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Voluntary Organisations and Support Groups for Special Educational Needs – Part 1 (A - C)

Updated on September 15, 2015

The Anaphylaxis Campaign

Help for people with severe allergies.

www.anaphylaxis.org
info@anaphylaxis.org.uk

Helpline: 01252 542029
Enquiries: 01252 546100

Anthony Nolan Trust

Support, information and advice for people with blood cancers and their families. The trust campaign to raise awareness about blood cancers and hold a register of people willing to donate bone marrow or blood stem cells.

www.anthonynolan.org.uk
heathgate@anthonynolan.org.uk

0303 303 0303

2 Heathgate Place
75-87 Agincourt Road
London
NW3 2NU

Arthritis Care

Support for people living with arthritis.

www.arthritiscare.org.uk
info@arthritiscare.org.uk

Helpline: 0808 800 4050
Enquiries: 0207 380 6500

18 Stephenson Way
London
NW1 2HD

ASBHA – Association for Spina Bifida and Hydrocephalus

Support for individuals and families that are living with either spina bifida or hydrocephalus.

info@asbah.org

01733 555988

ASBAH House
24 Park Road
Peterborough
PE1 2UQ

Asthma UK

Support for people with asthma.

www.asthma.org.uk
info@asthma.org.uk

Asthma queries: 0800 121 6244
Enquiries: 0207 786 4900

Summit House
70 Wilson Street
London
EC2A 2DB

Ataxia Uk

Help and support for people affected by ataxia which causes problems with movement, speech and balance.

www.ataxia.org.uk
enquiries@ataxia.org.uk

Helpline: 0845 644 0606
Enquiries: 0207 582 1444

9 Winchester House
Kennington Park
Cranmer Road
London
SW9 6EJ

A

ACE (Advisory Centre for Education)

A registered charity that can provide parents with information about state education in England and Wales.

www.ace-ed.org.uk
enquires@ace-ed.org.uk

02507 704 9822

1c Aberdeen Studios
22 Highbury Grove
London
N5 2DQ

ACE Centre Advisory Trust

Offers help and support to children with complex physical and communication difficulties and their parents, carers and therapists.

www.ace-centre.org.uk
info@ace-centre.org.uk

01865 759800

92 Windmill Road
Headington
Oxford
OX3 7DR

Action for Sick Children

A UK children’s healthcare charity.

www.actionforsickchildren.org

Helpline: 0800 074 4519
Enquiries: 01663 763004

32b Burton Road
High Lane
Stockport
SK6 8BH

AFASIC (Association for All Speech Impaired Children)

Offers support for children and young adults who are affected by speech, language and communication impairments.

www.afasicengland.org.uk

Helpline: 0845 3555 577
Enquiries: 0207 490 9410

1st Floor
20 Bowling Green Lane
London
EC1R 0BD

NAT (National Aids Trust)

A charity that provides help and support for people living with HIV.

www.nat.org.uk
info@nat.org.uk

0207 814 6767

New City Cloisters
196 Old Street
London
EC1V 9FR

Allergy UK

Leading charity for people who have allergies, intolerances and sensitivities.

www.allergyuk.org

01322 619898

Alliance for Inclusive Education (ALLFIE)

A national network led by disabled people that campaign for all disabled learners to have access to support in mainstream education.

www.allfie.org.uk
info@allfie.org.uk

0207 737 6030

366 Brixton Road
London
SW9 7AA

Source

British Dyslexia Association

The vision of the British Dyslexia Association is a dyslexia friendly society enabling all people with dyslexia to reach their potential.

www.bdadyslexia.org.uk
helpline@bdadyslexia.org.uk

0845 251 9002

Unit 8
Bracknell Beeches
Old Bracknell Lane
Bracknell
RG12 7BN

British Stammering Association

Information and support for people who are affected by stammering.

www.stammering.org
mail@stammering.org

0208 983 1003

15 Old Ford Road
London
E2 9PJ

Brittle Bone Society

Provides support to people affected by osteogenesis imperfect.

www.brittlebone.org
contact@brittlebone.org

01382 204446

Grant-Paterson House
30 Guthrie Street
Dundee
DD1 5BS

B

BEAT – Beating Eating Disorders

Provides helplines, online support and a network of self-help groups around the Uk for adults and young people working to beat eating disorders.

www.b-eat.co.uk
help@b-eat.co.uk

Youth helpline: 0845 634 7650
Helpline: 0845 634 1414
Youthline text service: 07786 201 820

Wensum House
103 Prince of Wales Road
Norwich
Norfolk
NR1 1DW

British Deaf Association

The BDA strive to achieve equality for deaf people.

www.bda.org.uk

Textphone: 05603 115 295
Telephone: 01772 259725

Bushell Street Mill
Bushell Street
Preston
Lancashire
PR1 2SP

Source

Child Growth Foundation

Support for children and adults living with growth disorders

www.childgrowthfoundation.org
info@childgrowthfoundation.org

0208 995 0257

2 Mayfield Avenue
Chiswick
London
W4 1PW

Children’s Legal Centre

An independent national charity that promotes the rights of children in the UK and worldwide.

www.childrenslegalcentre.com
clc@essex.ac.uk

0845 345 4345

University of Essex
Wivenhove Park
Colchester
Essex
CO4 3SQ

CLIMB – National Centre for Metabolic Disorders

Advice, information and support for parents, carers and professionals associated with metabolic diseases.

www.climb.org.uk
fam.svcs@climb.org.uk

0800 652 3181
0845 241 2172

CLIMB Building
176 Nantwich Road
Crewe
CW2 6BG

Contact-a-Family

UK charity that provides advice, information and support to parents of disabled children. They also provide a service that enables families to get in touch with each other locally and nationally.

www.cafamily.org.uk
info@cafamily.org.uk
helpline@cafamily.org.uk

Helpline: 0808 808 3555
Enquiries: 0207 608 8700

209 – 211 City Road
London
EC1V 1JN

Cystic Fibrosis Trust

The only UK wide charity that provides support and advice to people and families affected by cystic Fibrosis.

www.cftrust.org.uk
enquiries@ncb.rg.uk

0300 375 1000

11 London Road
Bromley
Kent
BR1 1BY

C

Carers UK

Organisation that campaigns on behalf of carers and provides information and advice on all aspects of care to carers and professionals.

www.carersuk.org

Advice: 0808 808 7777
Enquiries: 0207 378 4999

20 Great Dover Street
London
SE1 4LX

CBIT Child Brain Injury Trust

Offers information, support and training to individuals and families who have been affected by childhood brain injury as well as to professionals.

www.childbraininjurytrust.org.uk
helpline@cbituk.org.uk

0845 601 4939

Unit 1
The Great Barn
Baynards Green Farm
Near Bicester
Oxfordshire
OX27 7SG

CENMAC (Centre for Micro-Assisted Communication)

Support service that offers assessments, reviews and the loan of equipment to help pupils with disabilities access school by using assistive technology. They also offer early intervention training and support to professionals to increase their confidence and knowledge.

www.cenmac.com
mail@cenmac.com

0208 854 1019

Charlton School
Charlton Park Road
London
SE7 8JB

Centre for Studies on Inclusive Education (CSIE)

Independent centre that works to promote the inclusion of disabled people and end segregation.

www.csie.org.uk
admin@csie.org.uk

0117 353 3150

The Park
Daventry Road
Knowle
Bristol
BS4 1DQ

Challenging Behaviour Foundation

Foundation that supports parents and professionals through education, information sharing and research.

www.challengingbehaviour.org.uk
info@thecbf.org.uk

Supportline: 0845 602 7885
Enquiries: 01634 838739

C/O The Old Courthouse
New Road Avenue
Chatham
Kent
ME4 6BE


© 2014 Claire

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