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Inside the Life of a Fibromyalgia Patient

Updated on January 21, 2015
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Diagnosed with Chondromalacia Patellofemural syndrome, Fibromyalgia, Mercury poisining and many other issues....

Inside the Life of a Fibromyalgia Patient

In a Nut Shell.

So it is a chronic disorder of widespread musculoskeletal pain, incapacitating fatigue, weakness, tenderness, anxiety, depression, painful to touch, swelling, sleep disturbances, mood swings, abdominal pain, chronic headaches, dryness in mouth, nose and eyes, loss of concentration, incontinence, Irritable bowel syndrome, numbness and/or tingling in the fingers and feet, stiffness, muscle twitchiness, burn and/or stabbing pain, temporomandibular joint disorder, recurring infections, chemical sensitivity, sensitivity to smells, sounds and light and joint pain.

Inside the Life of a Fibromyalgia Patient

Inside the Life of a Fibromyalgia Patient
Inside the Life of a Fibromyalgia Patient

Fibromyalgia

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Inside the Life of a Fibromyalgia Patient

Inside the Life of a Fibromyalgia Patient
Inside the Life of a Fibromyalgia Patient | Source

Diagnoses

With this in mind you can see how difficult it can be to diagnose. There are dozens of diseases and illness wih the same symptoms. So in order to figure it out Doctors had to see your medical history, make a detail medical exam and used other methods and test to exclude any other illness and disease. Of course to add to your frustration all test come back normal. Then You start thinking: " Can I be crazy?" Nothing wrong?" now ou start doubting your own self. Yet the pain is all too real. " Why the pain?"

Well one common belief is that the main reason is over active nerves and that the brain is overstimulated to the point that any normal stimuli even a hug the brains interprets it as pain. Also symptoms can show up after physical trauma, surgery, infection, psychological stress. After years of these events body can no longer cope.

Does this sound familiar?

Having pain all over for months dull flu like that won’t go away but this time on top of it right knee was swollen. You go to acupuncture treatment it is determined that there is something else going on with knee. It is warm to the touch like a fever but just on knee. She recommends going to an orthopedic. After x-rays and MRI, you are told you have Chondromalacia Patellofemoral Syndrome. You are given some anti-inflammatory prescriptions and a shot of cortisone. Then after a few more visits your are told eventually you will need knee replacement but you are too young so you get a referral for physical therapy, instructions to not go up stairs, no inclines, or gravel walking and a do not come back until it gets worst. This is the begining of the never ending story called Fibromyalgia.

Don't give up

It is good to highlight that everyone is different you may have all symptoms at once or get a new symptom every day. At times the pain feels like it moves around in your body, going from dull to totally crippling with no apparent trigger. There is no cure no matter how many things you see on TV or only to promise to cure it. So don’t fall for it. The next few years is a learning process you are to re learn your own self. What works from you may not work for another fibromyalgia patient. What works today may not work for you tomorrow. Don’t give up there is hope it is not all hopeless. The journey is long, tiring and frustrating. Believe me I know. Acceptance is a key. There is a light at the end of the tunnel.

Inside the Life of a Fibromyalgia Patient

Inside the Life of a Fibromyalgia Patient
Inside the Life of a Fibromyalgia Patient

Inside the Life of a Fibromyalgia Patient

Inside the life of a Fibromyalgia Patient

Inside the life of a Fibromyalgia Patient

Inside the life of a Fibromyalgia Patient
Inside the life of a Fibromyalgia Patient

How it Began

It all started in March 2011.Having pain all over for months dull flu like that won’t go away but this time on top of it right knee was swollen. You go to acupuncture treatment it is determined that there is something else going on with knee. It is warm to the touch like a fever but just on knee. She recommends going to an orthopedic. After x-rays and MRI, you are told you have Chondromalacia Patellofemoral Syndrome. You are given some anti-inflammatory prescriptions and a shot of cortisone. Then after a few more visits your are told eventually you will need knee replacement but you are too young so you get a referral for physical therapy, instructions to not go up stairs, no inclines, or gravel walking and a do not come back until it gets worst. This is the begining of the never ending story called Fibromyalgia.

Now What?

You spend the next few months trying to work around this new circumstances. Elevating and icing, avoiding stairs. Easier said than done when you have 5 step to get to your front door. The pain is an 8 in a scale from 1 to 10. Medication runs out you start using over the counter meds and nothing seems to help. All body pain increases too to a constant 8. Can’t sleep well and it gets more and more difficult to do your job. You can’t squad anymore and walking is very difficult. After a serious discussion with husband/wife you both come to the conclusion that you need to quit work if you want to get better. You concentrate on getting knee better. So now you are faced with your worst fears and suspect that you may have fibromyalgia.

Looking Back

As you lay there you start meditating on all does moments you felt so bad. Symptoms where so far a part and not limiting your day to day that you figure that a diagnoses will not help any. You think to yourself there is no cure for it anyway and you are doing what people with fibro do to ease the pain. Or have I? Now the pain has become constant and since March you came from a very active person to almost a complete stop. Chores around the house are harder and harder to do. Constantly fatigue overwhelms your daily activities. Not feeling yourself any more you become depressed but mostly from having to be home all the time and not even been able to do the simplest activities. You become uncomfortable in your own skin.

Appointment

To keep you occupy you start keeping track of your symptoms for 10 days. As specific and descriptive as possible. You ask around for a Doctor and read about how hard it is for some to get diagnosed. You finally find the courage and a Doctor with experience with fibro. You make appointment and armed with hurt journal and after a good hour and half with the Doctor she agrees that all points to fibro. She schedules all kinds of test, and x-rays to eliminate other conditions that can mimic Fibro symptoms. A few weeks of waiting and all tests coming out negative. You are now diagnosed fibromyalgia.

This Is How It All Beginnings

You are amazed how the results make you look like the picture of pure health. You have no arthritis, no lupus, no thyroid issues and many other negatives. Why I'm I in so much pain? Now she prescribes Cymbalta, Tramadol, and Tizanidine. Now you enter the unknown world of Fibromyalgia.

Truth

Fibromyalgia is widespread patients suffer about 5 years and spend thousands in medical bills before receiving a accurate diagnosis. Then starts the constant search for effective treatment becomes in itself a battle. As few doctors are trained to understand or respond to this condition. Even when all seems lost you will find the light at the end of the tunnel. You will have your ups and downs. Plenty of frostrating moments but not all is lost. You can cope with this illness and still have good days after all. Hard work and determination are key.

Comments

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    • denise.w.anderson profile image

      Denise W Anderson 3 years ago from Bismarck, North Dakota

      I have a couple of friends that have fibromyalgia. They have many issues like stated in this article. One day it is one thing, and the next another. There are no easy answers. It is a roller-coaster ride for sure!

    • Codebreak profile image
      Author

      Gwendolyne Black 3 years ago from Erwin, TN

      Yes I have being tested but one doctor says yes I'm Hypo the endocrinologist I go to now says that even though I have 2 nodules I'm not Hypo. So still no straight answer on that one either. Yes symptoms are about the same my Dad has had thyroid problems sinces his 20 so i'm familiar with the symptoms. If it was that simple to say its Hypothyroidism half the people with fibro would be cured by now but it so much more complicated....

    • Abby Campbell profile image

      Abby Campbell 3 years ago from Charlotte, North Carolina

      I've been studying about hypothyroidism, and some specialists who have studied this disorder say that it is linked with fibromyalgia. I thought that was interesting.

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