I'm visiting a doctor for my Lupus in May. Advice from those with the disease?
I've been going downhill lately and finally found a doctor in my area that can help me. Any advice from others with Lupus and RA on what questions to ask? What pain killers are best? Nausea medication? Would love advice on that first visit!
Hmmm, your first visit with this doc. I'll write the questions I'd ask him and you see if they 'fitL'
1) make a list of those questions that you just put down and print it so you'll have something to go by. I'd print it in bold and a large type font; nothing worse than wanting to ask a question and not being able to see what it is, so it DOESN'T get asked
2) start NOW making that list, and whenever you think of "gee, I'd like to know....." WRITE IT DOWN.
3)Pain medications. That's a good one and depends on the cause of the pain. If you can avoid it (and ONLY) if you can avoid it, steer clear of narcotic analgesics, but the doc may think that's what is indicated. Antidepressants are good for some pain and anti-seizure medications (depakene, tegretol, neuron tin) are good fot other kinds of pain. I've been helped by kenalog injections. (a steroid which I normally wouldn't be taking, but my rheumatologist told me why-and I promptly forgot!-why that was preferable to a steroid dose pan. plaque nil is another med to ask him if you ought to be one
4)nausea: I'll have to leave that one to someone else. I've not experienced nausea
5)history-keep it brief, but he MUST know this history of your disease.
6) take a friend with you (especially first visits when you've a lot of questions) to remember what the doc said in response to your questions-or your friend can write them down.
7) when you say you're 'going downhill', be very clear in your explanation of WHAT isn't working right and what is going downhill. Things like 'my muscles are so weak that I can't dress myself, or they're so week that it takes my 'x' minutes to dress. Or , this is the assistive equipment that I use: walker, cane, etc. Best, Annie BTW, This will be your first visit with this doc, he can either be a partner in your care in which you'll do better, or he can call the 'shots' and you'll be the 'patient.' I'm a nurse and see that when patients form PARTNERSHIPS with their docs, their docs are more respectful of input from them and they 'do' better.
Thank you. I don't have anyone to take with me so I will print out all of my questions.
Julie, if there's no one to take with you, that's ok. But make sure the doc knows you have some questions to ask at some point and make the print of those questions BIG so you can easily read them. 'Breaking in' a new doc isn't fun and I wish u luck!
by livingwithbipolar4 years ago
I used to be a healthy person, this fibromyalgia is a pain (LITERALLY). What I want to discuss is, is that why aren't more doctors knowledgeable and Empathetic about this disease? My question is, why in the hell would I...
by Aiysha Jebali8 years ago
Hello there. I am currently volunteering in India. I really need some help as I am not sure about what I have been told regarding my health problems from various doctors.My skin has been turning yellow over the last...
by Karli Duran8 years ago
Are doctors stereotyping innocent anxiety and pain victims because of their own personal beliefs or false judgments of what a "drug addict" is? Have you ever been denied a controlled substance you really...
by ambassadornchains5 years ago
If you know about arthritis, is it worth it to go to the doctor to have it diagnosed?Specifically early-onset arthritis. Are there specific prescriptions available? I have had chronic pain for years. ...
by Becki Rizzuti3 years ago
For the past week and a half or so, one person has asked a lot of questions on my How to Tell if You're Pregnant hub (on my Pregnancy Now hubpages account). I take a lot of time out of my day to answer pregnancy-related...
by L a d y f a c e7 years ago
I've been on Lithium and Wellbutrin xl for a little under two years now, and I want so badly to be off of them both. Contrary to what some people experience, I've been losing weight since I started taking them. I lost...
Copyright © 2018 HubPages Inc. and respective owners.
Other product and company names shown may be trademarks of their respective owners.
HubPages® is a registered Service Mark of HubPages, Inc.
HubPages and Hubbers (authors) may earn revenue on this page based on affiliate relationships and advertisements with partners including Amazon, Google, and others.