Are you sad the Muscular Dystrophy Association telethon is ending its annual Lab

  1. Stacie L profile image87
    Stacie Lposted 3 years ago

    Are you sad the Muscular Dystrophy Association telethon is ending its annual Labor Day telethon?

    The Muscular Dystrophy Association telethon is ending its annual Labor Day telethon, a television tradition for decades that has slowly disappeared. The Muscular Dystrophy Association telethon is ending its annual Labor Day telethon.
    Is it worth keeping or has it outlasted its appeal?

  2. profile image0
    Larry Wallposted 3 years ago

    No, I am not. My mother died of ALS, one of the diseases that fall under the MDA umbrella. The telethon got  to be too depressing and provided an excessive amount of detail about the illnesses. Other groups, such as the Heart Association, do an excellent job in raising funds. Instead of the telethon, we need a campaign about muscular dystrophy, its symptoms, impact on families and the need for more research funds.

    I think Jerry Lewis did a fantastic thing when he started the telethon. He showed the seriousness of the illness but kept it light enough for people to want to watch. In recent years, the entertainment potion had declined, and the information part was turning into a guilt trip. A new approach to raising funds and deciding who will get those funds was needed. I watch my mother die over a period of about 18 months. The MDA did not offer any assistance, unless  we agreed to use their doctors. There were no MDA doctors where I was living then. We got state and federal assistance, and the phone company help supplies a communication device, could transmit messages over phone lines by typing on a keyboard--which is not easy for a person with ALS, but it did offer a little of communication independence for a short time.

    1. Stacie L profile image87
      Stacie Lposted 3 years agoin reply to this

      I'm sorry for your loss and you obviously have some experience with this organization.
      It simply became an outdated form of fundraising,I guess.

 
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