Cluster Headaches
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Cluster headache is the most dramatically painful of all known headache types. They are also known as suicide headaches due to the high rate of suicide among sufferers. If you, or some one you love is affected by clusters, your know first hand how this painful affliction is debilitating and life altering.
What is a Cluster Headache?
A cluster headache is characterised by pain exclusively on one side of the head, behind and around the eye socket and at the temple. It is described by sufferers as feeling like a red hot poker jabbing through the eye with immense force.
It lasts an average of 45 to 90 minutes, but can be as short as 20 minutes or as long as 3 hours. Patients will often be sleeping and awakened 90 minutes or so into their sleep cycle by the pain. It occurs in clusters, 1 to 3 times a day on average, but can be as many as 10 separate headaches in a 24 hour period.
In 90% of patients, episodic cluster headaches will occur for around 6 weeks with a daily cycle of headaches and can then disappear completely for a year, two years or more.
For the remaining 10%, chronic cluster headaches can continue for years, several times per week.
CLuster Headache on Fox News
Who Suffers From Cluster Headache?
The typical sufferers are men in their 30's. It affects only .1% of the population. A family history of clusters is uncommon, but a history of other less severe headache will likely may be present.
Migraine headache, by contrast, affects 1 in 5 women and affects women 3 times more often than men.
Cluster headache is far more severe than migraine. A migraine sufferer will typically seek out a dark room to lay down and rest. A cluster sufferer cannot sit still, may pace, and rock and drive their fist into their the painful eye. Some patients will bang their head into a wall.
Is There a Cure?
There is no real cure for cluster headache. There are many treatments, both for preventative measures and pain management. Treatment may work well for some patients for years and then become ineffective. Some patients have difficulty finding a treatment plan that manages their pain enough for them to continue working and living in a relatively normal manner.
Treatment Options: (This is a partial list)
Oxygen: Many doctors use this as the first defense against cluster headaches. The patient will keep an oxygen tankin their home and will breathe pure oxygen for 20 minutes. For some patients this will bring immediate relief.
Triptans: The patient injects themselves with with sumatriptan. This generally stops the pain within 10 minutes. A nasal spray can also be used but the pain relief is slightly slower. The safe dose for either the spray or shot is 2 per day.
This treatment leaves a patient who typically suffers with more than two headaches per day with a problem. Feel the pain? Or take the risk of doing additional harm by taking more than recommended? Taking too much sumatriptan can cause serious heart problems.
Surgical Treatmentt: Surgical treatments are considered a last resort when a patient does not respond to any other treatment because of the high risks involved. Surgery for cluster headache is highly invasive and risky and the results are not yet proven more than 50% positive.
Possible Alternative Treatments:
Some cluster headache patients have found alternative therapies to help with pain management, and reduce the duration of a cycle of cluster headaches. The results will vary. Be certain to find a liscensed practitioner, preferably with some knowledge of cluster headache.
- Biofeedback
- Chiropractic
- Relaxation Techniques
- Acupuncture
- Massage Therapy / Trigger Point Massage
- Cranial Sacral Therapy
Knowing the Pain is Coming
Support for Cluster Headache Patients and Families
Support is essential for anyone suffering from cluster headaches. Their lives are affected profoundly and daily by unbearable pain. To understand, watch the video on the right. If someone you love has clusters, understand their struggle. Do what you can to help them get through each cycle. Help them to manage the details of the rest of their life during a headache cycle. Be familiar with the danger signs of depression, because it often accompanies chronic pain. Know when to seek professional help. Find a support group for patients and / or for families dealing with this incredibly unique and painful situation.
It is important for family and friends to understand that cluster headaches are not migraines. Cluster headaches are unlike even the worst migraine or the constant pain of New Daily Persistent Headache. If someone you know is suffering, please try to be patient and supportive of them.
More Information on Cluster Headaches
Books About Cluster Headache
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Cluster Headaches: Treatment and Relief for Cluster, Cluster Migraine, and Recurring Eyestab Pain
Price: $5.22
List Price: $9.95 |
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Headache Free: A Personalized Program to Stop Migraine, Cluster, Sinus, Tension, Menstrual, and Rebound Headaches
Price: $2.72
List Price: $6.99 |
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Sinol "All Natural" Headache Nasal Spray with capsaicin. This new pain reliever is being used by migraine and cluster headache clinics. Relief medicine that works.
Price: $18.10
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Native Remedies MiGone Plus and PureCalm ComboPack
Price: $35.24
List Price: $53.90 |
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Comments
Hi MSMS, thanks for reading and commenting.
Unfortunately, there is no permanent cure. Even the extremely risky surgeries are not successful all the time. This is a personal story for me, because my brother has suffered from clusters for 20 years. He has tried every possible drug and treatment, but nothing seems to work long term. All of the medications used can cause other serious health problems as well. It is hard to comprehend the kind of pain they suffer. I have witnessed it first hand, and it is heartbreaking to see someone you love suffer like this, several times a day, for years.
There is also very little information as to what causes clusters. There are only statistics as to what type of person gets them. It may or may not be genetic. There is conflicting information on that.
A strong headache makes me really useless. Luckily, I managed to get rid of constant headaches by some very useful and working tips and tricks of Dr.Richard Bandler and Dr.John Grinder, who are fathers of NLP and NLPII.
Thank you for commenting, Ervin. That is definately a headache solution worth looking into. :)
I started having cluster headackes about a year ago and they lasted 6 months and just suddenly stopped. About a week ago they began again and I was wondering what kind of medications worked for everyone and how long they helpped before not working all together. I was on Fioricet and percocet when I first started getting them and requested that medication again but it doesn't seem to help at all anymore but my new doctor refused to take me seriously and wont give me the percocet. Does this mean that the only thing that will help is narcodics? If anyone can help PLEASE respond. I can't take this pain for much longer
Hi Mandy - I am just seeing this now and I apoplgize for not getting back to you sooner. Do you see a doctoor who specializes in treating clusters? If not, I would encourage you to seek out a neurologist who takes them seriously and understands the pain better.
My brother has suffered from clusters for 20 years, and has tried everything - there are definitely options other than narcotics. Usually, the pattern that he has experienced again and again is that a medication will work, he will be pain free for months and months and then the medication stops working and he has to try something new.
I know that he has tried verapimil (works well) (spelling is probably wrong on these) topomax (didn't help), lithium (worked for close to a year). Those were used a preventatives. He had an oxygen tank for awhile until that stopped working. Usually, he can stop the pain with an injection of Imitrex or the nasal spray works as well for some people.
Please email me directly (click on contact amy jane up under my picture) if you want some more suggestions /recommendations - I would be happy to help in any way I can.












msms says:
2 years ago
What could be the causes of Cluster Pain?
Your writing is helpful to know about the condition and fate of pain-sufferer but it seems there is permanent cure. Is it?