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Retinoblastoma - Cancer of the Retina

Updated on December 6, 2016

Information about This Little Known Cancer

You will find links to information about Retinoblastoma for the lay person and for the person who wants a more technical definition. Also included in this lens are links to pages specifically for children, specifically for parents, and specifically who want to give money to fund research.

Photo by Ben Hammersley.

For Those With Retinoblastoma - or . . . I'm the patient

This list will link to pages (which may or may not be from other websites I link to) that seem particularly interesting and/or hard to find.

How to Make an Eye

The images C0111628- C0111721 provide a 'behind the scenes' look at the work of the Moorfields Eye Hospital, prosthetics team, featured in How to make a prosthetic eye, an extra from an article entitled Facial discrimination in Mosaic Science,
The images C0111628- C0111721 provide a 'behind the scenes' look at the work of the Moorfields Eye Hospital, prosthetics team, featured in How to make a prosthetic eye, an extra from an article entitled Facial discrimination in Mosaic Science, | Source

Did You Know About Retinoblastoma Before Coming Here?

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Charitable Retinoblastoma Organizations - I want to help.

Although the sites listed here are charities, they also have a lot of good information on them. Most or all of the people who voluteer with them have a child with Retinoblastoma, so it is a good resource.

The last two aren't retinoblastoma sites exclusively, but apply to all vision diseases.

Trading Tales - Personal Sites

A lot of people (parents, mostly) have created websites about retinoblastoma. These sites should give you a little of the "What it's like" feeling that the other pages can't. If you have a site you would like to add, let me know.

My Connection to Retinoblastoma

What is my interest in retinoblastoma? 24 years ago, my brother was diagnosed with retinoblastoma after mentioning that he couldn't see out of one of his eyes. Luckily (well, comparatively lucky), it was a unilateral case. He now lives in the Allentown, PA area.

And Here He Is Years Later


Especially let me know if there are any sites you think I am missing or any books that are vital.

Your Turn!

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    • Jennifer Einstein profile imageAUTHOR

      Jennifer Einstein 

      7 years ago from New York City

      @alisha66: I am glad that it was helpful. That was really the reason that I created this lens, and I'm glad you liked it.

    • profile image


      7 years ago

      Nice lens. I was looking for this information and got it here , finally. Symptoms of eye cancer vary based on the type of the cancer. Symptoms of adult eye cancer cancer be very different from the cancer that affects the eyes of children. This post is very helpful for understand the symptoms of eye cancer in children.

    • GuyB LM profile image

      GuyB LM 

      7 years ago

      I'm glad it worked out for your brother. A great lens and a super way to educate the people to promote early detection and treatment. A real eye-opener.

    • profile image


      10 years ago

      Nice lens. Your brother is lucky. To some extent, eyes are the most important part of our body. Very useful information here about the Retinoblastoma with great resources. Thanks for your effort and sharing the information. I would like to share with you an interesting and informative site about human resource. Please drop by.

    • profile image


      11 years ago

      Great lens on a much-needed topic! I'm building a lens about Mesothelioma Cancer - Take a look at this lens and rate it for me! Thanks, denman4


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