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What Is Endometriosis | A Personal Story

Updated on September 15, 2013
Cardisa profile image

Carolee is a passionate writer with a love for learning and teaching. She is a published author, poet, blogger, and content creator.

What is endometriosis

Endometriosis is a condition where the walls of the uterus thickens and grows on the outside of the uterus instead of the inside. This tissue is known as the endometrioma. The growth is stimulated by the production of estrogen. In most cases the cervix is blocked by the growth which prevents the semen passing through in order for the woman to get pregnant.

This condition is very painful and may result in the woman having to have surgery. In the USA and Canada alone, over 6,000,000 women are effected by this condition. No one knows the actual worldwide figures.

Symptoms of endometriosis include:

  • Chronic pain. Pain during and after menstruation
  • Painful sex
  • Excessive bleeding
  • Fatigue
  • Nausea
  • Vomiting
  • Loss of appetite
  • Constipation or diarrhea

My Endometriosis Story

It was 1997 and I had just return from a trip abroad. The trip was supposed to be a vacation but turned out to be a disaster. Upon returning home I applied for a job as a Nanny and got the position after one telephone interview.

The Sunday that my prospective employer was supposed to pick me up I started to experience abdominal pain and bleeding. I really needed the job and I thought I was having an early period, so I told my boss nothing about my condition.

During my first week on the job I had to visit my doctor who told me I had an ectopic pregnancy, which meant that the baby was in my fallopian tube instead of the womb. He did not do a pregnancy test but gave me meds to stop the bleeding, which actually made it worse.

One morning after my twin charges had gone to school my boss’ husband returned home for something he forget only to find me passed out on the floor of the living room. My blood pressure had dropped so low that it caused me to faint. When they tried to get a reading for my blood pressure there was nothing, there was no pulse.

I was rushed to the hospital that September morning, can’t remember the exact date, and was admitted, being told I would not be sent home until the Doctors could figure out what was wrong with me.

I WAS NOT PREGNANT. I was only fifty percent relieved to learn I was not pregnant. Being twenty six and childless I really hoped that the pregnancy was real. However, happy that my body would not have had a child in danger as an ectopic pregnancy would mean me maybe having an abortion or the child not coming to term.

It was one week later after many blood tests, ultrasounds, x-ray and physical exams that invaded places of my body I recoil to recall, that I was told I had endometriosis.

The options available to me were limited. Get pregnant through in vitro fertilization and maybe that would reduce the growth somewhat, but that would have to be after an Adhesiolysis. This was a surgery that removed not the tissue, but the adhesions. Adhesion are where the tissue stick to other organs like my bladder and any other organs in its path.

Everything was going fine after the surgery even though there was no prospect in view for me getting pregnant. I was relieved that there was no pain, bleeding (which lasted more than three months), vomiting and loss of appetite. For over one year I got injected once per month so I wouldn’t menstruate. I was given a male hormone which had me growing hair on my chin and my voice was getting heavier. It was making me sick all the time so my doctor decided to let me try nothing as those were the best meds he could find for my condition at the time.

I was at work when I started having cramps and bleeding again. The same job. My employer saw me through all my problems and took care of me.

“Miss Samuda you’re having back pain because your condition has gotten worse and the growth is spreading toward your spine. It has adhered to your bladder and intestines. We have to do a hysterectomy.” I said nothing sitting there in the Doctors office at the outpatient section of the hospital.

“You know what that means?” I said nothing.

“If the tissue wraps itself around the spine it could cause serious problems, even fatal.” Still nothing, my mind was totally blank.

“Miss Samuda, you know you won’t be able to have any children.”

I must have passed out or something because I woke up in a hospital bed in the same ward that I was admitted before. There were tons of Doctors lined out around my bed. I became a guinea pig. There was never a case of endometriosis so bad in the history if this hospital. There was a growth so big I looked over six months pregnant. Honestly some persons I knew thought I was carrying a child.

For three months I was given injections in my abdomen to reduce the growth to a reasonable size in order to operate as it was too large, as removing it as it were was very risky.

In April 1999 my uterus and Fallopian tubes were removed. I will never be able to conceive. It has been painful dealing with that knowledge but there are other children I can have, those without hope, love and homes.

Sometime soon I will make at least one of those children who need me my own. How did I get through it? I did it by beginning to see myself as a woman again. Loving myself all over and accepting that God knows why even though I’ve asked many times and receive no reply.



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    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      4 years ago from Jamaica

      Thanks Peachpurple, I have come to terms with this and do intend to adopt. I just got married so we will adopt a child within the next two or three years.

    • peachpurple profile image


      4 years ago from Home Sweet Home

      i am so sorry to hear about your plight. It is so sad not being able to conceive but I believe your life is more important than anything else.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      7 years ago from Jamaica

      Thanks Lafamillia, will check your HP out.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      7 years ago from Jamaica

      Oh Sunnie, even so far away we are connected by our similarities. You are an inspiration to me and I really appreciate you.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      7 years ago from Jamaica

      Tlpoague, thank you. I really appreciate your kind words. I really feel touched about your sister's situation. Thank you for sharing.

    • lafamillia profile image


      7 years ago from Soutcentral Europe

      Wow...beautiful and kinda touchy story. As always,support for Cardisa from me . ;) If you have time,check my hp out.

    • profile image

      Sunnie Day 

      7 years ago

      Dear Cardisa,

      I had no idea..well maybe alittle but never asked..I am so sorry my sweet friend. I know you will make a wonderful mother one day soon. As you know I did adopt two children and they are mine and love them just as much as two biological..I do know also of what you speak of as I ended up having total hysterectomy at the age of 31 with two tubal pregnacies before..It was a very painful time..My husband never had children until he adopted mine but we tried..SO saying all that..he loves them all and if you ask him he is content..Much love, many prayers going up.



    • tlpoague profile image


      7 years ago from USA

      My heart goes out to you. I have never experienced this, but I have a sister that had seven pregnancies and three boys. The doctors never could figure out why she couldn't carry three of them to full term. Her still born was born with a rare genetic disease, so even if he had lived, the doctors said he wouldn't have lived past the age of five. (He also had the cord wrapped around his neck twice.) It was a crushing blow to my sister.

      There never is a clear reason why God allows these things to happen, but I think in the long run, God has something special planned for you. You could be the angel in some young child's life, that might not otherwise be so lucky. I will pray for you. Thanks for sharing your experience.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      8 years ago from Jamaica

      Wow! What an ordeal for a baby. I am sure glad you got through it because I am very glad I met you. You are just wonderful.


    • FloraBreenRobison profile image


      8 years ago

      It is amazing what doctors miss that nearly kill us. You are lucky your employer needed to return home that day.

      My mom was sure she was in labour with me but nothing was happening. I was turned the wrong what the time. Two weeks later she was still sure she was in labour and I was taken out by forceps. Yes indeed I had been ready to be born. But not naturally. I should have been born by C-section. Instead, because of their screwup I was swallowing-every baby swallows by ninth month-toxic fluids and nearly died of pnemonia. (Meanwhile, my oxygen supply had been cut off and I have slight C.P., but that is not life threatening.)

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      8 years ago from Jamaica

      Thank you Lesley, I am praying that it works out well and I can finally be a Mom. I am checking out that hub right now!

    • profile image


      8 years ago

      That is so good. My mum fostered. We became soooo close. There is a piccy of us 3 on my hub about My Childhood Memory. I really hope it all works out!

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      8 years ago from Jamaica

      Hey Lesley. Thank you.

      I do mean it in a literal sense, but it hasn't happened yet. I am fixing our home to accommodate adopting of fostering. My fiancé is 100% behind me on this.

    • profile image


      8 years ago

      Cardisa. What an unbelievably moving account. You have been through a lot in your life. Thank goodness you help others by sharing! You talk about children with no hope, love or homes. Do you mean that in a literal sense of fostering or adopting? What a rewarding vocation.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      8 years ago from Jamaica

      Hi Barbara. I am so sorry you had to go through it. You understand quite well the pain and distress a person with endometriosis goes through every month. We have been talking about the adoption for a while so it's in the picture. I don't get sick anymore but I don't miss not having my monthly, the only pain I feel is emotional.

    • Barbara Kay profile image

      Barbara Badder 

      8 years ago from USA

      Cardisa, I am sorry to hear you had to go through all of this. When I was younger I had this too, but I was misdiagnosed for years until right before I went through menopause, I had a doctor finally figure it out. Menopause stops the endometreosis, because you quit producing so much estrogen. I'm finally not getting sick for a couple of weeks every month. What a relief!

      I have a niece that can't have children for other reasons. She adopted a little girl and is so happy. I think this would help you if you are ready to do it. Angie is now thinking about adopting a second child.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      8 years ago from Jamaica

      Hi Polly,

      I'm sorry you had to go through that. They have an injection for shrinking it. I had to undergo a three month period of this injection before operating. At the time the drug was in it's experimental stages so I could not be given more than the three treatments (one per month). The drug shrank the growth just enough to operate.

    • Pollyannalana profile image


      8 years ago from US

      I went through much of this, unbelievable and no doctor could find a problem so I found a female doctor I knew would understand but she plain out said there was nothing wrong with me it was all in my mind and she never heard of anything so crazy. Well my mom said she would get me in to her doctor and he said well OK, but when I went it was the same office as the female doctor and the first day I saw a foreign doctor but he said what was wrong and what would be done but that was his last day, he was leaving for New York to practice. My uterus was wrapped with like a cord pulled straight up and some days I swear I had to almost crawl to the bathroom and didn't leave bed other than that. Since this other female doctor was so wrong I guess it took Mom's doctor a year to tell me what the New York one did in one exam, fear of being sued I guess, and hoping I would just not come back. The surgery showed large cysts too, what a time. I think today they have medicines for it to prevent surgery maybe. I hope so.

    • Cardisa profile imageAUTHOR

      Carolee Samuda 

      8 years ago from Jamaica

      Thank you breathe2travel, I try not to be too sad anymore. I still have lots of love to give other kids who really need it.

    • breathe2travel profile image


      8 years ago from Gulf Coast, USA

      I am so saddened by your tragic loss.

    • capncrunch profile image


      8 years ago from New Orleans

      It is ashame that women have to go through all that you do with your bodies. It truly is proof of how strong women can be.


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