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For the love of you

Updated on September 1, 2011
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For the love of you

Raising a child with seizure disorder can be challenging at times if there is no support. But with a good support system made up with loving family members and friends it can become blessing to everyone. As a single parent of a child who suffered from grandmal seizure disorder it wasn't always easy. My child had her first seizure at the age of 3 months but later detected as a seizure until she was 11 months. This was challenging for me because I did not know what to do. I first saw that my daughter began to stare off into space for periods of time. I was still living at home with my mother who was a former nurse when this happen. My mother was able to recognize that she was seizing and called for medical attention. Through several different episodes of watching her stare into space and her body going limp, I had to learn to remain calm through it all. It wasn't always easy watching my baby going through it but I had to be strong for her as well as myself. My daughter received excellent care from the Neurology Department in Children Hospital of Philadelphia. Their I met with a team of physicans who cared for the well being of my child and our family. They constantly worked close with us developing a care system that would benefit my child care in and out of the hospital setting. With the help from CHOP my daughter received care from several other oragnization such as Child Link, Elwyn , the Epilepsy Foundation. Now my daughter she is currently seizure free and has been for the past 3 years. I am thankful for God blessing my child, me and our family as well as sending good peopl to us during a trying time. This was truely a blessing!

Helpful Resources

Info On Seizures

Epilepsy- A parent's guide/ Epilepsy Action www.epilepsy.org

Seizures - Overview - Clinical Health Topics - Children's Hospital www.childrenshospital.org

Epilepsy Foundation - Individual and Family Services www.old.epilepsyfoundation.org


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    • Lyrickkw profile imageAUTHOR

      Lyrickkw 

      6 years ago from PHILADELPHIA

      Thany you again for your comments! You are right my daughter is truely a blessing. I am glad that she has healed from seizures and now able to live a normal life with her being sick. Thank you for your support.

    • lyns profile image

      lyns 

      6 years ago from USA

      Thanks so much for sharing this story, I truly enjoyed reading it, thankful your daughter has been healed as well, truly your family has been blessed, I look forward to reading more of your writings as well

    • Lyrickkw profile imageAUTHOR

      Lyrickkw 

      7 years ago from PHILADELPHIA

      Thank you!

    • Darknlovely3436 profile image

      Annie 

      7 years ago from NewYork

      nice hub

    • Lyrickkw profile imageAUTHOR

      Lyrickkw 

      7 years ago from PHILADELPHIA

      Thank you! I am glad Lee is much better now and i continue to strive to give her the very best in life! Lee Lee mommy loves you always!

    • profile image

      Dee 

      7 years ago

      I know the pain cause I was there to feel it with you. Glad it's over!

    • Lyrickkw profile imageAUTHOR

      Lyrickkw 

      7 years ago from PHILADELPHIA

      Thank you for your comment and support! I am happy that my daughter is now seizure free and able to live a normal life!

    • profile image

      Kawana B 

      7 years ago

      This is a really powerful message ..it can be a testimony to someone else ...nice!

    • Lyrickkw profile imageAUTHOR

      Lyrickkw 

      7 years ago from PHILADELPHIA

      Thank you! I know how you must felt. When I first saw my daughter have a seizure I thought I would die and it broke my heart to watch her. I am her mom and there was nothing I could do about it. It was very scary.Through it all I learned that I had to remain calm because freaking out wouldn't help the situation get better. I am glad it is over and she can finally live a normal life. I am glad to hear that your wife is better as well.

    • rjsadowski profile image

      rjsadowski 

      7 years ago

      Thanks for sharing. My wife had siezures but with medication, she is now siezure free. It was very scary the first time that it happened. Your daughter is beautiful.

    • goprisca profile image

      goprisca 

      7 years ago from Bangalore

      Nice hub, very interesting to read. Add your comments to mu hubs.

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