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Enlarged Yolk Sac During the First Trimester?

Updated on March 28, 2015
Touch of Blue III
Touch of Blue III | Source

Yes, There Is Hope Even with a Large Yolk Sac!

When a woman is told she has an enlarged yolk sac during the first trimester, often she is told there is no hope and miscarriage is inevitable.

The reason for this page is that indeed there is hope!

Thanks to the Misdiagnosed Miscarriage site and the numerous misdiagnosed miscarriage stories, we now know that there are women who continue their pregnancies even with an enlarged yolk sac.

Disclaimer

I am not a medical professional. The information I share is meant to supplement the information given you by your doctor. If you feel your doctor is not doing enough for you or not willing to listen to your concerns, I strongly encourage you to take what you've learned here and get a second opinion.

Do you or did you have an enlarged yolk sac?

See results

The Yolk Sac

So, what is this thing known as the yolk sac?

Very simply, the yolk sac provides the earliest nourishment to the baby. Toward the end of the first trimester the yolk sac will begin shrinking as the placenta takes over the job of nourishing the baby.

According to Embryo and Fetal Pathology "The detection of a yolk sac excludes the diagnosis of a blighted ovum because a viable embryo is necessary for yolk sac development." Basically, if a yolk sac is seen during a trasvaginal ultrasound, you cannot be diagnosed with a true blighted ovum. This does not mean miscarriage in not a possibility. It just means this is not a blighted ovum.

Generally, a yolk sac can be seen as early as five weeks during a transvaginal ultrasound. However, many women have said their doctors never saw the yolk sac during the ultrasound and later found their babies. This just shows that, yes despite some medical literature indicating otherwise, yolk sacs are not always visible in viable pregnancies. In my own pregnancy, misdiagnosed as a blighted ovum, nothing was seen in the gestational sac until it was 28.5mm. Even at 21.5mm a week earlier, the gestational sac looked completely empty. Because of my story and many other misdiagnosed stories like mine , we now know that the medical literature is not always correct about when the yolk sac should definitely be seen.

An Enlarged Yolk Sac

what the medical literature says

Most women who are told they have an enlarged yolk sac are told they should expect to miscarry. Since we know women do go on to have successful pregnancies despite a large yolk sac, why are they told this?

WARNING: before you read, remember, we have stories to show this is wrong!

An example of the medical literature gives the reason why. In the Core Curriculum - Ultrasound, the author states:

"An abnormal appearance of the yolk sac correlates with early pregnancy failure. The yolk sac may be too large (6mm). Differentiation of an enlarged yolk sac from the amniotic cavity is difficult but irrelevant because any empty cystic structure whithin the GS larger than 6-mm diameter predicts a failed pregnancy."

Here we have a basic text that gives no hope to women with a yolk sac larger than 6mm. Fortunately, real life stories show that there is hope. Of course, the pregnancy may end in miscarriage but miscarriage is certainly not a given with an enlarged yolk sac.

Some Case Studies:

Very Large Yolk Sac and Bicornuate Uterus in a Live Birth A case report in which a yolk sac was measured at 8.1mm but resulted in a live birth. This report states that "the quality of the yolk sac might be more important than its size."

Abnormal sonographic appearances of the yolk sac: which can be associated with adverse perinatal outcome? This study does recognize the risk of miscarriage with an enlarged yolk sac but only about 1/3 of the subjects miscarried. A better way to look at is that 2 out of 3 women did not miscarry! Keep in mind, even with a normal pregnancy, that risk can run about 20% so there is a slightly increased risk of miscarriage. Miscarriage in NOT written in stone and most women go on to carry their pregnancies to term.

I believe every woman deserves to have no doubt before having her pregnancy ended.

Important New Guidelines for Diagnosing a Miscarriage

The UK is the first to acknowledge that misdiagnosed miscarriages are indeed a problem. The Royal College of Obstetricians and Gynaecologists has revised its guidelines. If your gestational sac is more than 25mm and/or the CRL is 7mm or more, you should wait a week to verify (if there are no complications). If the measurements are less, you are too early to diagnose. For more information (and something to take to your doctor), please, see my new page:

New Blighted Ovum Guidelines! You ARE Being Diagnosed Too Soon!

If I don't reply to you here, please feel free to e-mail me directly at misdiagnosedmiscarriage@gmail.com Thank you!

Thanks for reading.

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    • profile image

      Maria 4 days ago

      I just wanted to update on my story. Baby boy was born last week at 36 weeks (this not related to the large yolk sac but for complications with my c section scar).

      He is perfect! No one would even believe we went through all the scares we did because of his large yolk sac.

    • profile image

      Maria 3 months ago

      I will! Baby is now kicking strong and I'm getting more and more excited about this pregnancy by the day. The baby will be born exactly one year after my twins where born prematurely due to preclampsia. (They both passed) so this pregnancy has been very stressful for so many reasons. But for now everything is good and no signs of preclampsia either. I will keep you posted.

    • Cari Kay 11 profile image
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      Kay 3 months ago

      I have had moms with similar stories tell me there little ones were just fine. I know it is tough not to worry even in a normal pregnancy but worrying won't change a thing. I hope you update after the birth. (((hugs)))

    • profile image

      Maria 3 months ago

      I was diagnosed with an 8mm yolk sac at 8 weeks. By 9 weeks it grew to 9mm, at 10weeks same thing happened, yolk sac measured 10mm but baby still growing. No scans at 11weeks but we drew blood for genetic testing (panorama). At 12 weeks yolk sac was completely gone, baby's NT measured normal and genetic test was low risk for everything. We are expecting our boy in a few months. Currently 21 weeks pregnant. Anatomy scan was normal except for a 2 vessel umbilical cord which doesn't worry my doctor as all of his organs appear to be normal. Baby is growing on point and even though I still worry if the yolk sac affected him in some way or was there because of something else, I'm very very grateful to be here writing this story.

    • Cari Kay 11 profile image
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      Kay 3 months ago

      Dawn, please keep us updated!

    • profile image

      Dawn 4 months ago

      Yay for finding something positive! This past Thursday, I measured 6w4d with a 6.3mm yolk sac and hb of 120. I'm 42 and we did a 3 day fet with 2 embryos. Both are growing, but the second one is measuring 4 days behind with no hb yet and yolk sac looks abnormal. I go back Thursday to see how things are. My dr has a wait and see outlook bc he's seen both healthy pg and mc. I will keep you updated. Thank you again!

    • Cari Kay 11 profile image
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      Kay 4 months ago

      I don't know what is happening but I hope you get your answer soon. (((hugs)))

    • profile image

      ytsim 4 months ago

      hello, im so worried my US showed enlarged yolk sac with fetal pole but no hb stating that i am 6 weeks and 5 days, im having light spotting, and period like cramps that last for hours for 3 days and OBGYN told me that i am risk for a miscarriage, and ask for a follow up after 5 days, i am 38 and its my second pregnancy after 14 years of normal birth, im still hoping that everything will be okay.

    • Cari Kay 11 profile image
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      Kay 5 months ago

      I am so sorry you are going through this scare. If there are no complications, it does seem like another ultrasound a week out would tell you if there is any growth. (((hugs)))

    • profile image

      Jingky 5 months ago

      Hi, need some ADVICE IM 28 years old..I was 13w5d pregnant based on my LAMP:11-23-2016 and my TBS report first trimester are my GS 2.2 CM, CRL 0.25 CM, 5W6D and 2 yolk sac found. YS1: 0.3 cm and an embryo with no cardiac activity at the time of scan; YS2 measuring 0.9 cm, consider MACROYOLKSAC adjacent to YS2 is an amorphous structure measuring 0.1 cm probably an embyonic pole. And the diagnosis are PREGNANCY UTERINE is 5 weeks and 6 days by crown rump length ; normal ovaries with corpus luteum in the left ; cannot totally rule out multifetal pregnancy; circumferential SUBCHORIONIC HEMORRHAGE. Suggest repeat scan after 2 weeks to confirm pregnancy viability. When my ob saw this tvs report, she advice me to go d&c but I asked here to give me 1 more week to check again the heartbeat and she allowede but she told me that in my case it will probably failed because of YS2 is abnormal. What should I do, I'm still hoping and praying. Every night I cried. I hope you can give me positive advice. Thanks a lot.

    • Cari Kay 11 profile image
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      Kay 20 months ago

      How are you doing?

    • profile image

      LuciaEllise 20 months ago

      Hi Cari Kay thank you for your encouraging words. The last time I commented here was the result of my ultrasound 2 weeks ago. Last monday Nov 30, I went to my Doctor to have a follow up check up. The baby should be 8 weeks that time and when the doctor did the transvaginal ultrasound we saw my baby with a very very faint heartbeat and just the size of 3.90mm with 7.0mm yolk sac. My doctor told me to have another ultrasound after 5 days, but I think I am now miscarrying because I aaj bleeding right now.

    • Cari Kay 11 profile image
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      Kay 20 months ago

      It is so early. Best thing is to wait one week, if there are no complications, and have a follow-up ultrasound. (((hugs)))

    • profile image

      LuciaEllise 21 months ago

      Hi everyone. I just want to ask if someone here have the same experience as mine . Im 6weeks prego, my CRL size 3.70mm(too smal),HB is 106 and yolk sac size is 6.80mm . Did it turn out well?.thank you.

    • Cari Kay 11 profile image
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      Kay 2 years ago

      You don't need a yolk sac measurement. Really, it's not important. More importantly, you want to monitor the size of the gestational sac if it is growing. You've seen the baby though and really you only a need an ultrasound one week out to verify. I do hope you get better news. (((hugs)))

    • Carli Jordan profile image

      Carli Jordan 2 years ago

      Please advise - I would be incredibly grateful for any positive input!

      I went for a private scan last Tuesday. I was told the CRL was 6.3 with no foetal heartbeat, that I was miscarrying / had a delayed miscarriage. She said the yolk sack is enlarged & there is evidence of haemorrhaging in the placenta.

      I did not know at the time that I should ask for yolk sack measurement so I don't have this. I made it very clear to her that in my last pregnancy my dates were wildly out & my due date was revised from Sept 10th to Oct 1st following two scans - she thought this irrelevant! I asked "are you sure" she said "yes", I said completely 100%" she said "yes". I asked absolutely no room for error or doubt" she said "none".

      I am in the UK & have since learnt that she gave me the wrong information. Next day the Midwife triage at the hospital told my GP that I would have to wait a week because there is often no foetal heartbeat at 6 & even 7 weeks. They said that the new UK procedure as set out by the Royal College, requires us to wait. That there is a chance of miscarriage BUT that there is also a chance that I won't. I have since been told that one UK study showed that where there was a foetus but no heartbeat at 6 weeks 44% went on to find a foetal heartbeat 1 or 2 weeks later.

      I have hope & have been having pregnancy symptoms - though yesterday I did not feel sick OR as tired as I have been (having said that I did have a long lie in). I am very confused about what I have been told as when I mentioned the sack & haemorrhaging to the GP he did not seem to know what to say & just repeated that I need to wait. I go in tomorrow for another scan!

      If you have any info on haemorrhaging I would be very glad to have it. Please note, other than a bit of spotting at the very start - which I took to be implantation, I have had no bleeding. I am unfortunately worried about every sensation at the moment & currently have lower back pain (something I never get) & am worried about what that means??? Thanks & best of luck to all x

    • Cari Kay 11 profile image
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      Kay 2 years ago

      I have blogged about not taking ultrasound measurements too seriously. We have seen how women can get ultrasounds done the same day by two different techs and get different measurements and studies have backed this up. Hang in there. Please, keep me updated.

    • Cari Kay 11 profile image
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      Kay 2 years ago

      Keep us updated!

    • profile image

      alanaw107 2 years ago

      Help! I am 39 years old, 3rd pregnancy and 8 weeks today! Had an ultrasound yesterday, and baby's heart rate was strong at 144 and growth was measuring appropriate (4 days off from my LMP date) but this is how I always measured with my first two boys. Everything looks great except for my yolk sac measuring around 10mm !! So I have googled every article and story and am just so worried! Not much positive out there. And many success stories the yolk sac was 8mm or less - mine is 10mm !!!! I'm worried constantly about miscarriage and chromosomal abnormalities. What can I do to to stop the worry and is there anyone that has had healthy pregnancy and baby with a super large yolk sac?? I go back for next ultrasound in 11 days!! I can't take the waiting too. Oh and all my blood work was very strong and good. So it seems my body is doing everything it needs to right now to support this pregnancy. Any help or thoughts would be appreciated! Thank you! Alana

    • profile image

      K. Coleman 2 years ago

      Thank you Cari Kay 11 for your words of encouragement and again for creating an avenue in which families in similar situations can share their stories. I am hoping that after next week's appointment, things will have turned around for my husband and I.

    • Cari Kay 11 profile image
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      Kay 2 years ago

      I think it is just terrible that they are pushing a D&C. I've talked to women who had 'enlarged' yolk sacs and their babies were just fine at birth. Yes, the risk of miscarriage is a little higher but the majority of women are fine. Hang in there. Praying for you!

    • profile image

      K. Coleman 2 years ago

      I am currently experiencing what many of you have experienced and have been told by my doctor's to prepare for a D & C or to expect to naturally miscarry. Well, the past two days have been horrible to say the least. My husband is away at training and I am here facing this horrible misfortune alone. We have scoured the internet searching for hope and I am glad to have stumbled across this website. On 01.02.15, I went in for my first vaginal ultrasound and though the gestational sac was present, nothing else was there. Well, at the time, they felt that it could have just been behind and wanted to follow up with me this week. Well, I went in yesterday, 01.07.15 for another ultrasound and they were able to find a yolk sac but it appears to be enlarged. She searched for a fetal pole and heartbeat, but neither were detected. She then presented my options and I adamantly refused to schedule a D & C because if I am meant to not birth this baby, I will have a miscarry. I spoke with her again today and was told again that the yolk sac was enlarged and that she is certain that a hearbeat will not develop. My husband and I had to use IVF as an alternative to get pregnant and she indicates that everything is so precise with this method that they are 100% certain that this is a bad pregnancy. Reading your stories were so helpful although, I am preparing myself for what I will always consider the worst thing to ever happen to me. Congratulations on all of your healthy babies and blessings to you all.

    • Cari Kay 11 profile image
      Author

      Kay 2 years ago

      There is a forum just for misdiagnosed stories :) If you share on this post, I'll add it to the forum. Thank you! Email me at misdiagnosedmiscarriage@gmail.com if you have any trouble posting.

      http://www.misdiagnosedmiscarriage.com/mycommunity...

    • profile image

      Dee 2 years ago

      Cari. Happily. Just tell me where to go!

    • Cari Kay 11 profile image
      Author

      Kay 2 years ago

      I am so glad you shared your story. Women are always asking for success stories with large yolk sacs. Would you consider sharing your story on The Misdiagnosed Miscarriage? You'll give women so much hope.

    • profile image

      Dee 2 years ago

      And just to add a bit more. I went full term. He was a healthy 6lbs and his sister 5lbs. They have a big brother who adores them. Good luck. I hope you get a happy ending.

    • profile image

      Dee 2 years ago

      I came across my first ultrasound pic from almost three years ago where they told me that my yolk sac was too big and I would either miscarry or have to terminate the baby (as I was carrying twins) and wanted to reach out to other women in that situation. I drove myself mad searching the web and everything looked so bleak. I was devastated and prepared for worst. What I can tell you is that I did not lose that baby and I did not terminate that baby. I now have a very happy, healthy rambunctious two year old boy. I will say the yolk sac size was always borderline but was told over and over to prepare myself for the worst. I'm not a dr but I want to give anyone out there in that situation hope. I wish you all happy, healthy pregnancies. Good luck and stay strong.

    • Cari Kay 11 profile image
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      Kay 2 years ago

      Waiting for a month is just unacceptable. Might be time to find a new doctor. If the yolk sac is seen, usually doctors will wait one week to verify.

    • profile image

      arwen 2 years ago

      i am 6weeks 5days pregnant i experience vaginal bleeding last sept 18, my OB GYNE advice a trans vaginal utz, i was diagnose with macro yolk sac with embryonic pole no heartbeat yet. I am still bleeding until now my OB GYNE told me i will wait until OCT 25 for the next UTZ for fetal vitability I am still hoping for the best for my baby.. If Gods will ....

    • profile image

      wendy-t-andrews 3 years ago

      Hi I to just found out that I have an enlarged yolk sac .. The doctor seemed hopeless ..i left the doctors office upset and so confused ..didn't really no what questions to ask at the time so I am not sure of the measurements of the yolk sac but compared to my baby it was extremely hugh..we are scared ..it's all I can think about ..i go back next Wednesday for another us ..thanks to this website I now know some questions that I should ask ..feeling nervous..

    • profile image

      anonymous 4 years ago

      @anonymous: Hi i am 8 weeks pregnant and have had a misscarriage before on my first ultrasound my doc told me that i had an enlarged sac and the baby wont stay didnt know what it meant but was been told to come after 7 days to see the growth of the baby to decide about her..........please pray for me i have the next ultrasound on 22 july.......help me with any suggestions if possible.....

    • Cari Kay 11 profile image
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      Kay 4 years ago

      @anonymous: I hope you come back and update.

    • Cari Kay 11 profile image
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      Kay 4 years ago

      @anonymous: Thank you so much for the very sweet compliment.

    • profile image

      anonymous 4 years ago

      I think your middle name must be Hope because you just hold it out at some of the most difficult times someone could go through as and angel of hope! I had never heard of this condition before. :)

    • profile image

      anonymous 4 years ago

      My hubs and I are expecting our 2nd little one. Our first one is only 9mos so we're nervous, but super excited!! Well, we went in for our first u/s last Fri and were told that I had an enlarged yolk sac. I had never heard of it, so I didn't even know to ask how big it was measuring. I compared it w/ my first u/s from the last pregnancy and it's huge in comparison. Anyway, the OB was not all doom and gloom. She said she would give the poss of a mc 20%. All my hormone levels are excellent. She actually said my progesterone level was absolutely stellar, which indicates a healthy pregnancy. How confusing is that...you might have a mc or a baby w/ a chromosomal defect, but your levels indicate a super healthy pregnancy. We go back this Fri for another u/s. Praying for a miracle!!

    • darciefrench lm profile image

      darciefrench lm 4 years ago

      I wonder if we do too much early testing, and discover things that in reality don't turn out to be problems?

    • Cari Kay 11 profile image
      Author

      Kay 4 years ago

      @anonymous: Your wife is just too early to diagnose. The good news is that generally one week after the yolk sac is seen, the baby will be seen if the pregnancy is viable. Please, let me know what you find next week.

    • profile image

      anonymous 4 years ago

      Wife been for scan today, we think we are 6 weeks pregnant and dr says that yolk sac is to big. Told to expect the worse as can't hear heartbeat! Anybody give any positive feedback n this?

    • Mariajomith profile image

      maria 4 years ago

      I have a comment bug that prevents me from commenting on your page.Thank you for blessing my most personal lens. I really appreciate your visits.

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      jennifer-cole-520 4 years ago

      Hey guy, by what my ob doctor says, I am exactly 5 weeks pregnant today. I had a positive hpt about a week and a half ago, and a beta hcg of 38 only 6 days ago, then a hcg of 27 only 2 days ago. I know that is low and I know when it is not rising, that means miscarriage. However, my ultrasound measured 5mm larger on Friday in comparison to Tuesday's ultrasound. I have a very defined sac, that is growing quickly. My doctor said that I will miscarry. I can't help but feel that I am going to have good results at my next checkup in 10 days. If I lost this baby, it will be the 4 th in 4 years. I still feel pregnant, but I have ceased my progesterone suppositories because they mimic pregnancy symptoms. Could there be any hope for this pregnancy? I am not bleeding or cramping in the past I have bled considerably. Someone please give me some good need or hope. You can email me privately at mountainlaurel_75 St Yahoo.

    • profile image

      anonymous 4 years ago

      I was orignally thought to have a possible blighted ovum because at 6 week and 7 week ultrasounds there was only an empty sac. But went in for another ultrasound at 7 weeks 4 days and saw the yolk sac, the baby and heard the heartbeat. I was immediately elated, only to have my hopes dashed by the tech who told me he is concerned because the yolk sac is 7mm and the baby was measuring at 5 weeks 4 days. But I knew it was a strong possibility that I was off on my dates and could realistically be 2 weeks behind on my calculations. I am trying to remain hopeful but have been told the outcome may not be good. Right now I am scheduled to have another u/s in 4 days. Should I be worried that because the baby is measuring further behind (2mm, heartbeat 98bpm). Given the fact that I first thought a blighted ovum was possible, only to find out the baby is there and has a heartbeat, I am wondering if I should be happy that things are going to be just fine or should I remain "hopeful but reserved" as the tech instructed me to be........ ????

    • WriterJanis2 profile image

      WriterJanis2 4 years ago

      Very helpful info to those with this situation.

    • profile image

      wecomparebooks 4 years ago

      Very interesting lens.Thanks for sharingIf you are interested I'd love to add you to my medical lensographies lens. Let me know at earonsky@gmail.com

    • Cari Kay 11 profile image
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      Kay 5 years ago

      @anonymous: No! Not true. Please, find another doctor. How awful. (((hugs))) to you. I've talked to many women whose babies were just fine. Not one of them told me they ended up having a child with DS.

    • profile image

      anonymous 5 years ago

      so i went to my ob today. they said i was 6 weeks 6 days but that my yolk sac was large. 8.6 to be exact.We saw a heart beat, but he stated that if I dont miscarry with in the next 2 weeks that my pregnancy will follow through but my baby will have down syndrome. Is this true?

    • profile image

      anonymous 5 years ago

      I posted in August. Initially diagnosed with a blighted ovum then told I had Afghan enlarged yolk sac and would miscarry, I am happy too report that my son is nine Weeks old today and is happy and healthy. Hope is good and God its great. Doctors can be wrong.

    • profile image

      anonymous 5 years ago

      hi everyone. i feel for all of you and wish you all the best. This is the only site i've found with ANY positive information at all. i am 40 years old and just did my first round of ivf. right before i was supposed to have my pregnancy test i had some light bleeding. of course, i freaked out and "knew" that it didn't work and cried my eyes out. i had my bloodwork done a few days later and my hcg was ~50. bloodwork every 2 days showed hcg numbers that were doubling beautifully! i had my first ultrasound at 6w6d and they saw a gestational sac, a very small fetal pole, a large yolk sac and no heartbeat. i was devastated! they told me my baby was dead and i needed to schedule a d & c but they wanted a confirmatory ultrasound done before that. i went the following day for my confirmatory ultrasound just wanting to get it over with so i could have the procedure done and not have to think about any of this. they saw a very very very faint heartbeat. the dr said the growth was very far behind what it should be, the yolk sac was large (didn't give me any measurements and i didn't ask because i was in shock at this point). he wanted me to have an ultrasound the following week. he said he expected the heartbeat to be gone by then. i asked why i couldn't have the d & c if they knew it was going to die anyway. he said that they aren't 100% sure and maybe the heartbeat could be stronger and maybe it would grow by the next ultrasound. i asked what the chances of that happening were and he said very slim and to expect the worst and prepare myself for the inevitable. meanwhile, they had me go in for bloodwork throughout the week and my hcg numbers are continuing to increase. i had my ultrasound and bloodwork yesterday and the heartbeat was 90-something (should be 100-something though...)! more than the little flutter they saw on the previous ultrasound. the baby had grown since the last ultrasound as well but still was behind. my hcg numbers went up too. the yolk sac is measuring 8 mm but i'm not sure if it has grown since the last ultrasound because they never gave me numbers. at this point, i still was not hopeful and that seemed to make it worse because if i was going to miscarry, why wasn't it doing it already! to have it grow and then miscarry is torture! waiting... i found this site and for the first time i feel a little bit hopeful. i don't want to get my hopes up but maybe that light bleeding was implantation bleeding and it's behind in growth because it didn't implant until late??? maybe that's why they couldn't really see the heartbeat until this week??? i have so many questions and just want to have a healthy baby. the waiting is killing me. i'm just hoping that when i go back on monday, it has gotten stronger. i'm praying that my baby beats the horrible odds that i keep reading about and gets stronger and is a beautiful healthy baby. i have one beautiful healthy 1 year old at home--a miracle. we used fertility procedures to conceive him as well but didn't have any issues. i was given one miracle--hopefully a 2nd one isn't too much to ask for... thank you all so much for listening and i will be praying for all of you.

    • profile image

      anonymous 5 years ago

      I had a sonogram done today at 7 weeks and all we saw - a 20mm gestational sac and a yolk sac, no embryo. Funny cuz last week, we could see a tiny embryo with faint heartbeat. I was told that high chance I'll miscarry. did a blood work today and my hcg level was 78200+. they said it's too high based on my last blood work result on Feb 8 = 4286 and it doesn't look like a normal pregnancy. they asked me to come for another blood work next week. the doc asked me to think about either go for D&C or natural miscarriage (cramping & bleeding). I'm so sad as this is my first pregnancy. I wonder what happened to the embryo since we saw the heartbeat last week... I'm hopeful that the baby is still there and just hiding.. :(

    • profile image

      anonymous 5 years ago

      As a Women's Health NP, I have performed a number of first trimester ultrasounds, and from experience I knew that a large yolk sac had a poor prognosis. My husband and I have been trying to conceive for 4 years. We are both 34 years old now. We have a five year old daughter. In 2009, we had an ectopic. In 11/2011, we had a blighted ovum and miscarried spontaneously. On January 24th I had a positive test -yay! On the 25th had an HCG level checked. On the 31st had an us at 5w6d and had a 5mm yolk sac and the start of a fetal pole. I was devastated. This was the farthest we've made it in years, and the outcome already looked bad. My provider was not concerned, but I knew better. Nine days later on the 9th of February, I had another scan and by my calculations I was 7weeks1day. The US showed fetal pole measuring 6w3d with a strong heartbeat at 120bpm. I was so excited... At first. Then I requested she measure the yolk sac again,and she said it was now 8.2mm. Ugh!!!! Boohoo!! Such an awful waiting game. My OB gave me a pep talk, which was great and I was trying to remain hopeful, but guarded (that's what my friends and I in the OBGYN biz decided was the best phrasing on how I felt :). A week and a day later I was scheduled for my new OB appt. I was concerned, so we scanned again. The fetus grew a week, was now measuring 7w3d, but it no longer had a heartbeat and the yolk sac was now 10mm. My heart and my hopes were crushed again. After 3 rounds of 800mcg of cytotec, I completed my miscarriage on 2/26. I refused a D&C. I brought in the products of the miscarriage for genetic testing and should have the results back in a week or so. As awful as this roller coaster ride has been, my husband and I are grateful that my body knew that whatever was going on with this little bean was incompatible with life. I was obsessed with reading this site and every other positive quote I could find in my texts and in the literature on large yolk sacs over the past month. So I thought I should post my story. I encourage anyone who is reading this or in this situation, to never lose hope, and take strength in the thought that our body knows what's best for us and our unborn. I'm crying again right now. I'm trying to stay positive, but any which way you look at it, it still totally sucks :(

    • profile image

      anonymous 5 years ago

      Hi, again.I wanted to follow up from my last post. Exactly 1 week after the ultrasound showing an enlarged yolk sac, the follow up ultrasound showed the cessastion of the baby's heartbeat. I'm sorry to report sad news. However, the fact still remains that my initial diagnosis of a blighted ovum was completely inaccurate. Good luck to all of the women searching for information and positive outcomes.

    • profile image

      anonymous 5 years ago

      @anonymous: SO happy for you! What is your latest news?

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      anonymous 5 years ago

      Hi, there. Thank you for sharing your stories. It helps to find hope because doctors definitely do not know everything. I had a misdiagnosed blighted ovum at 6.5 weeks. I was told that if my dates were correct (they are) that there was basically no hope, but come back in 1 week. I went back in 1 week with a list full of questions about miscarriage, and there was my baby! SO... I went to a different doctor and got another u/s 1 week later and now I'm told that baby growth and heartrate are normal, however, I have an enlarged yolk sac (6.5mm) so I can expect a miscarriage. I go in tomorrow for the ultrasound. I have been feeling very strong pregnancy symptons, I just cannot believe that there is a problem with the baby. I'll find out tomorrow and keep you posted. I just want women to hear more stories to help in some way. Good luck, positive thoughts, faith, and prayers to all of you brave wonderful women.

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      anonymous 5 years ago

      Soo... today was my first vaginal u/s im 6 weeks 5 days..learned that my babies sac is 4mm and this is not good...yes, im worried as hell...grateful though for this one site that has made me a little bit more at ease..I go back for another u/s in 3 wks and im praying for superb results. Many thanks for this support system!!

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      anonymous 6 years ago

      @anonymous: Don't give up hope. I went at 6.5 weeks and was told sac was empty. I am now 12 weeks and the baby is growing and the heart is beating.... Be hopeful!

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      anonymous 6 years ago

      Really dont understand... on the 12/7/11 I took a home PT test 5 days after my LMP was due but never showed, my last actual LMP was on the 6/6/11. to find a positive result :) on the 12/07/11 I was so happy but also shocked on the 18th July I took a Clearblue PT test that confirmed I was 3+ on the 31/7/11 I started spotting just like old blood (brown) this being when I should have been what I thought was 8wks being on holiday I took myself to the local hospital, they had me in there 4 hours and did nothing apart from tell me to contact my Midwife the next morning 1/08/11 so I did where she managed to get me booked in for a U/S on the 3/08/11 the u/s tech finding a empty sac that measured 5 1/2 weeks her telling me that it may be too early and to come back on the 11/08/11 Thursday just gone where again her doing both the tummy scan and the internal scan where again the sac was only detected but that it had grown to 6 1/2 weeks my heart sank to see there was nothing there for the second time and the only words she had said is that she is not giving me faults hope :( not sure what she was trying to tell me... but I walked away giving up all hope that I had left within me then I found the Misdiagnosis Miscarriage site later that evening where I found so many familiar stories of many other women that has given me hope again. I am due to go back for a U/S on the 1/09/11 which will make me 9 1/2 weeks. In the meantime I have booked in to have my HCG levels taken on the 22/08/11 I am very scared and not sure of what to think anymore I just dont want to give up this hope again that I have regained

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      anonymous 6 years ago

      @anonymous: Went to doc today baby is growing perfectly!! Hearbeat strong. I am 10 weeks 2 days. The yolk sac measured 4.5 today so it decreased in size. Feeling cautiously optimistic..........

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      anonymous 6 years ago

      This site has been very hopeful. I was diagnosed with a blighted ovum on 7/6/11. The dr. had me scheduled for a D&C for 7/22. I agreed to D&C but requested Ultasound to confirm diagnosis. On 7/20 they found a fetus, yolk sac, and strong heartbeat. The doctor was shocked and said nothing like this had ever happened before. However they also discovered the yolk sace was enlarged. On 7/20 it measured 5.4 on 7/29 measured 7.2. He has warned me I have an extremely high risk of miscarriage or "Chromosomal Abonormalities". I am ten weeks pregnant today. I am wondering if anyone knows when the risk of miscarriage goes down with an enlarged yolk sac. I have switched doctors and have an appointment on Friday but I thought I would see if anyone has had similar experience and carried baby to term?

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      anonymous 6 years ago

      I went in at 10.5 weeks and wasn't told much other than I had an enlarged yolk sac. I went back in last Thursday when I was 14.5 weeks and was told that all worries from the first ultrasound were now no longer. They didn't expect my baby to make it this far but thank god they didn't tell me that. Everything appears to be fine as of now. I go back in September 1st for my mid-term ultrasound. I will let you know how everything goes from there but so far we're doing just fine! :)

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      anonymous 6 years ago

      @anonymous: My doctor spent, at most, 1 minute, on my transvaginal ultrasound. And it seemed like she was rushing. This was yesterday, 11/01/10. Tomorrow, I'm getting at 2nd opinion from a different doctor.

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      anonymous 6 years ago

      Thank you for sharing your stories of hope! The 1st day of my LMP was 09/13/10. So yesterday, makes 7 weeks (11/01/10). I had gone to the doctor's for the 1st time yesterday to confirm the pregnancy. She said that I have an enlarged yolk sac and that I have a 90% chance of miscarriage. She said to come back in 2 weeks to confirm and to discuss whether I want to miscarry naturally or D&C (which I read is to scrape it out). I cried all afternoon and night and just stayed in bed. This morning, I found the misdiagnosed miscarriage site and it gave me hope. This site especially gave me MUCH hope, and we're believing by faith that God will do the miraculous and the impossible. Thanks so much for sharing your wonderful strories. My husband and I are very encouraged!Also, I am seeing a different doctor tomorrow for a 2nd opinion.

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      VereniceZamora 6 years ago

      @anonymous: I'm so sorry to hear that. =( God only knows what He's got planned in our lives. And only if I could take that to hear too I'd be a little better too. This is tough. Sometimes I don't understand why these things happen. I will be praying for you.

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      anonymous 6 years ago

      @anonymous: i would have been 11 weeks tomorrow. I had no symptoms of miscarriage when I went in yesterday but the heartbeat stopped. I know everyone is different. I hope you can post happy news soon.

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      anonymous 6 years ago

      @VereniceZamora: I am so sorry you are going through this. I wish I knew what to say. I had my appointment yesterday and am sad to report they couldn't find a heartbeat. It's been an awful 2 days - AWFUL. There are a lot of support sites out there though and I've found them helpful. I truly wish you good news about your baby. I know how badly the desire is to grow and strong and healthy baby and how painful it is to get upsetting news.

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      VereniceZamora 6 years ago

      @anonymous: I just got my results in for my first trimester screening. and they came back abnormal. Completely devastated. The nurse said it didn't necessarily mean down syndrome, but that I need to take a Level 2 ultra sound so that I can find out what's wrong. How did your appointment go on 9/7?

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      VereniceZamora 6 years ago

      @anonymous: I just got my results in for my first trimester screening. and they came back abnormal. Completely devastated. The nurse said it didn't necessarily mean down syndrome, but that I need to take a Level 2 ultra sound so that I can find out what's wrong. How did your appointment go on 9/7?

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      anonymous 6 years ago

      @anonymous: Hi Verenice. I'm 9 weeks and my yolk sac is 10mm. I'm worried and praying everyday, all day. Sounds like we are in similar situation. I have opted for CVS testing which is scheduled for 9/7. Do you plan to test?

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      anonymous 6 years ago

      My yolk sac is 11mm. How long does it take before one miscarriages? I know there's still hope. Just kinda wondering. =( I am 11 weeks.

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      anonymous 7 years ago

      @anonymous: Thank you Tara for your story! I am 6.3 weeks pregnant and just found out yesterday that I have an enlarged yoke sac. (9cm) I go back in two weeks for another US and i am soo worried that something is going to go wrong with this baby. but your story gives me such hope that everything is going to be ok. there is not much info out there that is positive so it was nice to hear a success story. I have a almost 2 year old girl now and had so many issues with her that are different from what Im experiencing now. When I found out about being pregnant this time I was so hopeful not to carry those issues on to this pregnancy and here I have a whole new set of worries. I just pray that everything will turns out just fine!

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      anonymous 7 years ago

      @anonymous: same situation here. I think reading stuff on the internet kind of prepares you but in times of stress, they make you worry more. knowing is ok, it reduces pain from finding out things later BUT, its good to know that, Doctors make mistakes too, machines are machines. We know our bodies more than anyone or anything knows. Worrying doesnt help at all. I believe my baby is not coming out until its time for her or him to.

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      anonymous 7 years ago

      HELLO, I AM SO CONFUSED. I WENT FOR MY 1ST ULTRASOUND AT 4 1/2 WEEKS AND THEY SAID NORMAL SO FAR. WENT FOR ANOTHER THE FOLLOWING WEEK AND SAW THE FETAL POLE. ONE WEEK LATER DR SAYS FETAL POLE IS GONE, NO BABY, NO HEARTBEAT. ACCORDING TO CONCEPTION DATE (ADDING THE TWO WEEKS) I WOULD BE 7 WKS 4 DAYS AT LAST ULTRASOUND. DR SAYS NO CHANCE THE PRGNANCY WILL CONTINUE FULL TERM. SAYS I WILL DEFINATLEY MISCARRY. MY HCG LEVELS WERE 997 TWO WEEKS AGO AND THEY ARE ONLY 3852 NOW. I DON'T BELIEVE THIS DR. HE SPENT 2 MIN ON MY U/S AND LOOKED AT DIAGNOSES OF LAST ONE (NOT EVEN PICS). I FEEL GREAT, NO SYMPTOMS OF A LOSS JUST FEELING TIRED, HUNGRY, AND VERY SORE IN THE BREAST AREA. I WILL NOT ACCEPT THIS DIAGNOSES, I AM GOING TO HAVE A HEALTHY BABY, I JUST KNOW IT. ANY WORDS OF ENCOURAGMENT? WHEN I ASKED HIM THE TECHNICAL TERM HE SAID "THREATENED MISCARRIAGE" THAT'S STUPID! THE "THREAT OF" DOES NOT IMPLY DEVISTATION, DOES IT?

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      anonymous 7 years ago

      My husband and I have been trying for a child for 6 years. We are on our second Reproductive Endocrinolgist and just found out we are pregnant for the first time 6 weeks ago. I couldn't belive it... then I found out at our first ultrasound that the doctor was concerned about the size of the yolk sac and the slow growth. We went back for our second ultrasound and heard the heartbeat (144). The doctor became even more grim and said he only gives us a 1 in 5 chance on this pregnancy continuing and that we should look into genetic testing if it does continue. My husband and I are so upset and are preapring for the worst... In my search for understanding this situation I came across your website... it's the only hopeful information we've found. Thank you - it's not over yet. I've got a strong heartbeat and we still are hoping for the best!

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      anonymous 7 years ago

      Thank you, Thank you, THANK YOU for this! My doctor had told me I had a large yolk sac but also told me not to worry. Of course I did and everything I read on the internet just made things worse. I was crying and getting worked up even though I had seen the baby at my 11 week ultrasound and heard the heart beat at my 14 week ultrasound. After thinking I was "out of the clear" when i had no yet had a miscarriage and continued to reaserach and found that abnormalities are usually present. This sent me again, over the edge but after reading the "success" stories I feel much better about my situation and I now feel i am able to enjoy my pregnancy with little worry. Thank you again.

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      Mihaela Vrban 8 years ago from Croatia

      This is very helpful lens! Both me and my sister had miscarriages and tried to find reasons. All test were just fine. Maybe we should have looked a little deeper! Blessing to you for this informative lens!

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      anonymous 8 years ago

      Thank you so much for posting all of this amazing information including our success stories. When I first found out I had an enlarged yolk sac I was unable to find any information that would lead me to believe my baby would be alright. Finding your site and reading the stories shared by others in my position and hearing about their positive out comes gave me the strength I needed to fight for this pregnancy and believe I would have a healthy pregnancy/baby. Thank you so much for all you have done. Tara(enlarged yolk sac survivor - 22 weeks a long with a healthy baby boy!)