oh watching someone go downhill with this disease is so very hard. I have been watching my father go downhill the last year. Now he is considered a feeder. He is to the point where he doesn't feed himself. I cant begin to understand how that must feel to need someone to do something for a person.
I thank the people who do the job of taking care of him. I know I couldn't be the one who would get him up at seven am everyday. They change his diaper and get him dressed for the day. Then they get him to breakfast. Hoping against all odds that he doesn't get in a fight with another resident. Feed him his breakfast and give him his meds. Then change him again. I know by then I would be ready to scream. I can take care of others but doing it for my parents this intense would not work. Trying to get them to take a bath sometime during the day when the bath is open is hard as well. Attention span is five minutes so how they keep him occupied all day is beyond me. He doesn't read or watch television. Lunch change again and then feed him lunch. Some days he gets a nap and some not so he gets to go to the door and watch the bugs fly around outside in the summer and the snow in the winter. Change him again and then get him ready for dinner. Feed him dinner and then at seven pm put him to bed after giving him his last meds of the day. I tried to take care of him when he was first diagnosed and now I know I could never take care of anyone with this disease. I can take care of just about anything but this is one disease I know I cant so congratulations to the families who can and the people who work in the homes who do take care of them.