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Life with MULTIPLE SCLEROSIS

Updated on March 26, 2017

If you have Multiple sclerosis Or if someone you love has been diagnosed with M.S. please read this page!

Hi, my name is Maria. I am 35 years old. I have been living with M.S. for some time now. I was diagnosed with Multiple Sclerosis 11 years ago. If any of my experience can help someone, that would be amazing. I am hoping to share my point of view on being diagnosed with Multiple Sclerosis and living life with M.S. When I was first diagnosed with Multiple Sclerosis I was very scared and confused, it was hard to see the future ahead. The world does not stop when your diagnosis comes in, but it sure changes for you, and those around you. I hope this page will help you to understand the journey of someone living with Multiple Sclerosis or any other chronic illness.

photo by mariajomith

A Little of my Multiple Sclerosis Story

I was 24 years old when I was diagnosed with Multiple Sclerosis. when the Neurologist came in and told me I had M.S. I was actually shocked. This was not what I was expecting to hear. My exact words were " I have a 4 year old and a 1 year old at home, this is not possible." Well it certainly was possible and I have changed a lot since that day.

photo by mariajomith

Coping with M.S.-Finding Out That I Have Multiple Sclerosis

I am going to be completely honest in this lens. The technical stuff is for textbooks. I was depressed, shocked and felt very sorry for myself when I was diagnosed with Multiple Sclerosis. I couldn't imagine this was happening to me. After all I certainly didn't deserve this. I was a devoted wife, a doting mother, and had a full time job- which I despised, but would have done anything to give my family a better life. I got a call from my cousin- my angel. I have told her how much this means to me, but i don't think she will ever truly understand. You see my cousin had already been living with Multiple Sclerosis for many years. She said "just thank god at this time, that you don't have cancer." On this day I was feeling so sorry for myself, that I really was considering cancer as a better alternative. Anyway she talked me through it for hours. The moral of this section, is that if you can reach out to someone recently diagnosed with Multiple Sclerosis, or any other disease, please do. My cousin taught me that M.S. is not a death sentence, and life is not over on this day.

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On Doctors Treating Your Multiple Sclerosis

People with Multiple Sclerosis need a great Neurologist

I have an amazing neurologist. She was my third try, and i am telling you I seriously would not be here if it was not for her. If your Dr. makes you feel uncomfortable for any reason-- RUN. If you Dr. does not do paperwork, or makes you feel bad about it --RUN. You have it hard enough, let your Dr. help you. If you are depressed, and you probably are, do not be afraid to seek therapy for depression and anxiety. Remember the textbooks I talked about, its right in there, depression is a part of the disease.

photo by mariajomith

my son and i made this together in Jekyll Island Georgia, one of my favorite days
my son and i made this together in Jekyll Island Georgia, one of my favorite days

On Life With M.S.

I love my life. I would not trade it for anything in the world. With the right outlook you will get here. I can no longer work, the job that I had to leave was very demanding, and had no tolerance for the disabled. I no longer make money, but I do make memories. I treasure everyday that I can throw a ball with my son, go to my daughter's tennis matches, cook my husband a meal or take my dogs for a walk. I am not always a ray of sunshine, and I am almost always tired and cranky, but they love me anyway. My kids are not always at every social event, but they are always kind and compassionate, and really do appreciate the simple things in life. We take vacation every year, which is something I never did when I worked. I can not afford to take vacation, but I will die with a lot of debt and a lot of joy in my heart.

photo by mariajomith

On Love and Marriage

My husband is my hero!

I am not a fan of sappy love stories, but I must give credit where credit is due. I am married to an amazing man who loves me unconditionally. When we took our wedding vows, we did not know that every one of them would be tested. I can only say that we have passed the test with flying colors. He has carried me through my hard days, sometimes literally, and we have learned to really cherish each day that we have together. I never wonder if he will be here when times are hard, I know that he will be by my side every single step of the way. I am truly blessed in so many ways.

photo by mariajomith

Final note- Life Goes on with Multiple Sclerosis

I can count all my friends on one hand (unless you count furry ones). I am not saying this will happen to you, but good friends are hard to come by. If someone makes you feel bad about being late or missing a really important event ( and you missed it because of your health) they are not your friend. You will not have a lot of energy to spare, so spend it on the people that really love you. Surround yourself with people that respect you and understand that you are the best you, that you can be every day. Cut yourself some slack, this is not easy. Be the best you can be, be as active as you can to stay strong as long as you can. Know that there is someone that understands you, and look for that person if you have to. Best of luck. I will be thinking of you.

by mariajomith

photo by mariajomith

my personal trainer - she's the one in pink!

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photo by mariajomith

Have you been touched by a Chronic illness?

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    • profile image

      Tiffany 2 years ago

      Maria,

      Thank you for sharing a little piece of yourself with us. I am 22 years old and was diagnosed with MS December 11, 2010. I am a little bitter still about having to miss my whole senior year of high school. The time that was supposed to be the highlight in everyone's life was the worst time in mine. My walk has been difficult to say the least and I am still working on acceptance. It is always nice to hear from someone with similar struggles.

      P.S. I hope you are doing well! Blessings to you and your family!

    • SusanDeppner profile image

      Susan Deppner 3 years ago from Arkansas USA

      My daughter-in-law has MS and I am positive she'd agree with every word you just wrote. She's fortunate still to be able to work and just last night she told me about an incident with her boss, something good that happened and showed that he understands her situation. Blessings to you, my dear!

    • katiecolette profile image

      katiecolette 4 years ago

      That's great that you have such a supportive family and great friends. Stay strong!

    • profile image

      ellenr-stanton-9 4 years ago

      My sister Cate has MS. Please visit her blog: http://www.mslife.lifesparknetwork.com

      Together, we CAN find a cure for this disease!

    • AcornOakForest profile image

      Monica Lobenstein 4 years ago from Western Wisconsin

      I have a friend who was diagnosed with MS several years ago. Reading this helped me to understand (if only a little bit) more of what she has gone through. Thank you so much for sharing this! Blessed

    • Magda2012 profile image

      Magda2012 4 years ago

      Maria, you are a strong lady. Thanks for sharing your personal story.

    • LynetteBell profile image

      LynetteBell 4 years ago from Christchurch, New Zealand

      Thanks you for sharing. The friends you can count on one hand are true friends...others are acquaintances. But I do know sometimes people don't know what to say and are afraid to say or do the wrong thing. They think that they may upset you, so don't be too hard on them.

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      resabi 4 years ago

      Thank you for sharing your experience. I'm going to link this to my Dealing with Dialysis lens. I appreciate your candor and your optimism. I agree -- living with a chronic illness is challenging, both personally and because you can't help but see how much it affects your family. I'm glad you have such good support.

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      anonymous 4 years ago

      After a week of MRI's and other tests, I was diagnosed this morning with MS. I don't know anyone who has ever had it and I found this link so I guess I would like some advice. Thanks.

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      Vikki 4 years ago from US

      *Blessed* ;)

    • Cari Kay 11 profile image

      Kay 4 years ago

      I can relate. I have severe anemia and it can be so tough. I am so tired all the time. I really appreciated your page and your advice on doctors is spot on. blessed!

    • ViolaSuSi profile image

      ViolaSuSi 4 years ago

      I have MS too. I've been living with this 'lover of mine' for about 13 years. But I was diagnosed after 10 years of MS symptoms: blurred vision, tingling, etc. MS 'taught' me to really appreciate life and its beauties.

      The best wishes to you. Take care of yourself.

    • floppypoppygift1 profile image

      floppypoppygift1 4 years ago

      This is a beautiful lens-great writing and a great resource! Cheers~cb

    • kislanyk profile image

      Marika 4 years ago from Cyprus

      Just passing by again, been a few months since I liked this lens - it has great MS information. Throwing a bit of angel dust :)

    • Rosaquid profile image

      Rosaquid 4 years ago

      This is helpful You are so fortunate in your wonderful husband. I have friends with MS and other chronic illnesses, and the challenges are similar for them all. Thanks for sharing your encouraging story.

    • sunny saib profile image

      sunny saib 4 years ago

      Thank you for sharing your story. i didn't know about sclerosis until now. Spreading awareness is a great job in itself. Inspiring..

      Keep writing.

    • TreasuresBrenda profile image

      Treasures By Brenda 4 years ago from Canada

      Great job sharing about your journey with MS. Maybe your experiences will help others.

    • TreasuresBrenda profile image

      Treasures By Brenda 4 years ago from Canada

      Great job sharing about your journey with MS. Maybe your experiences will help others.

    • LaurisB LM profile image

      LaurisB LM 4 years ago

      Good for you for writing about your personal journey. I am sure that it will help others. My daughter was diagnosed with diabetes at a young age. It's a terrifying thing to get news like that.

    • RedShoesGirl profile image

      RedShoesGirl 5 years ago

      You story is amazing. You are a strong person and you deserve all the respect in the world. Lovely dogs :)

    • Melissa Miotke profile image

      Melissa Miotke 5 years ago from Arizona

      Thanks for sharing your story, it's very inspiring. My husband has a couple of family members with MS. No one in my immediate family currently has any chronic illnesses but I know any day that could change. I was recently sick for several months and was told that something was severely wrong with me but they couldn't figure out what. Then it just all went away. I feel like I dodged a bullet.

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      Lori Green 5 years ago from Las Vegas

      They thought I had MS 20 years ago. I had one flair up and they gave me the diagnosis. It was scary. The problem was it never came back.

    • dpgibble profile image

      dpgibble 5 years ago

      I had a stroke 4 years ago and the left-side paralysis and nerve pain is ongoing but not considered chronic in the same way as ms. Your interests in dogs, chickens and people attracted my attention. By focusing upon the needs of others and roles I might play helps me with the depression that accompanies my own neuro disaster. God left me here for a purpose and if I am busy being a blessing to others I may find fulfillment. Thanks for sharing.

    • Rosetta Slone profile image

      Rosetta Slone 5 years ago from Under a coconut tree

      My step-mum was diagnosed with M.S in her late 20s but I didn't know much about it until reading your lens. Thankyou for your honesty.

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      James 5 years ago from Oregon

      I was diagnosed with MS when I was 36 although after being diagnosed i realized that I had MS for about 8 years prior to being diagnosed. It was really great reading your story.

    • Dusty2 LM profile image

      Dusty2 LM 5 years ago

      Hi mariajomith, very interesting, informative and your willingness to share your story with us. Remember one thing mariajomith; besides your husband and family there to support you when you are having a rough day is that you have your Squidoo family here supporting you also. Stay strong, keep up the faith and everything will be ok because you have a beautiful family loving you.

      Please; Pay It Forward!

    • victoriuh profile image

      victoriuh 5 years ago

      Interesting read. My friend was dx'd at age 21. It was a total shock, but isn't letting it stop her. Wishing you many, many good days.

    • playercoach profile image

      playercoach 5 years ago

      Such a well written and inspirational lens. This will be a help to many. I wish you all the best with your journey.

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      Cathy Slaght 5 years ago from St. Petersburg, Fl

      Thanks for reaching out to help others with this lens- you've done a great job-

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      Jazroockfree 5 years ago

      nice lens!thanks for you information and sharing

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      Sweets64 5 years ago

      @LisaMarieGabriel: what kind of help are you getting for you Diabetes? Diabetes is something I have studied a lot on. It is dear to my heart because it causes so much damage within the body and people really must take action in making necessary lifestyle changes to prevent the damage it causes.

    • LisaMarieGabriel profile image

      Lisa Marie Gabriel 5 years ago from United Kingdom

      Beautifully written, and an inspiration for anyone who has been touched by M.S. After several years of being "unwell" I finally got a diagnosis of Type 2 diabetes and started - at last - to get some help. The advice you have here is something I will take heed of and cherish. Blessed today!

    • Beth Buckley profile image

      Beth Buckley 5 years ago from Portland, OR

      Blessings, Maria, on your journey. And thank you for sharing your personal story. ~ Beth

    • jballs6 profile image

      jballs6 5 years ago

      You are an amazing and refreshing person, I wish you well in all that you do. Congratulations on your purple star it is so well deserved x

    • profile image

      anonymous 5 years ago

      @Mariajomith: Congratulations on the Purple Star award. :)

    • CruiseReady profile image

      CruiseReady 5 years ago from East Central Florida

      My adult daughter has been very ill for a couple of years now. It's so hard on her... your story is one that needed to be told, Thank you for doing so. I really liked the part about your husband.

    • profile image

      anonymous 5 years ago

      Returning to smile at your pretty purple star, congratulations, its well deserved!

    • profile image

      pawpaw911 5 years ago

      Well done. The best thing is that you love your life. Wishing you all the best in everything you do.

    • profile image

      jazziyarbrough 5 years ago

      Wow, I am so glad you have a positive outlook on life. Thanks for sharing your health challenges with M.S. Have you ever had mercury fillings? May be something to look into as mercury amalgam fillings can contribute to MS. Bless you and hope to chat with you soon!

    • Gayle Mclaughlin profile image

      Gayle 5 years ago from McLaughlin

      Thank you for your story! My sister has had MS since 1971 (she was 31)--but they didn't diagnose it until 1981. She has had a wonderful life due to her faith in God. She went back to school and got her teaching degree, taught 23 years as a kindergarten teacher and raised two children. I know all MS patients have different experiences and different kinds of MS. I just want to give you hope. There is life after MS! Blessed!

    • profile image

      pinkbellaboutique 5 years ago

      Thank you for your story. I was diagnosed with MS 5 years ago. My husband and daughter got me through the initial shock. I too can't work and I love how you explain that we don't have much energy and if friends get mad because we don't attend an event, then they aren't really friends. Depression is huge and I lost my daughter 2 years after being diagnosed. My husband has carried me and saved my life going through these 2 events in my life. Your lens really spoke to me and even made me think of some things I needed to change. Thank you for writing on this topic

    • profile image

      happynutritionist 5 years ago

      Thanks for your story...I am sure it will help others to read it. Yes, I have known quite a few with MS, at least 5 I can think of off the top of my head, and of them a couple were good friends. It's a challenging road..they believed God would not give them more than they could bear and was close to them through the journey. *blessed*

    • kislanyk profile image

      Marika 5 years ago from Cyprus

      Wow it must be really a frightening experience. Thanks for sharing it with us all.

    • profile image

      sherioz 5 years ago

      Thanks for sharing this personal story. It is touching and inspiring.

    • hotbrain profile image

      hotbrain 5 years ago from Tacoma, WA

      I like your writing style... You do a very good job of telling your story. It was a nice read! Thanks :)

    • Rankography profile image

      Rankography 5 years ago

      Hey maria, I hope you are doing well these days. I recently joined the Squid Angels ranks and wanted to stop back by to Bless your lens. Excellent job sharing such a personal story.

    • TeacherSerenia profile image

      TeacherSerenia 5 years ago

      YES - but I wasn't diagnosed until I was in my 40s (2 and half years ago now) - and while it is not life threatening, I do need to take drugs to keep it under control.

    • Paul Ward profile image

      Paul 5 years ago from Liverpool, England

      Angel Blessed for turning a bad happening into an uplifting message.

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      AJ 5 years ago from Australia

      I dropped by again to leave my blessings. All the best and wishing you a happy weekend.

    • LornsA178 profile image

      LornsA178 5 years ago

      Very touching and inspirational lens, thanks for sharing your heart.

    • lclchors profile image

      lclchors 5 years ago

      Very heart warming lens. Yes I have a chronic illness. Maybe one day I will be brave enough to write about it too. good luck and God Bless

    • VeseliDan profile image

      VeseliDan 5 years ago

      I am very lucky because I've never had a chronic illness. Thank you so much for sharing this story. *blessed*

    • profile image

      dream1983 5 years ago

      Beautiful looking lens! Squidlikes!

    • Dmarieinspires profile image

      Dana Marie 5 years ago from St. Peters, MO

      I have an old and dear friend with MS...great lens and i wish you nothing but the best :)

    • MelanieMurphyMyer profile image

      MelanieMurphyMyer 5 years ago

      Beautiful. Thank you so much for sharing. I hope you will share more of your life and story. This brought tears to my eyes. I have a young adult daughter with cystic fibrosis, a different condition, but many of the same types of experiences and feelings go along with it. Thank you so much. <3

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      estellaeffects lm 5 years ago

      I have SLE and avascular necrosis. I am always sapped of energy, tired, angry. Some days are god some bad. Prayer helped me and at present i am using the healing codes.

      Since I started the healing codes, I am able to sleep better and have reduced symptoms.

      I have sent my son to my parents as I am unable to take care of my son. My daughter stays with me. He is 2 she is 81/2.

    • Elsie Hagley profile image

      Elsie Hagley 5 years ago from New Zealand

      Lovely lens. It was very heart jerking for me, as I had a sister past away six years ago with MS. So I know how you feel, I wish you all the best for your future.

      Thanks for sharing with us it is good to be able to do that. Squid angel blessed.

    • KathyMcGraw2 profile image

      Kathy McGraw 5 years ago from California

      Getting out of depression is very hard, but with the right attitude and support we can get through almost anything. Sharing your personal experience often helps people you will never know about.

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      Fay Favored 5 years ago from USA

      Thank you for sharing your story. May it be a help to others.

    • WriterJanis2 profile image

      WriterJanis2 5 years ago

      What an inspiration you are. Blessed!

    • profile image

      livingfrontiers 5 years ago

      You are showing many that MS is not the end of days...what a gift! I think your lens could turn into a very amazing journey for you...many hugs to you from Minnesota!

    • CyberTech LM profile image

      CyberTech LM 5 years ago

      WOW MS..... I was told I have the "On set of MS" what ever that is. But I do have Firbo, Neuropathy, Spinal Degeneration, Stinosis in 11 areas of the spine, nerve damage in both arms and both legs, and the big one Diaphragm Paralysis and had a Diaphragm Plication done. I sound like a mess, but I am happy and in pain, yes but deal with it! Remember live today and the rest of your days to the fullest! Tell every one you are feeling GREAT and be happy!

    • Rankography profile image

      Rankography 5 years ago

      Thank you for sharing your story and I wish you all the best with the disease. You have a great attitude about life.

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      SteveKaye 5 years ago

      Thank you for writing this honest and courageous article. Wish you the best.

    • LittleLindaPinda profile image

      Little Linda Pinda 5 years ago from Florida

      Thank you so much for sharing your deep and honest reactions and thoughts. You are helping others who are dealing with Autoimmune Diseases more than you will probably every know.

    • biminibahamas profile image

      biminibahamas 5 years ago

      You are truly someone special! Thank you for sharing your story ...

    • profile image

      poutine 5 years ago

      hope that you will stay strong and that the medical world will find a cure for ms.

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      Darcie French 5 years ago from Abbotsford, BC

      Lovely to meet you <3

    • Mariajomith profile image
      Author

      maria 5 years ago

      @JoshK47: thanks so very much for your support

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      JoshK47 5 years ago

      Thank you very much for sharing your experiences with us here on Squidoo - blessed by a SquidAngel.

    • Water2U profile image

      Water2U 5 years ago

      Maria! Stay Strong ! You have 2 lovely kids. One boy and one girl means good word in chinese, You have to see they grow, they graduate, they marry....

      Check with my site, see Kangen water can help.

    • Mariajomith profile image
      Author

      maria 5 years ago

      @anonymous: thanks so much for your encouragement and reading my article

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      anonymous 5 years ago

      Thank you for sharing, this article must have been difficult to write. All the best to you my dear. Stay strong!

    • Rangoon House profile image

      AJ 5 years ago from Australia

      All the best to you and you family Maria. May there be a cure around the corner.

    • OHG LM profile image

      OHG LM 5 years ago

      your honesty and sincerity are refreshing! ...you are so right:

      "Cut yourself some slack, this is not easy. Be the best you can be, be as active as you can to stay strong as long as you can"

      Blessings bee yours!

    • khemo53 profile image

      khemo53 5 years ago

      Maria, I have a friend with MS that says "God doesn't always give us what we want, but He always gives us what we need" You seem to have a great inner strength.

    • gottaloveit2 profile image

      gottaloveit2 5 years ago

      Personal accounts always touch me. I hope you're doing well.

    • JoleneBelmain profile image

      JoleneBelmain 5 years ago

      It is important to find the little things in life that make you smile and laugh. You have a lot of courage, and I wish you the best.

    • Mariajomith profile image
      Author

      maria 5 years ago

      thanks for the all of the positive feedback, much appreciated

    • Redneck Lady Luck profile image

      Lorelei Cohen 5 years ago from Canada

      Best wishes to you Maria. I hope that you are well and that your MS is as comfortable to live with as is possible. Best of wishes.

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      anonymous 5 years ago

      Maria, thanks for sharing this lens with all of us. I appreciate the spirit in which you approach your illness. I wish you all the best.

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      cleanyoucar 5 years ago

      Thanks for sharing your experience. My cousin's wife also has MF, I'll forward her this lens =). Hopefully she finds inspiration with your story.

    • Mariajomith profile image
      Author

      maria 5 years ago

      @EEWorkouts: i really appreciate your comment. and you are my first ever comment!! i will make sure to take a look at your lenses today.

    • EEWorkouts profile image

      EEWorkouts 5 years ago

      This is a great lens, inspiring for anyone.