.. And best of luck for lack of better words to all you Mommy's out there. As I read, you ARE your beat advocate, and your babies.

    Click to Rate This Article