After one failed neck surgery in 2001 and a triple cervical fusion in 2004, It became quickly apparent that my arms, then legs, then face began to shake. Soon thereafter, I was inflicted with the most agonizing pain I have ever experience. From 2001 to 2005 I endured millions of tests including tests for Parkinsons, bone marrow cancer, etc...After 13 hospitalizations on average during this time frame, it got to the point where there were many days I could not get out of bed. As a lawyer and a professor, it killed me when the doctors told me I was just too sick to work. In 2005 a famous neurologist finally advised me that I had RSD. While one might think knowledge is equivalent to a cure, that is not the case with RSD. Since my diagnosis, I have endured on average 12-13 in-patient hospitalizations for a minimum of a week each year. I have been through out patient ketamine for three years, as well as two ICU-in hospital ketamine infusions. I am on more pain killers than a person twice my size can take and have gained about 50 pounds from neurological drugs. i also had the stimulator. It seemed to work great during the 5 day trial. The problem was a month after being installed it kept antagonizing the RSD and finally made it so bad that they had to remove it in surgery. I have asked my doctors to cut off my legs, to no avail. I have finally made the decision to go to germany for treatment. Please, before you get as depressed and down as I have, please write to me as I have a plethora of information on this terrible illness. LRM196
by beagrsv 3 years ago
Has chronic pain ruined your life?Who has let chronic pain take control of their lives? Would you like the solution that resides within us all? I beat it so can you!
by livingwithbipolar 5 years ago
I used to be a healthy person, this fibromyalgia is a pain (LITERALLY). What I want to discuss is, is that why aren't more doctors knowledgeable and Empathetic about this disease? My question is, why in the hell would I go to the doctor and tell them my whole body is in pain and that I can barely...
by Peeples 16 months ago
How do you deal with chronic pain?I have degenerative disk disease that causes an insane amount of pain. I am told I need to go onto "pain management" (nice way for docs to say permanently on heavy pain killers). So I ask all of you, do you have any ways of dealing with chronic pain, are...
by NGRIA Bassett 7 years ago
Any non narcotic or alcohol tips?
by Thomas Haines 8 years ago
I wrote this letter to a doctor after she dropped my wife due to pain medication. Dear Doctor,this letter is being sent to you on behalf of my wife and myself.There is a difference between pain and suffering.Pain is the direct result of a...
by Maddie Ruud 7 years ago
Chronic Pain Management Tips
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