What should someone know who is newly diagnosed with Lupus?

1. 93

   peeplesposted 9 years ago

   What should someone know who is newly diagnosed with Lupus?

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2. 68

   Lady Guinevereposted 9 years ago

   Look at your diet because that plays an important role in your health.  Potatoes, Tomatoes and Eggplant and the like will wreck havok on someone with Lupus.  They are all in the vegetable category of  Nightshades.  Here is a link that you might want to investigate:
   http://www.greenmedinfo.com/blog/link-b … flammation
   
   I do hope that this helps lots for you.

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      peeplesposted 9 years agoin reply to this

      Thank you LadyG!

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   2. 68

      Lady Guinevereposted 9 years agoin reply to this

      You are most welcome peeples and nice to see you posting again.

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3. 60

   rlahaposted 9 years ago

   Hi.
     I have a couple of friends with Lupus. They say that it is not fun having it. One of my friends says that she is controlled with her medications, so she does not have too many flare ups. The other friend doesn't have access to a car and her finances are not good at the moment. She says she experiences a lot of pain and discomfort all the time. She is not allowed to work due to the severity of her lupus, so she cannot get good health care at this time.
   
     My advice is to try to live a normal lifestyle to the best of your abilities. Eat properly, see the doctor as often as you need to, rest when you need to, exercise when you can and overall, try to enjoy your life.

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4. 61

   artist101posted 9 years ago

   
   
   I have had this disease for 12 years now. Listen to your doctor. A rheumatologist, is a good place to start. Chronic inflammation is a classic symptom. There are 2 types, discoid, and systemic. Avoid stress, seems to be one of the main causes of flairs in auto immune disease. Get a good support system in place. A group of others who have the disease, wether one on one, or online. The lupus foundation is a good place to start. The disease is not you, just something you have. There will be a period of "why me?" as is in any disease, chronic or otherwise. Find out as much as you can about your disease, education, puts it into perspective. Currently, there is no cure, period!! Anti inflammatories, and steroids are the usual course of treatment. Keep your appointments, labs current. Yes they are necessary.   
   Focus on you, what you enjoy, and do it! Don't let the disease stop you, it only has that power if you let it have that power.
   If you are tired, rest. No excuses, no explanations, period.
   Be careful with "cures", be careful with supplements, know what you are taking. Some can affect kidney function. If you haven't had a kidney function test, ask your Dr.  Better to know.
   Anyone that doesn't support you, blames you, or is negative in any way, avoid them. You need support, love, understanding, and compassion.
   Most of all, love yourself! You are a unique person. Give yourself a hug every day, embrace your unique qualities, and develop those qualities. Take good care of yourself!!!

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