For the love of you

Raising a child with seizure disorder can be challenging at times if there is no support. But with a good support system made up with loving family members and friends it can become blessing to everyone. As a single parent of a child who suffered from grandmal seizure disorder it wasn't always easy. My child had her first seizure at the age of 3 months but later detected as a seizure until she was 11 months. This was challenging for me because I did not know what to do. I first saw that my daughter began to stare off into space for periods of time. I was still living at home with my mother who was a former nurse when this happen. My mother was able to recognize that she was seizing and called for medical attention. Through several different episodes of watching her stare into space and her body going limp, I had to learn to remain calm through it all. It wasn't always easy watching my baby going through it but I had to be strong for her as well as myself. My daughter received excellent care from the Neurology Department in Children Hospital of Philadelphia. Their I met with a team of physicans who cared for the well being of my child and our family. They constantly worked close with us developing a care system that would benefit my child care in and out of the hospital setting. With the help from CHOP my daughter received care from several other oragnization such as Child Link, Elwyn , the Epilepsy Foundation. Now my daughter she is currently seizure free and has been for the past 3 years. I am thankful for God blessing my child, me and our family as well as sending good peopl to us during a trying time. This was truely a blessing!

Helpful Resources

Info On Seizures

Epilepsy- A parent's guide/ Epilepsy Action www.epilepsy.org

Seizures - Overview - Clinical Health Topics - Children's Hospital www.childrenshospital.org

Epilepsy Foundation - Individual and Family Services www.old.epilepsyfoundation.org