Put On Purple to Support Lupus Awareness
“Lupus is one of the cruelest, most mysterious diseases on earth—an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It is difficult to diagnose, hard to live with, and a challenge to treat.”
to quote The Lupus Foundation of America , who is working to raise awareness and fight to end lupus.
The word Lupus is late 16th Century Latin for Wolf
A thirteenth century physician first used the term lupus to describe the lesions caused by the autoimmune disorder. He felt the damaged skin or lesions had characteristics matching that of a wolfs bite. Lupus can affect any one and today approximately 5 million people live with the affects of the autoimmune disorder. For every ten people diagnosed with lupus nine of them are women. According to statistics on the site Cure For Lupus dot org ; 61% were unaware of lupus and its effects of the people in a poll of 1000 people nation wide.
Hidden From View and Undefined
Lupus is an Autoimmune Disorder
Auto means self - as a autoimmune diseases lupus confuses the immune system in to treating healthy tissues like antigens. A healthy immune system attacks and destroys antigens which are toxins like bacteria & viruses. An autoimmune system allows the white blood cells to attack and destroy tissue that would normally go unnoticed. Lupus is not air born like the flu nor contagious in any way. In fact it is unknown what causes the disorder as well as how to cure it. The effects of lupus can be life thearting and they can be mild and manageable with a healthy life style and proper treatment.
There are many kinds of lupus
Four main types of the auto immune disorder Lupus
- Discoid lupus erythematosus (DLE); Face,ears and scalp lesions and sore discoloration of skin in some areas
- Drug-induced lupus erythematosus (DIL or DILE) long term use of certain drugs cause an autoimmune response usually after discontinuing use of the long term drug
- Neonatal Lupusccurrence of SLE symptoms in an infant born
- Systemic lupus erythematosus, or (SLE)affects many parts of the body and generally is what we refer to when saying lupus. With SLE the word systematic references the effects this form of the disorder has on the entire body inside and out.
Common Symptoms of Lupus
- Pain or swelling in joints
- Muscle pain
- Fever with no known cause
- Red rashes, most often on the face
- Chest pain when taking a deep breath
- Hair loss
- Pale or purple fingers or toes
- Sensitivity to the sun
- Swelling in legs or around eyes
- Mouth ulcers
- Swollen glands
- Feeling very tired.
Have you Heard of Lupus
Have You Heard Of Lupus?
Chronic Illness that Mimics and Flares
According to the National Institutes of Health a cure for lupus is not yet been found although through research today there are treatments to offer. Lupus has a tendency to flare up and then go back into remission so learning what makes your lupus flare and what helps you if you have one is highly important to over all stability.
Environmental Flare Triggers....
Researchers speculate on common environmental flare triggers. Photosynthesis is said to be a substantial cause of burden for those suffering from lupus. Not just affected by the sun but any ultra violet light will not only act as a flare trigger but also cause lesions. Stress of any kind both mental or physical should be avidly avoided. A support system compiled of friends family and health care providers will aide in the ease of the life style adjustments.
Effects of living with LupusClick thumbnail to view full-size
In Loving Memory Of ELIZABETH ANNE BAKER MOHR 1980-2009
A Personal Note + Helpful Links
For questions about Lupus or Autoimmune disorders & for further information
- Lupus Foundation of America (LFA)
- SLE Lupus Foundation
- National Institutes of Health (NIH)
- American Autoimmune-Related Diseases Association, Inc. (AARDA)
I have seen the effects it has a someone first hand and before watching what the disorder is capable of, I had no idea Lupus existed..Learning what I have through these plus other resources has helped to understand some things with Lupus that made little sense. If I had known a few things about Lupus, I think I could have been more helpful with Liz...
Print out,make notes 4 your Doctor. Put a check mark beside the symptoms you have. Note when /how often you have them, as well as approx. date of first noticed.
When did you first notice?
8 Months aprox
Red rash or color change
Sores in mouth or nose
Sensitivity to the sun
Feeling very tired
Trouble thinking, memory problems, confusion
Painful or swollen joints
Pale or purple fingers or toes
Unusual hair loss
Chest pain with deep breathing
© 2013 sprickita