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Put On Purple to Support Lupus Awareness

Updated on January 3, 2016

Lupus.Org

“Lupus is one of the cruelest, most mysterious diseases on earth—an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It is difficult to diagnose, hard to live with, and a challenge to treat.”

to quote The Lupus Foundation of America , who is working to raise awareness and fight to end lupus.

The word Lupus is late 16th Century Latin for Wolf

A thirteenth century physician first used the term lupus to describe the lesions caused by the autoimmune disorder. He felt the damaged skin or lesions had characteristics matching that of a wolfs bite. Lupus can affect any one and today approximately 5 million people live with the affects of the autoimmune disorder. For every ten people diagnosed with lupus nine of them are women. According to statistics on the site Cure For Lupus dot org ; 61% were unaware of lupus and its effects of the people in a poll of 1000 people nation wide.

Hidden From View and Undefined

Lupus is an Autoimmune Disorder

Auto means self - as a autoimmune diseases lupus confuses the immune system in to treating healthy tissues like antigens. A healthy immune system attacks and destroys antigens which are toxins like bacteria & viruses. An autoimmune system allows the white blood cells to attack and destroy tissue that would normally go unnoticed. Lupus is not air born like the flu nor contagious in any way. In fact it is unknown what causes the disorder as well as how to cure it. The effects of lupus can be life thearting and they can be mild and manageable with a healthy life style and proper treatment.

There are many kinds of lupus

Four main types of the auto immune disorder Lupus

  • Discoid lupus erythematosus (DLE); Face,ears and scalp lesions and sore discoloration of skin in some areas
  • Drug-induced lupus erythematosus (DIL or DILE) long term use of certain drugs cause an autoimmune response usually after discontinuing use of the long term drug
  • Neonatal Lupusccurrence of SLE symptoms in an infant born
  • Systemic lupus erythematosus, or (SLE)affects many parts of the body and generally is what we refer to when saying lupus. With SLE the word systematic references the effects this form of the disorder has on the entire body inside and out.

Source

Common Symptoms of Lupus

  • Pain or swelling in joints
  • Muscle pain
  • Fever with no known cause
  • Red rashes, most often on the face
  • Chest pain when taking a deep breath
  • Hair loss
  • Pale or purple fingers or toes
  • Sensitivity to the sun
  • Swelling in legs or around eyes
  • Mouth ulcers
  • Swollen glands
  • Feeling very tired.

Have you Heard of Lupus

Have You Heard Of Lupus?

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Chronic Illness that Mimics and Flares

According to the National Institutes of Health a cure for lupus is not yet been found although through research today there are treatments to offer. Lupus has a tendency to flare up and then go back into remission so learning what makes your lupus flare and what helps you if you have one is highly important to over all stability.

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Environmental Flare Triggers....

Researchers speculate on common environmental flare triggers. Photosynthesis is said to be a substantial cause of burden for those suffering from lupus. Not just affected by the sun but any ultra violet light will not only act as a flare trigger but also cause lesions. Stress of any kind both mental or physical should be avidly avoided. A support system compiled of friends family and health care providers will aide in the ease of the life style adjustments.

Effects of living with Lupus

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In Loving Memory Of ELIZABETH ANNE BAKER MOHR 1980-2009

A Personal Note + Helpful Links
For questions about Lupus or Autoimmune disorders & for further information

I have seen the effects it has a someone first hand and before watching what the disorder is capable of, I had no idea Lupus existed..Learning what I have through these plus other resources has helped to understand some things with Lupus that made little sense. If I had known a few things about Lupus, I think I could have been more helpful with Liz...

Print out,make notes 4 your Doctor. Put a check mark beside the symptoms you have. Note when /how often you have them, as well as approx. date of first noticed.

Symptom
Where?
When did you first notice?
How often?
Date
EXAMPLE: X
Wrist
8 Months aprox
Once
11/11/11
Red rash or color change
 
 
 
 
Sores in mouth or nose
 
 
 
 
Sensitivity to the sun
 
 
 
 
Feeling very tired
 
 
 
 
Trouble thinking, memory problems, confusion
 
 
 
 
Painful or swollen joints
 
 
 
 
Pale or purple fingers or toes
 
 
 
 
Unusual hair loss
 
 
 
 
Chest pain with deep breathing
 
 
 
 
Adapted from National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). U.S. Department of Health and Human Services, Women’s Health On Hub Pages Via Sprickita

© 2013 sprickita

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    • profile image

      Alfredoo 2 years ago

      As a student about to start an aioamtnin degree with the goal of specialising in hand drawn aioamtnin, this has made my day! I'm very excited to see this, and I look forward to hearing of future traditional aioamtnin projects from Lupus

    • Writer Fox profile image

      Writer Fox 3 years ago from the wadi near the little river

      I had a coworker with Lupus. It's truly a mystery disease. I'm glad you are bringing awareness.

    • sprickita profile image
      Author

      sprickita 4 years ago from Reno

      Best of luck to your friend,

      God Bless all the Lupus Warriors & Thank Heavens 4 Friends that are Supporters U Rock! 8-)

    • Minnetonka Twin profile image

      Linda Rogers 4 years ago from Minnesota

      Thanks for sharing this informative and important hub on lupus. I have heard of it and know a few people that have it. One of my friends sister's found out at age 22 that she had it. She had her gallbladder removed soon after she was diagnosed. As far as I know, she has it under control these days and knows what causes flare ups. Keep spreading the word on Lupus and educating others.

    • kidscrafts profile image

      kidscrafts 4 years ago from Ottawa, Canada

      Great article about lupus! I have heard of it and I hope that each break through more people can be helped!

      I am sorry about the loss of your friend Liz. Because you wrote this article some people will benefit of the information! That's very positive!

      Have a nice weekend!

    • sprickita profile image
      Author

      sprickita 4 years ago from Reno

      I am sorry for your suffering as well as your aunts, Thank You for commenting and I hope that the recent break thorough are of some relief to you and yours. Liz lived with the problem long before it had been diagnosed although her doctors were pretty quick to catch it at the time they did with hardly any notion of the horrible illness called lupus but she had an outstanding support system praise god, I miss her terribly every day and brings tears to my eyes still just to say her name, Her mother and mine had been bffs so naturally Elizabeth and my self were quick to follow suite.... When I say she was my bff I really mean it 8-( god bless you and happy health(as possible)and ty

    • FlourishAnyway profile image

      FlourishAnyway 4 years ago from USA

      So sorry about your friend, Liz. My aunt has both Lupus and RA, and I have MS. Autoimmune diseases are very difficult illnesses, especially because "you look so well." This is a good hub and will serve to raise much needed awareness. Hugs to you.

    • billybuc profile image

      Bill Holland 4 years ago from Olympia, WA

      I have of course heard of lupus but knew very little about it until this fine article. Thank you for the information. Keep raising awareness one person at a time.