Raising Funds for CLIC Sargent
CLIC Sargent Donations
This is the story of Daniel who at the age of 5 years contracted leukemia while he was living abroad in Cyprus with his little brother and parents.
By the way everything this lens earns goes to charity even the google adds so if you are genuinely interested in making a purchase or checking out whats on offer through the links then you will make the charities a bit of money.
If you like the idea of creating your own single page website like this for a charity of your choice then all you have to do is click on I want to make my own Hub
Keeping Up the Fight Against Cancer and Leukemia
Sponsored Mountain Climb by Charlotte Evans - This is a charity climb for the Anthony Nolan Appeal 16 - 18th August 2013
There are lots of charities that are very worthy of support, clearly leukemia research and support is close to our hearts and it is unlikely that Daniel would have been alive today if it wasn't for the work of some of these charities. But there are other worthy causes and you can find out more about these charities and some of the sponsored events that have taken place in their support using the links below.
- Anthony Nolan Appeal by Charlotte Evans
Charlotte's friend recently lost her little boy 'Charlie Harris Beard' this has inspired Charlotte to try and help raise money for the Anthony Nolan charity who helped Charlie when he was seriously ill with blood cancer.
- Help for heroes/leukaemia sponsored bike ride
JustGiving - the easiest way to fundraise and donate to charity online
- Leukaemia Research
Leukaemia Research. With all the information you need - whether you're a patient, researcher, fundraiser or interested in the work we do - there is something here for you
- Help for Heroes - A charity for the wounded in Britain's current conflicts
Help for Heroes is an organisation formed to help those who have been wounded in Britain's current conflicts. Welcome to Help for Heroes. Practical, Direct support for our wounded. It's about the blokes, our men and women of the Armed Forces. It's ab
- Donate to CLIC Sargent via Cheryl Lawrence
JustGiving - the easiest way to fundraise and donate to charity online and Cheryl is raising money for CLIC Sargent, a great charity that helped enormously when Daniel was diagnosed with Leukaemia.
How CLIC Sargent helped us
You can coast through life thinking it won't happen to me, and then it does
Daniel was living in Cyprus with his mum and dad who were based there with the army.
First thing was when his mum became concerned that he suddenly had developed lots of bruising for no good reason.
It was bad timing because it was Easter weekend and the medical centers were a bit short staffed. Even so she decided to make an appointment to get Daniel looked at.
The staff at the medical center didn't really know what the problem was so referred Daniel to the local hospital.
24 hours later the whole family arrived back in the UK with one suitcase, the clothes they stood up in and an appointment at the Bristol children's hospital oncology unit.
Daniels leukemia was confirmed soon after.
Where was the help and support
At a time like this you need your family and friends
So where were we well all this was going on, unfortunately we had gone off on a skiing vacation and I had switched my mobile off for about 3 days, something I will never do again.
The first we heard was when I thought I'll just put my mobile on and see if there were any messages. Well the phone went bananas there was message after message asking us to get in touch as soon as possible, it was obvious it wasn't good news.
They did have some support, Daniel's uncle and aunty immediately booked some holidays and went to Bristol to help out, his other Grandma and Grandad also went to visit and to see what they could do. Big problem was though that no one really had accommodation close enough to the hospital to put them up, they really needed to be close to Daniel at this critical time and to stay with him in the hospital.
We hadn't even heard of CLIC Sargent
One suitcase and a baby to look after, who could help?
This is where they were first introduced to CLIC Sargent who had two large houses very close to the hospital.
They were offered a room in one of the houses so that they could arrange for at least one of them to be with Daniel all the time but they also had somewhere to go with his little brother, still a baby, when they needed to.
The houses were beautifully kitted out including a fully fitted kitchen with play areas in the garden and a games room inside in fact everything you would need to live comfortably.
The support and counseling were also made available immediately, there were play assistants in the hospital and the family were quickly introduced to other families in a similar predicament, not that they were taking much on board at these early stages.
Getting Home as fast as we could
Flying first class didn't even register
Meanwhile we cut short our holiday and asked our holiday insurance company to get us home. They were brilliant, they got us a first class flight out of Munich that same night and we got home the next day.
We didn't even realize we were in first class and just said no to everything we were offered during the flight.
Bet that was a first for the airline, they must have wondered what was going on.
We got to the hospital early that day to visit and to see Daniel. He was yellow, looked very ill and was about to start the battle of his life.
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Ongoing Support and Help
CLIC Sargent are there for you for as long as you need them
The doctors had explained that Daniel's treatment would last for 3 years (1 year longer than for a girl) and that he would need to be in remission for at least 5 years before the leukemia would be considered to be no more a threat for Daniel than anyone else, in other words he would be back to normal or as close as he could be.
I can't really go into the whole of the 3 years of treatment but I will say there were set backs and Daniel faced some very serious threats from infection during this period with emergency admissions to hospital for urgent treatment on several occasions, this was on top of the routine treatments of chemotherapy, lumber punctures, blood tests and a strict regime of medication morning and night.
It goes without saying that through the whole period of his treatment CLIC Sargent were there offering practical advice, counseling and helping the family, including home visits by the CLIC nurse and being introduced to others to form self help groups.
This was especially important during the first few months particularly as on top of everything else they had to re-locate back to the UK from Cyprus.
I will have lasting memories of cooking endless rounds of bacon and eggs to satisfy Daniel's craving. This happens as a result of taking the very strong steroids he had to have as a part of his medication. CLIC Sargent didn't help with that but then they can't do everything.
I have a huge admiration for his parents and the way they dealt with the crisis throughout the period of his illness, trying to live a normal happy family life.
Our story has a happy ending
For Daniel there was a happy ending, now fully recovered living a normal life
The main photo for the lens above is of Daniel living in Germany going to his school's dining out night, now a happy 11 year old.
The photo in the garage is when he was caught in the act with his little brother using my tools as he neared the end of his treatment and was well on the road to recovery.
Not all the stories have a happy ending a close friend of Daniel's, a little girl, also contracted leukemia, the same strain that Daniel had, she very sadly got an infection which she didn't recover from.
The reason I mention this is to highlight that there is still much work to do improving the treatments and trying to eradicate the death of any child through the contraction of this very serious disease.
Besides the support role that is provided, another function of CLIC Sargent is the funding of research into the disease and the development of more effective treatments.
Any money that this lens generates through advertising revenue is going to be donated to charity and I have included links to allow you to access the CLIC Sargent website to see what they do and to go directly to them to make a donation.
I didn't know we would ever need the support that CLIC Sargent provide but we were very glad of it when we did.
Help us make sure they are still able to be there for other people when they are needed and can continue to support the important research work that continues to this day.
Since writing this article I am sad to say my mother contracted cancer and has subsequently died. This charitable work needs to continue because the battle has not yet been won. Cancer is still taking lives and will continue to do so if ordinary everyday people don't support the causes that fund research into this disease. It is at the end of the day ordinary, everyday people who get the disease and who's lives are threatened by it.
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