Any Experience With Neurontin (Gabapentin) For Neuropathy?

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   sunstreeksposted 10 years ago

   My mom has pretty severe Neuropathy from chemo.. One of her coworkers told her about Neurontin.. Does anyone have any experience with this drug? She's worried about side effects. I looked up the wiki and health websites but we're looking for actual experiences? Thanks in advance

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      pinkboxerposted 9 years agoin reply to this

      My experience is also to start with a lower dosage, and increase gradually, but only as needed. I agree that sleep improves with Neurontin.

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      webminerposted 9 years agoin reply to this

      Contrary to the experience of others on this thread, my mother had less than satisfactory experience with Neurontin and Lyrica as well.  She was unable to get it to an effective level for her diabetic neuropathy because she would hallucinate from it.  She would see children in snowsuits in the house and rats crawling the walls.  We had to keep the dosage very low and at that level it would not successfully relieve the pain.
      
      webminer

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   C. C. Riterposted 10 years ago

   I've taken it for years now for same reasons. I was on dilaudid for years and hated it. This drug has helped me immensely and the only side effect I had is it will make you sleep better. It will build up in your system as time progresses and thusly get better as time passes. I tolerate it very well. Hope this helps you.

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   sunstreeksposted 10 years ago

   Thanks CC. She is taking vicoden right now for pain from a surgery, but she says it does nothing for the neuropathy pain in her feet and hands.

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   C. C. Riterposted 10 years ago

   Most of my problems stemmed from too many damn Ct/Scans and MRIs. I wish the best for her, I really do.

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   sunstreeksposted 10 years ago

   Thank You!

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   rose0208posted 10 years ago

   hello,
   
   my fiancee has been taking neurontin 800mg three times a day for nerve pain. He has spinal cord injury and has severe nerve pain and only neurontin takes the pain away. We both think its a great drug and most popular. He didnt expereince any major side effects. Every drug has their bad side and good side. Your mommy will notice then right away. We know a lot of people on neurontin and no complaints. The drug will take couple of days to start working. I think she should defenitely try it with smaller dose and later can go higher. Dont start at a high dosage right away you will increase risk of getting the side  effects. Well  i think you shall try it. Remember if she starts taking it and been on it for months she cannot just stop taking it. She will need to wear herself off little by little. Do  not just stop she will get sick, take it off slow reduce the dosage, but only if she been on it for a long time. Also organic/herbal pain killers work great. I buy some at whole foods. Anyways I hope i helped you a little. Its just my opinion and expereince from my fiancee Good luck and i hope she feels better soon

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      Rebecca99posted 9 years agoin reply to this

      can you tell me what is the name of the organic/herbal pills you take for pain?

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   sunstreeksposted 10 years ago

   Thanks, Rose

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   Maddie Ruudposted 9 years ago

   I recently took it in an attempt to alleviate my 2+month constant headache.  It did nothing for me.  Absolutely nothing.  Didn't notice any side effects, but that just be because the pain overshadows all.

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   Jen's Solitudeposted 9 years ago

   Many people with MS take Neurontin for nerve pain and I was no exception. I have terrible nerve pain in my right leg only. I had to keep increasing the dosage and finally my neurologist suggested I give Lyrica a try. It has been working great for me. I did notice weight gain with Neurontin, and it is an unfortunate side effect for many who take the drug.

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      Glenn Raymondposted 9 years agoin reply to this

      My wife has genetic "aquired neuropathy" it affects every single nerve in her body, including her eyeballs.  It can cause blindness, sudden paralysis, heart failure all kinds of things.  The Dr. put her on neurontin, but he wanted her to take 600mg. 3 times a day.  She explained that she would be a lethargic vegie and asked if she could just take 100mg. 3 times a day and see how it worked out.  It is working well and we are both gad because otherwise she would be on oxycontin.  Neurontin makes her sleepy, throws her off balance once in a great while, though not bad and it does slow down her thought process a tad.  I don't notice it, but she says she does.
      
      I hope your mom does well with this medication.  I know meds. can be scary.  So often the cures and fixes have worse side effects than the illness itself.  Tell your mom we are all pulling for her.

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    Marisa Wrightposted 9 years ago

    My ex was given neurontin for epilepsy.  It didn't control it, so they kept upping the dose - and he kept having more seizures.  We decided the neurontin was actually causing them, because the higher the dose the more frequent the seizures. The specialist didn't agree - but we insisted he change the meds and the seizures stopped completely.
    
    A pity, because the drug had no side-effects that we noticed, whereas other epilepsy drugs tend to have that lethargic effect.

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    ralwusposted 9 years ago

    It works very well for me. I have much damage from too much radiation and chemo. the only drawback is getting out of bed for me, I sleep so well on it when I take it before bed when I am really in pain. I like it better than Dilaudid, I was on that for seven years.

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