ArtsAutosBooksBusinessEducationEntertainmentFamilyFashionFoodGamesGenderHealthHolidaysHomeHubPagesPersonal FinancePetsPoliticsReligionSportsTechnologyTravel

Breast Cancer Chronicles: So The Breast Cancer Has Spread To My Lung

Updated on July 20, 2021

Why Do Some Doctors Lie?

12/18/2012 A couple of weeks into breast cancer radiation therapy, the radiation oncologist thought he saw something in the weekly chest X-ray. I was sent for a CT scan with contrast. Later in the day, I received a call from the radiation oncologist and was told that instead of one hilar lymph node involved, there were now three, but that was fine, he was taking my case to the Tumor Board to discuss my case, as if that would make everything better. He also wanted to see me the next day.

In all my years as a patient advocate, I have always insisted that any client faced with a life-threatening illness have someone accompany them to their visits with their doctors, so when none of my children could go with me, I panicked. But let me back this up a little. I do not like this doctor and I have not trusted him from the very beginning. Back in medical school, I am quite sure that he graduated with honors in the class titled, 'GOD 101'. Some doctors take that course, but thankfully, many others skip it. From the beginning, he treated me as if I was an idiot, and I did not like it.

My older daughter said, "Mom, Ruth is a nurse. She will go with you. Ask her." My daughter knows Ruth. Ruth ran the local GO Team during the election and I had just met her. But I called Ruth and she said, "Let's go". I picked her up, we went to the radiation center and I had my radiation treatment. The nurse said that the doctor would see me, and Ruth and I entered his office. He began by saying that the tumor board had met and that they had decided on my course of treatment. Sorry, Doctor, but I make my own decisions based on fact and supporting information. I told him to pull the CT scan up on the computer- I needed to see it. He was surprised, and maybe because Ruth was taking notes on a legal pad, he did as I asked.

Immediately, I saw only two lymph nodes (he had said there were three) in the hilar region lit up, but I pointed to a spot IN the lung that looked like it was attached to the heart. It wasn't, I knew, but that is where it is. I said, "That is NOT a lymph node. That is a mass and I can tell from looking at it that there is no way that a biopsy can be done." The doctor told me it was not a mass, it was a nodule. I know that the only difference between a nodule and a mass is the size and he was right. The 'nodule' is still under 3 centimeters. Once it grows to 3 cm, it will be called a 'mass'. He said they could actually get a biopsy, but that it would involve a major surgery. I am not willing to do that because I know what that brightly lit nodule is. It is breast cancer in the lung.

So, the tumor board decided that I should proceed with the radiation and have another CT in 2 months. Told him that was unacceptable, that the CT would be in one month. It was agreed.

I got home and put in a call to my primary oncologist. He was at the Tumor Board. I wanted his take. He said there was much discussion and many varied opinions, so I gave him mine. I told him that this was breast cancer spread to the lung. He said that every physician there agreed that it is. I told him that my best bet at this point, as I understand it, is hormonal therapy called Arimidex. He said that many there stated that this is my "only bet" to slow this metastasis.

Then I said something that I thought would shock him. I thought he might disagree. I told him that I wanted to stop the radiation immediately and start the Arimidex. Instead of disagreeing, he told me that several of the physicians there, including him, voted for that course of treatment, especially because continuing the radiation to the breast would compromise later use of radiation to the lung, if it becomes necessary. Let's see...Breast cancer reoccurrence to the breast, in which case I have a mastectomy, or reducing the size of a lung tumor so that I can breathe? Hmmm! The radiation oncologist did not give me that little piece of information. While it may not qualify as an outright lie, it is a lie of omission.

The radiation therapy discontinued that day, I started the Arimidex and will have a CT scan on January 10th.

This is MY dance with cancer! I will lead in this dance. I will decide where and when and how Cancer and I are going to dance! I will question everything, but I will trust my primary oncologist. HE has earned my trust. He told me from the beginning that he would never lie to me, and he hasn't. He also told me the other day, "Jillian, any doctor who questions your intelligence and analysis? Well, he is a fool."

Doctors Are Not God!

Doctors are not God! They are highly trained, some better than others, some smarter than others. There are those who are not so smart and there are some who believe that they run the show. When you encounter a physician who refuses to be questioned or challenged, run away as quickly as you can. It is YOUR responsibility to act as your own patient advocate, to control your own dance.

I have had some incredible doctors! I have had my share of the not so great ones, too.

Just so you know. Social Security Disability (SSDI) has a list of what they call Compassionate Allowances. Please see the website page for a complete list:

They will process claims for Social Security disability and Medicare in days, not the usual months that it normally takes. Breast cancer with distant metastases is one of the conditions on the list.

And so, my dance continues. It will, until the day the music dies...

My mother, Jillian Barclay, died broke and in debt. She received a notice for her appeal from Social Security about one month before she died and right at the beginning of in-home hospice.


This website uses cookies

As a user in the EEA, your approval is needed on a few things. To provide a better website experience, uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at:

Show Details
HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
LoginThis is necessary to sign in to the HubPages Service.
Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
AkismetThis is used to detect comment spam. (Privacy Policy)
HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the or domains, for performance and efficiency reasons. (Privacy Policy)
Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
MavenThis supports the Maven widget and search functionality. (Privacy Policy)
Google AdSenseThis is an ad network. (Privacy Policy)
Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
Index ExchangeThis is an ad network. (Privacy Policy)
SovrnThis is an ad network. (Privacy Policy)
Facebook AdsThis is an ad network. (Privacy Policy)
Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
AppNexusThis is an ad network. (Privacy Policy)
OpenxThis is an ad network. (Privacy Policy)
Rubicon ProjectThis is an ad network. (Privacy Policy)
TripleLiftThis is an ad network. (Privacy Policy)
Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)
ClickscoThis is a data management platform studying reader behavior (Privacy Policy)