The Rayni Pledge - The Inspiration
Rayni was known for giving things away. When she was going to visit with someone, she wanted to take them something. Often, it was a doll out of her room or a basket of treats and small items she gathered from around the house. When my mom and I were cleaning out our flea market booth after Rayni passed, there were two of her barbies there. Two little girls were looking at the barbies, but didn't buy them. I saw them again before we left and I gave them each one. I wanted so badly to tell their mother who they were really from - my daughter, Rayni - and how that's exactly what she would have done if she had been there that day. But, I didn't want to talk about loosing a child in front of those little girls. It was then, I was sure, I needed some sort of card to hand out to tell people about Rayni, to tell them why I was doing something nice, to thank them for doing something nice, or just to share the joy of my child. I knew the card needed a picture and something about giving. I thought maybe it needed to have a bible verse. But, I couldn't decide exactly what to put on the card. Then....on November 26th, one of Rayni's Miracle Club friends wrote on his caringbridge page about Rayni and he came up with a Rayni Pledge. The minute I read it, I knew, that was what was going on the cards.
Christopher's "Ode to a Dear Friend"
The following is the entry Christopher made in his caringbridge. With his permission, I am posting it here and using it as the inspiration for The Rayni Pledge cards. Christopher is Rayni's age, suffers from a very serious life-threatening illness and is in Rayni Day Miracles Miracle Club.
A Ode to a Dear Friend
Nov 29, 2012 8:28 PM
2 Timothy 4:7-8
I have fought the good fight, I have finished the race, I have kept the
faith. Now there is in store for me the
crown of righteousness, which the Lord, the righteous Judge, will award to me
on that day – and not only to me, but also to all who have longed for his
When one loses a friend, one searches for the words to
express one’s grief. I have never
thought of myself as being someone that couldn’t find words to express myself,
but I have been at a complete loss of words to explain the heartache I feel
since losing my friend.
Most people think that I should be able to get through this
quickly, but what most people don’t know is that Rayni and I shared so many
similarities in our disease, our treatments, our struggles with our health, our
families, but even more importantly our faith.
We were both very aware and concerned with our mortality. We both had/have major health decisions to
make, and we tried/try to make the best decisions for us.
When mom told me that Rayni had passed, I grieved not only
for my friend, her mother, her family but also for myself. I know that sounds really selfish, but I hope
I can find the right words to explain why.
Rayni was someone I could look to for inspiration. She was constantly defying the odds,
resilient. She was audacious. She was nonjudgmental and wise beyond her
years. BUT she was young. She was full of life. And like me her life was limited by her
constant fight with her disease. It is
hard to explain to someone who hasn’t walked in our shoes how it is to be in a constant
state of war with your own body and remain positive at all times.
I sit here with the regret that I was a “stupid” boy. All my friend wanted was to paint my
fingernails. It took her death for me to
realize how “stupid” I was being. I have
heard from so many how they liked my painted rainbow colored fingernails at the
funeral. But why did it take a funeral
to get me to get over my “MALE” self? I
am not looking for condolences about this situation. I know Rayni got a good laugh in heaven over
my fingernails. I want this to be a
lesson to all, not just a lesson I learned.
Live in the moment! If there is
one thing Rayni would want everyone to do is LIVE IN THE MOMENT!
So I ask you to take the Rayni Pledge (as I have decided to
1. LIVE IN THE MOMENT
2. Do something daily to help someone
3. Fully Rely On God
4. Give a hug to all
5. Tell those that mean the most to you
how much you love them
6. Say your prayers
Rayni left a legacy behind with her foundations Rayni Day
Miracles. I hope to help keep her memory
alive through the mission of Rayni Day Miracles.
The Rayni Pledge Card
The Rayni Pledge
As you see, 4 items have been added to Christopher's 6 to make final The Rayni Pledge. I want to thank Christopher for writing and sharing about Rayni what I couldn't put into words and for inspiring The Rayni Pledge cards that are now being handed out by her family and friends. It gives us all pleasure sharing her with others and having a way to keep her memories alive.
- by Michelle, Rayni's Mom