Adult Aspergers

Adults with Asperger's Syndrome, and those who live with them, are often at a loss for help with their condition. Most references to Aspergers are aimed at children and their caretakers. Aspie kids grow up, and need information about jobs and relationships and being parents.

In this lens, I will be providing links to many resources for Asperger's adults and those who love them. These will be a combination of books, websites, and other references. Most are written for the adult Aspies themselves, though some are written for their romantic partners. If you have a favorite reference I've left out, please let me know in the Comments section at the bottom of this lens.

I come from an Aspie family. Though nobody in my generation or older (except me) has an official diagnosis, I can see strong AS traits in my family of birth. I learned about Aspergers in learning about my kids — they don't have AS, but I saw myself in every book. Years later, both I and my former husband were found to have Aspergers.

None of us looks odd or acts terribly weird ... we have a very mild form of AS, as do many people.

It's estimated that at least 1% of all people have some level of autism, from very mild to disabling. You probably know someone on the spectrum.

There are some terms and abbreviations that come up frequently in discussions of Aspergers. As I'll be using the terms here, I'm providing a few definitions.

• Aspergers, Aspie, AS are all terms for a person with Aspergers Syndrome. Aspergers is a mild form of autism. People with AS can function in general society, but often have notable weak areas in social understanding.
• Autism, ASD (autistic spectrum disorder) has two meanings. First, it defines the disabling end of the Asperger's-autism spectrum, where people with autism can't live independently. Secong, the term is used to cover the entire range of conditions on the autistic spectrum (there are several different conditions)
• Neurotypical, NT This term is often used by Aspies to mean someone who is not on the autism spectrum.
• ASD, Autism Spectrum Disorders, The Spectrum Autism is a condition that can range from very mild to completely disabling. This range is referred to as the Autism Spectrum, or the Spectrum for short. Aspergers is on the mild end of the Spectrum.
• HFA, High functioning Autism This term is often used to describe people who have fairly severe Aspergers, or mild autism. People with HFA have more trouble fitting into the NT world, but can often become successful with help and understanding.

These books are classic reference books on Aspergers, and biographies that are an excellent introduction to Aspergers. Though they focus on children, the information provides a good grounding in what Aspergers is, and how it affects individuals.

People with Aspergers are perfectly capable of falling in love, marrying, and forming a family. But Aspergers can cause some problems, if either or both partners don't understand how it affects things.

The best way to make an Aspie marriage work is to find a relationship counselor skilled in ASD issues. These counselors are rare, so reading a book is often the best alternative. Here are two books to get you started.

This is a list of websites that are primarily reference material, or are links to organizations that are useful to adults with Aspergers or their partners. For more personal information, see the list of blogs below.

If you have any links you'd like me to add, please add them to the Comments section at the bottom of the page. I'll add them to this list.

Some Aspies have problems following orders from an authority figure, especially in a crisis. To help them, I created this card, available at Zazzle.com

The front side (pictured) is customizable to include the Aspie's information: a photo, name, contact info, and room for any special notes. The back has some general rules for the authority (police, paramedic, etc.) that will help the interaction go smoothly.

The card folds to easily fit in a wallet.

Not all Aspies need this card (I get super-capable in an emergency), but if you know someone who shuts down or gets into a rage in a crisis, talk to them about getting a card.

The following blogs are personal stories about Aspergers and adults, from many different viewpoints. While there will be some reference material here, the main focus is on personal experiences or non-professional advice.

If you have another blog you want me to add, please tell me in the Comments section below.

Did you learn anything here? Have something to share? Want to tell me about a great book, website or other resource. Please share!

All comments are reviewed before approval. To prevent spam, html will be removed. If you have a link, give me the name of the site, and I'll look it up myself.