Do you know anything about Cystinosis and Fanconi Syndrome and if you don't would you like to knowMy daughter has these and is 21 years old still with her own kidneys and just put on the transplant list
I am so sorry for your daughter.If informing others about your daughter's rare situation helps you deal it with it better, then by all means write a Hub or two about it! I, for one, would love to read and learn more about it.I wish you and your family the best of luck.
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