After one failed neck surgery in 2001 and a triple cervical fusion in 2004, It became quickly apparent that my arms, then legs, then face began to shake. Soon thereafter, I was inflicted with the most agonizing pain I have ever experience. From 2001 to 2005 I endured millions of tests including tests for Parkinsons, bone marrow cancer, etc...After 13 hospitalizations on average during this time frame, it got to the point where there were many days I could not get out of bed. As a lawyer and a professor, it killed me when the doctors told me I was just too sick to work. In 2005 a famous neurologist finally advised me that I had RSD. While one might think knowledge is equivalent to a cure, that is not the case with RSD. Since my diagnosis, I have endured on average 12-13 in-patient hospitalizations for a minimum of a week each year. I have been through out patient ketamine for three years, as well as two ICU-in hospital ketamine infusions. I am on more pain killers than a person twice my size can take and have gained about 50 pounds from neurological drugs. i also had the stimulator. It seemed to work great during the 5 day trial. The problem was a month after being installed it kept antagonizing the RSD and finally made it so bad that they had to remove it in surgery. I have asked my doctors to cut off my legs, to no avail. I have finally made the decision to go to germany for treatment. Please, before you get as depressed and down as I have, please write to me as I have a plethora of information on this terrible illness. LRM196
by livingwithbipolar 5 years ago
I used to be a healthy person, this fibromyalgia is a pain (LITERALLY). What I want to discuss is, is that why aren't more doctors knowledgeable and Empathetic about this disease? My question is, why in the hell would I go to the doctor and tell them my whole body is in pain and that I can barely...
by Thomas Haines 8 years ago
I wrote this letter to a doctor after she dropped my wife due to pain medication. Dear Doctor,this letter is being sent to you on behalf of my wife and myself.There is a difference between pain and suffering.Pain is the direct result of a...
by Peeples 19 months ago
How do you deal with chronic pain?I have degenerative disk disease that causes an insane amount of pain. I am told I need to go onto "pain management" (nice way for docs to say permanently on heavy pain killers). So I ask all of you, do you have any ways of dealing with chronic pain, are...
by Susan Trump 3 years ago
Are you someone with chronic pain who would like to share information?
by beagrsv 3 years ago
Has chronic pain ruined your life?Who has let chronic pain take control of their lives? Would you like the solution that resides within us all? I beat it so can you!
by Moon Daisy 19 months ago
What helps your Chronic Fatigue / Fibromyalgia?So I have a vague diagnosis of "a Chronic Fatigue or Fibromyalgia-type thing", after years of problems. But the doctor didn't really have any suggestions about what I should do for it. Have you found anything (exercise, therapy,...
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