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When My Children were on the Specific Carbohydrate Diet

Updated on November 18, 2015

How the Specific Carbohydrate Diet Saved My Children

My husband and I were thrilled to be parents. Our long -waited firstborn arrived after seven years of marriage. We were blessed with a second baby a short time later.

However, we soon realized our children weren't healthy. Developmentally, our oldest wasn't on track. Her speech was delayed and she had very poor social skills.

At one point, she was formally diagnosed with autism. Our youngest was an outgoing little guy. In the beginning, he was ahead of the curve. But, by the time he was 18 months old, he was losing weight and he had little energy. Big black circles had formed under his eyes, and his distended belly made him look pregnant. He also developed breathing problems.

My husband and I took him from doctor to doctor, but no one could tell us what was wrong.

In searching for a solution to my daughter's problems, I realized that the Standard American Diet was our enemy. Also, my children had been vaccinated and they'd both taken multiple courses of antibiotics to treat their chronic ear infections. All of the above had made them sickly.

Grain-free grilling.
Grain-free grilling. | Source

The Internet was Our Lifeline

Fortunately, this all happened a couple years after it became easy to go online. I was able to tap into a lot of information about autism, and how it could be helped by a milk-free, gluten-free diet. With little to lose, I immediately stopped giving my daughter milk. Within about a week, she started talking in sentences.

However, she then hit a plateau. That's when gluten had to go too. We saw more rapid improvements, until she hit another plateau. That's when we realized corn was also fueling her autistic behavior. Taking that away helped immensely.

But we were very distressed that as our daughter improved, our son began to regress. His physical health also began to decline after he accidentally ate a wheat cracker at the playground. This, however, was a blessing in disguise.

Breaking the Vicious Cycle: Intestinal Health Through Diet

Help Arrives in the Mail

After my son, who was doing fairly well on a strict gluten-free diet, ingested the cracker, his health slipped again. His breathing was labored and I was more worried than ever. Despite bringing him to his pediatrician, and the various specialists we were referred to, no one could find the cause of his problems. He was tested for cystic fibrosis, which, fortunately, he didn't have.

The doctor wanted me to feed him wheat again, to test him for celiac disease. But I refused, as he had such a bad reaction from eating just one cracker.

However, my mother ended up coming to the rescue. She happened to meet a woman who suffered from inflammatory bowel disease, which she kept under control by adhering to something called the SCD Diet. This is a grain-free diet that many people has found extremely helpful in controlling their symptoms of ulcerative colitis and celiac disease.

Amazingly, the woman who spoke to my mother took it upon herself to send us a book on the SCD diet calledBreaking the Vicious Cycle, written by Elaine Gottschall, whom, many years earlier, had cured her daughter's ulcerative colitis by putting her on this diet.

Eating without grains.
Eating without grains. | Source

Tips and Tricks for Following the SCD Diet

Planning ahead is essential. Changing your diet can be daunting at first. But many people have done it. Here are some tips to get started.

  • We found it easier to simply bring food from home for my children to eat whenever we were invited elsewhere. Restaurants were very accommodating.
  • If you are going to a restaurant, simply order a big salad without dressing or croutons. Add chunks of chicken you bring from home for a more filling meal.
  • Order a plain hamburger, with lettuce, tomato and onion, with no dressing. Ask the kitchen to prepare a baked potato.

I Knew it Was the Right Thing to Do

After reading the book, and learning that people was once used as a cure for celiac disease, I knew we needed to try it. Since I was now desperate, I was willing to try just about anything. It also seemed to make sense to put my daughter on this diet as well, even though there was practically no information about how eating SCD-legal foods would help a child with autism. But I made an educated guess based on new information about the potential role of a leaky gut in autism spectrum disorders.

Back then, there was also not a lot of recipes available on SCD meals and snacks, as there is today. The book Eat Well, Feel Well: More than 150 Delicious Specific Carbohydrate Meals and Snackswould have made life much easier.

At first, both children lost a little weight on the diet. This was frightening to watch, especially for my son.

But this was because many types of carbohydrates were not allowed, and their bodies were apparently adjusting. Sugar was a type of carbohydrate they couldn't eat.

The diet is called the Specific Carbohydrate Diet because only simply and easily digestible carbohydrates, such as those found in fruits, nuts and vegetables were allowed. All types of meat were legal as well. After six months on the diet, we could also incorporate legumes, provided they were well-soaked beforehand.

Even though a type of homemade yogurt is legal on this diet, we never made it. That's because certain proteins in milk are thought to be a cause of autism. So the way my children ate was closer to the now-popular paleo diet.

Foods Allowed on the SCD Diet

Fruit
Vegetables
Meat
Nuts
Legumes
Yogurt
You can eat as much fresh fruit as you want. However, canned fruit may contain added sugar, which is not allowed on the diet.
You'll be eating a lot of vegetables on this diet. However, the late Elaine Gottschall, who promoted the SCD, warned against eating canned vegetables, which could contain added sugar, regardless of what the label said.
Meat and fish are allowed. However, sauces cannot contain grains, sugar or fresh milk.
Nuts such as almonds and hazelnuts are allowed. However, people with nut allergies, for obvious reasons, would have a difficult time adhering to this diet.
After six months on the diet, it was alright to eat legumes, provided they were very well soaked, according to Elaine Gottschall.
A special type of homemade yogurt is allowed. However, my children didn't eat it because of sensitively to dairy.
 
 
 
 
 
 
 
 
 
 
 
 

Video Testimony of the Specific Carbohydrate Diet

Both Children Eventually Began to Thrive

My daughter, now four, initially regressed once she started the diet. I braced myself for this possible reaction, because I had now come to learn that nearly everything that eventually helped her resulted in a healing crisis. This was no different.

Within about a week, we could see her making great strides, in language and in other areas. After about two years on the diet, her autism diagnosis was lifted.

Good things happened with my son as well. After his initial weight loss, accompanied by a darkening of the black circles under his eyes, his skin color turned from deathly pale to a healthy olive tone. We noticed his energy rebounded. He began to run around again, just like any other little boy.

During this time, I also gave my children various vitamin supplements. In retrospect, though, I don't think these helped. We also did a lot of homeopathy, working with a very skilled practitioner familiar with Dr. Samuel Hahnemann's more advanced studies, published shortly before his death.

So, to be perfectly accurate, it was the combination of the SCD diet and homeopathy that saved my children. Today, my son is a normal teenager who likes to spend time with his friends. My daughter is still a bit socially awkward, but no longer autistic. She is in college and she also has a part-time job.

Using spaghetti sauce instead of spaghetti.
Using spaghetti sauce instead of spaghetti. | Source
A grain-free recipe.
A grain-free recipe. | Source

Sticking to the Diet

My children stayed on the diet for several years. We gradually introduced forbidden foods such as rice and potatoes. Both children were gluten-free for about seven more years.

Then, as teenagers, they began to cheat. Now they eat whatever they want.

I won't lie and say this was an easy lifestyle. We had very few restaurant meals during that time. Because we were worried about cross-contamination, we didn't take many vacations. The few times we did go away, we brought food from home to cook.

When my daughter was about five, I remember going away with one of her friends and the friend's mother. We rented condos in a resort area. Most of my "vacation" was spent cooking.

Yet I never viewed the SCD diet as a burden, because it was an answer to my prayers.

Disclaimer

These statements have not been evaluated by the Food and Drug Administration (FDA). These products are not meant to diagnose‚ treat or cure any disease or medical condition.

This article is not intended as medical advice or recommendation. It is simply a story of how my children regained their health. Anyone contemplating such a diet change should discuss it with a physician. People with health concerns should consult a licensed practitioner.

Disclosure

I am a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to amazon.com.

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  • VVanNess profile image

    Victoria Van Ness 3 years ago from Prescott Valley

    I realize that children are finding themselves in the same groups as many adults with more allergies, sicknesses, etc. If at all possible, I don't believe on putting children on any kind of diets. But these are great tips for those that have critical needs!

  • ologsinquito profile image
    Author

    ologsinquito 3 years ago from USA

    This was a very last resort. It wasn't what I wanted to do, out of sheer desperation. I also don't recommend doing something like this unless you work with a doctor.

  • DDE profile image

    Devika Primić 3 years ago from Dubrovnik, Croatia

    Children to eat from their parents so what you put in children are doing exactly that, the best is to train yourself to eating correctly and children will pick that up too an interesting hub from on this topic. Eating moderate is the key to healthy lifestyle.

  • ologsinquito profile image
    Author

    ologsinquito 3 years ago from USA

    It was a difficult stretch with this diet, but we survived. My children now eat whatever they want.

  • Writer Fox profile image

    Writer Fox 3 years ago from the wadi near the little river

    What an amazing story! There is so much about diet and nutrition that we don't understand. And, medical schools seldom teach this so most doctors don't have a clue. I'm so glad your kids benefited from your research. Voted up!

  • ologsinquito profile image
    Author

    ologsinquito 3 years ago from USA

    Thanks WriterFox, it was a difficult time and a difficult decision to make. But, in the end, it all worked out.

  • AliciaC profile image

    Linda Crampton 3 years ago from British Columbia, Canada

    This is very interesting, ologsinquito. I read about the specific carbohydrate diet some time ago and haven't thought about it much since then. It certainly seems like it's something that's worth investigating. It's wonderful to read about the improvements that your children experienced on the diet.

  • ologsinquito profile image
    Author

    ologsinquito 3 years ago from USA

    Thanks for reading AliciaC, this was a desperate response to a desperate situation, and, thankfully, it all worked out.

  • FlourishAnyway profile image

    FlourishAnyway 3 years ago from USA

    I'm glad that this was a solution for your children. So much of what ails us is tied to our digestive system and we either choose to ignore it or do not know. Voted up and more! Well written and practical.

  • ologsinquito profile image
    Author

    ologsinquito 3 years ago from USA

    I was so thankful this worked for us.

  • VioletteRose profile image

    VioletteRose 3 years ago from Chicago

    It is great to hear that the diet worked for your children, I very much understand how much we get worried as parents, when something go wrong on our children's health. Wheat allergy is quite common, I believe. My son didn't have any allergic problems, so I didn't give much thought on this. I was quite happy that I was able to feed him whole foods with lots of fruits and vegetables, till he was three years old. Once he started preschool, I find it difficult to keep him completely away from junk foods. When he is at home, I try to give him more healthy foods. Another thing is that he doesn't like milk, but he takes lots of yogurt, just like me. I think yogurt is a wonderful food, with more nutrients than milk! Now my second son is just 6 months, so I have to see how the eating habits go for him.

  • RTalloni profile image

    RTalloni 3 years ago from the short journey

    Thanks for sharing some of your journey to help your little ones for what you learned may be very useful to someone else.

  • ologsinquito profile image
    Author

    ologsinquito 3 years ago from USA

    Hi RTalloni, I sure hope it can help someone else. It was a difficult journey, but well worth it.

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