Living with Tietze Syndrome (Part 2)
The syndrome of Tietze still isn't a wide known disease. Therefor there is a wide spectrum of medicines used in the traditional medicine and there isn't a single medicine which is specifically used for Tietze. Besides that, there is also a wide variety of symptoms between patients, which makes creating a specific medicine for Tietze even harder.
Like I told in my previous article, Tietze comes with a lot of mental health issues as well. A lot of patients suffer from anxiety, depression or insomnia caused by the severe pain. The hardest part about this is that mental health issues can cause psychosomatic pain (Dr. T. Kenny, 2014). Which feels like real pain and is experienced like a real problem. However the pain can not be found within the body and there are no signs of damage, inflammation or whatsoever $6.
With this information at hand, I've collected some data from Tietze patients about their medicine use and their alternatives. All of the data collected are based on experiences rather than facts or numbers.
NSAID (non-steroidal anti-inflammatory drugs)
NSAIDs are medicines created to reduce inflammations and pain. These medicines are the most commonly used medicine for Tietze, because Tietze is an inflammatory disease. Most patients I know of including me, use a sort of NSAID. Beside the reduction of pain and inflammation, NSAIDs also carry a large risk of stomach pains or bleedings. That is why they are most commonly prescribed in combination with a stomach protection like: Omeprazole or Esomeprazol.
Some examples of NSAIDs used by Tietze patients are:
There are also NSAIDs in a different category known as: Etoricoxib. These medicines seem to have less side-effects and are often prescribed to patients which have an increased risk of stomach problems. There are also often prescribed to patients which are allergic to normal NSAIDs. So far there are only two medicines known on the market:
- Celebrex ( celecoxib)
If these medicines are prescribed to you, make sure you check your blood pressure on regular base since these medicine can make your blood pressure rise. Even though these medicine can be bought without prescription I do advise you to see a doctor before use.
NSAIDs and Painkillers
Besides the NSAIDs there are a multiple of different other kind of medicine used by Tietze patients. Here are just an example of some of them.
- Amitriptyline, this is a medicine known as an Tricyclic antidepressant. It is prescribed to patients with either depressions, nerve pain, fibromyalgia , headaches or migraines. Unlike other painkillers this medicine takes up to 1 - 2 weeks before the use for Tietze applies.
- Tramadol, this is a medicine known as an opioïd. It is most commonly prescribed to Tietze patients and most of the patients have used or still use it. This is a painkillers which has a direct effect on nerve pain and rheumatic or arthritic pain.
- Other painkillers like aspirin, codeïn and lidocaïn are also often given to Tietze patients and are mostly given to ''beginners''. Since these painkillers are safer than the ones mentioned above.
What type of medicine have you used? (multiple answers possible)
Because of the lack of treatments for Tietze most patients also try alternatives or supplements. The products described below are alternatives used by actual Tietze patients and I can not guarantee that they will work for you.
Magnesium - Most often used by Tietze patients and often advised by doctors. Magnesium helps the body to gain better bone structure and it helps the stimulation between muscles and nerve-endings.
Glucosamine- Also often used by Tietze patients as it helps the structure of the cartilage improve. It is also often prescribed by doctors for patients with arthritis.
Melatonin- this is a sleep improvement supplement. Melatonin is a hormone also produced by the body itself, it helps you go to sleep. It can also be found in hot milk.
Tiger balm- This natural product is a widely known gel which is very often used by asians. This product has become widely known in the western world as well. It emits a warm feeling to the skin which can often relieve pain or muscle tension.
Warm gel - even though these rubs have same effect as tiger balm, they are often chemicals in the products. So be advised when using those rubs.
Note: Some of the warm gels have bee wax in them, do be careful if you are allergic!
Alternative Food (''medicine'')
- NSAIDs (Etoricoxib)
- Stomach protectors
Psychosomatic pain - http://www.patient.co.uk/health/psychosomatic-disorders