If you suffer from a chronic illness, what is the hardest part about living with

Jump to Last Post 1-4 of 4 discussions (4 posts)
  1. NewLifeOutlook profile image54
    NewLifeOutlookposted 2 years ago

    If you suffer from a chronic illness, what is the hardest part about living with the condition?


  2. profile image0
    LoliHeyposted 2 years ago

    I think the hardest part is that other people don't understand what you are going through, and either assume others things and misunderstand you, or they don't care.

  3. cam8510 profile image96
    cam8510posted 2 years ago

    I suffer with Willis Ekbom disease, formerly known as Restless Legs syndrome or RLS/WED.  The hardest part about living with this chronic disease is the symptoms themselves.  The neurological sensations/pain in my case, affect my lower legs, lower arms, jaw and gums.  Without treatment in the form of Pramipexole (Mirapex), my life would be very different.  For one thing, I would be disabled in terms of employment because I would sleep very little.  The sensations are distressing and the only thing that relieves them short of medication, is walking. 

    The next thing that is hard regarding this disease is that most people misunderstand it.  They think it is an involuntary movement of the legs or kicking.  The fact is, the moving of the legs and kicking is very voluntary unless I am lucky enough to have fallen asleep.  I move my legs to relieve myself of the horrible sensations or pain.

    Another difficult part of this disease it the attitude of the general public.  The old name, Restless Legs Syndrome, was an unfortunate name.  People find it funny.  They imagine a person kicking their legs or kicking other people because of involuntary movement of their legs. 

    Health insurance is another problem.  My neurologist and I found a drug that worked better than the one I am now on.  We worked with it until we hit the optimum symptom relief.  That was reached at 8mg of the medication.  The insurance company told us that my symptoms should disappear at 3 or 4 mg.  The symptoms didn't disappear, but the new drug and the insurance company sure did. 

    Thanks for the good question and the opportunity to share about this horrible, but manageable, chronic illness.

  4. nnms profile image78
    nnmsposted 2 years ago

    My father has CKD, end stage kidney failure and I learned from him that not being able to be cured or normal again ( hopelessness) seems to be the hardest part.


This website uses cookies

As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://hubpages.com/privacy-policy#gdpr

Show Details
HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
LoginThis is necessary to sign in to the HubPages Service.
Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
AkismetThis is used to detect comment spam. (Privacy Policy)
HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
MavenThis supports the Maven widget and search functionality. (Privacy Policy)
Google AdSenseThis is an ad network. (Privacy Policy)
Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
Index ExchangeThis is an ad network. (Privacy Policy)
SovrnThis is an ad network. (Privacy Policy)
Facebook AdsThis is an ad network. (Privacy Policy)
Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
AppNexusThis is an ad network. (Privacy Policy)
OpenxThis is an ad network. (Privacy Policy)
Rubicon ProjectThis is an ad network. (Privacy Policy)
TripleLiftThis is an ad network. (Privacy Policy)
Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)