A very Special Kid
Hello this to a very special kid, and his grand dad who needs a helping hand through the Monsinic lodge in Traverse City Michigan. If you can help as a favor to me you just may save one special little man.
Benefit Spaghetti Dinner & Silent Auction for Jackson Hulett
Saturday, May 21 · 4:00pm - 10:00pm Location Traverse City Masonic Temple 13360 S. West Bay Shore Dr. Traverse City, MI Created By Michael Anderson, Margo Hampel Ackerman, Julie O'Hearn Cox, DeAnne Loll, Amy Hulett Brooks, Joe Hulett, Dianna Hulett, Toni Hampel HulettShow all (8) More Info Jackson Hulett is a 2 1/2 years old who was born with Prader-Willi Syndrome. PWS is a complex genetic disorder that causes low muscle tone, short stature, incomplete sexual development, cognitive disabilities, and a chronic feeling of hunger that, if food is NOT LOCKED UP can lead to excessive eating and life-threatening obesity.
Proceeds from this event will go toward building a "food safe" kitchen in Jack's home.
Dinner Served 4-8
First Auction Table Closes at 7:30
$5 Children (under 12)
For more Information or to make a donation please contact:
Event Sponsored by The First Baptist Church of Traverse City.
Joe Hulett Please take the time to read. This is very important that everyone understand this syndrome. There is NO CURE. Jack will go through life feeling hungry. Jack will have many demons in his life that go along with this syndrome we hope that with your help he can get a better handle on the food issues by having ALL food behind lock and key. About PWS - Prader-Willi Syndrome Association of Michigan www.pwsami.org Prader-Willi syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex it results from an abnormality on the 15th chromosome. It occurs in males and females equally and in all races. Prevalence estimates have ranged from 1:8,000 to 1 April 16 at 6:18pm ·LikeUnlike · · Share