ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel
  • »
  • Food and Cooking»
  • Dietary Restrictions»
  • Dietary Restrictions for Health

Celiac Disease and Your Child

Updated on August 11, 2013

My Celiac Girl

My sick girl after eating something she shouldn't have.
My sick girl after eating something she shouldn't have.

Background

My daughter has been diagnosed with Celiac disease. It took 6 years of poking, prodding and misdiagnoses. 6 years of stomach pain, constipation, irritability and worry. 6 years of decayed teeth and bruises that wouldn't go away. To all the parents out there who still don't know why their child tells you they have a tummy ache before eating, after eating, at night, during the day, pretty much all the time, I have one word for you: Research.

My daughter was born with stomach pain, I'm sure of it. She was never a happy baby. She even had an umbilical hernia because of always trying to get rid of the gas and push out the feces. The doctor (a highly respected, book writing doctor by the way) said it was normal and not to worry about it. Needless to say, we did not go back to him.

I took away dairy, it didn't help. I took away sugar and gave her more fiber. It didn't help. I always fed her the best, organic, healthiest food available. It didn't help. When she was old enough to talk, her third sentence was, "Owie belly".

After 11 misdiagnoses and test after test after test, we were still hearing, "Owie belly".

Clue

One day, a new employee started working in my office. She turned down some of the homemade chocolate chip cookies one of the other employees had brought in. We thought it was the calories. Then she explained that she had Celiac disease and couldn't eat them. I asked her what Celiac disease was and how it manifested itself.

Answer

This co-worker explained in great detail how she had had serious stomach pain since she was a child. How no doctor seemed to be able to pinpoint the diagnosis. How one day she was reading a newspaper article about Celiac disease and the light came on. She got tested, she has it. It took her 24 years of pain and depression to find it.

She stopped all wheat in her diet. She stopped all gluten in her diet. Three weeks later, the pain she had lived with her entire life was gone. GONE!

Villi

The Truth

I began the research after that conversation. I looked at every web site known to mankind. I went to the library (an antiquated notion, but sometimes it still happens). The symptoms listed everywhere for Celiac disease were my daughters symptoms. Every one of them. She filled every checklist.

I started crying. I couldn't help myself. Six years of pain. unnecessary pain. My daughter had gone through hell in her short life, but I was coming to the realization that this could now change.

I took her to a specialist. They did the blood test that doesn't always tell for sure if it is negative. If it is positive, then they don't necessarily need to do an intestinal biopsy. The test was positive. Then I was tested. Same result. Celiac can also be hereditary I found out.

The truth is, Celiac disease is pretty much a mystery even now to the medical community. They know it is an auto-immune disease. They know it causes atrophying of the intestinal villi. Villi are the little hair like thingys (scientifically speaking) that help to absorb nutrients. So, if the villi aren't working, the nutrients aren't getting absorbed. This can cause severe problems later in life. Earlier in life too. My daughter has had 4 teeth pulled and has three crowns. No nutrients. She has had bruising that won't go away. No nutrients. I have had lymphoma. Possibly caused by Celiac never being diagnosed.

Help

Now that the sad/bad stuff has been explained, let me explain the good news. It gets better! All that is required is lifelong, total abstaining from gluten. A problem, you say? Not after watching your child go through what I have. Gluten-free foods have come a long way baby! Allow me to expand on that:

Amy's Rice Crust Pizza, Ian's Chicken Nuggets, Arrowhead Mills Mixes, Bob's Red Mill Mixes, Enjoy Life bars and cookies, Ener-G Foods, EnviroKids Cereal, Gluten-Free Pantry Mixes, Glutino crackers, cookies. Kinnikinnick bread, doughnuts, hot dog buns. Namaste mixes., Vans waffles. Even Lay's Classic Potato Chips and Bryers All Natural Ice Creams are gluten free.

I could go on and on, and believe me I have! You can bake your child's cookies and snacks from flour that has no gluten in it. For thickener you can add xanthan gum or an extra egg white. You can use tapioca or potato flour, rice flour, etc. You can combine them for a yummy mix.

Careful

Above all, when you or your child has been accurately (as accurately as they seem to be able to) diagnosed with Celiac disease and you have started your gluten free diet, watch for the nasty gluten hidden everywhere! Check vitamins. Check medicines. Check lip gloss and toothpaste and chapstick. Check all salad dressings and soups. Soy sauce contains gluten. Dextrin, Malt flavoring. Rye and Spelt are no nos. Durum and Graham flour are no nos.

There are web sites on line that sell oats that are not packaged in a factory where they handle wheat. Oats are still iffy anyway, but if you are going to try them, be sure they are not made with the same equipment.

I could go on and on here also, but I won't. I'm going to stop and let you do the rest of the research on your own.

Gluten Free Products

Easy

I'm not saying it is going to be easy. Kids want to be like other kids. They want to eat what other kids eat. Celiac kids do so and their very lives can depend on it.

As I have said, there are plenty of alternatives out there. If they love McDonalds, the ice cream sundaes with strawberry topping is gluten free. Check with the individual places, but the fries are generally gluten free too. Only McDonalds has tested their fries tho, not the other fast food places.

If they love cookies, you can bake em better then they do in the packaged world, trust me. Better!

Keep them on the straight and narrow gluten free diet and they will live a long and pain free life and have you to thank for it.

Comments

    0 of 8192 characters used
    Post Comment

    • SavannahEve profile image
      Author

      SavannahEve 3 years ago from California

      Thank you Kotomi! Having watched my daughter's pain when she accidently gets gluten, I feel like I could write the book on it! I'll work on pictures. Thanks again! :)

    • profile image

      Kotomi 3 years ago

      Its like you read my mind! You appear to know a whole lot about this, like you wrote the book in it or smetohing. I believe which you could do with several pics to drive the message home a bit, but other than that, this really is wonderful weblog. A fantastic read. I

    working

    This website uses cookies

    As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

    For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: "https://hubpages.com/privacy-policy#gdpr"

    Show Details
    Necessary
    HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
    LoginThis is necessary to sign in to the HubPages Service.
    Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
    AkismetThis is used to detect comment spam. (Privacy Policy)
    HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
    HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
    Amazon Web ServicesThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized. (Privacy Policy)
    CloudflareThis is used to quickly and efficiently deliver files such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
    Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
    Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
    PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
    Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
    Features
    Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
    Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
    Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
    Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
    VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
    MavenThis supports the Maven widget and search functionality. (Privacy Policy)
    Marketing
    Google AdSenseThis is an ad network. (Privacy Policy)
    Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
    Index ExchangeThis is an ad network. (Privacy Policy)
    SovrnThis is an ad network. (Privacy Policy)
    Facebook AdsThis is an ad network. (Privacy Policy)
    Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
    AppNexusThis is an ad network. (Privacy Policy)
    OpenxThis is an ad network. (Privacy Policy)
    Rubicon ProjectThis is an ad network. (Privacy Policy)
    TripleLiftThis is an ad network. (Privacy Policy)
    Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
    Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
    Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisements has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
    Statistics
    Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
    ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
    Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)